The DOI matches its Crossref record; 35 of the 35 references it cites were found in a registry or an index.
Participant retention practices in longitudinal clinical research studies with high retention rates
Open accessAbstract
BACKGROUND: There is a need for improving cohort retention in longitudinal studies. Our objective was to identify cohort retention strategies and implementation approaches used in studies with high retention rates. METHODS: Longitudinal studies with ≥200 participants, ≥80% retention rates over ≥1 year of follow-up were queried from an Institutional Review Board database at a large research-intensive U.S. university; additional studies were identified through networking. Nineteen (86%) of 22 eligible studies agreed to participate. Through in-depth semi-structured interviews, participants provided retention strategies based on themes identified from previous literature reviews. Synthesis of data was completed by a multidisciplinary team. RESULTS: The most commonly used retention strategies were: study reminders, study visit characteristics, emphasizing study benefits, and contact/scheduling strategies. The research teams were well-functioning, organized, and persistent. Additionally, teams tailored their strategies to their participants, often adapting and innovating their approaches. CONCLUSIONS: These studies included specialized and persistent teams and utilized tailored strategies specific to their cohort and individual participants. Studies' written protocols and published manuscripts often did not reflect the varied strategies employed and adapted through the duration of study. Appropriate retention strategy use requires cultural sensitivity and more research is needed to identify how strategy use varies globally.
Overview
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Verification
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
The source backs part of the claim, not all of it — or backs it for a different population, condition or comparison.
In the citing paper
“Furthermore, the high retention rates (75% of patients from the IND phase entered the OP/MAINT phase) and attainment of adequate exposure requirements (as outlined in the International Council for Harmonisation [ICH] E1 guideline) 40 adds to the comprehensiveness of the data collected during this longitudinal study.41,42”
From Esketamine Nasal Spray Plus Oral Antidepressant in Patients With Treatment-Resistant Depression: Assessment of Long-Term Safety in a Phase 3, Open-Label Study (SUSTAIN-2) (2020) · cites this paper as [41]
Experimental — accuracy not yet measured
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Citations
Cites
An Introduction to Qualitative Research
Flick, U. (2023) · SAGE Publications Ltd eBooks · doi:10.4135/9781036231712 · Cited by 9,550
An Introduction to Qualitative Research
Croker, R. A. (2009) · Palgrave Macmillan UK eBooks · doi:10.1057/9780230239517_1 · Cited by 2,349
Morris, J. C., Weintraub, S., Chui, H. C., Cummings, J., DeCarli, C., Ferris, S., Foster, N. L., Galasko, D., Graff-Radford, N., Peskind, E. R., et al. (2006) · Alzheimer Disease & Associated Disorders · doi:10.1097/01.wad.0000213865.09806.92 · Cited by 950
The Look AHEAD Research Group (2003) · Controlled Clinical Trials · doi:10.1016/s0197-2456(03)00064-3 · Cited by 767
How much loss to follow-up is acceptable in long-term randomised trials and prospective studies?
Fewtrell, M. S., Kennedy, K., Singhal, A., Martin, R. M., Ness, A., Hadders-Algra, M., Koletzko, B., & Lucas, A. (2008) · Archives of Disease in Childhood · doi:10.1136/adc.2007.127316 · Cited by 601
Active Surveillance Program for Prostate Cancer: An Update of the Johns Hopkins Experience
Tosoian, J. J., Trock, B. J., Landis, P., Feng, Z., Epstein, J. I., Partin, A. W., Walsh, P. C., & Carter, H. B. (2011) · Journal of Clinical Oncology · doi:10.1200/jco.2010.32.8112 · Cited by 595
DNA Methylation Markers and Early Recurrence in Stage I Lung Cancer
Brock, M. V., Hooker, C. M., Ota-Machida, E., Han, Y. K., Guo, M., Ames, S., Glöckner, S. C., Piantadosi, S., Gabrielson, E. W., Pridham, G., et al. (2008) · New England Journal of Medicine · doi:10.1056/nejmoa0706550 · Cited by 594
A systematic review of the effect of retention methods in population-based cohort studies
Booker, C. L., Harding, S., & Benzeval, M. (2011) · BMC Public Health · doi:10.1186/1471-2458-11-249 · Cited by 302
Needham, D. M., Dinglas, V. D., Bienvenu, O. J., Colantuoni, E., Wozniak, A. W., Rice, T. W., Hopkins, R. O., & for the NIH NHLBI ARDS Network (2013) · BMJ · doi:10.1136/bmj.f1532 · Cited by 284
Self-citationStrategies to improve retention in randomised trials: a Cochrane systematic review and meta-analysis
Brueton, V. C., Tierney, J. F., Stenning, S., Meredith, S., Harding, S., Nazareth, I., & Rait, G. (2014) · BMJ Open · doi:10.1136/bmjopen-2013-003821 · Cited by 253
Cited by
Sorted by citations
Cohort Profile: The Canadian Longitudinal Study on Aging (CLSA)
Raina, P. S., Wolfson, C. M., Kirkland, S., Griffith, L. E., Balion, C. M., Cossette, B., Dionne, I. J., Hofer, S. M., Hogan, D. B., van den Heuvel, E. R., et al. (2019) · International Journal of Epidemiology · doi:10.1093/ije/dyz173 · Cited by 539
Crowdsourcing research: Data collection with Amazon’s Mechanical Turk
Sheehan, K. B. (2018) · Communication Monographs · doi:10.1080/03637751.2017.1342043 · Cited by 408
Wajs, E., Aluisio, L., Holder, R., Daly, E. J., Lane, R., Lim, P., George, J. E., Morrison, R. L., Sanacora, G., Young, A. H., et al. (2020) · The Journal of Clinical Psychiatry · doi:10.4088/jcp.19m12891 · Cited by 308
Johnson, C. C., Suchyta, M. R., Darowski, E. S., Collar, E. M., Kiehl, A. L., Van, J., Jackson, J. C., & Hopkins, R. O. (2019) · Annals of the American Thoracic Society · doi:10.1513/annalsats.201808-540sr · Cited by 193
Gooding, H. C., Gidding, S. S., Moran, A. E., Redmond, N., Allen, N. B., Bacha, F. F., Burns, T. L., Catov, J. M., Grandner, M. A., Harris, K. M., et al. (2020) · Journal of the American Heart Association · doi:10.1161/jaha.120.016115 · Cited by 204
Muscular weakness and muscle wasting in the critically ill
Schefold, J. C., Wollersheim, T., Grunow, J. J., Luedi, M. M., Z'Graggen, W. J., & Weber‐Carstens, S. (2020) · Journal of Cachexia, Sarcopenia and Muscle · doi:10.1002/jcsm.12620 · Cited by 193
Recruitment and retention of the participants in clinical trials: Challenges and solutions
Chaudhari, N., Ravi, R., Gogtay, N. J., & Thatte, U. M. (2020) · Perspectives in Clinical Research · doi:10.4103/picr.picr_206_19 · Cited by 164
Natural History of Cognitive Impairment in Critical Illness Survivors. A Systematic Review
Honarmand, K., Lalli, R. S., Priestap, F. A., Chen, J., McIntyre, C. W., Owen, A. M., & Slessarev, M. (2020) · American Journal of Respiratory and Critical Care Medicine · doi:10.1164/rccm.201904-0816ci · Cited by 163
Strategies for participant retention in long term clinical trials
Poongothai, S., Anjana, R. M., Aarthy, R., Ranjit Unnikrishnan, I., Narayan, K. M. V., Ali, M. K., Karkuzhali, K., & Mohan, V. (2022) · Perspectives in Clinical Research · doi:10.4103/picr.picr_161_21 · Cited by 85
Intensive care unit acquired weakness and physical rehabilitation in the ICU
Hiser, S. L., Casey, K. S., Nydahl, P., Hodgson, C. L., & Needham, D. M. (2025) · BMJ · doi:10.1136/bmj-2023-077292 · Cited by 78
Self-citationLong, D. A., & Fink, E. L. (2021) · Translational Pediatrics · doi:10.21037/tp-21-61 · Cited by 66
The challenges of longitudinal surveys in the flood risk domain
Hudson, P., Thieken, A. H., & Bubeck, P. (2019) · Journal of Risk Research · doi:10.1080/13669877.2019.1617339 · Cited by 57
A Longitudinal Study of Epileptic Seizures in Alzheimer's Disease
Baker, J., Libretto, T., Henley, W., & Zeman, A. Z. (2019) · Frontiers in Neurology · doi:10.3389/fneur.2019.01266 · Cited by 53
Ramsey, I., de Rooij, B. H., Mols, F., Corsini, N., Horevoorts, N. J. E., Eckert, M. C., & van de Poll-Franse, L. V. (2019) · Journal of Cancer Survivorship · doi:10.1007/s11764-019-00793-7 · Cited by 53
Digital Mental Health Interventions for Young People Aged 16-25 Years: Scoping Review
Potts, C., Kealy, C., McNulty, J. M., Madrid‐Cagigal, A., Wilson, T., Mulvenna, M. D., O’Neill, S. M., Donohoe, G. J., & Barry, M. M. (2025) · Journal of Medical Internet Research · doi:10.2196/72892 · Cited by 63
van der Heijden, L. B., Feskens, E. J. M., & Janse, A. J. (2018) · Obesity Reviews · doi:10.1111/obr.12664 · Cited by 45
Bosco, A., Paulauskaite, L., Hall, I., Crabtree, J. W., Soni, S., Biswas, A. B., Cooper, V., Poppe, M., King, M., Strydom, A., et al. (2019) · PLoS ONE · doi:10.1371/journal.pone.0221507 · Cited by 44
A Longitudinal Assessment of Two Suicide Prevention Training Programs for the Construction Industry
Ross, V. L., Caton, N. R., Gullestrup, J., & Kõlves, K. (2020) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph17030803 · Cited by 42
Functional decline among older cancer survivors in the Baltimore longitudinal study of aging
Siddique, S., Simonsick, E. M., & Gallicchio, L. M. (2021) · Journal of the American Geriatrics Society · doi:10.1111/jgs.17369 · Cited by 45
Anastasi, J. K., Capili, B., Norton, M., McMahon, D. J., & Marder, K. S. (2024) · Frontiers in Pain Research · doi:10.3389/fpain.2023.1330937 · Cited by 43
Fauerbach, J. A., Gehrke, A. K., Mason, S. T., Gould, N. F., Milner, S. M., & Caffrey, J. A. (2019) · Archives of Physical Medicine and Rehabilitation · doi:10.1016/j.apmr.2018.11.027 · Cited by 41
Wang, X., Smith, C., Ashley, L., & Hyland, M. E. (2019) · Frontiers in Psychology · doi:10.3389/fpsyg.2019.00391 · Cited by 40
Horvath, K. J., Lammert, S. M., MacLehose, R. F., Danh, T., Baker, J. V., & Carrico, A. W. (2019) · AIDS and Behavior · doi:10.1007/s10461-019-02597-3 · Cited by 41
Suicide risk around the world: a meta-analysis of longitudinal studies
Guzmán, E. M., Cha, C. B., Ribeiro, J. D., & Franklin, J. C. (2019) · Social Psychiatry and Psychiatric Epidemiology · doi:10.1007/s00127-019-01759-x · Cited by 44
Duong, D. T. T., Binns, C. W., Pham, N. M., Zhao, Y., Dinh, T. P. H., Ha, B. T. T., Tran, C. T., Nguyen, X. H., Giglia, R. C., Xu, F., et al. (2020) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph17155552 · Cited by 40
Hall, C. L., Sanderson, C., Brown, B. J., Andrén, P., Bennett, S. D., Chamberlain, L. R., Davies, E. B., Khan, K., Kouzoupi, N., Mataix‐Cols, D., et al. (2020) · Trials · doi:10.1186/s13063-020-04902-1 · Cited by 36
Catherine, N. L. A., Lever, R., Marcellus, L., Tallon, C., Sheehan, D., MacMillan, H. L., González, A., Jack, S. M., & Waddell, C. (2020) · Trials · doi:10.1186/s13063-020-04328-9 · Cited by 37
Valdebenito, S., Murray, A. L., Hughes, C. H., Băban, A., Fernando, A. D., Madrid, B. J., Ward, C. L., Osafo, J., Dunne, M. P., Sikander, S., et al. (2020) · BMJ Open · doi:10.1136/bmjopen-2019-034986 · Cited by 32
Remskar, M., Western, M. J., & Ainsworth, B. (2024) · British Journal of Health Psychology · doi:10.1111/bjhp.12745 · Cited by 43
What does engagement mean to participants in longitudinal cohort studies? A qualitative study
Ochieng, C., Minion, J. T., Turner, A. J., Blell, M. T., & Murtagh, M. J. (2021) · BMC Medical Ethics · doi:10.1186/s12910-021-00648-w · Cited by 40
The engagement pathway: A conceptual framework of engagement-related terms in weight management
Nobles, J., Perez, A. J., Skelton, J. A., Spence, N. D., & Ball, G. D. C. (2018) · Obesity Research & Clinical Practice · doi:10.1016/j.orcp.2017.12.005 · Cited by 28
Fillipo, I. G., Pullmann, M. D., Hull, T. D., Zech, J. M., Wu, J., Litvin, B., Chen, S., & Areán, P. A. (2022) · Frontiers in Digital Health · doi:10.3389/fdgth.2022.963741 · Cited by 29
McCarron, M., McCausland, D., McGlinchey, E., Bowman, S., Foley, M., Haigh, M., Burke, E. A., & McCallion, P. (2022) · Research in Developmental Disabilities · doi:10.1016/j.ridd.2022.104197 · Cited by 27
Wood, M. D., Maslove, D. M., Muscedere, J., Scott, S. H., & Boyd, J. G. (2018) · Journal of Critical Care · doi:10.1016/j.jcrc.2018.09.011 · Cited by 27
Schirda, B., Duraney, E., Lee, H. K., Manglani, H. R., Andridge, R. R., Plate, A., Nicholas, J. A., & Prakash, R. (2020) · Rehabilitation Psychology · doi:10.1037/rep0000324 · Cited by 23
Stroo, M., Asfaw, K., Deeter, C. E., Freel, S. A., Brouwer, R. J. N., Hames, B., & Snyder, D. C. (2020) · Journal of Clinical and Translational Science · doi:10.1017/cts.2020.22 · Cited by 25
Youth mental health first aid: Initial outcomes of a statewide rollout in Ohio
Noltemeyer, A. L., Huang, H., Meehan, C., Jordan, E., Morio, K., Shaw, K., & Oberlin, K. (2019) · Journal of Applied School Psychology · doi:10.1080/15377903.2019.1619645 · Cited by 24
Gabbard, J., McLouth, C. J., Brenes, G. A., Claudel, S. E., Martin, S. O., Burkart, J., Pajewski, N. M., Callahan, K. E., Williamson, J. D., & Murea, M. (2020) · American Journal of Hospice and Palliative Medicine® · doi:10.1177/1049909120954805 · Cited by 24
Ali, Z., Anderson, K., Chiriac, A., Andersen, A. D., Ísberg, A. P., Moreno, F. G., Eiken, A., Thomsen, S. F., & Zibert, J. R. (2020) · PLoS ONE · doi:10.1371/journal.pone.0235500 · Cited by 27
The Quebec Low Back Pain Study: a protocol for an innovative 2-tier provincial cohort
Pagé, M. G., Lacasse, A., Beaudet, N., Choinière, M., Deslauriers, S., Diatchenko, L. B., Dupuis, L., Grégoire, S., Hovey, R. B., Leclair, E., et al. (2019) · PAIN Reports · doi:10.1097/pr9.0000000000000799 · Cited by 25
Overview of the 35-year U.S. National Longitudinal Lesbian Family Study and Its 92% Retention Rate
Gartrell, N. (2021) · Journal of GLBT Family Studies · doi:10.1080/1550428x.2020.1861573 · Cited by 23
Michaud, T. L., Estabrooks, P. A., You, W., Ern, J., Scoggins, D., Gonzales, K., King, K. M., Dai, H. D., & Su, D. (2022) · Preventive Medicine · doi:10.1016/j.ypmed.2022.107141 · Cited by 23
Seguin‐Fowler, R. A., Graham, M. L., Ward, J. P., Eldridge, G. D., Sriram, U., & Fine, D. (2020) · BMC Geriatrics · doi:10.1186/s12877-020-01818-y · Cited by 26
Lau‐Barraco, C., Braitman, A. L., & Stamates, A. L. (2018) · Alcoholism Clinical and Experimental Research · doi:10.1111/acer.13606 · Cited by 22
Sandifer, P. A., Knapp, L. C., Lichtveld, M. Y., Manley, R., Abramson, D. M., Caffey, R. H., Cochran, D. M., Collier, T., Ebi, K. L., Engel, L. S., et al. (2020) · Frontiers in Public Health · doi:10.3389/fpubh.2020.578463 · Cited by 23
Oetzmann, C., White, K. M., Ivan, A., Julie, J., Leightley, D., Lavelle, G., Lamers, F., Siddi, S., Annas, P., Arranz, S., et al. (2022) · npj Digital Medicine · doi:10.1038/s41746-022-00680-z · Cited by 20
Krewulak, K. D., Bull, M. J., Ely, E. W., Davidson, J. E., Stelfox, H. T., & Fiest, K. M. (2020) · Canadian Journal of Anesthesia/Journal canadien d anesthésie · doi:10.1007/s12630-020-01810-5 · Cited by 27
Murphy, J., McSharry, J., Hynes, L., & Molloy, G. J. (2021) · JMIR Formative Research · doi:10.2196/28784 · Cited by 20
Hindsight and moving the needle forwards on rehabilitation trial design
Connolly, B. A., & Denehy, L. (2017) · Thorax · doi:10.1136/thoraxjnl-2017-210588 · Cited by 19
Akhlaghi, N., Needham, D. M., Bose, S., Banner‐Goodspeed, V., Beesley, S. J., Dinglas, V. D., Groat, D., Greene, T., Hopkins, R. O., Jackson, J. C., et al. (2020) · BMJ Open · doi:10.1136/bmjopen-2020-040830 · Cited by 20
Self-citationSpeidel, R., Wong, T. K. Y., Al‐Janaideh, R., Colasante, T., & Malti, T. (2023) · Pilot and Feasibility Studies · doi:10.1186/s40814-023-01357-4 · Cited by 26
How Does Diet Change with A Diagnosis of Diabetes? Protocol of the 3D Longitudinal Study
Burch, E., Williams, L. T., Makepeace, H., Alston‐Knox, C., & Ball, L. (2019) · Nutrients · doi:10.3390/nu11010158 · Cited by 19
Rodríguez, A. D., la Rosa-Gómez, A. D., Jiménez, M. J. H., Arenas-Landgrave, P., Martínez-Luna, S. C., Silva, J. A., Hernández, J. E. G., Arzola-Sánchez, C. A., & Guzmán, V. A. (2020) · JMIR Research Protocols · doi:10.2196/23117 · Cited by 19
Omrani, A., Scurr, J., Smith, J., Wadey, R., & Brown, N. (2020) · Frontiers in Public Health · doi:10.3389/fpubh.2020.591927 · Cited by 16
Ferris, E., Wyka, K., Evenson, K. R., Dorn, J. M., Thorpe, L. E., Catellier, D., & Huang, T. T. ‐. (2021) · JMIR Formative Research · doi:10.2196/18591 · Cited by 19
Noviani, W., Chong, M. C., & Tang, L.-Y. (2023) · Heliyon · doi:10.1016/j.heliyon.2023.e13433 · Cited by 24
Key components and IT assistance of participant management in clinical research: a scoping review
Pung, J., & Rienhoff, O. (2020) · JAMIA Open · doi:10.1093/jamiaopen/ooaa041 · Cited by 13
Moon, S. J. E., Dabbs, A. D., Hergenroeder, A. L., Vendetti, M. L., Jones, K. B., Willey, B. M., Morrell, M. R., & Imes, C. C. (2021) · Contemporary Clinical Trials · doi:10.1016/j.cct.2021.106407 · Cited by 16
Khan, J. M., Wood, M. D., Lee, K. F. H., Maslove, D. M., Muscedere, J., English, S. W., Ball, I. M., Slessarev, M., Hunt, M., & Boyd, J. G. (2020) · Annals of the American Thoracic Society · doi:10.1513/annalsats.202002-093oc · Cited by 15
Adriaenssens, N., Scholtes, B., Bruyndonckx, R., Verbakel, J. Y. J., Sutter, A. D., Heytens, S., den Bruel, A. V., Desombere, I., Damme, P. V., Goossens, H., et al. (2022) · BMJ Open · doi:10.1136/bmjopen-2021-054688 · Cited by 14
Browne, S. M., Carter, T., Eckes, R., Grandits, G., Johnson, M., Moore, I., & McNay, L. A. (2018) · Contemporary Clinical Trials Communications · doi:10.1016/j.conctc.2018.06.004 · Cited by 15
Best Practices for Participant and Stakeholder Engagement in the All of Us Research Program
Khodyakov, D., Bromley, E., Evans, S., & Sieck, K. (2018) · RAND Corporation eBooks · doi:10.7249/rr2578 · Cited by 15
Krzyzanowski, M. C., Kizakevich, P. N., Duren‐Winfield, V., Eckhoff, R., Hampton, J. C., Carr, L. T. B., McCauley, G., Roberson, K. B., Onsomu, E. O., Williams, J. P., et al. (2020) · JMIR mhealth and uhealth · doi:10.2196/15156 · Cited by 16
Challenges in recruiting African-American women for a breast cancer genetics study
Compadre, A. J., Simonson, M. E., Gray, K., Runnells, G. A., Kadlubar, S. A., & Zorn, K. K. (2018) · Hereditary Cancer in Clinical Practice · doi:10.1186/s13053-018-0091-3 · Cited by 15
Gamble, E., Linehan, C., & Heavin, C. (2022) · Journal of Medical Internet Research · doi:10.2196/38159 · Cited by 16
Bogdan, T., Xie, W., Talaat, H., Mir, H., Venkataraman, B., Banfield, L. E., Georgiades, K., & Duncan, L. (2023) · JCPP Advances · doi:10.1002/jcv2.12186 · Cited by 21
Jiménez-Chávez, J., Rosario-Maldonado, F. J., Torres, J. S., Ramos-Lucca, A., Castro, E., & Santiago, L. E. (2018) · Health Equity · doi:10.1089/heq.2018.0034 · Cited by 14
Mooney, A., Tsotsoros, C. E., Earl, J. K., Hershey, D. A., & Mooney, C. H. (2021) · Social Sciences · doi:10.3390/socsci10080306 · Cited by 15
Bridging the gap: incorporating exercise evidence into clinical practice in breast cancer care
Smith‐Turchyn, J., Richardson, J. A., Tozer, R. G., McNeely, M. L., & Thabane, L. (2019) · Supportive Care in Cancer · doi:10.1007/s00520-019-04897-9 · Cited by 14
Thirty years later: Locating and interviewing participants of the Chicago Longitudinal Study
Ou, S., Mondi, C. F., Yoo, S., Park, K., Warren, B., & Reynolds, A. J. (2019) · Early Childhood Research Quarterly · doi:10.1016/j.ecresq.2019.08.002 · Cited by 14
Curley, M. A. Q., Watson, R. S., Killien, E. Y., Kalvas, L. B., Perry, M., Cassidy, A. M., Miller, E. B., Talukder, M. Q.-E.-K., Manning, J. C., Pinto, N. P., et al. (2024) · BMJ Open · doi:10.1136/bmjopen-2024-084445 · Cited by 15
Valkenborghs, S. R., Dent, P. C., & Stillman, C. M. (2022) · Neuroscience & Biobehavioral Reviews · doi:10.1016/j.neubiorev.2022.104953 · Cited by 12
Motamed, N., Zamani, F., Maadi, M., Ajdarkosh, H., Roozafzai, F., Keyvani, H., Poustchi, H., Shakeri, R., Ashrafi, G. H., Perumal, D., et al. (2024) · Frontiers in Endocrinology · doi:10.3389/fendo.2024.1329380 · Cited by 12
Processes Underpinning Successful Co‐Design: Lessons From a Digital Health Project
Burns, C., Kilkenny, M. F., Purvis, T. L., Gall, S., Farmer, C., Barker, S., Booth, B. E., Bray, J., Cadilhac, D. A.-M., Cameron, J., et al. (2025) · Health Expectations · doi:10.1111/hex.70272 · Cited by 11
Protocol for the Mason: Health Starts Here prospective cohort study of young adult college students
Cuellar, A. E., Adams, L. M., de Jonge, L., Espina, V. A., Espinoza, L., Fischer, S. F., Frankenfeld, C. L., Hines, D. A., Kornienko, O., Lawrence, H. Y., et al. (2021) · BMC Public Health · doi:10.1186/s12889-021-10969-5 · Cited by 13
Appiah, R. (2022) · Journal of Ethnicity in Substance Abuse · doi:10.1080/15332640.2020.1829237 · Cited by 9
Marques, S. C. S., Doetsch, J. N., Brødsgaard, A., Cuttini, M., Draper, E. S., Kajantie, E., Lebeer, J., van der Pal, S. M., Pedersen, P., RECAP - WP6 QS Work Group, et al. (2020) · JMIR Research Protocols · doi:10.2196/14997 · Cited by 13
Swafford, A. A., Ard, J. D., Beavers, D. P., Gearren, P. C., Fernandez, A., Ford, S. A., Greene, K. A., Kammire, D. E., Nesbit, B. A., Reed, K. K., et al. (2020) · JBMR Plus · doi:10.1002/jbm4.10407 · Cited by 11
Bourne, J. E., Leary, S. D., Page, A. S., Searle, A., England, C. Y., Thompson, D., Andrews, R. C., Foster, C. E., & Cooper, A. R. (2023) · Pilot and Feasibility Studies · doi:10.1186/s40814-023-01283-5 · Cited by 12
Sindhu, K. N., Srinivasan, M., Subramaniam, S., David, A. S., Mohan, V. R., John, J. K., & Kang, G. (2019) · BMC Medical Research Methodology · doi:10.1186/s12874-019-0881-y · Cited by 11
Herman, P. M., Edelen, M. O., Rodriguez, A., Hilton, L. G., & Hays, R. D. (2020) · BMC Musculoskeletal Disorders · doi:10.1186/s12891-020-03696-2 · Cited by 11
Helle, A. C., Freeman, L. K., Pellegrini, A. M., Wycoff, A. M., Winograd, R., & Trull, T. J. (2023) · The American Journal of Drug and Alcohol Abuse · doi:10.1080/00952990.2022.2160340 · Cited by 10
Longitudinal cognitive evaluation before and after delivery among people with preeclampsia
Ibarra, A. J., Butters, M. A., Lim, G., Jeyabalan, A., Li, R., Balasubramani, G. K., & Catov, J. M. (2023) · American Journal of Obstetrics & Gynecology MFM · doi:10.1016/j.ajogmf.2023.100966 · Cited by 12
on behalf of RECAP Preterm-WP6 QS Work Group, Marques, S. C. S., Doetsch, J. N., Abate, G., Brødsgaard, A., Colombo, G., Cuttini, M., Pedersen, P., & Barros, H. (2021) · BMC Medical Research Methodology · doi:10.1186/s12874-020-01206-5 · Cited by 11
Promoting participation in remote digital health studies: An expert interview study
Daniore, P., Nittas, V., Gille, F., & von Wyl, V. (2023) · Digital Health · doi:10.1177/20552076231212063 · Cited by 10
Patel, K., Watkins, C. L., Sutton, C., Holland, E.-J., Benedetto, V., Auton, M. F., Barer, D. H., Chatterjee, K., & Lightbody, C. E. (2018) · Pilot and Feasibility Studies · doi:10.1186/s40814-018-0343-z · Cited by 10
Predictors of client retention in a state-based tobacco quitline
Nair, U. S., Rabe, B. A., Brady, B. R., & Bell, M. L. (2020) · The Journal of Smoking Cessation · doi:10.1017/jsc.2020.10 · Cited by 10
Costello, L. N., Dare, J., Dontje, M. L., & Straker, L. M. (2020) · BMC Medical Research Methodology · doi:10.1186/s12874-020-01074-z · Cited by 17
Masamu, U., Sangeda, R. Z., Kandonga, D., Ondengo, J., Ndobho, F., Mmbando, B. P., Nkya, S. W., Msami, K., & Makani, J. (2020) · BMC Health Services Research · doi:10.1186/s12913-020-05998-6 · Cited by 10
Reichold, M., Dietzel, N., Chmelirsch, C., Kolominsky‐Rabas, P. L., Graessel, E., & Prokosch, H. (2021) · Applied Clinical Informatics · doi:10.1055/s-0041-1731286 · Cited by 10
Participant Retention in Follow-Up Studies of Acute Respiratory Failure Survivors
Nunna, K. R., Al-Ani, A., Nikooie, R., Friedman, L. A., Raman, V., Wadood, Z., Vasishta, S., Colantuoni, E., Needham, D. M., & Dinglas, V. D. (2020) · Respiratory Care · doi:10.4187/respcare.07461 · Cited by 10
Self-citationPatterns of participation in the Grow parenting program
Czymoniewicz‐Klippel, M. T., Chesnut, R. P., DiNallo, J. M., & Perkins, D. F. (2019) · Journal of Children s Services · doi:10.1108/jcs-06-2018-0014 · Cited by 10
Stay in treatment: Predicting dropout from pediatric weight management study protocol
Berry, D. C., Rhodes, E. T., Hampl, S. E., Young, C. B., Cohen, G. M., Eneli, I., Fleischman, A., Ip, E. H., Sweeney, B. R., Houle, T. T., et al. (2021) · Contemporary Clinical Trials Communications · doi:10.1016/j.conctc.2021.100799 · Cited by 10
Factors related to retention in a longitudinal study of infants at familial risk for autism
Ozonoff, S. J., Hill, M. M., Hill, A., Ashley, K., & Young, G. S. (2023) · JCPP Advances · doi:10.1002/jcv2.12140 · Cited by 8
Xu, W., Zhang, Y., Wang, Z., Dorsey, S. G., Starkweather, A. R., & Kim, K. (2023) · BMC Nursing · doi:10.1186/s12912-023-01365-y · Cited by 11
Gaetz, S., Bonakdar, A., Ecker, J., MacDonald, C., Ilyniak, S., Ward, A. K., Kimura, L., Vijayaratnam, A., & Banchani, E. (2023) · JMIR Research Protocols · doi:10.2196/46690 · Cited by 13
Tagliaferri, S. D., Han, L. K. M., Khetan, M., Nguyen, J., Markulev, C., Rice, S., Cotton, S., Berk, M., Byrne, E. M., Rickwood, D., et al. (2025) · Journal of the American Academy of Child & Adolescent Psychiatry · doi:10.1016/j.jaac.2025.03.019 · Cited by 10
Keahey, R., White, N. C., Duchesne, A., & Pelletier, C. (2021) · Health Education Journal · doi:10.1177/00178969211007163 · Cited by 8
Karkon, S., O’shea, F. B., Doran, M., Mccormack, H., & Connolly, D. (2023) · Musculoskeletal Care · doi:10.1002/msc.1756 · Cited by 7
Phillippi, R., Leezer, S., Messmer, M. F., Hile, D. M., & John, A. S. (2023) · Current Cardiology Reports · doi:10.1007/s11886-023-02013-2 · Cited by 8
Metadata
- Authors
- Abshire, M., Dinglas, V. D., Cajita, M. I. A., Eakin, M. N., Needham, D. M., & Himmelfarb, C. D.
- Affiliations
- Johns Hopkins University (US)
- Venue
- BMC Medical Research Methodology
- Published
- 2017-02-20
- Volume
- 17
- Issue
- 1
- Pages
- 30-30
- ISSN
- 1471-2288 (ISSN-L)
- PMC
- PMC5319074
- OpenAlex
- W2590679164
- Cited by
- 274
- References
- 35
- Citations by year
- 2026: 26 · 2025: 40 · 2024: 26 · 2023: 39 · 2022: 26 · 2021: 31 · 2020: 45 · 2019: 26 · 2018: 11 · 2017: 4
- FWCI
- 22.08
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Locations
- BMC Medical Research Methodology (publishedVersion, cc-by)
- Europe PMC (PubMed Central) (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
- Figshare (submittedVersion, cc-by)
- University of Illinois Chicago (cc-by)
- Funders
- National Heart, Lung, and Blood Institute (R24HL111895)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics in Clinical Research
- Social Sciences › Sociology and Political Science › Survey Methodology and Nonresponse
- Physical Sciences › Mathematics › Statistics and Probability › Statistical Methods in Epidemiology
- Keywords
- participant retention, cohort retention, retention strategies, cultural sensitivity
- MeSH terms
- Clinical Trials as Topic, Data Collection, Humans, Longitudinal Studies, Patient Dropouts, Research Design
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
