Shared decision-making in the medical encounter: what does it mean? (Or it takes at least two to tango)
Abstract
Shared decision-making is increasingly advocated as an ideal model of treatment decision-making in the medical encounter. To date, the concept has been rather poorly and loosely defined. This paper attempts to provide greater conceptual clarity about shared treatment decision-making, identify some key characteristics of this model, and discuss measurement issues. The particular decision-making context that we focus on is potentially life threatening illnesses, where there are important decisions to be made at key points in the disease process, and several treatment options exist with different possible outcomes and substantial uncertainty. We suggest as key characteristics of shared decision-making (1) that at least two participants-physician and patient be involved; (2) that both parties share information; (3) that both parties take steps to build a consensus about the preferred treatment; and (4) that an agreement is reached on the treatment to implement. Some challenges to measuring shared decision-making are discussed as well as potential benefits of a shared decision-making model for both physicians and patients.
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The shared decision making model suggests that HCPs can facilitate shared decisions by presenting treatment options, outlining the benefits and risks, and helping patients/caregivers to evaluate these options against their own goals and preferences.
“The shared decision making model suggests that HCPs can facilitate shared decisions by presenting treatment options, outlining the benefits and risks, and helping patients/caregivers to evaluate these options against their own goals and preferences.[36–37]”
From Perceived healthcare provider reactions to patient and caregiver use of online health communities (2014) · cites this paper as [37]
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Background2021 ESC Guidelines on cardiac pacing and cardiac resynchronization therapy
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“Recent policy in both the US and UK has emphasised the importance of patient self management and patient involvement in care [23] based on the notions of patientcentred care [24, 25] and shared decision making [26].”
BackgroundPatients’ preference for involvement in medical decision making: A narrative review
Say, R., Murtagh, M. J., & Thomson, R. (2005) · Patient Education and Counseling · doi:10.1016/j.pec.2005.02.003 · Cited by 633 · see citing works
“At the other end is informed decision making, in which the doctor fully informs the patient, detailing all treatment options and their implications, transferring technical expertise so that the patient can make a decision alone, based on his or her own preferences (active involvement) [5,7–9].”
BackgroundAl‐Khatib, S. M., Stevenson, W. G., Ackerman, M. J., Bryant, W. J., Callans, D. J., Curtis, A. B., Deal, B. J., Dickfeld, T. M., Field, M. E., Fonarow, G. C., et al. (2017) · Heart Rhythm · doi:10.1016/j.hrthm.2017.10.036 · Cited by 639 · see citing works
What do we mean by partnership in making decisions about treatment?
Charles, C. A., Whelan, T. J., & Gafni, A. (1999) · BMJ · doi:10.1136/bmj.319.7212.780 · Cited by 624 · see citing works
Varieties of Uncertainty in Health Care
Han, P. K. J., Klein, W. M. P., & Arora, N. K. (2011) · Medical Decision Making · doi:10.1177/0272989x11393976 · Cited by 950 · see citing works
Chung, M. K., Patton, K. K., Lau, C., Forno, A. D., Al‐Khatib, S. M., Arora, V., Birgersdotter-Green, U. M., Cha, Y., Chung, E. H., Cronin, E. M., et al. (2023) · Heart Rhythm · doi:10.1016/j.hrthm.2023.03.1538 · Cited by 586 · see citing works
Shared decision making: developing the OPTION scale for measuring patient involvement
Elwyn, G. J. (2003) · BMJ Quality & Safety · doi:10.1136/qhc.12.2.93 · Cited by 550 · see citing works
Náfrádi, L., Nakamoto, K., & Schulz, P. J. (2017) · PLoS ONE · doi:10.1371/journal.pone.0186458 · Cited by 555 · see citing works
A Typology of Shared Decision Making, Informed Consent, and Simple Consent
Whitney, S. N., McGuire, A. L., & McCullough, L. B. (2004) · Annals of Internal Medicine · doi:10.7326/0003-4819-140-1-200401060-00012 · Cited by 541 · see citing works
The meaning of patient involvement and participation in health care consultations: A taxonomy
Thompson, A. G. H. (2006) · Social Science & Medicine · doi:10.1016/j.socscimed.2006.11.002 · Cited by 539 · see citing works
Key components of shared decision making models: a systematic review
Bomhof‐Roordink, H., Gärtner, F. R., Stiggelbout, A. M., & Pieterse, A. H. (2019) · BMJ Open · doi:10.1136/bmjopen-2019-031763 · Cited by 545 · see citing works
Kane, J. M., Kishimoto, T., & Correll, C. U. (2013) · World Psychiatry · doi:10.1002/wps.20060 · Cited by 520 · see citing works
“Most importantly, patients should be given sufficient information about the medication and be part of the decision making process (63).”
BackgroundCouët, N., Desroches, S., Robitaille, H., Vaillancourt, H., LeBlanc, A., Turcotte, S., Elwyn, G. J., & Légaré, F. (2013) · Health Expectations · doi:10.1111/hex.12054 · Cited by 519 · see citing works
Sharing decisions in cancer care
Gattellari, M., Butow, P. N., & Tattersall, M. H. N. (2001) · Social Science & Medicine · doi:10.1016/s0277-9536(00)00303-8 · Cited by 506 · see citing works
Shared decision-making in primary care: the neglected second half of the consultation.
Elwyn, G. J., Edwards, A., & Kinnersley, P. (1999) · PubMed Central · Cited by 499 · see citing works
The OPTION scale: measuring the extent that clinicians involve patients in decision‐making tasks
Elwyn, G. J., Hutchings, H. A., Edwards, A., Rapport, F., Wensing, M., Cheung, W., & Grol, R. P. T. M. (2005) · Health Expectations · doi:10.1111/j.1369-7625.2004.00311.x · Cited by 494 · see citing works
The Connection Between Evidence-Based Medicine and Shared Decision Making
Hoffmann, T., Montori, V. M., & Mar, C. D. (2014) · JAMA · doi:10.1001/jama.2014.10186 · Cited by 488 · see citing works
Kiesler, D. J., & Auerbach, S. M. (2005) · Patient Education and Counseling · doi:10.1016/j.pec.2005.08.002 · Cited by 479 · see citing works
“Studies that addressed the general information needs and preferences of medical patients have been reviewed elsewhere [10,27,71–79].”
BackgroundCamacho, P. M., Petak, S. M., Binkley, N., Clarke, B. L., Harris, S. T., Hurley, D. L., Kleerekoper, M., Lewiecki, E. M., Miller, P. D., Narula, H. S., et al. (2016) · Endocrine Practice · doi:10.4158/ep161435.gl · Cited by 487 · see citing works
Frosch, D. L., May, S. G., Rendle, K. A. S., Tietbohl, C. K., & Elwyn, G. J. (2012) · Health Affairs · doi:10.1377/hlthaff.2011.0576 · Cited by 472 · see citing works
Kutner, J. S., Blatchford, P. J., Taylor, D. H., Ritchie, C. S., Bull, J. H., Fairclough, D. L., Hanson, L. C., LeBlanc, T. W., Samsa, G. P., Wolf, S., et al. (2015) · JAMA Internal Medicine · doi:10.1001/jamainternmed.2015.0289 · Cited by 502 · see citing works
Misunderstandings in prescribing decisions in general practice: qualitative study
Britten, N. (2000) · BMJ · doi:10.1136/bmj.320.7233.484 · Cited by 454 · see citing works
Accumulation of cholesterol with age in human Bruch's membrane.
Curcio, C. A., Millican, C. L., Bailey, T. A., & Kruth, H. S. (2001) · PubMed · Cited by 442 · see citing works
Kreyenbuhl, J. A., Nossel, I. R., & Dixon, L. B. (2009) · Schizophrenia Bulletin · doi:10.1093/schbul/sbp046 · Cited by 443 · see citing works
Shared decision making about screening and chemoprevention
Sheridan, S., Harris, R., & Woolf, S. H. (2003) · American Journal of Preventive Medicine · doi:10.1016/j.amepre.2003.09.011 · Cited by 440 · see citing works
“In other models, the process is left to the discretion of the individual patient and clinician.(7,8,17,18) Of those models that define specific steps, many acknowledge the patient’s right to relinquish the decision to the clinician and proceed in a paternalistic model, several call for evidence-based presentations of…”
BackgroundImplementing shared decision-making: consider all the consequences
Elwyn, G. J., Frosch, D. L., & Kobrin, S. C. (2015) · Implementation Science · doi:10.1186/s13012-016-0480-9 · Cited by 444 · see citing works
“[2].”
Doctor–patient communication about drugs: the evidence for shared decision making
Stevenson, F. A., Barry, C. A., Britten, N., Barber, N., & Bradley, C. (2000) · Social Science & Medicine · doi:10.1016/s0277-9536(99)00376-7 · Cited by 433 · see citing works
Elwyn, G. J., Barr, P. J., Grande, S. W., Thompson, R., Walsh, T., & Ozanne, E. M. (2013) · Patient Education and Counseling · doi:10.1016/j.pec.2013.05.009 · Cited by 427 · see citing works
“Initial item formulations were based on core aspects of the principles of shared decision making [44,45,47,48], and on a detailed analysis of existing measurement challenges [1].”
MethodMontori, V. M., Gafni, A., & Charles, C. (2006) · Health Expectations · doi:10.1111/j.1369-7625.2006.00359.x · Cited by 399 · see citing works
Twelve myths about shared decision making
Légaré, F., & Thompson‐Leduc, P. (2014) · Patient Education and Counseling · doi:10.1016/j.pec.2014.06.014 · Cited by 406 · see citing works
“No other uses without permission advantage of both parties’ expertise [22,23].”
BackgroundEndpoints in medical communication research, proposing a framework of functions and outcomes
de Haes, J. C. J. M., & Bensing, J. M. (2009) · Patient Education and Counseling · doi:10.1016/j.pec.2008.12.006 · Cited by 411 · see citing works
The impact of client treatment preferences on outcome: a meta‐analysis
Swift, J. K., & Callahan, J. L. (2009) · Journal of Clinical Psychology · doi:10.1002/jclp.20553 · Cited by 397 · see citing works
“It has further been recommended to be used whenever various treatment options exist (Charles et al., 1997).”
BackgroundSinnott, C., McHugh, S., Browne, J. P., & Bradley, C. (2013) · BMJ Open · doi:10.1136/bmjopen-2013-003610 · Cited by 393 · see citing works
Nunes, V. M. D. A., Neilson, J., O’Flynn, N., Calvert, N., Kuntze, S., Smithson, H., BENSON, J. A., Blair, J., Bowser, A., Clyne, W., et al. (2009) · University of Huddersfield Repository (University of Huddersfield) · Cited by 384 · see citing works
Smith, S. K., Dixon, A., Trevena, L. J., Nutbeam, D., & McCaffery, K. J. (2009) · Social Science & Medicine · doi:10.1016/j.socscimed.2009.09.056 · Cited by 381 · see citing works
Hack, T. F., Degner, L. F., Watson, P. H., & Sinha, L. (2005) · Psycho-Oncology · doi:10.1002/pon.907 · Cited by 376 · see citing works
“The past two decades of psychosocial oncology research have seen increasing emphasis on the values of patient autonomy and shared decision making (Balint and Shelton, 1996; Charles et al., 1997; Quill and Brody, 1996).”
BackgroundBarriers and facilitators of pediatric shared decision-making: a systematic review
Boland, L., Graham, I. D., Légaré, F., Lewis, K. B., Jull, J., Shephard, A., Lawson, M. L., Davis, A., Yameogo, A., & Stacey, D. (2019) · Implementation Science · doi:10.1186/s13012-018-0851-5 · Cited by 383 · see citing works
Elkin, E. B., Kim, S. H. M., Casper, E. S., Kissane, D. W., & Schrag, D. (2007) · Journal of Clinical Oncology · doi:10.1200/jco.2007.11.1922 · Cited by 367 · see citing works
Dehlendorf, C. E., Krajewski, C. M., & Borrero, S. B. (2014) · Clinical Obstetrics & Gynecology · doi:10.1097/grf.0000000000000059 · Cited by 364 · see citing works
“This is in contrast with the promotion of a specific course of action seen with directive counseling or the abdication of involvement in the decision-making process that is inherent in the informed choice model.(54) In the contraceptive context, this approach would allow for both the focus on patient preferences and r…”
BackgroundShared decision making: what do clinicians need to know and why should they bother?
Hoffmann, T., Légaré, F., Simmons, M. B., Namara, K. M., McCaffery, K. J., Trevena, L. J., Hudson, B., Glasziou, P., & Mar, C. D. (2014) · The Medical Journal of Australia · doi:10.5694/mja14.00002 · Cited by 343 · see citing works
Bamm, E. L., & Rosenbaum, P. (2008) · Archives of Physical Medicine and Rehabilitation · doi:10.1016/j.apmr.2007.12.034 · Cited by 346 · see citing works
Shared Decision Making in Health Care
(2016) · Oxford University Press eBooks · doi:10.1093/acprof:oso/9780198723448.001.0001 · Cited by 338 · see citing works
“It is now 12 years since the seminal paper by Charles et al. (1997) and 8 years since the first International Shared Decision Making Conference in Oxford, UK, and the first edition of this volume (Edwards and Elwyn, 2001).”
BackgroundInfluentialLantz, P., Janz, N., Fagerlin, A., Schwartz, K., Liu, L.-H., Lakhani, I., Salem, B., & Katz, S. (2005) · Health Services Research · doi:10.1111/j.1475-6773.2005.00383.x · Cited by 352 · see citing works
“Efforts to improve tailored interactions with patients present a number of challenges, including that this is a labor-intensive endeavor ( Charles, Gafni, and Whelan 1997 ).”
BackgroundScholl, I., LaRussa, A., Hahlweg, P., Kobrin, S., & Elwyn, G. (2018) · Implementation Science · doi:10.1186/s13012-018-0731-z · Cited by 331 · see citing works
“We included articles published between January 1997, the year in which Charles and colleagues described the concept of SDM in their seminal article [28], and October 10, 2016.”
MethodCOVID-19: Pandemic Contingency Planning for the Allergy and Immunology Clinic
Shaker, M. S., Oppenheimer, J. J., Grayson, M. H., Stukus, D. R., Hartog, N., Hsieh, E. W. Y., Rider, N. I., Dutmer, C. M., Leek, T. K. V., Kim, H. L., et al. (2020) · The Journal of Allergy and Clinical Immunology In Practice · doi:10.1016/j.jaip.2020.03.012 · Cited by 332 · see citing works
“64, 65 Please see this article's Online Repository at www.jaci-inpractice.org for additional information on shared decision making during the pandemic.”
When the treatment goal is not cure: are cancer patients equipped to make informed decisions?
Gattellari, M., Voigt, K. J., Butow, P. N., & Tattersall, M. H. N. (2002) · Journal of Clinical Oncology · doi:10.1200/jco.2002.20.2.503 · Cited by 344 · see citing works
Shared Decision Making in Pediatrics: A Systematic Review and Meta-analysis
Wyatt, K. D., List, B. A., Brinkman, W. B., López, G., Asi, N., Erwin, P. J., Wang, Z., Garces, J. P. D., Montori, V. M., & LeBlanc, A. (2015) · Academic Pediatrics · doi:10.1016/j.acap.2015.03.011 · Cited by 327 · see citing works
Interventions for improving the adoption of shared decision making by healthcare professionals
Légaré, F., Stacey, D., Turcotte, S., Cossi, M.-J., Kryworuchko, J., Graham, I. D., Lyddiatt, A., Politi, M. C., Thomson, R., Elwyn, G. J., et al. (2014) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd006732.pub3 · Cited by 332 · see citing works
Deber, R. B., Kraetschmer, N., Urowitz, S., & Sharpe, N. (2007) · Health Expectations · doi:10.1111/j.1369-7625.2007.00441.x · Cited by 322 · see citing works
Shared Decision Making, Paternalism and Patient Choice
Sandman, L., & Munthe, C. (2009) · Health Care Analysis · doi:10.1007/s10728-008-0108-6 · Cited by 317 · see citing works
“The second is to resolve conflicts of interest – where the process is often referred to as negotiation (Charles et al. 1997 & 1999, Makoul & Clayman 2006).”
BackgroundInfluentialPatient involvement in treatment decision-making: The case for a broader conceptual framework
Entwistle, V. A., & Watt, I. S. (2006) · Patient Education and Counseling · doi:10.1016/j.pec.2006.05.002 · Cited by 316 · see citing works
“[19,20].”
BackgroundVeroff, D. R., Marr, A. L., & Wennberg, D. E. (2013) · Health Affairs · doi:10.1377/hlthaff.2011.0941 · Cited by 316 · see citing works
Scholl, I., Kriston, L., Dirmaier, J., Buchholz, A., & Härter, M. C. (2012) · Patient Education and Counseling · doi:10.1016/j.pec.2012.03.005 · Cited by 307 · see citing works
“[3], it is important to take into account the dynamics of this interaction between the patient and the clinician.”
BackgroundShared decision making in psychiatry
Hamann, J., Leucht, S., & Kissling, W. (2003) · Acta Psychiatrica Scandinavica · doi:10.1034/j.1600-0447.2003.00130.x · Cited by 306 · see citing works
“Such a decision aid should present all available therapy options for the respective treatment situation in an objective manner and be easily comprehensible to the patients (3).”
BackgroundInfluentialJanz, N. K., Wren, P. A., Copeland, L. A., Lowery, J. C., Goldfarb, S. L., & Wilkins, E. G. (2004) · Journal of Clinical Oncology · doi:10.1200/jco.2004.09.069 · Cited by 303 · see citing works
“arrive at a consensus regarding the preferred treatment option.(4) Some research-”
Waddell, A., Lennox, A., Spassova, G., & Bragge, P. (2021) · Implementation Science · doi:10.1186/s13012-021-01142-y · Cited by 309 · see citing works
Shared Decision-Making and Evidence-Based Practice
Adams, J. R., & Drake, R. E. (2006) · Community Mental Health Journal · doi:10.1007/s10597-005-9005-8 · Cited by 302 · see citing works
“Clients, on the other hand, are the experts on their own values, treatment preferences, and treatment goals ( Charles, Gafni, & Whelan, 1997 ).”
BackgroundInternational Journal of Collaborative Research on Internal Medicine & Public Health
Valdivia, J. R. M. (2021) · Journal of Womens Health Issues and Care · Cited by 300 · see citing works
Elwyn, G. J., Edwards, A., Gwyn, R., & Grol, R. P. T. M. (1999) · BMJ · doi:10.1136/bmj.319.7212.753 · Cited by 299 · see citing works
“A paternalistic approach involves taking the responsibility for decision making. Informed choice is at the opposite end of the spectrum, where the patient is provided with “sufficient” information and the clinician withdraws from the decision process. Shared decision making describes the middle ground.”
BackgroundShared decision making for in‐patients with schizophrenia
Hamann, J., Langer, B., Winkler, V., Busch, R., Cohen, R., Leucht, S., & Kissling, W. (2006) · Acta Psychiatrica Scandinavica · doi:10.1111/j.1600-0447.2006.00798.x · Cited by 296 · see citing works
“Most authors classify SDM somewhere between the so-called traditional medical and the informed choice model (4, 5).”
BackgroundTraining health professionals in shared decision-making: An international environmental scan
Légaré, F., Politi, M. C., Drolet, R., Desroches, S., Stacey, D., & Bekker, H. (2012) · Patient Education and Counseling · doi:10.1016/j.pec.2012.01.002 · Cited by 288 · see citing works
The Patient-Physician Relationship in the Internet Age: Future Prospects and the Research Agenda
Gerber, B. S., & Eiser, A. R. (2001) · Journal of Medical Internet Research · doi:10.2196/jmir.3.2.e15 · Cited by 290 · see citing works
“Shared decision-making includes the ideal that both parties need to agree on a treatment option, even if both do not agree that it is the best possible treatment to implement [14].”
BackgroundInfluentialEdwards, A., & Elwyn, G. J. (2006) · Health Expectations · doi:10.1111/j.1369-7625.2006.00401.x · Cited by 290 · see citing works
Improving patient adherence: a three-factor model to guide practice
DiMatteo, M. R., Haskard-Zolnierek, K. B., & Martin, L. R. (2012) · Health Psychology Review · doi:10.1080/17437199.2010.537592 · Cited by 288 · see citing works
“Shared decision-making involves a two-way exchange of information between healthcare professional and patient, addressing all information (including psychosocial) that is relevant to the decision (Charles, Gafni, & Whelan, 1997 ).”
Women's preferences for contraceptive counseling and decision making
Dehlendorf, C. E., Levy, K., Kelley, A. G., Grumbach, K., & Steinauer, J. E. (2012) · Contraception · doi:10.1016/j.contraception.2012.10.012 · Cited by 286 · see citing works
“[23], which divides the decision making process into three phases: information sharing, deliberation and decision making.”
Background
- Authors
- Charles, C., Gafni, A., & Whelan, T.
- Affiliations
- McMaster University (CA)
- Corresponding author
- Charles, Cathy
- ORCID
- Gafni, Amiram
- Venue
- Social Science & Medicine
- Publisher
- Elsevier BV
- Published
- 1997-03
- Volume
- 44
- Issue
- 5
- Pages
- 681-692
- ISSN
- 0277-9536 (ISSN-L)
- OpenAlex
- W2040607890
- Cited by
- 4,137
- References
- 68
- Citations by year
- 2026: 168 · 2025: 200 · 2024: 224 · 2023: 213 · 2022: 174 · 2021: 247 · 2020: 250 · 2019: 233 · 2018: 224 · 2017: 234 · 2016: 209 · 2015: 182 · 2014: 221 · 2013: 192 · 2012: 187
- FWCI
- 63.23
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Social Science & Medicine (publishedVersion)
- PubMed (publishedVersion)
- RePEc: Research Papers in Economics (submittedVersion)
- DigitalGeorgetown (Georgetown University Library) (submittedVersion)
- Topics
- Health Sciences › Health Professions › General Health Professions › Patient-Provider Communication in Healthcare
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics and bioethics in healthcare
- Keywords
- shared decision-making, physician-patient relationship, treatment decision-making, shared information, consensus building, patient involvement in care
- MeSH terms
- Decision Making, Humans, Informed Consent, Models, Psychological, Patient Participation, Physician-Patient Relations, Patient Satisfaction
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