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Decision coaching using the Ottawa family decision guide with parents and their children: a field testing study
Open accessAbstract
BACKGROUND: Although children can benefit from being included in health decisions, little is known about effective interventions to support their involvement. The objective of this study was to evaluate the feasibility and acceptability of decision coaching guided by the Ottawa Family Decision Guide with children and parents considering insulin delivery options for type 1 diabetes (insulin pump, multiple daily injections, or standard insulin injections). METHODS: Pre-/post-test field testing design. Eligible participants were children (≤18 years) with type 1 diabetes and their parents attending an ambulatory diabetes clinic in a tertiary children's hospital. Parent-child dyads received decision coaching using the Ottawa Family Decision Guide that was pre-populated with evidence on insulin delivery options, benefits, and harms. Primary outcomes were feasibility of recruitment and data collection, and parent and child acceptability of the intervention. RESULTS: Of 16 families invited to participate, 12 agreed and 7 attended the decision coaching session. For the five missed families, two families were unable to attend the session or the decision coach was not available (N=3). Baseline and immediately post-coaching questionnaires were all completed and follow-up questionnaires two weeks post-coaching were missing from one parent-child dyad. Missing questionnaire items were 5 of 340 items for children (1.5%) and 1 of 429 for parents (0.2%). Decision coaching was rated as acceptable with higher scores from parents and their children who were in earlier stages of decision making. CONCLUSION: Decision coaching with children and their parents considering insulin options was feasible implement and evaluate in our diabetes clinic and was acceptable to participants. Recruitment was difficult due to scheduling restrictions related to the timing of the study. Coaching should target participants earlier in the decision making process and be scheduled at times that are convenient for families and coaches. Findings were used to inform a full-scale evaluation that is currently underway.
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The OPDG has proven supportive in decision making.
“The OPDG, which has proven supportive in decision making [30, 31], is a two-page guide with four steps”
From Development of a decision guide to support the elderly in decision making about location of care: an iterative, user-centered design (2016) · cites this paper as [31]
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“The OPDG, which has proven supportive in decision making [30, 31], is a two-page guide with four steps: 1) clarify decision; 2) explore decision; 3) identify decision making needs; 4) plan next steps based on needs.”
BackgroundSelf-citation
Metadata
- Authors
- Feenstra, B., Lawson, M. L., Harrison, D., Boland, L., & Stacey, D.
- Affiliations
- University of Ottawa (CA)
- Children's Hospital of Eastern Ontario (CA)
- Corresponding author
- Stacey, Dawn
- Venue
- BMC Medical Informatics and Decision Making
- Published
- 2015-02-07
- Volume
- 15
- Issue
- 1
- Pages
- 5-5
- ISSN
- 1472-6947 (ISSN-L)
- PMC
- PMC4326318
- OpenAlex
- W2118637828
- Cited by
- 35
- References
- 36
- Citations by year
- 2025: 2 · 2024: 1 · 2023: 3 · 2022: 4 · 2021: 5 · 2020: 2 · 2019: 5 · 2018: 5 · 2017: 3 · 2016: 4
- FWCI
- 3.98
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Locations
- BMC Medical Informatics and Decision Making (publishedVersion, cc-by)
- Europe PMC (PubMed Central) (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- Minerva Access (University of Melbourne) (submittedVersion, cc-by)
- uO Research (University of Ottawa) (submittedVersion, public-domain)
- Topics
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Ethics and Legal Issues in Pediatric Healthcare
- Health Sciences › Health Professions › General Health Professions › Patient-Provider Communication in Healthcare
- Health Sciences › Medicine › Endocrinology, Diabetes and Metabolism › Diabetes Management and Education
- Keywords
- decision coaching, type 1 diabetes, shared decision-making, children and adolescents, parents, parent-child dyads, feasibility, acceptability, insulin pump, multiple daily insulin injections, evidence-based decision support
- MeSH terms
- Adult, Child, Decision Making, Decision Support Techniques, Diabetes Mellitus, Type 1, Family, Feasibility Studies, Female, Humans, Health Knowledge, Attitudes, Practice, Male, Middle Aged, Patient Acceptance of Health Care
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