Cited by 11Health Literacy and Information AccessibilityMusculoskeletal pain and rehabilitationPatient-Provider Communication in Healthcare

Health literacy in individuals with knee pain—a mixed methods study

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Sylwander, Charlotte, Wahl, Astrid Klopstad, Andersson, Maria L.E, Haglund, Emma, Larsson, Ingrid·2023·BMC Public Health

Abstract

Background: Low health literacy is associated with worse pain and poorer self-management. This study (1) examined the level of health literacy and associations with lifestyle habits, health status, chronic pain, and radiographic knee osteoarthritis; and (2) explored experiences illuminating health literacy among individuals with knee pain. Methods: A convergent parallel mixed-methods design was used, including 221 individuals. Health literacy was assessed by HLS-EU-Q16 and eHEALS. The questionnaire included questions on lifestyle habits, health status, and pain distribution. Radiographic knee osteoarthritis was assessed with x-rays. Associations were analysed using logistic regression analyses. Individual semi-structured interviews were conducted (n = 19) and analysed with qualitative content analysis. Results: The result showed that 71% reported sufficient health literacy. Higher education, healthy lifestyle habits, better general health, and absence of widespread pain were associated with sufficient health literacy. Experiences regarding health literacy influencing the decision-making process toward a decision on action comprised: (1) searching for information actively or passively; (2) processing of the information included being informed, critical, and interpretive; and (3) taking a stand on the information based on trustfulness and motivation. Conclusion: Seven out of 10 reported sufficient health literacy. Despite this, unhealthy lifestyles were common, suggesting that having sufficient HL is not enough for a behavioural change and the decision-making process, including different phases such as searching, processing, and taking a stand on health information is important to consider. More research on health literacy is needed to gain knowledge of how best to develop health promotion in individuals with knee pain.

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  • Patients with low health literacy usually face obstacles in engaging with the healthcare system, including difficulties completing questionnaires, understanding clinicians' professional terms and language, and knowing when to return for follow-up care.

    “Patients with low health literacy usually face obstacles in engaging with the healthcare system, including difficulties completing questionnaires [55], understanding clinicians’ professional terms and language [56,57], and knowing when to return for follow-up care [58,59].”

    From Toward Safer Diagnoses: A SEIPS-Based Narrative Review of Diagnostic Errors (2026) · cites this paper as [59]

    The Results section (‘Processing of information influences the decision-making process’; page unavailable) reports that participants with limited health literacy had difficulty understanding health information and, in some circumstances, information from healthcare personnel. It does not specifically identify clinicians’ professional terminology as the difficulty. The passages found also do not link low health literacy to difficulty completing questionnaires or knowing when to return for follow-up care. (LLM, conf=0.82)

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  1. [1]World Health Organization. Promoting health in the SDGs: report on the 9th Global conference for health promotion, Shanghai, China, 21–24 November 2016: all for health, health for all. World Health Organization; 2017.
  2. [3]Sørensen K Van den Broucke S Fullam J Doyle G Pelikan J Slonska Z Brand H Consortium Health Literacy Project E Health literacy and public health: a systematic review and integration of definitions and models BMC Public Health 2012 12 1 80 10.1186/1471-2458-12-80 22276600 PMC3292515 · DOI
  3. [4]Sørensen K Pelikan JM Röthlin F Ganahl K Slonska Z Doyle G Fullam J Kondilis B Agrafiotis D Uiters E Health literacy in Europe: comparative results of the european health literacy survey (HLS-EU) Eur J Pub Health 2015 25 6 1053 8 10.1093/eurpub/ckv043 25843827 PMC4668324 · DOI · Paper page
  4. [5]Wångdahl J Lytsy P Mårtensson L Westerling R Health literacy among refugees in Sweden–a cross-sectional study BMC Public Health 2014 14 1 1030 10.1186/1471-2458-14-1030 25278109 PMC4195944 · DOI
  5. [6]Easton P Entwistle VA Williams B Health in the’hidden population’of people with low literacy. A systematic review of the literature BMC Public Health 2010 10 1 1 10 10.1186/1471-2458-10-459 20687946 PMC2923110 · DOI
  6. [7]Miller TA Health literacy and adherence to medical treatment in chronic and acute illness: a meta-analysis Patient Educ Couns 2016 99 7 1079 86 10.1016/j.pec.2016.01.020 26899632 PMC4912447 · DOI · Paper page
  7. [9]Thorstensson C Andersson M Jönsson H Saxne T Petersson I Natural course of knee osteoarthritis in middle-aged subjects with knee pain: 12-year follow-up using clinical and radiographic criteria Ann Rheum Dis 2009 68 12 1890 3 10.1136/ard.2008.095158 19054828 · DOI
  8. [10]Bergman S Thorstensson C Andersson MLE Chronic widespread pain and its associations with quality of life and function at a 20- year follow-up of individuals with chronic knee pain at inclusion BMC Musculoskelet Disord 2019 20 1 592 10.1186/s12891-019-2976-3 31818282 PMC6902450 · DOI
  9. [11]Park HM Kim HS Lee YJ Knee osteoarthritis and its association with mental health and health-related quality of life: a nationwide cross‐sectional study Geriatr Gerontol Int 2020 20 4 379 83 10.1111/ggi.13879 32037727 · DOI
  10. [12]Sylwander C Larsson I Andersson M Bergman S The impact of chronic widespread pain on health status and long-term health predictors: a general population cohort study BMC Musculoskelet Disord 2020 21 1 1 11 10.1186/s12891-020-3039-5 PMC6966859 31948483 · DOI
  11. [15]Cimmino MA Ferrone C Cutolo M Epidemiology of chronic musculoskeletal pain Best Pract Res Clin Rheumatol 2011 25 2 173 83 10.1016/j.berh.2010.01.012 22094194 · DOI
  12. [16]Järemo P Arman M Gerdle B Larsson B Gottberg K Illness beliefs among patients with chronic widespread pain-associations with self-reported health status, anxiety and depressive symptoms and impact of pain BMC Psychol 2017 5 1 24 10.1186/s40359-017-0192-1 28679446 PMC5499007 · DOI
  13. [17]Fernandes L Hagen KB Bijlsma JWJ Andreassen O Christensen P Conaghan PG Doherty M Geenen R Hammond A Kjeken I EULAR recommendations for the non-pharmacological core management of hip and knee osteoarthritis Ann Rheum Dis 2013 72 7 1125 10.1136/annrheumdis-2012-202745 23595142 · DOI
  14. [19]Geraghty AW Maund E Newell D Santer M Everitt H Price C Pincus T Moore M Little P West R Self-management for chronic widespread pain including fibromyalgia: a systematic review and meta-analysis PLoS ONE 2021 16 7 e0254642 10.1371/journal.pone.0254642 34270606 PMC8284796 · DOI
  15. [20]Thoma LM Dunlop D Song J Lee J Tudor-Locke C Aguiar EJ Master H Christiansen MB White DK Are older adults with symptomatic knee osteoarthritis less active than the general population? Analysis from the osteoarthritis initiative and the national health and nutrition examination survey Arthritis Care Res 2018 70 10 1448 54 10.1002/acr.23511 PMC6105574 29468844 · DOI
  16. [21]Hinman RS Nicolson PJA Dobson FL Bennell KL Use of Nondrug, nonoperative interventions by Community-Dwelling people with hip and knee osteoarthritis Arthritis Care Res 2015 67 2 305 9 10.1002/acr.22395 25048646 · DOI
  17. [22]Mackey LM Blake C Casey M-B Power CK Victory R Hearty C Fullen BM The impact of health literacy on health outcomes in individuals with chronic pain: a cross-sectional study Physiotherapy 2019 105 3 346 53 10.1016/j.physio.2018.11.006 30878145 · DOI
  18. [23]Köppen PJ Dorner TE Stein KV Simon J Crevenna R Health literacy, pain intensity and pain perception in patients with chronic pain Wien Klin Wochenschr 2018 130 1–2 23 30 10.1007/s00508-017-1309-5 29322378 PMC5772123 · DOI
  19. [24]Rogers AH Bakhshaie J Orr MF Ditre JW Zvolensky MJ Health literacy, opioid misuse, and Pain Experience among adults with Chronic Pain Pain Med (Malden Mass) 2020 21 4 670 6 10.1093/pm/pnz062 PMC12104017 30938818 · DOI
  20. [25]Castarlenas E Sánchez-Rodríguez E Roy R Tomé-Pires C Solé E Jensen MP Miró J Electronic Health literacy in individuals with chronic Pain and its association with psychological function Int J Environ Res Public Health 2021 18 23 12528 10.3390/ijerph182312528 34886254 PMC8656597 · DOI
  21. [26]Bouma SE van Beek JF Diercks RL van der Woude LH Stevens M van den Akker-Scheek I Barriers and facilitators perceived by healthcare professionals for implementing lifestyle interventions in patients with osteoarthritis: a scoping review BMJ Open 2022 12 2 e056831 10.1136/bmjopen-2021-056831 35105598 PMC8808449 · DOI
  22. [27]Egerton T Bolton J Short CE Bennell KL Exploring changes, and factors associated with changes, in behavioural determinants from a low-cost, scalable education intervention about knee osteoarthritis: an observational cohort study BMC Musculoskelet Disord 2021 22 1 862 2 10.1186/s12891-021-04751-2 34627203 PMC8502260 · DOI
  23. [28]Pereira D Peleteiro B Araujo J Branco J Santos R Ramos E The effect of osteoarthritis definition on prevalence and incidence estimates: a systematic review Osteoarthr Cartil 2011 19 11 1270 85 10.1016/j.joca.2011.08.009 21907813 · DOI
  24. [29]Breivik H Eisenberg E O’Brien T The individual and societal burden of chronic pain in Europe: the case for strategic prioritisation and action to improve knowledge and availability of appropriate care BMC Public Health 2013 13 1 1229 10.1186/1471-2458-13-1229 24365383 PMC3878786 · DOI · Paper page
  25. [30]Kim K Yang Y Wang Z Chen J Barandouzi ZA Hong H Han H-R Starkweather A A systematic review of the association between health literacy and pain self-management Patient Educ Couns 2022 105 6 1427 40 10.1016/j.pec.2021.09.037 34629232 · DOI
  26. [31]Creswell JW Plano Clark VL Designing and conducting mixed methods research 2017 Los Angeles SAGE
  27. [32]Sørensen K Van den Broucke S Pelikan JM Fullam J Doyle G Slonska Z Kondilis B Stoffels V Osborne RH Brand H Measuring health literacy in populations: illuminating the design and development process of the European Health literacy Survey Questionnaire (HLS-EU-Q) BMC Public Health 2013 13 1 948 10.1186/1471-2458-13-948 24112855 PMC4016258 · DOI
  28. [33]Andersson MLE Haglund E Aili K Bremander A Bergman S Cohort profile: the Halland osteoarthritis (HALLOA) cohort–from knee pain to osteoarthritis: a longitudinal observational study in Sweden BMJ Open 2022 12 7 e057086 10.1136/bmjopen-2021-057086 35835523 PMC9289013 · DOI
  29. [34]O’cathain A Murphy E Nicholl J The quality of mixed methods studies in health services research J Health Serv Res Policy 2008 13 2 92 8 10.1258/jhsrp.2007.007074 18416914 · DOI
  30. [36]Wångdahl J Jaensson M Dahlberg K Nilsson U The Swedish Version of the Electronic Health literacy scale: prospective psychometric evaluation study including thresholds levels JMIR mHealth and uHealth 2020 8 2 e16316 10.2196/16316 32130168 PMC7063530 · DOI
  31. [37]Pelikan JM, Ganahl K, Van den Broucke S, Sørensen, K. Measuring health literacy in Europe: introducing the European Health Literacy Survey Questionnaire (HLS-EU-Q). International handbook of health literacy. Policy Press; 2019. p. 115–38.
  32. [38]Pelikan JM, Röthlin F, Ganahl K. Boltzmann, L. Measuring comprehensive health literacy in general populations: validation of instrument, indices and scales of the HLS-EU study. In: Proceedings of the 6th Annual Health Literacy Research Conference; 2014.
  33. [39]Bergman L Nilsson U Dahlberg K Jaensson M Wångdahl J Health literacy and e-health literacy among arabic-speaking migrants in Sweden: a cross-sectional study BMC Public Health 2021 21 1 2165 10.1186/s12889-021-12187-5 34823499 PMC8614220 · DOI
  34. [40]Wangdahl JM Dahlberg K Jaensson M Nilsson U Psychometric validation of swedish and arabic versions of two health literacy questionnaires, eHEALS and HLS-EU-Q16, for use in a swedish context: a study protocol BMJ Open 2019 9 9 e029668 10.1136/bmjopen-2019-029668 31530602 PMC6756328 · DOI
  35. [41]Bergman L Nilsson U Dahlberg K Jaensson M Wångdahl J Validity and reliability of the swedish versions of the HLS-EU-Q16 and HLS-EU-Q6 questionnaires BMC Public Health 2023 23 1 724 10.1186/s12889-023-15519-9 37081538 PMC10117247 · DOI
  36. [43]Toçi E Burazeri G Sørensen K Kamberi H Brand H Concurrent validation of two key health literacy instruments in a south eastern european population Eur J Pub Health 2015 25 3 482 6 10.1093/eurpub/cku190 25395401 · DOI
  37. [46]Sullivan M Karlsson J Ware JE Jr The swedish SF-36 Health Survey–I. evaluation of data quality, scaling assumptions, reliability and construct validity across general populations in Sweden Soc Sci Med 1995 41 10 1349 58 10.1016/0277-9536(95)00125-Q 8560302 · DOI · Paper page
  38. [47]Bergman S Herrström P Högström K Petersson IF Svensson B Jacobsson LT Chronic musculoskeletal pain, prevalence rates, and sociodemographic associations in a swedish population study J Rheumatol 2001 28 6 1369 77 11409133
  39. [48]Ahlbäck S Osteoarthrosis of the knee. A radiographic investigation Acta Radiol Diagn (Stockh) 1968 277 7 72 5706059
  40. [49]Ware JE Gandek B Overview of the SF-36 Health Survey and the International Quality of Life Assessment (IQOLA) Project J Clin Epidemiol 1998 51 11 903 12 10.1016/S0895-4356(98)00081-X 9817107 · DOI
  41. [50]Wolfe F Butler SH Fitzcharles M Häuser W Katz RL Mease PJ Rasker JJ Russell AS Russell IJ Walitt B Revised chronic widespread pain criteria: development from and integration with fibromyalgia criteria Scandinavian J pain 2019 20 1 77 86 10.1515/sjpain-2019-0054 31596726 · DOI
  42. [51]Graneheim UH, Lindgren B-M, Lundman B. Methodological challenges in qualitative content analysis: A discussion paper. Nurse education today 2017, 56:29–34. 10.1016/j.nedt.2017.06.002. 28651100 · DOI
  43. [52]Graneheim UH Lundman B Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness Nurse Educ Today 2004 24 2 105 12 10.1016/j.nedt.2003.10.001 14769454 · DOI · Paper page
  44. [53]Lindgren B-M Lundman B Graneheim UH Abstraction and interpretation during the qualitative content analysis process Int J Nurs Stud 2020 108 103632 10.1016/j.ijnurstu.2020.103632 32505813 · DOI
  45. [54]Krippendorff K Content analysis: an introduction to its methodology 2018 Thousand Oaks SAGE
  46. [55]World Medical Association World Medical Association Declaration of Helsinki: ethical principles for medical research involving human subjects JAMA 2013 310 20 2191 4 10.1001/jama.2013.281053 24141714 · DOI · Paper page
  47. [56]Sundell E Wångdahl J Grauman à Health literacy and digital health information-seeking behavior–a cross-sectional study among highly educated swedes BMC Public Health 2022 22 1 2278 10.1186/s12889-022-14751-z 36471284 PMC9724302 · DOI · Paper page
  48. [57]Filippo T Matteo M Anne-Linda C Peter S Multivariate determinants of self-management in health care: assessing health empowerment model by comparison between structural equation and graphical models approaches Epidemiol Biostatistics Public Health 2015 12 1 1 13 10.2427/11126 · DOI
  49. [58]Emilson C Åsenlöf P Demmelmaier I Bergman S Association between health care utilization and musculoskeletal pain. A 21-year follow-up of a population cohort Scandinavian J Pain 2020 20 3 533 43 10.1515/sjpain-2019-0143 32755105 · DOI
  50. [59]Brooks C Ballinger C Nutbeam D Adams J The importance of building trust and tailoring interactions when meeting older adults’ health literacy needs Disabil Rehabil 2017 39 23 2428 35 10.1080/09638288.2016.1231849 27712121 · DOI
  51. [60]Darlow B Brown M Thompson B Hudson B Grainger R McKinlay E Abbott JH Living with osteoarthritis is a balancing act: an exploration of patients’ beliefs about knee pain BMC Rheumatol 2018 2 1 1 9 10.1186/s41927-018-0023-x 30886966 PMC6390552 · DOI
  52. [61]Barber T Sharif B Teare S Miller J Shewchuk B Green LA Marlett N Cibere J Mrklas K Wasylak T Qualitative study to elicit patients’ and primary care physicians’ perspectives on the use of a self-management mobile health application for knee osteoarthritis BMJ Open 2019 9 1 e024016 10.1136/bmjopen-2018-024016 30782723 PMC6361338 · DOI
  53. [62]Mann C Gooberman-Hill R Health care provision for osteoarthritis: concordance between what patients would like and what health professionals think they should have Arthritis Care Res 2011 63 7 963 72 10.1002/acr.20459 21387574 · DOI · Paper page
  54. [63]Wahl AK, Andersen MH, Ødemark J, Reisæther A, Urstad KH, Engebretsen E. The importance of shared meaning-making for sustainable knowledge translation and health literacy. J Eval Clin Pract 2022, 28(5):828–34. 10.1111/jep.13690. PMC9790374 35466469 · DOI
  55. [64]van der Heide I Poureslami I Mitic W Shum J Rootman I FitzGerald JM Health literacy in chronic disease management: a matter of interaction J Clin Epidemiol 2018 102 134 8 10.1016/j.jclinepi.2018.05.010 29793001 · DOI
  56. [65]Lonergan B Insight. A study of Human understanding 1992 Toronto University of Toronto Press
  57. [66]Madrigal L Escoffery C Electronic health behaviors among US adults with chronic disease: cross-sectional survey J Med Internet Res 2019 21 3 e11240 10.2196/11240 30835242 PMC6423466 · DOI
  58. [68]Creswell JW Creswell JD Research design: qualitative, quantitative, and mixed methods approaches 2018 Los Angeles SAGE
  59. [69]Bengtsson M How to plan and perform a qualitative study using content analysis NursingPlus Open 2016 2 8 14 10.1016/j.npls.2016.01.001 · DOI · Paper page

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Sorted by citations

Authors
Sylwander, C., Wahl, A. K., Andersson, M. L. E., Haglund, E., & Larsson, I.
Affiliations
  • Halmstad University (SE)
  • University of Oslo (NO)
  • Lund University (SE)
Corresponding author
Sylwander, Charlotte
Venue
BMC Public Health
Published
2023-08-29
Volume
23
Issue
1
Pages
1656-1656
ISSN
1471-2458 (ISSN-L)
OpenAlex
W4386251436
Cited by
11
References
4
Citations by year
2026: 5 · 2025: 5 · 2024: 1
FWCI
3.90
Type
journal article
Language
en
Open access
Locations
  • BMC Public Health (publishedVersion, cc-by)
  • PubMed Central (publishedVersion, cc-by)
  • PubMed (publishedVersion)
  • DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
  • Lund University Publications (Lund University) (submittedVersion)
  • Duo Research Archive (University of Oslo) (submittedVersion, cc-by)
Funders
  • The Swedish Rheumatism Association (R-967899)
  • Anna and Edwin Berger Foundation (F-22-0006)
  • Halmstad University
Topics
  • Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
  • Health Sciences › Medicine › Pharmacology › Musculoskeletal pain and rehabilitation
  • Health Sciences › Health Professions › General Health Professions › Patient-Provider Communication in Healthcare
Keywords
health literacy, knee pain, knee osteoarthritis, lifestyle habits, chronic pain, health information seeking, medical data processing, health decision-making, HLS-EU-Q16, eHealth Literacy Scale, health promotion
MeSH terms
Habits, Health Promotion, Humans, Osteoarthritis, Knee, Health Literacy, Chronic Pain

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