Women’s experiences of receiving care for pelvic organ prolapse: a qualitative study
Open accessAbstract
BACKGROUND: Pelvic organ prolapse is a common urogenital condition affecting 41-50% of women over the age of 40. To achieve early diagnosis and appropriate treatment, it is important that care is sensitive to and meets women's needs, throughout their patient journey. This study explored women's experiences of seeking diagnosis and treatment for prolapse and their needs and priorities for improving person-centred care. METHODS: Twenty-two women receiving prolapse care through urogynaecology services across three purposefully selected NHS UK sites took part in three focus groups and four telephone interviews. A topic guide facilitated discussions about women's experiences of prolapse, diagnosis, treatment, follow-up, interactions with healthcare professionals, overall service delivery, and ideals for future services to meet their needs. Data were analysed thematically. RESULTS: Three themes emerged relating to women's experiences of a) Evaluating what is normal b) Hobson's choice of treatment decisions, and c) The trial and error of treatment and technique. Women often delayed seeking help for their symptoms due to lack of awareness, embarrassment and stigma. When presented to GPs, their symptoms were often dismissed and unaddressed until they became more severe. Women reported receiving little or no choice in treatment decisions. Choices were often influenced by health professionals' preferences which were subtly reflected through the framing of the offer. Women's embodied knowledge of their condition and treatment was largely unheeded, resulting in decisions that were inconsistent with women's preferences and needs. Physiotherapy based interventions were reported as helping women regain control over their symptoms and life. A need for greater awareness of prolapse and physiotherapy interventions among women, GPs and consultants was identified alongside greater focus on prevention, early diagnosis and regular follow-up. Greater choice and involvement in treatment decision making was desired. CONCLUSIONS: As prolapse treatment options expand to include more conservative choices, greater awareness and education is needed among women and professionals about these as a first line treatment and preventive measure, alongside a multi-professional team approach to treatment decision making. Women presenting with prolapse symptoms need to be listened to by the health care team, offered better information about treatment choices, and supported to make a decision that is right for them.
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In a focus group study of 22 women receiving prolapse care through urogynecology services in the UK, women often delayed seeking help for their symptoms because of lack of awareness, embarrassment and stigma.
“the authors found that women often delayed seeking help for their symptoms because of lack of awareness, embarrassment and stigma”
From International urogynecology consultation chapter 3 committee 2; conservative treatment of patient with pelvic organ prolapse: Pelvic floor muscle training (2022) · cites this paper as [98]
In that focus group study, choices were often influenced by health professionals' preferences and inconsistent with women's preferences and needs.
“Choices were often influenced by health professionals' preferences and inconsistent with women's preferences and needs.”
From International urogynecology consultation chapter 3 committee 2; conservative treatment of patient with pelvic organ prolapse: Pelvic floor muscle training (2022) · cites this paper as [98]
In that focus group study, physical therapy-based interventions were reported as helping women regain control over their symptoms and life.
“Physical therapy-based interventions were reported as helping women regain control over their symptoms and life.”
From International urogynecology consultation chapter 3 committee 2; conservative treatment of patient with pelvic organ prolapse: Pelvic floor muscle training (2022) · cites this paper as [98]
In that focus group study, when women presented to their family doctors their symptoms were often dismissed and unaddressed until they became more severe, and the women reported receiving little or no choice in treatment decisions.
“When they did present to their family doctors, their symptoms were often dismissed and unaddressed until they became more severe, and the women reported receiving little or no choice in treatment decisions.”
From International urogynecology consultation chapter 3 committee 2; conservative treatment of patient with pelvic organ prolapse: Pelvic floor muscle training (2022) · cites this paper as [98]
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- Authors
- Abhyankar, P., Uny, I., Semple, K., Wane, S., Hagen, S., Wilkinson, J., Guerrero, K., Tincello, D., Duncan, E., Calveley, E., Elders, A., McClurg, D., & Maxwell, M.
- Affiliations
- University of Stirling (GB)
- Glasgow Caledonian University (GB)
- NHS Greater Glasgow and Clyde (GB)
- University of Leicester (GB)
- Corresponding author
- Abhyankar, Purva
- ORCID
- Venue
- BMC Women's Health
- Published
- 2019-03-15
- Volume
- 19
- Issue
- 1
- Pages
- 45-45
- ISSN
- 1472-6874 (ISSN-L)
- PMC
- PMC6419797
- OpenAlex
- W2938186968
- Cited by
- 93
- References
- 40
- Citations by year
- 2026: 13 · 2025: 13 · 2024: 19 · 2023: 10 · 2022: 15 · 2021: 11 · 2020: 10 · 2019: 2
- FWCI
- 7.21
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- Locations
- BMC Women s Health (publishedVersion, cc-by)
- Europe PMC (PubMed Central) (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- ResearchOnline (acceptedVersion, cc-by)
- Edinburgh Research Explorer (University of Edinburgh) (submittedVersion, cc-by)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
- Stirling Online Research Repository (University of Stirling) (submittedVersion, cc-by)
- ResearchOnline (Glasgow Caledonian University) (submittedVersion, cc-by)
- Funders
- National Institute for Health Research (14–04-02)
- Topics
- Health Sciences › Medicine › Rheumatology › Pelvic floor disorders treatments
- Health Sciences › Medicine › Psychiatry and Mental health › Sexual function and dysfunction studies
- Health Sciences › Medicine › Obstetrics and Gynecology › Uterine Myomas and Treatments
- Keywords
- pelvic organ prolapse, women's experiences, person-centred care, treatment decision-making, patient choice, physiotherapy, delayed diagnosis, stigma, early diagnosis, follow-up care, multidisciplinary team
- MeSH terms
- Adult, Aged, Aged, 80 and over, Decision Making, Female, United Kingdom, Humans, Middle Aged, Patient Satisfaction, Focus Groups, Patient-Centered Care, Qualitative Research, Pelvic Organ Prolapse
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