“Finding my own identity”: a qualitative metasynthesis of adult anorexia nervosa treatment experiences
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Background: The aim of this metasynthesis was to explore adult anorexia nervosa (AN) treatment experiences, including facilitators and barriers to treatment engagement and ways that questions of identity and personal agency were negotiated in treatment contexts. Methods: From 14 qualitative studies that met the search criteria, this thematic synthesis analyzed the sensitized concept of identity in the participants’ experiences of AN treatments, including their sense of personal agency, and implications for their recovery. The study was registered with Prospero (ID: CRD42018089259) and is reported according to PRISMA guidelines. Results: Three meta-themes were generated with the following key findings: grappling with identity, where collaborative and tailored interventions were positively experienced; the quality of the therapeutic relationship, which existed in a recursive relationship; and, rebuilding identity that included therapists standing with the person in recovering a sense of identity outside the anorexic identity. Importantly, interventions that failed to be negotiated with the person were experienced as disempowering however, where a two-way trust existed in the therapeutic relationship, it critically empowered and shaped participants’ sense of identity, and broadened the perception that they were valuable as a person. Conclusions: There was consensus across the range of treatment contexts that individuals with a lived AN experience preferred treatments where they experienced (1) a sense of personal agency through tailored interventions; and (2) therapists who treated them as a person who, in the face of their struggles, had skills and capacities in the processes of recovering and rebuilding sustainable and preferred identities outside the AN identity.
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The driven compulsive nature of anorexia nervosa and its inextricable tie to identity can make the idea of life without anorexia nervosa seem unimaginable and out of reach.
“Coupled with the driven compulsive nature of the disorder and its inextricable tie to identity [27], the idea of life without AN may seem unimaginable, out of reach.”
From Terminal anorexia nervosa is a dangerous term: it cannot, and should not, be defined (2022) · cites this paper as [27]
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Self-citationYim, S. H., Baudinet, J., Ebenezer, P., Nuttal, E., Sharpe, H., & Schmidt, U. (2025) · Qualitative Health Research · doi:10.1177/10497323251377979 · Cited by 1 · see citing works
Dann, K. M., Harrison, A., Veldre, A., Hay, P., & Touyz, S. W. (2024) · Eating and Weight Disorders - Studies on Anorexia Bulimia and Obesity · doi:10.1007/s40519-024-01689-x · Cited by 1 · see citing works
Self-citationExperiences of externalisation in recovery from anorexia nervosa: a reflexive thematic analysisPreprint
Cripps, S., Serpell, L., & Pugh, M. (2024) · Research Square · doi:10.21203/rs.3.rs-3906525/v1 · Cited by 1 · see citing works
Bennett, G., & Goodall, E. (2024) · Springer eBooks · doi:10.1007/978-981-97-0656-3_2
Autobiographical memory and episodic future thinking in anorexia nervosa: a three-year follow-up
Keeler, J. L., Cardi, V., Peters-Gill, G., Himmerich, H., Tchanturia, K., & Treasure, J. L. (2025) · Journal of Eating Disorders · doi:10.1186/s40337-025-01280-4
Gustafsson, S. A., Stenström, K., Olofsson, H., Pettersson, A., & Wilbe Ramsay, K. (2021) · Figshare · doi:10.6084/m9.figshare.17125939
Conti, J., Heywood, L., Hay, P., Shrestha, R. M., & Perich, T. (2022) · Figshare · doi:10.6084/m9.figshare.21087326
Self-citationRankin, R. M., Conti, J., Ramjan, L. M., & Hay, P. (2023) · Figshare · doi:10.6084/m9.figshare.23488855
Self-citationThompson, A., Calissano, C., Treasure, J. L., Ball, H., Montague, A. E., Ward, T., & Cardi, V. (2024) · Figshare · doi:10.6084/m9.figshare.26626738
Mital, R., Hay, P., Conti, J. E., & Mannan, H. R. (2022) · Figshare · doi:10.6084/m9.figshare.20070739
Self-citationKiely, L., Conti, J., & Hay, P. (2024) · Figshare · doi:10.6084/m9.figshare.26671029
Self-citationGustafsson, S. A., Stenström, K., Olofsson, H., Pettersson, A., & Wilbe Ramsay, K. (2021) · Figshare · doi:10.6084/m9.figshare.17125942
Gustafsson, S. A., Stenström, K., Olofsson, H., Pettersson, A., & Wilbe Ramsay, K. (2021) · Figshare · doi:10.6084/m9.figshare.17125936
Rankin, R. M., Conti, J., Ramjan, L. M., & Hay, P. (2023) · Figshare · doi:10.6084/m9.figshare.23488849
Self-citationHeywood, L., Conti, J., Touyz, S. W., Madden, S., & Hay, P. (2024) · Figshare · doi:10.6084/m9.figshare.26675213
Self-citationRankin, R. M., Conti, J., Ramjan, L. M., & Hay, P. (2023) · Figshare · doi:10.6084/m9.figshare.23488861
Self-citationHeywood, L., Conti, J., & Hay, P. (2022) · Figshare · doi:10.6084/m9.figshare.21067824
Self-citationHeiderscheit, A. (2026) · Journal of Eating Disorders · doi:10.1186/s40337-026-01625-7
Langdon-Daly, J., & Goenka, A. (2026) · Journal of Eating Disorders · doi:10.1186/s40337-026-01713-8
Batchelor, R., Morgan-Lowes, K. L., Egan, S. J., Howell, J. A., & Thøgersen‐Ntoumani, C. (2026) · Eating and Weight Disorders - Studies on Anorexia Bulimia and Obesity · doi:10.1007/s40519-026-01890-0
McCormack, M., Shand, T., Conti, J., Heruc, G. A., McLean, S. A., Prnjak, K., Barns, R., & Hay, P. (2026) · Journal of Eating Disorders · doi:10.1186/s40337-026-01690-y · Cited by 1 · see citing works
Self-citationO’Connell, L. (2026) · Qualitative Health Research · doi:10.1177/10497323261462412
- Authors
- Conti, J. E., Joyce, C., Hay, P., & Meade, T.
- Affiliations
- Western Sydney University (AU)
- Corresponding author
- Conti, Janet E.
- Venue
- BMC Psychology
- Published
- 2020-10-22
- Volume
- 8
- Issue
- 1
- Pages
- 110-110
- ISSN
- 2050-7283 (ISSN-L)
- PMC
- PMC7583290
- OpenAlex
- W3093701956
- Cited by
- 58
- References
- 67
- Citations by year
- 2026: 5 · 2025: 9 · 2024: 17 · 2023: 9 · 2022: 11 · 2021: 7
- FWCI
- 2.70
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Locations
- BMC Psychology (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
- Funders
- University of Western Sydney (Women's Research Fellowship - Project number: 87630)
- Topics
- Social Sciences › Psychology › Clinical Psychology › Eating Disorders and Behaviors
- Health Sciences › Nursing › Nutrition and Dietetics › Nutrition, Health and Food Behavior
- Social Sciences › Psychology › Clinical Psychology › Body Image and Dysmorphia Studies
- Keywords
- anorexia nervosa, adult anorexia nervosa, treatment experience, identity, individual agency, therapeutic relationship, treatment engagement, personalized interventions, recovery, lived experience, disempowerment
- MeSH terms
- Adult, Anorexia Nervosa, Humans, Qualitative Research
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