Online focus groups as a tool to collect data in hard-to-include populations: examples from paediatric oncology
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BACKGROUND: The purpose of this article is to describe and evaluate the methodology of online focus group discussions within the setting of paediatric oncology. METHODS: Qualitative study consisting of separate moderated asynchronous online discussion groups with 7 paediatric cancer patients (aged 8-17), 11 parents, and 18 survivors of childhood cancer (aged 8-17 at diagnosis). RESULTS: All three participant groups could be actively engaged over a one-week period. Respondents highly valued the flexibility and convenience of logging in at their own time and place to join the discussion. Adolescent patients and survivors emphasized that the anonymity experienced made them feel comfortable to express their views in detail. The findings indicate a strong preference for online group discussions across all participant groups. CONCLUSION: The findings show that online focus group methodology is a feasible tool for collecting qualitative data within the setting of paediatric oncology, and may offer new opportunities to collect data in other hard-to-include populations. The evaluations seem to indicate that the online group discussions have given participants an opportunity to articulate their experiences and views in a way they might not have done in a traditional group discussion.
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Some studies have documented the advantages and comparability of in-person and virtual focus group data.
“Although virtual focus groups are a relatively new methodology, some studies have documented their advantages and the comparability of in-person and virtual focus group data.[24–28]”
From Perceived healthcare provider reactions to patient and caregiver use of online health communities (2014) · cites this paper as [28]
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- Authors
- Tates, K., Zwaanswijk, M., Otten, R., van Dulmen, S., Hoogerbrugge, P. M., Kamps, W. A., & Bensing, J. M.
- Affiliations
- Netherlands Institute for Health Services Research (NL)
- Radboud University Medical Center (NL)
- University Medical Center Groningen (NL)
- Utrecht University (NL)
- Corresponding author
- Tates, Kiek
- Venue
- BMC Medical Research Methodology
- Published
- 2009-03-03
- Volume
- 9
- Issue
- 1
- Pages
- 15-15
- ISSN
- 1471-2288 (ISSN-L)
- PMC
- PMC2653071
- OpenAlex
- W2141815831
- Cited by
- 226
- References
- 53
- Citations by year
- 2026: 5 · 2025: 8 · 2024: 12 · 2023: 18 · 2022: 23 · 2021: 31 · 2020: 11 · 2019: 14 · 2018: 9 · 2017: 17 · 2016: 14 · 2015: 13 · 2014: 15 · 2013: 15 · 2012: 8
- FWCI
- 21.57
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- Locations
- BMC Medical Research Methodology (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- University of Groningen research database (University of Groningen / Centre for Information Technology) (publishedVersion, cc-by)
- Data Archiving and Networked Services (DANS) (submittedVersion, other-oa)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
- Radboud Repository (Radboud University) (submittedVersion)
- Radboud Repository (Radboud University) (submittedVersion, other-oa)
- University of Groningen research database (University of Groningen / Centre for Information Technology) (submittedVersion, cc-by)
- Funders
- KWF Kankerbestrijding
- Topics
- Social Sciences › Sociology and Political Science › Focus Groups and Qualitative Methods
- Social Sciences › Sociology and Political Science › Survey Methodology and Nonresponse
- Social Sciences › Sociology and Political Science › Delphi Technique in Research
- Keywords
- online focus groups, pediatric oncology, childhood cancer, cancer survivors, parents of cancer patients, asynchronous online discussion, participant anonymity, patient and family experiences
- MeSH terms
- Humans, Medical Oncology, Online Systems, Pediatrics, Population, Focus Groups
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