Cited by 274Ethics in Clinical ResearchSurvey Methodology and NonresponseStatistical Methods in Epidemiology

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Participant retention practices in longitudinal clinical research studies with high retention rates

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Abshire, Martha, Dinglas, Victor D., Cajita, Maan Isabella A., Eakin, Michelle N., Needham, Dale M., Himmelfarb, Cheryl Dennison·2017·BMC Medical Research Methodology

DOI 10.1186/s12874-017-0310-zPMC PMC5319074

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Abstract

BACKGROUND: There is a need for improving cohort retention in longitudinal studies. Our objective was to identify cohort retention strategies and implementation approaches used in studies with high retention rates. METHODS: Longitudinal studies with ≥200 participants, ≥80% retention rates over ≥1 year of follow-up were queried from an Institutional Review Board database at a large research-intensive U.S. university; additional studies were identified through networking. Nineteen (86%) of 22 eligible studies agreed to participate. Through in-depth semi-structured interviews, participants provided retention strategies based on themes identified from previous literature reviews. Synthesis of data was completed by a multidisciplinary team. RESULTS: The most commonly used retention strategies were: study reminders, study visit characteristics, emphasizing study benefits, and contact/scheduling strategies. The research teams were well-functioning, organized, and persistent. Additionally, teams tailored their strategies to their participants, often adapting and innovating their approaches. CONCLUSIONS: These studies included specialized and persistent teams and utilized tailored strategies specific to their cohort and individual participants. Studies' written protocols and published manuscripts often did not reflect the varied strategies employed and adapted through the duration of study. Appropriate retention strategy use requires cultural sensitivity and more research is needed to identify how strategy use varies globally.

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Authors: Abshire, M., Dinglas, V. D., Cajita, M. I. A., Eakin, M. N., Needham, D. M., & Himmelfarb, C. D.
Affiliations: Johns Hopkins University (US)
ORCID: Abshire, Martha
Dinglas, Victor D.
Eakin, Michelle N.
Needham, Dale M.
Himmelfarb, Cheryl Dennison
Venue: BMC Medical Research Methodology
Publisher: Springer Science and Business Media LLC
Published: 2017-02-20
Volume: 17
Issue: 1
Pages: 30-30
ISSN: 1471-2288 (ISSN-L)
DOI: 10.1186/s12874-017-0310-z
PMC: PMC5319074
OpenAlex: W2590679164
Cited by: 274
References: 35
Citations by year: 2026: 26 · 2025: 40 · 2024: 26 · 2023: 39 · 2022: 26 · 2021: 31 · 2020: 45 · 2019: 26 · 2018: 11 · 2017: 4
FWCI: 22.08
Type: journal article
Language: en
Open access: gold
doi.org
Licence: cc-by
creativecommons.org/licenses/by/4.0/ (tdm)
creativecommons.org/licenses/by/4.0/ (vor)
Locations: BMC Medical Research Methodology (publishedVersion, cc-by)
Europe PMC (PubMed Central) (publishedVersion, cc-by)
PubMed Central (publishedVersion, cc-by)
PubMed (publishedVersion)
DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
Figshare (submittedVersion, cc-by)
University of Illinois Chicago (cc-by)
Funders: National Heart, Lung, and Blood Institute (R24HL111895)
Topics: Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics in Clinical Research
Social Sciences › Sociology and Political Science › Survey Methodology and Nonresponse
Physical Sciences › Mathematics › Statistics and Probability › Statistical Methods in Epidemiology
Keywords: participant retention, cohort retention, retention strategies, cultural sensitivity
MeSH terms: Clinical Trials as Topic, Data Collection, Humans, Longitudinal Studies, Patient Dropouts, Research Design

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Participant retention practices in longitudinal clinical research studies with high retention rates

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