How to integrate individual patient values and preferences in clinical practice guidelines? A research protocol
Open accessAbstract
BACKGROUND: Clinical practice guidelines are largely conceived as tools that will inform health professionals' decisions rather than foster patient involvement in decision making. The time now seems right to adapt clinical practice guidelines in such a way that both the professional's perspective as care provider and the patients' preferences and characteristics are being weighed equally in the decision-making process. We hypothesise that clinical practice guidelines can be adapted to facilitate the integration of individual patients' preferences in clinical decision making. This research protocol asks two questions: How should clinical practice guidelines be adapted to elicit patient preferences and to support shared decision making? What type of clinical decisions are perceived as most requiring consideration of individual patients' preferences rather than promoting a single best choice? METHODS: Stakeholders' opinions and ideas will be explored through an 18-month qualitative study. Data will be collected from in-depth individual interviews. A purposive sample of 20 to 25 key-informants will be selected among three groups of stakeholders: health professionals using guidelines (e.g., physicians, nurses); experts at the macro- and meso-level, including guideline and decision aids developers, policy makers, and researchers; and patient representatives. Ideas and recommendations expressed by stakeholders will be prioritized by nominal group technique in expert meetings. DISCUSSION: One-for-all guidelines do not account for differences in patients' characteristics and for their preferences for medical interventions and health outcomes, suggesting a need for flexible guidelines that facilitate patient involvement in clinical decision making. The question is how this can be achieved. This study is not about patient participation in guideline development, a closely related and important issue that does not however substitute for, or guarantee individual patient involvement in clinical decisions. The study results will provide the needed background for recommendations about potential effective and feasible strategies to ensure greater responsiveness of clinical practice guidelines to individual patient's preferences in clinical decision-making.
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
The literature confirms there is much debate about which stage of the research process is most appropriate for end-user involvement.
“the literature confirms that there is much debate about which stage of the research process is most appropriate for end-user involvement [34, 35].”
From Development of a decision guide to support the elderly in decision making about location of care: an iterative, user-centered design (2016) · cites this paper as [35]
The Discussion (Other considerations; page unavailable) says the purpose of patient involvement in guideline development is not straightforward and distinguishes collective involvement from individual patient preferences. It does not address debate over which stage of the research process is best for end-user involvement; searches for that phrase and for the timing of patient participation found no such passage. (LLM, conf=0.76)
Experimental — accuracy not yet measured
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Cites
Three Approaches to Qualitative Content Analysis
Hsieh, H.-F., & Shannon, S. E. (2005) · Qualitative Health Research · doi:10.1177/1049732305276687 · Cited by 44,601 · see citing works
GRADE: an emerging consensus on rating quality of evidence and strength of recommendations
Guyatt, G. H., Oxman, A. D., Vist, G. E., Kunz, R., Falck-Ytter, Y., Alonso-Coello, P., & Schünemann, H. J. (2008) · BMJ · doi:10.1136/bmj.39489.470347.ad · Cited by 23,305 · see citing works
Evidence based medicine: what it is and what it isn't
Sackett, D. L., Rosenberg, W. M. C., Gray, J. A. M., Haynes, R. B., & Richardson, W. S. (1996) · BMJ · doi:10.1136/bmj.312.7023.71 · Cited by 15,769 · see citing works
Why Don't Physicians Follow Clinical Practice Guidelines?: A Framework for Improvement
Cabana, M. D., Rand, C. S., Powe, N. R., Wu, A. W., Wilson, M. H., Abboud, P.-A. C., & Rubin, H. R. (1999) · JAMA · doi:10.1001/jama.282.15.1458 · Cited by 6,677 · see citing works
Boyd, C. M., Darer, J., Boult, C., Fried, L. P., Boult, L., & Wu, A. W. (2005) · JAMA · doi:10.1001/jama.294.6.716 · Cited by 2,581 · see citing works
Charles, C. A., Gafni, A., & Whelan, T. J. (1999) · Social Science & Medicine · doi:10.1016/s0277-9536(99)00145-8 · Cited by 2,336 · see citing works
Elwyn, G. (2006) · BMJ · doi:10.1136/bmj.38926.629329.ae · Cited by 1,824 · see citing works
Self-citationGoing from evidence to recommendations
Guyatt, G. H., Oxman, A. D., Kunz, R., Falck-Ytter, Y., Vist, G. E., Liberati, A., & Schünemann, H. J. (2008) · BMJ · doi:10.1136/bmj.39493.646875.ae · Cited by 1,810 · see citing works
Clinical practice guidelines : directions for a new program
Field, M. J., & Lohr, K. N. (1990) · Cited by 1,426 · see citing works
Légaré, F., Ratté, S., Gravel, K., & Graham, I. D. (2008) · Patient Education and Counseling · doi:10.1016/j.pec.2008.07.018 · Cited by 1,321 · see citing works
Self-citationJoosten, E. A. G., DeFuentes-Merillas, L., de Weert, G. H., Sensky, T., van der Staak, C. P. F., & de Jong, C. A. J. (2008) · Psychotherapy and Psychosomatics · doi:10.1159/000126073 · Cited by 1,135 · see citing works
Grol, R., Dalhuijsen, J., Thomas, S., Veld, C. I. ‘., Rutten, G., & Mokkink, H. (1998) · BMJ · doi:10.1136/bmj.317.7162.858 · Cited by 877 · see citing works
Institute of Medicine (1990) · National Academies Press eBooks · doi:10.17226/1626 · Cited by 807 · see citing works
(2000) · Europe PMC (PubMed Central) · Cited by 737 · see citing works
Self-citationBensing, J. M. (2000) · Patient Education and Counseling · doi:10.1016/s0738-3991(99)00087-7 · Cited by 703 · see citing works
Patients’ preference for involvement in medical decision making: A narrative review
Say, R., Murtagh, M. J., & Thomson, R. (2005) · Patient Education and Counseling · doi:10.1016/j.pec.2005.02.003 · Cited by 633 · see citing works
Improving Patient Care: The Implementation of Change in Clinical Practice
Grol, R. P. T. M., Wensing, M., Eccles, M., Davis, D., & Wensign, M. (2005) · Cited by 553 · see citing works
Partnerships with Patients: The Pros and Cons of Shared Clinical Decision-Making
Coulter, A. (1997) · Journal of Health Services Research & Policy · doi:10.1177/135581969700200209 · Cited by 485 · see citing works
Kiesler, D. J., & Auerbach, S. M. (2005) · Patient Education and Counseling · doi:10.1016/j.pec.2005.08.002 · Cited by 479 · see citing works
Elwyn, G. J., O'Connor, A. M. C., Bennett, C. L., Newcombe, R. G., Politi, M. C., Durand, M., Drake, E. R., Joseph‐Williams, N., Khangura, S. D., Saarimaki, A., et al. (2009) · PLoS ONE · doi:10.1371/journal.pone.0004705 · Cited by 467 · see citing works
Self-citationDevereaux, P. J., Fahey, T., Anderson, D. R., Gardner, M. J., Putnam, W., Flowerdew, G. J., Brownell, B. F., Nagpal, S., & Cox, J. L. (2001) · BMJ · doi:10.1136/bmj.323.7323.1218 · Cited by 421 · see citing works
Hoes, J. N., Jacobs, J. W. G., Boers, M., Boumpas, D., Buttgereit, F., Caeyers, N., Choy, E., Cutolo, M., da Silva, J. A. P., Esselens, G., et al. (2007) · Annals of the Rheumatic Diseases · doi:10.1136/ard.2007.072157 · Cited by 410 · see citing works
Towards evidence-based clinical practice: an international survey of 18 clinical guideline programs
Burgers, J. S. (2003) · International Journal for Quality in Health Care · doi:10.1093/intqhc/15.1.31 · Cited by 334 · see citing works
Self-citationShared decision-making in health care: Achieving evidence-based patient choice
Edwards, A., & Elwyn, G. J. (2009) · doi:10.1093/oso/9780199546275.003.0001 · Cited by 327 · see citing works
Self-citationKirwan, J., Minnock, P., Adebajo, A., Bresnihan, B., Choy, E., de Wit, M. P. T., Hazes, M. J. M. W., Richards, P., Saag, K. G., Suarez-Almazor, M. E., et al. (2007) · PubMed · Cited by 315 · see citing works
Patients' preferences within randomised trials: systematic review and patient level meta-analysis
Preference Collaborative Review Group (2008) · BMJ · doi:10.1136/bmj.a1864 · Cited by 302 · see citing works
Reassessment of Clinical Practice Guidelines
Shaneyfelt, T. M., & Centor, R. M. (2009) · JAMA · doi:10.1001/jama.2009.225 · Cited by 293 · see citing works
O'Connor, A. M. C., Stacey, D., Barry, M. J., Col, N. F., Eden, K., Entwistle, V. A., Fiset, V., Holmes-Rovner, M. M., Khangura, S. D., Llewellyn‐Thomas, H. A., et al. (2007) · Medical Decision Making · doi:10.1177/0272989x07307319 · Cited by 267 · see citing works
The Next Step in Guideline Development
Krahn, M. D., & Naglie, G. (2008) · JAMA · doi:10.1001/jama.300.4.436 · Cited by 265 · see citing works
Improving the Use of Research Evidence in Guideline Development
Oxman, A. D., Schünemann, H. J., Fretheim, A., Boyd, E. A., Bero, L. A., & Edejer, T. T.-T. (2007) · BIBSYS Brage (BIBSYS (Norway)) · Cited by 259 · see citing works
Barratt, A. L. (2008) · Patient Education and Counseling · doi:10.1016/j.pec.2008.07.054 · Cited by 234 · see citing works
Improving Health Care by Understanding Patient Preferences: The Role of Computer Technology
BRENNAN, P. F., & Strombom, I. (1998) · Journal of the American Medical Informatics Association · doi:10.1136/jamia.1998.0050257 · Cited by 224 · see citing works
Boivin, A., Currie, K., Fervers, B., Gracia, J., James, M., Marshall, C., Sakala, C., Sanger, S., Strid, J., Thomas, V., et al. (2010) · BMJ Quality & Safety · doi:10.1136/qshc.2009.034835 · Cited by 201 · see citing works
Self-citationProtheroe, J. (2001) · Western Journal of Medicine · doi:10.1136/ewjm.174.5.311 · Cited by 201 · see citing works
Schünemann, H. J., Fretheim, A., & Oxman, A. D. (2006) · Health Research Policy and Systems · doi:10.1186/1478-4505-4-22 · Cited by 167 · see citing works
Elwyn, G., Légaré, F., Weijden, T. V. D., Edwards, A., & May, C. (2008) · Implementation Science · doi:10.1186/1748-5908-3-57 · Cited by 159 · see citing works
Self-citationDecision analysis in patient care
Elwyn, G. J., Edwards, A., Eccles, M., & Rovner, D. R. (2001) · The Lancet · doi:10.1016/s0140-6736(01)05709-9 · Cited by 129 · see citing works
Self-citationReconsidering Patient Participation in Guideline Development
van de Bovenkamp, H., & Trappenburg, M. J. (2008) · Health Care Analysis · doi:10.1007/s10728-008-0099-3 · Cited by 122 · see citing works
Has patients’ involvement in the decision‐making process changed over time?
van den Brink-Muinen, A., van Dulmen, S., de Haes, J. C. J. M., Visser, A. P., Schellevis, F., & Bensing, J. M. (2006) · Health Expectations · doi:10.1111/j.1369-7625.2006.00413.x · Cited by 117 · see citing works
Pieterse, A. H., Baas-Thijssen, M. C. M., Marijnen, C. A. M., & Stiggelbout, A. M. (2008) · British Journal of Cancer · doi:10.1038/sj.bjc.6604611 · Cited by 116 · see citing works
Self-citationA vision statement on guideline development for respiratory disease: the example of COPD
Schünemann, H. J., Woodhead, M. A., Anzueto, A., Buist, S. A., MacNee, W., Rabe, K. F., & Heffner, J. E. (2008) · The Lancet · doi:10.1016/s0140-6736(08)61347-1 · Cited by 81 · see citing works
Why Consider Patients’ Preferences?
Boivin, A., Green, J., van der Meulen, J., Légaré, F., & Nolte, E. (2009) · Medical Care · doi:10.1097/mlr.0b013e3181a81158 · Cited by 78 · see citing works
Self-citationPatient Preferences and the Development of Practice Guidelines
Owens, D. K. (1998) · Spine · doi:10.1097/00007632-199805010-00023 · Cited by 77 · see citing works
Nease, R. F., & Owens, D. K. (1994) · Medical Decision Making · doi:10.1177/0272989x9401400409 · Cited by 72 · see citing works
Considered judgement in evidence-based guideline development
Verkerk, K., van Veenendaal, H., Severens, J. L., Hendriks, E., & Burgers, J. S. (2006) · International Journal for Quality in Health Care · doi:10.1093/intqhc/mzl040 · Cited by 64 · see citing works
Self-citationAdding "value" to clinical practice guidelines.
McCormack, J. P., & Loewen, P. S. (2007) · PubMed · Cited by 64 · see citing works
Raising the Standard: Practice Guidelines and Consumer Participation
Bastian, H. (1996) · International Journal for Quality in Health Care · doi:10.1093/intqhc/8.5.485 · Cited by 63 · see citing works
A generic tool for development of decision aids based on clinical practice guidelines
Raats, C. J. I., van Veenendaal, H., Versluijs, M. M., & Burgers, J. S. (2008) · Patient Education and Counseling · doi:10.1016/j.pec.2008.07.038 · Cited by 53 · see citing works
Self-citationEvidence‐based medicine in practice: limiting or facilitating patient choice?
Rogers, W. (2002) · Health Expectations · doi:10.1046/j.1369-6513.2002.00168.x · Cited by 53 · see citing works
Using decision aids to help patients navigate the "grey zone" of medical decision-making
O'Connor, A. M. C. (2007) · Canadian Medical Association Journal · doi:10.1503/cmaj.070490 · Cited by 48 · see citing works
Boivin, A., Légaré, F., & Gagnon, M. (2008) · Journal of Health Services Research & Policy · doi:10.1258/jhsrp.2007.007052 · Cited by 47 · see citing works
Self-citationConcordance in Medical Consultations: A Critical Review
Pollock, K. (2006) · Cited by 42 · see citing works
Eddy, D. M. (1991) · JAMA · doi:10.1001/jama.1991.03460010105043 · Cited by 39 · see citing works
Alonso-Coello, P., Montori, V. M., Solà, I., Schünemann, H. J., Devereaux, P. J., Charles, C., Roura, M., Díaz, M. G., Souto, J. C., Alonso, R., et al. (2008) · BMC Health Services Research · doi:10.1186/1472-6963-8-221 · Cited by 39 · see citing works
Incorporating Patient Preferences in Evidence-Based Medicine—Reply
Krahn, M. D. (2008) · JAMA · doi:10.1001/jama.2008.731 · Cited by 39 · see citing works
Oppenheim, P. I., Sotiropoulos, G., & Baraff, L. J. (1994) · Annals of Emergency Medicine · doi:10.1016/s0196-0644(94)70201-2 · Cited by 33 · see citing works
Whatever happened to shared decision‐making?
Coulter, A. (2002) · Health Expectations · doi:10.1046/j.1369-6513.2002.00190.x · Cited by 31 · see citing works
Development process of an evidence-based guideline for the treatment of obesity
Gandjour, A. (2001) · International Journal for Quality in Health Care · doi:10.1093/intqhc/13.4.325 · Cited by 22 · see citing works
Légaré, F., Boivin, A., van der Weijden, T., Packenham, C., Tapp, S., & Burgers, J. S. (2009) · Implementation Science · doi:10.1186/1748-5908-4-30 · Cited by 21 · see citing works
Self-citationShared decision-making in the Netherlands – current state and future perspectives
van der Weijden, T., van Veenendaal, H., & Timmermans, D. R. M. (2007) · Zeitschrift für ärztliche Fortbildung und Qualität im Gesundheitswesen - German Journal for Quality in Health Care · doi:10.1016/j.zgesun.2007.02.022 · Cited by 20 · see citing works
Clinical decision making: from theory to practice. Rationing by patient choice
Eddy, D. M. (1991) · JAMA · doi:10.1001/jama.265.1.105 · Cited by 20 · see citing works
Decision technologies as normative instruments: Exposing the values within
Boivin, A., Légaré, F., & Lehoux, P. (2008) · Patient Education and Counseling · doi:10.1016/j.pec.2008.07.017 · Cited by 17 · see citing works
Self-citationClinical practice guidelines: weapons for patients, or shields for MDs?
Gilmore, A. (1993) · PubMed · Cited by 13 · see citing works
The development of a national guideline on the management of leg ulcers
McInnes, E., Cullum, N. A., Nelson, E. A., Luker, K. A., & Duff (2000) · Journal of Clinical Nursing · doi:10.1046/j.1365-2702.2000.00369.x · Cited by 12 · see citing works
Latoszek-Berendsen, A., Talmon, J. L., de Clercq, P. A., & Hasman, A. (2007) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2007.05.012 · Cited by 12 · see citing works
Saltman, D. C. (1998) · Journal of Evaluation in Clinical Practice · doi:10.1046/j.1365-2753.1998.t01-1-00001.x · Cited by 10 · see citing works
Patient-Provider Agreement on Guidelines for Preparation for Breast Cancer Treatment
Schofield, M. J., Walkom, S., & Sanson‐Fisher, R. (1997) · Behavioral Medicine · doi:10.1080/08964289709596365 · Cited by 10 · see citing works
Llewellyn‐Thomas, H. A. (2006) · Health Expectations · doi:10.1111/j.1369-7625.2006.00418.x · Cited by 10 · see citing works
Timmins, F. (2006) · Nursing Standard · doi:10.7748/ns.20.25.37.s40 · Cited by 6 · see citing works
Flagged first, then by citations
1 of the 71 references couldn’t be matched to a known paper.
Cited by
Sorted by citations
Guiding Principles for the Care of Older Adults with Multimorbidity: An Approach for Clinicians
American Geriatrics Society Expert Panel on the Care of Older Adults with Multimorbidity (2012) · Journal of the American Geriatrics Society · doi:10.1111/j.1532-5415.2012.04188.x · Cited by 667 · see citing works
Management of Patients With Venous Leg Ulcers: Challenges and Current Best Practice
Franks, P. J., Barker, J., Collier, M. A., Gethin, G., Haesler, E., Jawień, A., Laeuchli, S., Mosti, G. B., Probst, S., & Weller, C. D. (2016) · Journal of Wound Care · doi:10.12968/jowc.2016.25.sup6.s1 · Cited by 312 · see citing works
Shekelle, P., Woolf, S. H., Grimshaw, J., Schünemann, H. J., & Eccles, M. (2012) · Implementation Science · doi:10.1186/1748-5908-7-62 · Cited by 294 · see citing works
Zhang, Y., Alonso‐Coello, P., Guyatt, G. H., Yepes-Núñez, J. J., Akl, E. A., Hazlewood, G. S., Hernandez, H. P., Etxeandia‐Ikobaltzeta, I., Qaseem, A., Williams, J. W., et al. (2018) · Journal of Clinical Epidemiology · doi:10.1016/j.jclinepi.2018.01.013 · Cited by 281 · see citing works
Perceived barriers to guideline adherence: A survey among general practitioners
Lugtenberg, M., Burgers, J., Besters, C. F., Han, D., & Westert, G. (2011) · BMC Family Practice · doi:10.1186/1471-2296-12-98 · Cited by 253 · see citing works
Self-citationPhysical activity motives, barriers, and preferences in people with obesity: A systematic review
Baillot, A., Chenail, S., Polita, N. B., Simoneau, M., Libourel, M., Nazon, É., Riesco, É., Bond, D. S., & Romain, A. J. (2021) · PLoS ONE · doi:10.1371/journal.pone.0253114 · Cited by 203 · see citing works
Patient and Public Involvement in Clinical Practice Guidelines
Légaré, F., Boivin, A., van der Weijden, T., Packenham, C., Burgers, J. S., Legare, J. F., St‐Jacques, S., & Gagnon, S. (2011) · Medical Decision Making · doi:10.1177/0272989x11424401 · Cited by 161 · see citing works
Self-citationHärter, M. C., van der Weijden, T., & Elwyn, G. J. (2011) · Zeitschrift für Evidenz Fortbildung und Qualität im Gesundheitswesen · doi:10.1016/j.zefq.2011.04.018 · Cited by 163 · see citing works
Self-citationZhang, Y., Alonso‐Coello, P., Brożek, J., Wiercioch, W., Etxeandia‐Ikobaltzeta, I., Akl, E. A., Meerpohl, J. J., Alhazzani, W. A., Carrasco‐Labra, A., Morgan, R. L., et al. (2017) · Health and Quality of Life Outcomes · doi:10.1186/s12955-017-0621-0 · Cited by 152 · see citing works
Clinical practice guidelines and patient decision aids. An inevitable relationship
van der Weijden, T., Boivin, A., Burgers, J. S., Schünemann, H. J., & Elwyn, G. J. (2012) · Journal of Clinical Epidemiology · doi:10.1016/j.jclinepi.2011.10.007 · Cited by 118 · see citing works
Self-citationvan der Weijden, T., Pieterse, A. H., Loon, M. S. K.-V., Knaapen, L., Légaré, F., Boivin, A., Burgers, J. S., Stiggelbout, A. M., Faber, M. J., & Elwyn, G. J. (2013) · BMJ Quality & Safety · doi:10.1136/bmjqs-2012-001502 · Cited by 104 · see citing works
Self-citationBastemeijer, C. M., Voogt, L. P., van Ewijk, H., & Hazelzet, J. A. (2016) · Patient Education and Counseling · doi:10.1016/j.pec.2016.12.019 · Cited by 99 · see citing works
What phytotherapy needs: Evidence‐based guidelines for better clinical practice
Colalto, C. (2017) · Phytotherapy Research · doi:10.1002/ptr.5977 · Cited by 98 · see citing works
Incorporating patients' views in guideline development: a systematic review of guidance documents
Selva, A., Sanabria, A. J., Pequeño, S., Zhang, Y., Solà, I., Hernandez, H. P., Olid, C. S., Schünemann, H. J., & Alonso‐Coello, P. (2017) · Journal of Clinical Epidemiology · doi:10.1016/j.jclinepi.2017.05.018 · Cited by 78 · see citing works
Mechanick, J. I., Marchetti, A. E., Apovian, C. M., Benchimol, A. K., Bisschop, P. H. L. T., Galvis, A. B., Hegazi, R. A. F., Jenkins, D. J. A., Mendoza, E., Sanz, M. L., et al. (2012) · Current Diabetes Reports · doi:10.1007/s11892-012-0253-z · Cited by 69 · see citing works
Selva, A., Solà, I., Zhang, Y., Hernandez, H. P., Haynes, R. B., García, L. M., Navarro, T., Schünemann, H. J., & Alonso‐Coello, P. (2017) · Health and Quality of Life Outcomes · doi:10.1186/s12955-017-0698-5 · Cited by 62 · see citing works
Etxeandia‐Ikobaltzeta, I., Zhang, Y., Brundisini, F. K., Flórez, I. D., Wiercioch, W., Nieuwlaat, R., Begum, H., Cuello‐García, C. A., Roldán, Y., Chen, R., et al. (2020) · Blood Advances · doi:10.1182/bloodadvances.2019000462 · Cited by 59 · see citing works
Taylor‐Phillips, S., Geppert, J., Stinton, C., Freeman, K., Johnson, S. A., Fraser, H., Sutcliffe, P. A., & Clarke, A. (2017) · Research Synthesis Methods · doi:10.1002/jrsm.1255 · Cited by 58 · see citing works
Shingler, S. L., Bennett, B. M., Cramer, J. A., Towse, A., Twelves, C., & Lloyd, A. J. (2014) · Current Medical Research and Opinion · doi:10.1185/03007995.2014.952715 · Cited by 55 · see citing works
Garvelink, M. M., Emond, J., Menear, M., Brière, N., Freitas, A., Boland, L., Perez, M. M. B., Blair, L., Stacey, D., & Légaré, F. (2016) · Research Involvement and Engagement · doi:10.1186/s40900-016-0040-0 · Cited by 45 · see citing works
Self-citationWilk, S., Michalowski, M., Michalowski, W., Rosu, D., Carrier, M., & Kezadri-Hamiaz, M. (2017) · Journal of Biomedical Informatics · doi:10.1016/j.jbi.2016.12.002 · Cited by 53 · see citing works
How do general practitioners and patients make decisions about cardiovascular disease risk?
Bonner, C., Jansen, J., McKinn, S., Irwig, L., Doust, J. A., Glasziou, P., & McCaffery, K. J. (2014) · Health Psychology · doi:10.1037/hea0000122 · Cited by 49 · see citing works
Attitudes and Perceptions about Clinical Guidelines: A Qualitative Study with Spanish Physicians
Solà, I., Carrasco, J. M., del Campo, P. D., Gracia, J., Orrego, C., Martínez, F., Kotzeva, A., Guillamón, I., Calderón, E. J., Gaminde, I., et al. (2014) · PLoS ONE · doi:10.1371/journal.pone.0086065 · Cited by 47 · see citing works
What Do Patients Want? Patient Preference in Wound Care
Corbett, L. Q., & Ennis, W. J. (2013) · Advances in Wound Care · doi:10.1089/wound.2013.0458 · Cited by 47 · see citing works
O’Brien, K. K., Solomon, P. E., Trentham, B., MacLachlan, D., MacDermid, J. C., Tynan, A., Baxter, L. N., Casey, A., Chegwidden, W., Robinson, G., et al. (2014) · BMJ Open · doi:10.1136/bmjopen-2013-004692 · Cited by 46 · see citing works
An evidence‐based guideline on treating lumbar disc herniation with traditional Chinese medicine
Qin, X., Sun, K., Xu, W., Gao, J., Jiang, H., Chen, W., Zhang, L., Li, Z., Li, W., Yuan, P., et al. (2024) · Journal of Evidence-Based Medicine · doi:10.1111/jebm.12598 · Cited by 45 · see citing works
With the PMC study team, Templeton, A. R., Young, L. C., Bish, A., Gnich, W., Cassie, H., Treweek, S. P., Bonetti, D. L., Stirling, D., MacPherson, L. M. D., et al. (2015) · Implementation Science · doi:10.1186/s13012-015-0366-2 · Cited by 45 · see citing works
Developing an Atrial Fibrillation Guideline Support Tool (AFGuST) for shared decision making
Eckman, M. H., Wise, R. E., Naylor, K., Arduser, L., Lip, G. Y. H., D, B. M. K. M., Flaherty, M. L., Kleindorfer, D., Khan, F., Schauer, D. P., et al. (2015) · Current Medical Research and Opinion · doi:10.1185/03007995.2015.1019608 · Cited by 41 · see citing works
Johnston, A., Hsieh, S., Carrier, M., Kelly, S., Bai, Z., Skidmore, B., & Wells, G. A. (2018) · PLoS ONE · doi:10.1371/journal.pone.0207410 · Cited by 40 · see citing works
Patient values in physiotherapy practice, a qualitative study
Bastemeijer, C. M., van Ewijk, H., Hazelzet, J. A., & Voogt, L. P. (2020) · Physiotherapy Research International · doi:10.1002/pri.1877 · Cited by 38 · see citing works
Allen, M., Salsberg, J., Knot, M., LeMaster, J. W., Felzien, M., Westfall, J. M., Herbert, C. P., Vickery, K. D., Culhane‐Pera, K. A., Ramsden, V. R., et al. (2016) · Family Practice · doi:10.1093/fampra/cmw074 · Cited by 37 · see citing works
Prospects and Challenges for Clinical Decision Support in the Era of Big Data
Naqa, I. E., Kosorok, M. R., Jin, J., Mierzwa, M. L., & Haken, R. K. T. (2018) · JCO Clinical Cancer Informatics · doi:10.1200/cci.18.00002 · Cited by 35 · see citing works
Patient value: Perspectives from the advocacy community
Addario, B. J., Fadich, A., Fox, J., Krebs, L. U., Maskens, D. A., Oliver, K. R., Schwartz, E. C., Spurrier‐Bernard, G., & Turnham, T. J. (2017) · Health Expectations · doi:10.1111/hex.12628 · Cited by 35 · see citing works
Guideline of guidelines: primary monotherapies for localised or locally advanced prostate cancer
Lancee, M., Tikkinen, K. A. O., de Reijke, T. M., Kataja, V. V., Aben, K. K. H., & Vernooij, R. W. M. (2018) · British Journal of Urology · doi:10.1111/bju.14237 · Cited by 35 · see citing works
Molina, J. T., Robledillo, J. C. L., & Casamira, N. (2021) · Drug Healthcare and Patient Safety · doi:10.2147/dhps.s290771 · Cited by 32 · see citing works
Pittens, C. A. C. M., Noordegraaf, A. V., van Veen, S. C., Anema, J. R., Huirne, J. A. F., & Broerse, J. E. W. (2013) · Health Expectations · doi:10.1111/hex.12121 · Cited by 32 · see citing works
Shared Decision Making Does Not Influence Physicians against Clinical Practice Guidelines
Guerrier, M., Légaré, F., Turcotte, S., Labrecque, M., & Rivest, L. (2013) · PLoS ONE · doi:10.1371/journal.pone.0062537 · Cited by 31 · see citing works
Self-citationArchambault, P. M. (2011) · Journal of Medical Internet Research · doi:10.2196/jmir.1961 · Cited by 32 · see citing works
Assessment of Medical Students’ Shared Decision-Making in Standardized Patient Encounters
Hauer, K. E., Fernández, A., Teherani, A., Boscardin, C., & Saba, G. W. (2010) · Journal of General Internal Medicine · doi:10.1007/s11606-010-1567-7 · Cited by 30 · see citing works
Eiring, Ø., Nylenna, M., & Nytrøen, K. (2015) · Patient · doi:10.1007/s40271-015-0128-x · Cited by 29 · see citing works
A Review on the Current Treatment Paradigm in High-Risk Prostate Cancer
Burgess, L., Roy, S., Morgan, S. C., & Malone, S. C. (2021) · Cancers · doi:10.3390/cancers13174257 · Cited by 30 · see citing works
Moving SDM forward in Canada: milestones, public involvement, and barriers that remain
Légaré, F., Stacey, D., Forest, P., & Coutu, M. (2011) · Zeitschrift für Evidenz Fortbildung und Qualität im Gesundheitswesen · doi:10.1016/j.zefq.2011.04.011 · Cited by 30 · see citing works
Self-citationMotives, barriers and preferences to physical activity in people with obesity: a systematic reviewPreprint
Baillot, A., Chenail, S., Polita, N. B., Simoneau, M., Libourel, M., Nazon, É., Riesco, É., Bond, D. S., & Romain, A. J. (2021) · doi:10.31236/osf.io/rvaw3 · Cited by 30 · see citing works
Pilbeam, C., Tonkin-Crine, S., Martindale, A.-M., Atkinson, P., Mableson, H., Lant, S., Solomon, T., Sheard, S., & Gobat, N. (2022) · Qualitative Health Research · doi:10.1177/10497323211067772 · Cited by 20 · see citing works
Gagné, M. E., Légaré, F., Moisan, J., & Boulet, L. (2017) · PLoS ONE · doi:10.1371/journal.pone.0170055 · Cited by 26 · see citing works
Self-citationKnaapen, L., & Lehoux, P. (2016) · Science as Culture · doi:10.1080/09505431.2015.1125875 · Cited by 26 · see citing works
Bellon, F., Beti‐Abad, A., Pastells‐Peiró, R., Casado‐Ramírez, E., Moreno‐Casbas, T., Gea‐Sánchez, M., & Abad‐Corpa, E. (2022) · Journal of Clinical Nursing · doi:10.1111/jocn.16251 · Cited by 22 · see citing works
VELDE, D. V. D., Bracke, P., Hove, G. V., Josephsson, S., Devisch, I., & Vanderstraeten, G. (2011) · Disability and Rehabilitation · doi:10.3109/09638288.2011.608149 · Cited by 22 · see citing works
Yepes-Núñez, J. J., Zhang, Y., Xie, F., Alonso‐Coello, P., Selva, A., Schünemann, H. J., & Guyatt, G. H. (2017) · Journal of Clinical Epidemiology · doi:10.1016/j.jclinepi.2017.04.019 · Cited by 22 · see citing works
Leveraging Electronic Tablets for General Pediatric Care
McKee, S. J., Dugan, T. M., Downs, S. M., & Anand, V. (2015) · Applied Clinical Informatics · doi:10.4338/aci-2014-09-ra-0071 · Cited by 21 · see citing works
Clayton, G. L., Smith, I. L., Higgins, J. P. T., Mihaylova, B., Thorpe, B., Cicero, R., Lokuge, K., Forman, J., Tierney, J. F., White, I. R., et al. (2017) · Trials · doi:10.1186/s13063-017-1955-y · Cited by 22 · see citing works
Lam, C. S., Zhou, K. R., Loong, H. H.-F., Chung, V. C., Ngan, C.-K., & Cheung, Y. T. (2023) · Journal of Medical Internet Research · doi:10.2196/45408 · Cited by 20 · see citing works
Gans, E. A., van Mun, L., de Groot, J. F., Munster, B. C. V., Rake, E. A., van Weert, J. C. M., Festen, S., & van den Bos, F. (2023) · Patient Education and Counseling · doi:10.1016/j.pec.2023.107981 · Cited by 19 · see citing works
Joyce, K. E., Lord, S. W., Matlock, D. D., McComb, J. M., & Thomson, R. (2012) · Journal of Interventional Cardiac Electrophysiology · doi:10.1007/s10840-012-9762-6 · Cited by 19 · see citing works
Adé, A., Debroucker, F., Delporte, L., Monclin, C. D., Fayet, E., Legendre, P., Radoszycki, L., & Chekroun, M. (2020) · BMC Health Services Research · doi:10.1186/s12913-020-05373-5 · Cited by 17 · see citing works
EUROPLAN: A Project to Support the Development of National Plans on Rare Diseases in Europe
Taruscio, D., Gentile, A. E., Santis, M. D., Ferrelli, R. M., de la Paz, M. P., Hens, M. J., Huizer, J., Fregonese, L., Stefanov, R. S., Bottarelli, V., et al. (2013) · Public Health Genomics · doi:10.1159/000355932 · Cited by 17 · see citing works
Lu, W., Wang, X., Zhao, J., & Zhai, Y. (2020) · BMC Medical Informatics and Decision Making · doi:10.1186/s12911-020-01155-5 · Cited by 16 · see citing works
Balneaves, L. G., Truant, T. L. O., Patten, C. L. V., Kirkham, A. A., Waters, E., & Campbell, K. L. (2020) · Journal of Clinical Medicine · doi:10.3390/jcm9092815 · Cited by 16 · see citing works
GRADE summary of findings tables enhanced understanding of values and preferences evidence
Zhang, Y., Li, S., Yepes-Núñez, J. J., Morgan, R. L., Hernandez, H. P., Alonso‐Coello, P., Ren, M., Mirza, R. D., Guyatt, G. H., & Schünemann, H. J. (2022) · Journal of Clinical Epidemiology · doi:10.1016/j.jclinepi.2022.03.007 · Cited by 15 · see citing works
Value discrepancies between nurses and patients: A survey study
Humbeeck, L. V., Malfait, S., Holvoet, E., Vogelaers, D., Pauw, M. D., Noortgate, N. V. D., & Biesen, W. V. (2020) · Nursing Ethics · doi:10.1177/0969733020906595 · Cited by 15 · see citing works
DBS-Edmonton App, a Tool to Manage Patient Expectations of DBS in Parkinson Disease
Yen, K., Miyasaki, J. M., Waldron, M., Yu, L., Sankar, T., & Ba, F. (2020) · Neurology Clinical Practice · doi:10.1212/cpj.0000000000000962 · Cited by 15 · see citing works
Reno, J. E., Sevick, C. J., Maertens, J., & Dempsey, A. F. (2022) · Journal of Behavioral Medicine · doi:10.1007/s10865-022-00340-3 · Cited by 11 · see citing works
Dumont, M., Thériault, J., Briand, C., Dumais, A., & Potvin, S. (2018) · Journal of Forensic Practice · doi:10.1108/jfp-11-2017-0049 · Cited by 11 · see citing works
Ernstzen, D. V., Hillier, S., & Louw, Q. A. (2019) · BMC Medical Research Methodology · doi:10.1186/s12874-019-0771-3 · Cited by 11 · see citing works
Colorectal cancer guidelines seldom include the patient perspective
Selva, A., Sanabria, A. J., de Guzmán, E. N., Ballesteros, M., Olid, C. S., Valli, C., Zhang, Y., Yepes-Núñez, J. J., Solà, I., Schünemann, H. J., et al. (2019) · Journal of Clinical Epidemiology · doi:10.1016/j.jclinepi.2019.08.008 · Cited by 10 · see citing works
“Passing Out is a Serious Thing”: Patient Expectations for Syncope Evaluation and Management
Clouser, J. M., Sirrine, M., McMullen, C. A., Cowley, A., Smyth, S. S., Gupta, V. A., Williams, M. V., & Li, J. (2021) · Patient Preference and Adherence · doi:10.2147/ppa.s307186 · Cited by 10 · see citing works
Recommendations for Improving the Quality of Prehospital Evidence-Based Guidelines
Martin‐Gill, C., Panchal, A. R., Cash, R. E., Richards, C. T., Brown, K., Patterson, P. D., & for the Prehospital Guidelines Consortium (2022) · Prehospital Emergency Care · doi:10.1080/10903127.2022.2142992 · Cited by 10 · see citing works
Oostendorp, R. A. B., Elvers, H., van Trijffel, E., Rutten, G. M., Scholten-Peeters, G. G. M., Heijmans, M., Hendriks, E., Mikołajewska, E., Kooning, M. D., Laekeman, M., et al. (2018) · Patient Preference and Adherence · doi:10.2147/ppa.s179808 · Cited by 10 · see citing works
Kuziemsky, C. E., Jewers, H., Appleby, B., Foshay, N., MacCaull, W., Miller, K., & Macdonald, M. (2011) · Informatics for Health and Social Care · doi:10.3109/17538157.2011.613553 · Cited by 10 · see citing works
Florczak, K. L. (2016) · Nursing Science Quarterly · doi:10.1177/0894318416630096 · Cited by 10 · see citing works
Waljee, A. K., Ryan, K. A., Krenz, C. D., Ioannou, G. N., Beste, L. A., Tincopa, M. A., Saini, S. D., Su, G. L., Arasim, M. E., Roman, P. T., et al. (2020) · BMC Health Services Research · doi:10.1186/s12913-020-05211-8 · Cited by 9 · see citing works
Solomon, P. E., O’Brien, K. K., Baxter, L. N., MacLachlan, D., & Robinson, G. (2016) · Progress in community health partnerships · doi:10.1353/cpr.2016.0008 · Cited by 9 · see citing works
Kaiser, L., Hübscher, M., Rissling, O., Schulz, S., Langer, G., Meerpohl, J. J., & Schwingshackl, L. (2021) · Zeitschrift für Evidenz Fortbildung und Qualität im Gesundheitswesen · doi:10.1016/j.zefq.2020.11.004 · Cited by 8 · see citing works
The Contribution of Treatment Allocation Method to Outcomes in Intervention Research
Sidani, S., Epstein, D. R., Bootzin, R. R., Miranda, J., & Cousins, J. C. (2015) · Canadian Journal of Nursing Research · doi:10.1177/084456211504700205 · Cited by 8 · see citing works
Lee, D., Yoo, S., Shin, E., & Cho, Y. (2018) · Journal of Audiology & Otology · doi:10.7874/jao.2018.00101 · Cited by 8 · see citing works
van der Weijden, T., & Lennep, A. S.-V. (2012) · Huisarts en Wetenschap · doi:10.1007/s12445-012-0256-7 · Cited by 7 · see citing works
Lamontagne, M., Perreault, K., & Gagnon, M. (2014) · Trials · doi:10.1186/1745-6215-15-118 · Cited by 7 · see citing works
Lüdecke, D. (2014) · International Journal of Integrated Care · doi:10.5334/ijic.1361 · Cited by 7 · see citing works
Expanding a First-Order Logic Mitigation Framework to Handle Multimorbid Patient Preferences.
Michalowski, M., Szymon Wilk, A., Roşu, D., Hamiaz, M. K., Michalowski, W. J., & Carrier, M. (2015) · PubMed Central · Cited by 7 · see citing works
Espinoza, M., Manca, A., Claxton, K., & Sculpher, M. J. (2017) · Health Economics · doi:10.1002/hec.3559 · Cited by 7 · see citing works
Medico-Economic Standards in Russia: Balancing Legal Requirements and Patients Needs
Kamenshchikova, A. (2017) · Springer eBooks · doi:10.1007/978-3-319-64149-2_5 · Cited by 7 · see citing works
Lamontagne, M., Gagnon, M., Perreault, K., & Gauthier, V. (2021) · Journal of Participatory Medicine · doi:10.2196/24319 · Cited by 6 · see citing works
STANDING Collaboration: a study protocol for developing clinical standards
Wiles, L., Hibbert, P. D., Stephens, J. H., Coiera, E. W., Westbrook, J. I., Braithwaite, J., Day, R. O., Hillman, K., & Runciman, W. B. (2017) · BMJ Open · doi:10.1136/bmjopen-2016-014048 · Cited by 6 · see citing works
Chinese Medicine for Chronic Obstructive Pulmonary Disease: A Pilot Study on Patient Preferences
Liu, S., Lai, J., Wu, L., & Guo, X. (2021) · Patient Preference and Adherence · doi:10.2147/ppa.s316872 · Cited by 6 · see citing works
(2017) · GuíaSalud eBooks · doi:10.46995/man_5 · Cited by 6 · see citing works
Wood, B., Taljaard, M., El‐Khatib, Z., McFaul, S. M., Graham, I. D., & Little, J. (2019) · Journal of Evaluation in Clinical Practice · doi:10.1111/jep.13258 · Cited by 6 · see citing works
The impact of treatment preferences: A narrative review
Sidani, S. (2023) · Journal of Evaluation in Clinical Practice · doi:10.1111/jep.13855 · Cited by 5 · see citing works
Exploring Ciprofol Alternatives: A Comprehensive Review of Intravenous Anesthesia Options
Samy, N. K. D., & Taksande, K. (2024) · Cureus · doi:10.7759/cureus.57581 · Cited by 5 · see citing works
Manuel, D. G. (2010) · Current Opinion in Lipidology · doi:10.1097/mol.0b013e32833c1f2b · Cited by 5 · see citing works
Knaapen, A.-L. (2013) · doi:10.82308/47768 · Cited by 5 · see citing works
Turabián, J. L., & Franco, B. P. (2015) · Medicina de Familia SEMERGEN · doi:10.1016/j.semerg.2015.02.004 · Cited by 4 · see citing works
Zenlea, I. S., Sebastianski, M., Kucera, M., Mushquash, A. R., Boles, K., Brogly, J., Delacruz, B., McGeown, L., Ball, G. D. C., & Johnston, B. C. (2023) · Pediatric Obesity · doi:10.1111/ijpo.13006 · Cited by 4 · see citing works
Baldi, S., Vandenberk, E., Bors, J., Goossens, L., Cort, K. D., Ackermans, L. P. C. M., Leentjens, A. F. G., Linden, D. E. J., Duits, A., Temel, Y., et al. (2023) · Deep Brain Stimulation · doi:10.1016/j.jdbs.2023.12.003 · Cited by 4 · see citing works
Read, J. C., Sim, G., Fails, J. A., Bodén, M., Korte, J., Bhatnagar, S., Borchardt, L. H., Constantin, A., Gavrilescu, D., Wilson, C., et al. (2024) · CHI Conference Extended Abstracts on Human Factors in Computing Systems (CHI EA) · doi:10.1145/3613905.3637143 · Cited by 4 · see citing works
Richtlijnen in de spreekkamer, van dogma naar dans
van der Weijden, T. (2010) · doi:10.26481/spe.20101126tw · Cited by 3 · see citing works
Psychometrics of the Computer-Based Relationships With Health Care Provider Scale in Older Adults
Anderson, E. H., Neafsey, P. J., & Peabody, S. (2011) · Journal of Nursing Measurement · doi:10.1891/1061-3749.19.1.3 · Cited by 3 · see citing works
Aoki, Y., & Nakayama, K. (2022) · Medicine · doi:10.1097/md.0000000000030934 · Cited by 3 · see citing works
de Menezes, K. K. P., Nascimento, L. R., Avelino, P. R., & Teixeira‐Salmela, L. F. (2020) · PM&R · doi:10.1002/pmrj.12324 · Cited by 2 · see citing works
Biomedical Literature Retrieval Based on Patient Information
Jimenez-Castellanos, A., Fernández, I., Pérez-Rey, D., Viejo, E., Díez, F. J., de Kortázar, X. G., García-Remesal, M., Maojo, V., Cobo, A., & del Pozo, F. (2013) · Communications in computer and information science · doi:10.1007/978-3-642-29752-6_23 · Cited by 2 · see citing works
- Authors
- van der Weijden, T., Légaré, F., Boivin, A., Burgers, J. S., van Veenendaal, H., Stiggelbout, A. M., Faber, M., & Elwyn, G.
- Affiliations
- Université Laval (CA)
- Radboud University Medical Center (NL)
- Dutch Institute for Healthcare Improvement (NL)
- Leiden University Medical Center (NL)
- Cardiff University (GB)
- Venue
- Implementation Science
- Published
- 2010-02-02
- Volume
- 5
- Issue
- 1
- Pages
- 10-10
- ISSN
- 1748-5908 (ISSN-L)
- PMC
- PMC2824684
- OpenAlex
- W2141819865
- Cited by
- 130
- References
- 71
- Citations by year
- 2025: 1 · 2024: 5 · 2023: 5 · 2022: 7 · 2021: 8 · 2020: 20 · 2019: 3 · 2018: 12 · 2017: 15 · 2016: 8 · 2015: 9 · 2014: 7 · 2013: 10 · 2012: 6
- FWCI
- 8.91
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- Locations
- Implementation Science (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- Research Publications (Maastricht University) (publishedVersion, cc-by)
- Data Archiving and Networked Services (DANS) (submittedVersion)
- Leiden Repository (Leiden University) (submittedVersion)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion)
- Research Publications (Maastricht University) (submittedVersion, other-oa)
- Funders
- ZonMw
- Economic and Social Research Council (ES/G007543/1)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Clinical practice guidelines implementation
- Health Sciences › Health Professions › General Health Professions › Patient-Provider Communication in Healthcare
- Health Sciences › Health Professions › General Health Professions › Health Policy Implementation Science
- Keywords
- patient preferences, shared decision-making, guideline adaptation, patient representatives, stakeholder perspectives, decision aids
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
