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Cited by 252Health Systems, Economic Evaluations, Quality of LifeHealth Education and ValidationAging, Health, and Disability

The DOI matches its Crossref record; 78 of the 91 references it cites were found in a registry or an index.

Quality of life assessment instruments for adults: a systematic review of population-based studies

Open access
Pequeno, Nila Patrícia Freire, Cabral, Natália Louise de Araújo, Marchioni, Dirce Maria, Lima, Severina Carla Vieira Cunha, Lyra, Clélia de Oliveira·2020·Health and Quality of Life Outcomes
DOI 10.1186/s12955-020-01347-7PMC PMC7329518
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Abstract

Background: Against a backdrop of population aging and improving survival rates for chronic noncommunicable diseases (CNCD), researchers are placing growing emphasis on health-related quality of life (HRQoL). The aim of this study was to identify the QoL assessment instruments used in population-based studies with adults conducted around the world. Methods: A systematic review of original research published in all languages between 2008 and 2018 was conducted. Systematic reviews and meta-analyses were excluded. Results: Sixty-three articles (38.1% conducted in the Americas) fitted the eligibility criteria. Based on the AHRQ checklist for cross-sectional studies and the Newcastle-Ottawa scale for cohort studies, methodological quality was shown to be fair in the majority of studies (55.6%) and good in 44.4%. The country with the highest number of publications was Brazil (20.6%). Twelve types of generic instruments and 11 specific instruments were identified. The generic instrument SF-36 was the most frequently used measure (33.3% of studies). In-home interviewing was exclusively used by 47.6% of the studies, while 39 studies (61.9%) reported the use of self-administered questionnaires. Over two-thirds of the studies (34.9%) used questionnaires to investigate the association between chronic diseases and/or associated factors. Conclusions: It was concluded that the wide range of instruments and modes of questionnaire administration used by the studies may hinder comparisons between population groups with the same characteristics or needs. There is a lack of research on QoL and the factors affecting productive capacity. Studies of QoL in older persons should focus not only on the effects of disease and treatment, but also on the determinants of active aging and actions designed to promote it. Further research is recommended to determine which QoL instruments are best suited for population-based studies.

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Crossref · 10.1186/s12955-020-01347-7

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Fig. 1 Flowchart of the article selection process
Fig. 1 Flowchart of the article selection processCC BY · PubMed Central
Fig. 2 Methodological quality and study characteristics. References: a. Fair quality: [8–42]. Good quality: [43–70]. b [28]. and [57]. c. Americas [8–16, 28–34, 43–49, 58], Europe [17–23, 35–38, 50–52, 57, 59–63], Asia [24–26, 39–41, 53–55, 64–69], Oceania [27, 56, 70] and Africa [42]. d. Brazil [8, 11, 13–16, 29, 33, 34, 43–45, 49], United States [9, 10, 12, 30–32, 46, 47, 58], Korea [26, 40, 41, 55, 64–68], Japan [24, 25, 53, 69], France [18, 61–63], England [19–21, 35], Germany [17, 23, 59], Denmark [37, 52, 60], Australia [27, 56, 70], Thailand [39, 54], United Kingdom [22, 57], Nigeria [42], Canada [28], Mexico [48], Laos [39], Spain [38], Sweden [36], and Switzerland [51]
Fig. 2 Methodological quality and study characteristics. References: a. Fair quality: [8–42]. Good quality: [43–70]. b [28]. and [57]. c. Americas [8–16, 28–34, 43–49, 58], Europe [17–23, 35–38, 50–52, 57, 59–63], Asia [24–26, 39–41, 53–55, 64–69], Oceania [27, 56, 70] and Africa [42]. d. Brazil [8, 11, 13–16, 29, 33, 34, 43–45, 49], United States [9, 10, 12, 30–32, 46, 47, 58], Korea [26, 40, 41, 55, 64–68], Japan [24, 25, 53, 69], France [18, 61–63], England [19–21, 35], Germany [17, 23, 59], Denmark [37, 52, 60], Australia [27, 56, 70], Thailand [39, 54], United Kingdom [22, 57], Nigeria [42], Canada [28], Mexico [48], Laos [39], Spain [38], Sweden [36], and Switzerland [51]CC BY · PubMed Central
Fig. 3 Themes related to quality of life assessment investigated by population-based studies conducted between 2008 and 2018 (n = 63 studies). *Others: Comparison of quality of life between ethnic minorities and nontraditional community, informal careers, family members of heavy drinker, social relationships, racial discrimination, and quality of life in general
Fig. 3 Themes related to quality of life assessment investigated by population-based studies conducted between 2008 and 2018 (n = 63 studies). *Others: Comparison of quality of life between ethnic minorities and nontraditional community, informal careers, family members of heavy drinker, social relationships, racial discrimination, and quality of life in generalCC BY · PubMed Central
Fig. 4 Focus of studies evaluating CNCD and associated factors (n = 22 studies)
Fig. 4 Focus of studies evaluating CNCD and associated factors (n = 22 studies)CC BY · PubMed Central

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Citations

Cites

Research works printed but not linked: 7

  1. AHRQ. Agency for Healthcare Research and Quality. Newcastle-Ottawa Quality Assessment Form for Cohort Studies. Available at: https://www.ncbi.nlm.nih.gov/books/NBK115843/bin/appe-fm3.pdf.
  2. Cichy KE, et al. Non-vocational health-related correlates of quality of life for older adults living with multiple sclerosis. J Rehabil. 2016;82(3):36–44.
  3. El Khoury AC, Vietri J, Prajapati G. Health-related quality of life in patients with hepatitis C virus infection in Brazil. Rev Panam Salud Publica. 2014;35(3):200–6.
  4. Pavão A, Ploubidis G, Werneck G, Campos M, Werneck G, Rodrigues Campos M. Racial Discrimination and health in Brazil: evidence from a population-based survey. Ethn Dis. 2012;22:353–9.
  5. Kim Y, Cho W-K. Factors associated with successful smoking cessation in Korean adult males: findings from a National Survey. Iran J Public Health. 2014;43(11):1486–96.
  6. Lima MG. Barros, M.B.d.A. and Alves MCGP, Rio. Sllep Duration And Health Status Self-Assessment in the elderly 2012;28(9):1674–1684. · DOI
  7. Gomes JRAA, Hamann EM, Gutierrez MMU. Aplicação do WHOQOL-BREF em segmento da comunidade como subsídio para ações de promoção da saúde. Rev Bras Epidemiol. 2014:495–516. · DOI

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Metadata

Authors
Pequeno, N. P. F., Cabral, N. L. D. A., Marchioni, D. M., Lima, S. C. V. C., & Lyra, C. D. O.
Affiliations
  • Universidade Federal do Rio Grande do Norte (BR)
  • Universidade de São Paulo (BR)
Corresponding author
Pequeno, Nila Patrícia Freire
ORCID
Venue
Health and Quality of Life Outcomes
Publisher
Springer Science and Business Media LLC
Published
2020-06-30
Volume
18
Issue
1
Pages
208-208
ISSN
1477-7525 (ISSN-L)
DOI
10.1186/s12955-020-01347-7
PMC
PMC7329518
OpenAlex
W3039908902
Cited by
252
References
91
Citations by year
2026: 30 · 2025: 43 · 2024: 60 · 2023: 50 · 2022: 44 · 2021: 23 · 2020: 2
FWCI
4.84
Type
journal article
Language
en
Open access
Licence
Locations
  • Health and Quality of Life Outcomes (publishedVersion, cc-by)
  • PubMed Central (publishedVersion, cc-by)
  • PubMed (publishedVersion)
  • LA Referencia (Red Federada de Repositorios Institucionales de Publicaciones Científicas) (publishedVersion, cc-by)
  • LA Referencia (Red Federada de Repositorios Institucionales de Publicaciones Científicas) (publishedVersion, other-oa)
  • DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
Funders
  • Postgraduate Program in Public Health at Federal University of Rio Grande do Norte (23077.014305/2019-29)
  • Coordenação de Aperfeiçoamento de Pessoal de Nível Superior (Finance Code 001)
Topics
  • Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
  • Health Sciences › Nursing › Research and Theory › Health Education and Validation
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Aging, Health, and Disability
Keywords
health-related quality of life, quality of life instruments, population-based study, adults, SF-36, questionnaire administration mode, non-communicable diseases, active ageing, older adults, methodological quality
MeSH terms
Adult, Aged, Aged, 80 and over, Cross-Sectional Studies, Female, Humans, Male, Psychometrics, Quality of Life, Surveys and Questionnaires

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