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Dementia as a predictor of care-related quality of life in informal caregivers: a cross-sectional study to investigate differences in health-related outcomes between dementia and non-dementia caregivers
Open accessAbstract
BACKGROUND: The objectives of this study with a large sample of informal caregivers (CG) were a) to compare health-related outcomes of CGs caring for a patient with dementia and those caring for a relative with another chronic disease and b) to check whether dementia is a predictor of CG's care-related quality of life (QoL) in CarerQoL-7D. METHODS: This cross-sectional study involved self-reported data from 386 informal CGs who applied for an initial grade or upgrade of the care level of the care recipient at the Medical Service of Compulsory Health Insurance Funds of Bavaria (Germany). By obtaining data this way, systematic biases often associated with the acquisition of CGs were prevented. Bivariate and multiple analyses were conducted using a univariate covariance model (ANCOVA). RESULTS: Bivariate analyses showed significantly higher levels of subjective burden and lower QoL in the dementia group. No significant differences were found in terms of physical health and depressiveness, though there was a tendency suggesting higher levels of depressiveness in dementia CGs. Multiple analysis explaining QoL by dementia status after controlling for CG's sex, age and employment status revealed a significant effect of dementia, suggesting caregiving for a dementia patient was associated with lower QoL. CONCLUSIONS: Results of the study suggest that caring for a relative with dementia is associated with poorer health, i.e. greater levels of subjective burden and depressiveness, and predicts lower QoL in CGs. These findings emphasize the importance of specific interventions aiming to support informal CGs of dementia patients.
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“Studies have shown that dementia caregivers are inclined to sacrifice their well-being leaving them susceptible to an increased risk of anxiety, low quality of life, and depression.”
From The Difference in Burden Experienced by Male and Female Caregivers of Dementia Patients in Lebanon: A Cross-Sectional Study (2022) · cites this paper as [6]
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“Family caregivers of PLWD report caregiving is stressful with challenges that arise from caregiving situations while often delaying or preventing caregivers from taking care of themselves, which contribute to poorer health and well-being outcomes, such as psychological distress (i.e. symptoms of depression, anxiety, and stress) and decreased participation in personally valued activities”
From The feasibility and preliminary effects of a pilot randomized controlled trial: Videoconferencing acceptance and commitment therapy in distressed family caregivers of people with dementia. (2023) · cites this paper as Karg et al., 2018
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Metadata
- Authors
- Karg, N., Graessel, E., Randzio, O., & Pendergrass, A.
- Affiliations
- Friedrich-Alexander-Universität Erlangen-Nürnberg (DE)
- Venue
- BMC Geriatrics
- Published
- 2018-08-23
- Volume
- 18
- Issue
- 1
- Pages
- 189-189
- ISSN
- 1471-2318 (ISSN-L)
- PMC
- PMC6108112
- OpenAlex
- W2888606649
- Cited by
- 130
- References
- 36
- Citations by year
- 2026: 3 · 2025: 17 · 2024: 25 · 2023: 18 · 2022: 15 · 2021: 28 · 2020: 17 · 2019: 7
- FWCI
- 10.23
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- Locations
- BMC Geriatrics (publishedVersion, cc-by)
- Europe PMC (PubMed Central) (publishedVersion, other-oa)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
- OPUS Repository (Kooperativer Bibliotheksverbund Berlin-Brandenburg) (submittedVersion, cc-by)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Nursing › Research and Theory › Nursing care and research
- Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
- Keywords
- dementia, informal caregivers, care-related quality of life, caregiver burden, depression, chronic disease, caregiver health, caregiver support interventions
- MeSH terms
- Aged, Cross-Sectional Studies, Dementia, Depression, Employment, Female, Germany, Humans, Male, Middle Aged, Quality of Life, Caregivers
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