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Cited by 45Dementia and Cognitive Impairment ResearchNursing care and researchFamily Caregiving in Mental Illness

The effectiveness of internet-based psychoeducation programs for caregivers of people living with dementia: a systematic review and meta-analysis

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Yu, Ying, Xiao, Lily, Ullah, Shahid, Meyer, Claudia, Wang, Jing, Pot, Ann Margriet, He, Jin Jie·2023·Aging & Mental Health
DOI 10.1080/13607863.2023.2190082
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Abstract

OBJECTIVE: The objectives of this systematic review and meta-analysis were to identify the characteristics of internet-based psychoeducational programs for caregivers of people living with dementia and to synthesise program effectiveness. METHOD: Five English databases and four Chinese databases were searched in June 2021 with no time limit applied. A narrative summary was performed to describe the characteristics of studies reviewed. Meta-analysis was applied to synthesise the pooled effects where data were available. RESULTS: A total of 14352 articles were identified from the database search and 19 were included in the final review. Interventions comprised educational, psychological, and behavioural training relevant to dementia care. Program duration ranged from 3 weeks to 12 months. Meta-analysis of 13 RCTs showed that internet-based psychoeducational programs had a significant effect on reducing caregivers' depressive symptoms (SMD -0.19; 95% CI -0.03 - 0.35) and stress (SMD -0.29; 95% CI -0.03 -0.54). However, these programs did not show an effect on quality of life, anxiety, burden or self-efficacy in caregivers. CONCLUSION: Internet-based psychoeducational programs can improve some aspects of caregivers' mental health and emotional wellbeing. The effects of programs on self-efficacy, anxiety, burden and quality of life for caregivers remain inconclusive.

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  • A meta-analysis of internet-based psychoeducation for carers showed a small effect on depressive symptoms (SMD −0.19, −0.03 to −0.35) but not on anxiety, burden, and quality of life.

    “A meta-analysis of internet-based psychoeducation for carers showed a small effect on depressive symptoms (SMD -0.19 , -0.03-0.35) but not on anxiety, burden, and quality of life.(492)”

    From Dementia prevention, intervention, and care: 2024 report of the Lancet standing Commission (2024) · cites this paper as [492]

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  1. Armstrong, n. M., Gitlin, L. n., Parisi, J. M., Roth, D. L., & Gross, A. L. (2019). Association of physical functioning of persons with dementia with care- giver burden and depression in dementia caregivers: An integrative data analysis. Aging & Mental Health, 23(5), 587-594. https://doi.org/10.1080/ 13607863.2018.1441263 · DOI
  2. Bandura, A. (1993). Perceived self-efficacy in cognitive development and functioning. Educational Psychologist, 28(2), 117-148. https://doi. org/10.1207/s15326985ep2802_3 · DOI · Paper page
  3. Baruah, U., varghese, M., Loganathan, S., Mehta, K. M., Gallagher- Thompson, D., Zandi, D., Dua, T., & Pot, A. M. (2021). Feasibility and pre- liminary effectiveness of an online training and support program for caregivers of people with dementia in india: A randomized controlled trial. International Journal of Geriatric Psychiatry, 36(4), 606-617. https:// doi.org/10.1002/gps.5502 · DOI
  4. Boots, L. M., de vugt, M. e., Kempen, G. i., & verhey, F. R. (2018). effectiveness of a blended care self-management program for caregivers of people with early-stage dementia (partner in balance): Randomized controlled trial. Journal of Medical Internet Research, 20(7), e10017. https://doi. org/10.2196/10017 · DOI
  5. Brennan, P. F., Shirley, M. M., & Kathleen, A. S. (1995). The effects of a special computer network on caregivers of persons with Alzheimer's disease. Nursing Research (New York), 44(3), 166-172.
  6. Brodaty, H., & Donkin, M. (2009). Family caregivers of people with demen- tia. Dialogues in Clinical Neuroscience, 11(2), 217-228.
  7. Burley, C. v., Chenoweth, L., Casey, A. n. S., & Brodaty, H. (2021). Changed behaviours associated with cognitive decline: views of people living with dementia, families and healthcare professionals. Alzheimer's & Dementia, 17(S8), e051963. https://doi.org/10.1002/alz.051963 · DOI
  8. Cheng, S.-T., Li, K.-K., Losada, A., Zhang, F., Au, A., Thompson, L. w., & Gallagher-Thompson, D. (2020). The effectiveness of nonpharmacolog- ical interventions for informal dementia caregivers: An updated sys- tematic review and meta-analysis. Psychology and Aging, 35(1), 55-77. https://doi.org/10.1037/pag0000401 · DOI · Paper page
  9. Chiu, M., Pauley, T., wesson, v., Pushpakumar, D., & Sadavoy, J. (2015). evaluation of a problem-solving (PS) techniques-based intervention for informal carers of patients with dementia receiving in-home care. International Psychogeriatrics, 27(6), 937-948. https://doi.org/10.1017/ S1041610214002798 · DOI
  10. Conde-Sala, J. L., Garre-Olmo, J., Turro-Garriga, O., vilalta-Franch, J., & Lopez-Pousa, S. (2010). Differential features of burden between spouse and adult-child caregivers of patients with Alzheimer's disease: An ex- ploratory comparative design. International Journal of Nursing Studies, 47(10), 1262-1273. https://doi.org/10.1016/j.ijnurstu.2010.03.001 · DOI
  11. Crellin, n. e., Orrell, M., McDermott, O., & Charlesworth, G. (2014). Self- efficacy and health-related quality of life in family carers of people with dementia: A systematic review. Aging & Mental Health, 18(8), 954-969. https://doi.org/10.1080/13607863.2014.915921 · DOI
  12. Cristancho-Lacroix, v., wrobel, J., Cantegreil-Kallen, i., Dub, T., Rouquette, A., & Rigaud, A. S. (2015). A web-based psychoeducational program for informal caregivers of patients with Alzheimer's disease: A pilot ran- domized controlled trial. Journal of Medical Internet Research, 17(5), e117. https://doi.org/10.2196/jmir.3717 · DOI · Paper page
  13. Cunningham, C., Macfarlane, S., & Brodaty, H. (2019). Language paradigms when behaviour changes with dementia: #BanBPSD. International Journal of Geriatric Psychiatry, 34(8), 1109-1113. https://doi.org/10. 1002/gps.5122 · DOI
  14. Dröes, R.-M., van der Roest, H. G., van Mierlo, L., & Meiland, F. J. M. (2011). Memory problems in dementia: Adaptation and coping strategies and psychosocial treatments. Expert Review of Neurotherapeutics, 11(12), 1769-1782. https://doi.org/10.1586/ern.11.167 · DOI
  15. Duggleby, w., Ploeg, J., McAiney, C., Peacock, S., Fisher, K., Ghosh, S., Markle-Reid, M., Swindle, J., williams, A., Triscott, J. A., Forbes, D., & Jovel Ruiz, K. (2018). web-based intervention for family carers of persons with dementia and multiple chronic conditions (My Tools 4 Care): Pragmatic randomized controlled trial. Journal of Medical Internet Research, 20(6), e10484. https://doi.org/10.2196/10484 · DOI · Paper page
  16. Dumont, C., Barvaux, v., & Cornil, C. (2016). Psycho-educational approach in Alzheimer's disease. Journal of Alzheimer's Disease and Parkinsonism, 6(5), 2161-0460. https://doi.org/10.4172/2161-0460.1000261 · DOI
  17. easom, L., wang, K., & Alston, G. (2020). increasing self-efficacy and knowl- edge in carer training: Hispanic versus Caucasian. Nursing Open, 7(1), 180-185. https://doi.org/10.1002/nop2.376 · DOI
  18. egan, K. J., Pinto-Bruno, A. C., Bighelli, i., Berg-weger, M., van Straten, A., Albanese, e., & Pot, A. M. (2018). Online training and support programs designed to improve mental health and reduce burden among caregiv- ers of people with dementia: A systematic review. Journal of the American Medical Directors Association, 19(3), 200-206. https://doi. org/10.1016/j.jamda.2017.10.023 · DOI
  19. Farina, n., Page, T. e., Daley, S., Brown, A., Bowling, A., Basset, T., Livingston, G., Knapp, M., Murray, J., & Banerjee, S. (2017). Factors associated with the quality of life of family carers of people with dementia: A systemat- ic review. Alzheimer's & Dementia, 13(5), 572-581. https://doi. org/10.1016/j.jalz.2016.12.010 · DOI
  20. S1041610216000922 · DOI · Paper page
  21. Fekete, M., Szabo, A., Stephens, C., & Alpass, F. (2019). Older new Zealanders in caregiving roles: Psychological functioning of caregivers of people living with dementia. Dementia, 18(5), 1663-1678. https://doi. org/10.1177/1471301217725897 · DOI
  22. Frias, C. e., Cabrera, e., & Zabalegui, A. (2020). informal caregivers' roles in dementia: The impact on their quality of life. Life, 10(11), 251. https:// doi.org/10.3390/life10110251 · DOI
  23. Frias, C. e., Garcia-Pascual, M., Montoro, M., Ribas, n., Risco, e., & Zabalegui, A. (2020). effectiveness of a psychoeducational intervention for care- givers of people with dementia with regard to burden, anxiety and de- pression: A systematic review. Journal of Advanced Nursing, 76(3), 787- 802. https://doi.org/10.1111/jan.14286 · DOI
  24. Gaugler, J. e., Hobday, J. v., Robbins, J. C., & Barclay, M. P. (2015). CAReS((R)) dementia care for families: effects of online, psychoeducational train- ing on knowledge of person-centered care and satisfaction. Journal of Gerontological Nursing, 41(10), 18-24. https://doi.org/10.3928/ 00989134-20150804-61 · DOI
  25. Gonzalez-Fraile, e., Ballesteros, J., Rueda, J. R., Santos-Zorrozua, B., Sola, i., & McCleery, J. (2021). Remotely delivered information, training and sup- port for informal caregivers of people with dementia. Cochrane Database of Systematic Reviews, 1, CD006440. https://doi. org/10.1002/14651858.CD006440.pub3 · DOI · Paper page
  26. Gustafson, D. H., Cody, O. J., Chih, M.-Y., Johnston, D. C., & Asthana, S. (2019). Pilot test of a computer-based system to help family caregivers of dementia patients. Journal of Alzheimer's Disease, 70(2), 541-552. https://doi.org/10.3233/JAD-190052 · DOI
  27. AD · DOI · Paper page
  28. Hattink, B. J. J., Meiland, F. J. M., van der Roest, H. G., Kevern, P., Abiuso, F., Bengtsson, J., Giuliano, A., Duca, A., Sanders, J., Basnett, F., & nugent, C. (2015). web-based STAR e-learning course increases empathy and un- derstanding in dementia caregivers: Results from a randomized con- trolled trial in the netherlands and the United Kingdom. Journal of Medical Internet Research, 17(10), e241. https://doi.org/10.2196/jmir.4025 · DOI
  29. Hicken, B. L., Daniel, C., Luptak, M., Grant, M., Kilian, S., & Rupper, R. w. (2017). Supporting caregivers of rural veterans electronically (SCORe). The Journal of Rural Health, 33(3), 305-313. https://doi.org/10.1111/ jrh.12195 · DOI
  30. Higgins, J., Savović, J., Page, M. J., elbers, R. G., & Sterne, J. A. (2021). Chapter 8: Assessing risk of bias in a randomized trial. in J. Higgins, J. Thomas, Jacqueline Chandler, Miranda Cumpston, Tianjing Li, Matthew Page, & vivian welch (eds.), Cochrane handbook for systematic reviews of inter- ventions version 6.2 (updated February 2021) (pp. 205-228). Cochrane. Retrieved May 27, from www.training.cochrane.org/handbook.
  31. Higgins, J., Thomas, J., Chandler, J., Cumpston, M., Li, T., Page, M., & welch, v. (eds.). (2021). Cochrane handbook for systematic reviews of interven- tions version 6.2. Cochrane. www.training.cochrane.org/handbook.
  32. Holopainen, A., Siltanen, H., Pohjanvuori, A., Mäkisalo-Ropponen, M., & Okkonen, e. (2019). Factors associated with the quality of life of people with dementia and with quality of life-improving interventions: Scoping review. Dementia (London), 18(4), 1507-1537. https://doi. org/10.1177/1471301217716725 · DOI
  33. Hopwood, J., walker, n., McDonagh, L., Rait, G., walters, K., iliffe, S., Ross, J., & Davies, n. (2018). internet-based interventions aimed at supporting family caregivers of people with dementia: Systematic review. Journal of Medical Internet Research, .20(6), e216. https://doi.org/10.2196/ jmir.9548 · DOI · Paper page
  34. Huang, S.-S. (2022). Depression among caregivers of patients with demen- tia: Associative factors and management approaches. World Journal of Psychiatry, 12(1), 59-76. https://doi.org/10.5498/wjp.v12.i1. · DOI
  35. Kajiyama, B., Thompson, L. w., eto-iwase, T., Yamashita, M., Di Mario, J., Marian Tzuang, Y., & Gallagher-Thompson, D. (2013). exploring the ef- fectiveness of an internet-based program for reducing caregiver dis- tress using the iCare Stress Management e-Training Program. Aging & Mental Health, 17(5), 544-554. https://doi.org/10.1080/13607863.2013. 775641 · DOI
  36. Kitwood, T. (1998). Toward a theory of dementia care: ethics and interac- tion. The Journal of Clinical Ethics, 9(1), 23-34.
  37. Kitwood, T. M., & Kitwood, T. (1997). Dementia reconsidered: The person comes first (vol. 20). Open University Press.
  38. Klimova, B., valis, M., Kuca, K., & Masopust, J. (2019). e-learning as valuable caregivers' support for people with dementia -A systematic review. BMC Health Services Research, 19(1), 781. https://doi.org/10.1186/ s12913-019-4641-9 · DOI
  39. Leng, M., Zhao, Y., Xiao, H., Li, C., & wang, Z. (2020). internet-based support- ive interventions for family caregivers of people with dementia: Systematic review and meta-analysis. Journal of Medical Internet Research. 22(9), e19468. https://doi.org/10.2196/19468 · DOI
  40. Lippe, M., Crowder, A., Carter, P., & Threadgill, A. H. (2021). variables impact- ing the quality of life of dementia caregivers: A data visualization anal- ysis. Journal of Nursing Scholarship, 53(6), 772-780. https://doi. org/10.1111/jnu.12718 · DOI
  41. Metcalfe, A., Jones, B., Mayer, J., Gage, H., Oyebode, J., Boucault, S., Aloui, S., Schwertel, U., Bohm, M., Tezenas Du Montcel, S., Lebbah, S., De Mendonca, A., De vugt, M., Graff, C., Jansen, S., Hergueta, T., Dubois, B., & Kurz, A. (2019). Online information and support for carers of people with young-onset dementia: A multi-site randomised controlled pilot study. International Journal of Geriatric Psychiatry, 34(10), 1455-1464. https://doi.org/10.1002/gps.5154 · DOI
  42. Mollaei, P., Momtaz, Y. A., & Taheri-Tanjani, P. (2021). The effect of cyber- space-based education on the well-being of caregivers of elderly peo- ple with dementia. Current Aging Science, 14(2), 105-111. https://doi.or g/10.2174/1874609814666210208180051 · DOI
  43. Morlett Paredes, A., Perrin, P. B., Peralta, S. v., Stolfi, M. e., Morelli, e., & Arango-Lasprilla, J. C. (2017). Structural equation model linking demen- tia cognitive functioning, caregiver mental health, burden, and quality of informal care in Argentina. Dementia, 16(6), 766-779. https://doi. org/10.1177/1471301215617080 · DOI · Paper page
  44. Pearlin, L. i., Mullan, J. T., Semple, S. J., & Skaff, M. M. (1990). Caregiving and the stress process: an overview of concepts and their measures. The Gerontologist, 30(5), 583-594. https://doi.org/10.1093/geront/30.5.583 · DOI · Paper page
  45. Perera, n., Javeed, M., Lyketsos, C. G., & Leroi, i. (2017). neuropsychiatric aspects of dementia. in D. Ames, J. T. O'Brien, & A. Burns (eds.), Dementia (5th ed. ed., p. 59). Taylor & Francis Group.
  46. Pessotti, C. F. C., Fonseca, L. C., Tedrus, G. M. d A. S., & Laloni, D. T. (2018). Family caregivers of elderly with dementia: Relationship between religi- osity, resilience, quality of life and burden. Dementia & Neuropsychologia, 12(4), 408-414. https://doi.org/10.1590/1980-57642018dn12-040011 · DOI
  47. Pleasant, M. L., Molinari, v., Hobday, J. v., Fazio, S., Cullen, n., & Hyer, K. (2017). An evaluation of the CAReS(R) Dementia Basics Program among caregivers. International Psychogeriatrics, 29(1), 45-56. https://doi. org/10.1017/S1041610216001526 · DOI
  48. Poon, e. (2019). A systematic review and meta-analysis of dyadic psycho- logical interventions for BPSD, quality of life and/or caregiver burden in dementia or MCi. Clinical Gerontologist, 45(4), 777-797. https://doi.org/ 10.1080/07317115.2019.1694117 · DOI
  49. Schulz, R., O'Brien, A., Czaja, S., Ory, M., norris, R., Martire, L. M., Belle, S. H., Burgio, L., Gitlin, L., Coon, D., Burns, R., Gallagher-Thompson, D., & Stevens, A. (2002). Dementia caregiver intervention research: in search of clinical significance. The Gerontologist, 42(5), 589-602. https://doi. org/10.1093/geront/42.5.589 · DOI
  50. Singh, v., & Thurman, A. (2019). How many ways can we define online learning? A systematic literature review of definitions of online learning (1988-2018). American Journal of Distance Education, 33(4), 289-306. https://doi.org/10.1080/08923647.2019.1663082 · DOI
  51. Steffen, A. M., McKibbin, C., Zeiss, A. M., Gallagher-Thompson, D., & Bandura, A. (2002). The revised scale for caregiving self-efficacy: Reliability and validity studies. The Journals of Gerontology, 57(1), 74-86. https://doi.org/10.1093/geronb/57.1.P74 · DOI
  52. The Cochrane Collaboration. (2014). Review Manager (RevMan) (version 5.1.4). The nordic Cochrane Centre, The Cochrane Collaboration. The endnote Team. (2013). EndNote (version endnote 20).
  53. Torkamani, M., McDonald, L., Saez Aguayo, i., Kanios, C., Katsanou, M. n., Madeley, L., Limousin, P. D., Lees, A. J., Haritou, M., Jahanshahi, M., & Group, A. C. (2014). A randomized controlled pilot study to evaluate a technology platform for the assisted living of people with dementia and their carers. Journal of Alzheimer's Disease, 41(2), 515-523. https:// doi.org/10.3233/JAD-132156 · DOI
  54. van der Roest, H. G., Meiland, F. J., Jonker, C., & Droes, R. M. (2010). User evaluation of the DeMentia-specific Digital interactive Social Chart (DeM-DiSC). A pilot study among informal carers on its impact, user friendliness and, usefulness. Aging and Mental Health, 14(4), 461-470. https://doi.org/10.1080/13607860903311741 · DOI
  55. veritas Health innovation. (2021). Covidence systematic review software. www.covidence.org
  56. watson, B., Tatangelo, G., & McCabe, M. (2019). Depression and anxiety among partner and offspring carers of people with dementia: A sys- tematic review. Gerontologist, 59(5), e597-e610. https://doi. org/10.1093/geront/gny049 · DOI
  57. wijma, e. M., veerbeek, M. A., Prins, M., Pot, A. M., & willemse, B. M. (2018). A virtual reality intervention to improve the understanding and empa- thy for people with dementia in informal caregivers: Results of a pilot study. Aging and Mental Health, 22(9), 1115-1123. https://doi.org/10.10 80/13607863.2017.1348470 · DOI
  58. williams, F., Moghaddam, n., Ramsden, S., & De Boos, D. (2019). interventions for reducing levels of burden amongst informal carers of persons with dementia in the community. A systematic review and meta-analysis of randomised controlled trials. Aging and Mental Health, 23(12), 1629-1642. https://doi.org/10.1080/13607863.2018.1 515886 · DOI
  59. wolverson, e., Dunn, R., Moniz-Cook, e., Gove, D., & Diaz-Ponce, A. (2021). The language of behaviour changes in dementia: A mixed methods survey exploring the perspectives of people with demen- tia. Journal of Advanced Nursing, 77(4), 1992-2001. https://doi. org/10.1111/jan.14787 · DOI
  60. Zhao, Y., Feng, H., Hu, M., Hu, H., Li, H., ning, H., Chen, H., Liao, L., & Peng, L. (2019). web-based interventions to improve mental health in home caregivers of people with dementia: Meta-analysis. Journal of Medical Internet Research, 21(5), e13415. https://doi.org/10.2196/13415 · DOI

Cited by

Sorted by citations

Authors
Yu, Y., Xiao, L., Ullah, S., Meyer, C., Wang, J., Pot, A. M., & He, J. J.
Affiliations
  • Flinders University (AU)
  • Bolton Clarke Research Institute, Melbourne, Victoria, Australia
  • Xi'an Jiaotong University (CN)
  • Erasmus School of Health Policy & Management, Erasmus University, Rotterdam, The Netherlands
Corresponding author
Xiao, Lily
ORCID
Venue
Aging & Mental Health
Publisher
Informa UK Limited
Published
2023-03-23
Volume
27
Issue
10
Pages
1895-1911
ISSN
  • 1360-7863 (ISSN-L)
  • 1364-6915
DOI
10.1080/13607863.2023.2190082
OpenAlex
W4360601192
Cited by
45
References
11
Citations by year
2026: 19 · 2025: 14 · 2024: 10 · 2023: 2
FWCI
2.05
Type
journal article
Language
en
Open access
Licence
Locations
  • Aging & Mental Health (publishedVersion, cc-by-nc-nd)
  • PubMed (publishedVersion)
  • EUR Research Repository (Erasmus University Rotterdam) (publishedVersion, cc-by-nc-nd)
  • EUR Research Repository (Erasmus University Rotterdam) (submittedVersion, cc-by-nc-nd)
  • Adelaide Research & Scholarship (AR&S) (University of Adelaide) (submittedVersion, cc-by-nc-nd)
Funders
  • Australian Government via NHMRC/Medical Research Future Fund (MRF2008321)
  • The Dementia Centre for Research Collaboration
Topics
  • Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
  • Health Sciences › Health Professions › Pharmacy › Nursing care and research
  • Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
Keywords
dementia caregivers, caregiver burden, caregiver depression, caregiver stress, caregiver mental health, self-efficacy, anxiety, quality of life, dementia care training
MeSH terms
Anxiety, Dementia, Depression, Humans, Quality of Life, Caregivers

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