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Acceptability and feasibility of a pilot randomized controlled trial of Narrative e-Writing Intervention (NeW-I) for parent-caregivers of children with chronic life-threatening illnesses in Singapore

Dutta, Oindrila, Tan-Ho, Geraldine, Low, Xinyi Casuarine, Tan, Toh Hsiang Benny, Ganapathy, Sashikumar, Car, Josip, Ho, Ringo Moon-Ho, Miao, Chun Yan, Ho, Andy Hau Yan·2022·BMC Palliative Care
DOI 10.1186/s12904-022-00945-0PMC PMC9052453
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Abstract

Background: Narrative e-Writing Intervention (NeW-I) is a novel psycho-socio-spiritual intervention which aims to bridge gaps in paediatric palliative care by providing anticipatory grief support to parent-caregivers who are looking after their child with a chronic life-threatening illness in Singapore. This is done via a therapist-facilitated smartphone app that focuses on strengths and meaning derived from parents’ caregiving journey. NeW-I is empirically informed by an international systematic review and a Singapore-based qualitative inquiry on the lived experience of parental bereavement and supported by anticipatory grief interventions literature for improving the holistic well-being for parent-caregivers of seriously ill children. NeW-I is implemented in Singapore as an open-label two-armed randomized controlled trial comprising an intervention and control group. Methods: This study examined the acceptability (via analysis of participants’ post-intervention qualitative feedback and responses to a post-intervention evaluation survey) and feasibility (via records and memos of therapists’ experience of delivering the intervention) of NeW-I among 26 intervention participants drawn from the larger trial. Results: Framework analysis of participants’ post-intervention feedback revealed four themes, namely: (i) Meaningful opportunity for reflection, (ii) Congruity with parent-caregivers’ needs, (iii) Compatibility of online narrative writing and (iv) Sustainability and enhancement recommendations. The post-intervention evaluation survey showed that participants were overall satisfied with their NeW-I experience with a large number of participants acknowledging that NeW-I had improved their spiritual well-being, hopefulness about the future and perception of social support that was available to them, as well as lessened their feelings of sadness and depression, caregiver burden and fear and anxiety about their child’s illness. The research team found it feasible to deliver the intervention in the current setting. Conclusion: NeW-I is an innovative e-health tool that could immeasurably value-add to paediatric palliative care services for Asian families in Singapore and around the world. Trial registration: ClinicalTrials.gov, ID: NCT03684382 , Verified: September 2018.

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  1. Fraser LK, Miller M, Hain R, Norman P, Aldridge J, McKinney PA, et al. Rising national prevalence of life-limiting conditions in children in England. Paediatrics. 2012 Apr [cited 2019 May 29];129(4):e923–9. Available from: http://dx.doi.org/https://doi.org/10.1542/peds.2011-2846 · DOI
  2. Connor S, Sisimayi C, Downing J, King E, Lim Ah Ken P, Yates R, et al. Assessment of the need for palliative care for children in South Africa. Int J Palliat Nurs. 2014;20(3):130–4. Available from: http://dx.doi.org/https://doi.org/10.12968/ijpn.2014.20.3.130 · DOI
  3. Cadell S, Kennedy K, Hemsworth D. Informing social work practice through research with parent caregivers of a child with a life-limiting illness. J Soc Work End-of-Life Palliat Care. 2012;8(4):356–81. Available from: http://dx.doi.org/https://doi.org/10.1080/15524256.2012.732021 · DOI
  4. Doka KJ. Ethics, end-of-life decisions and grief. Mortality. 2005;10(1):83–90. Available from: https://doi.org/10.1080/13576270500031105 · DOI
  5. Bergstraesser E, Inglin S, Hornung R, Landolt MA. Dyadic coping of parents after the death of a child. Death Stud. 2015;39(1–5):128–38. Available from: http://dx.doi.org/https://doi.org/10.1080/07481187.2014.920434 · DOI
  6. Alam R, Barrera M, D’Agostino N, Nicholas DB, Schneiderman G. Bereavement experiences of mothers and fathers over time after the death of a child due to cancer. Death Stud. 2012;36(1):1–22. Available from: https://www.ncbi.nlm.nih.gov/pubmed/24567992 · DOI
  7. Jordan J, Price JE, Prior L. Disorder and disconnection: Parent experiences of liminality when caring for their dying child. Soc Health Illn. 2015;37(6):839–55. Available from: http://dx.doi.org/https://doi.org/10.1111/1467-9566.12235 · DOI
  8. Meert KL, Eggly S, Pollack M, Anand KJS, Zimmerman J, Carcillo J, et al. Parents’ perspectives on physician-parent communication near the time of a child's death in the paediatric intensive care unit. Paediatr Crit Care Med. 2008;9(1):2–7. Available from: http://dx.doi.org/https://doi.org/10.1097/01.PCC.0000298644.13882.88 · DOI
  9. Dellve L, Samuelsson L, Tallborn A, Fasth A, Hallberg LR-M. Stress and well-being among parents of children with rare diseases: a prospective intervention study. J Adv Nurs. 2006;53(4):392–402. Available from: http://dx.doi.org/https://doi.org/10.1111/j.1365-2648.2006.03736.x · DOI
  10. Liben S, Papadatou D, Wolfe J. Paediatric palliative care: Challenges and emerging ideas. Lancet. 2008;371(9615):852–64. Available from: http://dx.doi.org/https://doi.org/10.1016/S0140-6736(07)61203-3 · DOI
  11. Contro N, Sourkes BM. Opportunities for quality improvement in bereavement care at a children’s hospital: assessment of interdisciplinary staff perspectives. J Palliat Care. 2012 Spring;28(1):28–35. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22582469 · DOI
  12. Endo K, Yonemoto N, Yamada M. Interventions for bereaved parents following a child’s death: A systematic review. Palliat Med. 2015;29(7):590–604. Available from: http://dx.doi.org/https://doi.org/10.1177/0269216315576674 · DOI
  13. Dutta O, Tan-Ho G, Choo PY, Low XC, Chong PH, Ng C, et al. Trauma to transformation: the lived experience of bereaved parents of children with chronic life-threatening illnesses in Singapore. BMC Palliat Care. 2020;19(1):46. Available from: http://dx.doi.org/https://doi.org/10.1186/s12904-020-00555-8 · DOI
  14. Dutta O, Tan-Ho G, Choo PY, Ho AHY. Lived experience of a child’s chronic illness and death: a qualitative systematic review of the parental bereavement trajectory. Death Stud. 2019;43(9):547–61. Available from: http://dx.doi.org/https://doi.org/10.1080/07481187.2018.1503621 · DOI
  15. Ho AHY, Dutta O, Tan-Ho G, Tan THB, Low CX, Ganapathy S, et al. A Novel Narrative E-Writing Intervention (NeW-I) for parents of children with chronic life-threatening illnesses: protocol for a pilot open-label randomized controlled trial. JMIR Res Protoc. 2020;9(7):e17561. Available from: http://dx.doi.org/https://doi.org/10.2196/17561 · DOI
  16. Toyama H, Honda A. Using narrative approach for anticipatory grief among family caregivers at home. Glob Qual Nurs Res. 2016;3:1–15. Available from: http://dx.doi.org/https://doi.org/10.1177/2333393616682549 · DOI
  17. Patinadan PV, Tan-Ho G, Choo PY, Ho AHY. Resolving anticipatory grief and enhancing dignity at the end-of life: a systematic review of palliative interventions. Death Stud. 2020 21;1–14. Available from: http://dx.doi.org/https://doi.org/10.1080/07481187.2020.1728426 · DOI
  18. Chochinov HM, Hack T, Hassard T, Kristjanson LJ, McClement S, Harlos M. Dignity therapy: a novel psychotherapeutic intervention for patients near the end of life. J Clin Oncol. 2005;23(24):5520–5. Available from: http://dx.doi.org/https://doi.org/10.1200/JCO.2005.08.391 · DOI · Paper page
  19. Ho AHY, Car J, Ho M-HR, Tan-Ho G, Choo PY, Patinadan PV, et al. A novel Family Dignity Intervention (FDI) for enhancing and informing holistic palliative care in Asia: study protocol for a randomized controlled trial. Trials. 2017;18(1):587. Available from: http://dx.doi.org/https://doi.org/10.1186/s13063-017-2325-5 · DOI
  20. Guo Q, Chochinov HM, McClement S, Thompson G, Hack T. Development and evaluation of the Dignity Talk question framework for palliative patients and their families: a mixed-methods study. Palliat Med. 2018;32(1):195–205. Available from: http://dx.doi.org/https://doi.org/10.1177/0269216317734696 · DOI
  21. Julião M, Barbosa A, Oliveira F, Nunes B, Vaz Carneiro A. Efficacy of dignity therapy for depression and anxiety in terminally ill patients: early results of a randomized controlled trial. Palliat Support Care. 2013;11(6):481–9. Available from: http://dx.doi.org/https://doi.org/10.1017/S1478951512000892 · DOI
  22. Vuksanovic D, Green HJ, Dyck M, Morrissey SA. Dignity therapy and life review for palliative care patients: a randomized controlled trial. J Pain Symptom Manage. 2017;53(2):162–70.e1. Available from: http://dx.doi.org/https://doi.org/10.1016/j.jpainsymman.2016.09.005 · DOI
  23. Ho AHY, Car J, Ho RMH, Tan-Ho G, Choo PY, Patinadan PV, et al. Family Dignity Intervention (FDI) for Advancing Asia Palliative Care: Preliminary findings from a Waitlist RCT. In: Association for Death Education and Counselling 41st Annual Conference. Atlanta, GA, USA; 11–13 April 2019. Available from: https://cdn.ymaws.com/www.adec.org/resource/resmgr/conference/2019_conference_abstract_boo.pdf
  24. Ho AHY, Car J, Ho M-HR, Tan-Ho G, Choo PY, Patinadan PV, et al. Family Dignity Intervention (FDI) for Advancing Asia Palliative Care: Preliminary findings from a Waitlist RCT. Association for Death Education and Counseling 41 st Annual Conference (Atlanta, GA, USA). 2019.
  25. Ho AHY, Car J, Ho RMH, Tan-Ho G, Choo PY, Patinadan PV, et al. Family Dignity Intervention (FDI) for advancing Holistic Care in Asia Palliative Care: Findings from a Randomized Controlled Trial. In: 13th Asia Pacific Hospice and Palliative Care Conference. Surabaya, Indonesia; 1–4 August 2019.
  26. Ho AHY. Living and dying with dignity: an interpretive-systemic framework in Hong Kong [Doctor of Philosophy]. Chan C, Chow AYM, editors. The University of Hong Kong; 2013. Available from: http://dx.doi.org/https://doi.org/10.5353/th_b5106513 · DOI
  27. Campbell M, Fitzpatrick R, Haines A, Kinmonth AL, Sandercock P, Spiegelhalter D, et al. Framework for design and evaluation of complex interventions to improve health. BMJ. 2000;321(7262):694–6. Available from: http://dx.doi.org/https://doi.org/10.1136/bmj.321.7262.694 · DOI · Paper page
  28. Lakshman R, Griffin S, Hardeman W, Schiff A, Kinmonth AL, Ong KK. Using the Medical Research Council framework for the development and evaluation of complex interventions in a theory-based infant feeding intervention to prevent childhood obesity: the baby milk intervention and trial. J Obes. 2014;2014:646504. Available from: http://dx.doi.org/https://doi.org/10.1155/2014/646504 · DOI
  29. Neimeyer RA. Bereavement and the quest for meaning: Rewriting stories of loss and grief. Hellenic J Psychol. 2006;3(3):181–8. Available from: https://pdfs.semanticscholar.org/34bc/cf1083c1d384ebf41612a6f51819b7c75c41.pdf
  30. McClement S, Chochinov HM, Hack T, Hassard T, Kristjanson LJ, Harlos M. Dignity therapy: Family member perspectives. J Palliat Med. 2007;10(5):1076–82. Available from: http://dx.doi.org/https://doi.org/10.1089/jpm.2007.0002 · DOI · Paper page
  31. Dutta O. Understanding Lived Experiences of Bereaved Parents of Children with Chronic Life-Threatening Illness: Towards a Culture-Specific and Meaning-Oriented Narrative E-Writing Intervention (NeW-I) for Anticipatory Grief Support in Singapore [Doctor of Philosophy]. Ho AHY, editor. Nanyang Technological University; 2020. Available from: http://dx.doi.org/https://doi.org/10.32657/10356/144741 · DOI
  32. Andrews G, Slade T. Interpreting scores on the Kessler Psychological Distress Scale (K10). Aust N Z J Public Health. 2001;25(6):494–7. Available from: http://dx.doi.org/https://doi.org/10.1111/j.1467-842x.2001.tb00310.x · DOI · Paper page
  33. Proctor E, Silmere H, Raghavan R, Hovmand P, Aarons G, Bunger A, et al. Outcomes for implementation research: conceptual distinctions, measurement challenges, and research agenda. Adm Policy Ment Health. 2011;38(2):65–76. Available from: http://dx.doi.org/https://doi.org/10.1007/s10488-010-0319-7 · DOI · Paper page
  34. Hedtke L. Creating Stories of Hope: A narrative approach to illness, death and grief. Aust N Z J Fam Ther. 2014;35(1):4–19. Available from: http://doi.wiley.com/https://doi.org/10.1002/anzf.1040 · DOI
  35. Rini A, Loriz L. Anticipatory mourning in parents with a child who dies while hospitalized. J Pediatr Nurs. 2007;22(4):272–82. Available from: http://dx.doi.org/https://doi.org/10.1016/j.pedn.2006.08.008 · DOI
  36. Ho AHY, Leung PPY, Tse DMW, Pang SMC, Chochinov HM, Neimeyer RA, et al. Dignity amidst liminality: healing within suffering among Chinese terminal cancer patients. Death Stud. 2013;37(10):953–70. Available from: http://dx.doi.org/https://doi.org/10.1080/07481187.2012.703078 · DOI
  37. Ho AHY, Dutta O, Tan-Ho G, Choo PY, Low XC, Chong PH, et al. Thematic analysis of spousal interaction patterns among Asian parents of children with chronic life-threatening illness. BMJ Open. 2019 [cited 2019 Nov 20];9(11). Available from: https://bmjopen.bmj.com/content/9/11/e032582.full · DOI
  38. Gearing RE, Schwalbe CSJ, Lee R, Hoagwood KE. The effectiveness of booster sessions in CBT treatment for child and adolescent mood and anxiety disorders. Depress Anxiety. 2013;30(9):800–8. Available from: http://dx.doi.org/https://doi.org/10.1002/da.22118 · DOI
  39. Moos R, Schaefer J, Andrassy J, Moos B. Outpatient mental health care, self-help groups, and patients’ one-year treatment outcomes. J Clin Psychol. 2001;57(3):273–87. Available from: http://dx.doi.org/https://doi.org/10.1002/jclp.1011 · DOI
  40. Whisman MA. The efficacy of booster maintenance sessions in behavior therapy: review and methodological critique. Clin Psychol Rev. 1990;10(2):155–70. Available from: http://dx.doi.org/https://doi.org/10.1016/0272-7358(90)90055-F · DOI

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Metadata

Authors
Dutta, O., Tan-Ho, G., Low, X. C., Tan, T. H. B., Ganapathy, S., Car, J., Ho, R. M.-H., Miao, C. Y., & Ho, A. H. Y.
ORCID
Venue
BMC Palliative Care
Publisher
Springer Science and Business Media LLC
Published
2022-04-29
Volume
21
Issue
1
ISSN
1472-684X
DOI
10.1186/s12904-022-00945-0
PMC
PMC9052453
Cited by
11
References
6
Language
en
Licence
Funders
  • Ministry of Education - Singapore (2017-T1-001-034)
  • Temasek Foundation (M4062472.SS0)

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