User and carer involvement in mental health training
Open accessAbstract
National policy in the UK emphasises the importance of involving service users and caregivers in all types of mental health provision. The training of mental health care and social service professionals has always relied on seeing patients, but the patients' role has usually been a passive one. This is now changing, and service users and carers are becoming active educators in professional training, benefiting both the teachers and those taught. Provision is still very variable and is dependent on local initiatives. Voluntary organisations are active in this field, and there are now two academic posts for service users in the UK. This article explores the current forms of service user training, its benefits and drawbacks, and makes recommendations for future work.
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People with lived experience and caregivers have been involved as trainers of mental health professionals in the UK.
“PWLE and caregivers have been involved as trainers of mental health professionals in the UK 327 .”
From Ethical challenges in contemporary psychiatry: an overview and an appraisal of possible strategies and research needs (2024) · cites this paper as [327]
Both medical students and their teachers found the experience of involvement of people with lived experience as trainers to be valuable.
“Both medical students and their teachers found the experience to be valuable.”
From Ethical challenges in contemporary psychiatry: an overview and an appraisal of possible strategies and research needs (2024) · cites this paper as [327]
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Cites
Patients' perspectives on electroconvulsive therapy: systematic review
Rose, D., Fleischmann, P., Wykes, T., Leese, M., & Bindman, J. (2003) · BMJ · doi:10.1136/bmj.326.7403.1363 · Cited by 497 · see citing works
Involving users in the delivery and evaluation of mental health services: systematic review
Simpson, E. L., & House, A. O. (2002) · BMJ · doi:10.1136/bmj.325.7375.1265 · Cited by 350 · see citing works
Patient‐oriented learning: a review of the role of the patient in the education of medical students
Spencer, J., Blackmore, D. E., Heard, S., McCrorie, P., McHaffie, D., Scherpbier, A. J. J. A., Gupta, T. S., Singh, K., & Southgate, L. J. (2000) · Medical Education · doi:10.1046/j.1365-2923.2000.00779.x · Cited by 294 · see citing works
Developing the role of patients as teachers: literature review
Wykurz, G., & Kelly, D. (2002) · BMJ · doi:10.1136/bmj.325.7368.818 · Cited by 289 · see citing works
User-led research and evidence-based medicine
Faulkner, A., & Thomas, P. (2002) · The British Journal of Psychiatry · doi:10.1192/bjp.180.1.1 · Cited by 245 · see citing works
The National Service Framework for Mental Health
Barker, P. (2000) · Mental Health Review Journal · doi:10.1108/13619322200000002 · Cited by 194 · see citing works
Stacy, R., & Spencer, J. (1999) · Medical Education · doi:10.1046/j.1365-2923.1999.00454.x · Cited by 190 · see citing works
Standardized or real patients to test clinical competence? The long case revisited
Wass, V., Jones, R. F., & van der Vleuten, C. P. M. (2001) · Medical Education · doi:10.1046/j.1365-2923.2001.00928.x · Cited by 120 · see citing works
Coleman, K. (2002) · Family Practice · doi:10.1093/fampra/19.2.183 · Cited by 97 · see citing works
The influence of user involvement on the learning of mental health nursing students
Wood, J. A., & Wilson‐Barnett, J. (1999) · Journal of research in nursing · doi:10.1177/136140969900400403 · Cited by 96 · see citing works
Cook, J. Α., Jonikas, J. A., & Razzano, L. A. (1995) · Community Mental Health Journal · doi:10.1007/bf02188749 · Cited by 88 · see citing works
Walters, K. R., Buszewicz, M., Russell, J., & Humphrey, C. (2003) · BMJ · doi:10.1136/bmj.326.7392.740 · Cited by 78 · see citing works
Happell, B., Pinikahana, J., & Roper, C. (2002) · International Journal of Mental Health Nursing · doi:10.1046/j.1440-0979.2002.00255.x · Cited by 59 · see citing works
The role of users of psychiatric services in service development – influence not power
Campbell, P. (2001) · Psychiatric Bulletin · doi:10.1192/pb.25.3.87 · Cited by 58 · see citing works
Turner, F. S. P. (2000) · Journal of Interprofessional Care · doi:10.1080/13561820020003937 · Cited by 56 · see citing works
Engaging patients as teachers of clinical interview skills
Ikkos, G. (2003) · Psychiatric Bulletin · doi:10.1192/pb.27.8.312 · Cited by 41 · see citing works
'Having a diagnosis is a qualification for the job'
Rose, D. S. (2003) · BMJ · doi:10.1136/bmj.326.7402.1331 · Cited by 40 · see citing works
Bhugra, D. K., & Littlewood, R. (2001) · Cited by 37 · see citing works
McGuire-Snieckus, R., McCabe, R., & Priebe, S. (2003) · Psychiatric Bulletin · doi:10.1192/pb.27.8.305 · Cited by 35 · see citing works
Butterworth, M., & Livingston, G. (1999) · Psychiatric Bulletin · doi:10.1192/pb.23.9.549 · Cited by 20 · see citing works
Self-citationAlternative contracts in the NHS.
Evans, T. R., & Seabrook, M. (1994) · PubMed · Cited by 10 · see citing works
Involvement of users and carers in the training of psychiatrists: making it happen
Crawford, M., & Davies, S. (1998) · Psychiatric Bulletin · doi:10.1192/pb.22.1.42 · Cited by 10 · see citing works
Greenberg, D. A., & Cohen, R. (2003) · Medical Teacher · doi:10.1080/0142159031000092562 · Cited by 8 · see citing works
Full metal jacket or the emperor's new clothes?
Deahl, M., Douglas, B., & Turner, T. H. (2000) · Psychiatric Bulletin · doi:10.1192/pb.24.6.207 · Cited by 6 · see citing works
Wanted: patients with mental illness in role of teacher
Nil, S. (2002) · BMJ · doi:10.1136/bmj.325.7375.1300 · Cited by 4 · see citing works
Mental health is improved with teaching therapy
Coldham, T. (2003) · BMJ · doi:10.1136/bmj.326.7403.1399-c · Cited by 4 · see citing works
Do teaching patients feel grateful or exploited?
Rodnick, J. E. (2003) · PubMed · Cited by 3 · see citing works
Flagged first, then by citations
Research works printed but not linked: 5
- Crawford, M. & Davies, S (1998) Making it happen, Psychiatric Bulletin, 22, 42-48.
- Evans, T. & Seabrook, M. (1994) Patient involvement in medical education (letter). British Journal of General Practice, 44, 479-480.
- NHS Executive Mental Health Task Force User Group (1994) Building on Experience: A Training Pack for Mental Health Service Users Working as Trainers, Speakers and Workshop Facilitators. Lancashire: Department of Health Publications Unit.
- Roper, C. E. (2003) Whose therapy, whose learning? (Rapid responses). BMJ, http://www.bmj.com/cgi/eletters/326/ 7392/740.
- Turner, P. (2000) Listening to and learning from the family carer's story. Journal of Interprofessional Care, 14, 387-396.
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Active patient involvement in the education of health professionals
Towle, A., Bainbridge, L., Godolphin, W., Katz, A., Kline, C., Lown, B., Madularu, I., Solomon, P., & Thistlethwaite, J. (2010) · Medical Education · doi:10.1111/j.1365-2923.2009.03530.x · Cited by 498 · see citing works
Service user involvement: impact and participation: a survey of service user and staff perspectives
Omeni, E., Barnes, M., MacDonald, D., Crawford, M., & Rose, D. S. (2014) · BMC Health Services Research · doi:10.1186/s12913-014-0491-7 · Cited by 135 · see citing works
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Sweeney, A., Fahmy, S., Nolan, F., Morant, N. J., Fox, Z. V., Lloyd‐Evans, B., Osborn, D., Burgess, E., Gilburt, H., McCabe, R., et al. (2014) · PLoS ONE · doi:10.1371/journal.pone.0100153 · Cited by 100 · see citing works
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Towle, A., Farrell, C. M., Gaines, M. E., Godolphin, W. J., John, G., Kline, C., Lown, B. A., Morris, P., Symons, J., & Thistlethwaite, J. E. (2016) · International Journal of Health Governance · doi:10.1108/ijhg-01-2016-0003 · Cited by 97 · see citing works
Galderisi, S., Appelbaum, P. S., Gill, N., Gooding, P., Herrman, H., Melillo, A., Myrick, K., Pathare, S., Savage, M., Szmukler, G., et al. (2024) · World Psychiatry · doi:10.1002/wps.21230 · Cited by 76 · see citing works
Tew, J., Holley, T. M., & Caplen, P. (2011) · Social Work Education · doi:10.1080/02615479.2011.557429 · Cited by 66 · see citing works
Psychotherapy and mental health teams
Kerr, I. B., Dent‐Brown, K., & Parry, G. D. (2007) · International Review of Psychiatry · doi:10.1080/09540260601109380 · Cited by 63 · see citing works
Towle, A., & Godolphin, W. J. (2011) · Teaching in Higher Education · doi:10.1080/13562517.2011.570442 · Cited by 52 · see citing works
Simpson, A., Reynolds, L., Light, I., & Attenborough, J. (2007) · Nurse Education Today · doi:10.1016/j.nedt.2007.09.009 · Cited by 50 · see citing works
Mental health lived experience academics in tertiary education: The views of nurse academics
Happell, B., Wynaden, D., Tohotoa, J., Platania‐Phung, C., Byrne, L., Martin, G., & Harris, S. P. (2014) · Nurse Education Today · doi:10.1016/j.nedt.2014.07.006 · Cited by 47 · see citing works
Involving carers and service users in the training of psychiatrists
Fadden, G., Shooter, M., & Holsgrove, G. (2005) · Psychiatric Bulletin · doi:10.1192/pb.29.7.270 · Cited by 43 · see citing works
Service user involvement in mental health practitioner education in Ireland
Higgins, A., Maguire, G., WATTS, M., Creaner, M., McCann, E., Rani, S., & Alexander, J. (2011) · Journal of Psychiatric and Mental Health Nursing · doi:10.1111/j.1365-2850.2011.01698.x · Cited by 41 · see citing works
Townend, M., Tew, J., Grant, A. J., & Repper, J. (2008) · Journal of Mental Health · doi:10.1080/09638230701529715 · Cited by 41 · see citing works
Jaworsky, D., Gardner, S., Thorne, J. G., Sharma, M., McNaughton, N., Paddock, S., Chew, D., Lees, R., Makuwaza, T., Wagner, A., et al. (2017) · AIDS Care · doi:10.1080/09540121.2016.1224314 · Cited by 34 · see citing works
Roussy, V., Thomacos, N., Rudd, A., & Crockett, B. (2013) · Health Expectations · doi:10.1111/hex.12146 · Cited by 29 · see citing works
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Ahuja, A. S., & Williams, R. (2005) · Current Opinion in Psychiatry · doi:10.1097/01.yco.0000172054.25284.bb · Cited by 27 · see citing works
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Babu, K. S., Law-Min, R., Adlam, T., & Banks, V. (2007) · Psychiatric Bulletin · doi:10.1192/pb.bp.107.015354 · Cited by 27 · see citing works
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Ward, K., Stanyon, M. R., Ryan, K., & Dave, S. (2022) · Health Expectations · doi:10.1111/hex.13375 · Cited by 24 · see citing works
Service user involvement in occupational therapy education: an evolving involvement
Cleminson, S., & Moesby, A. (2013) · The Journal of Mental Health Training Education and Practice · doi:10.1108/17556221311307989 · Cited by 23 · see citing works
Hervey, N., & Ramsay, R. (2004) · Advances in Psychiatric Treatment · doi:10.1192/apt.10.2.81 · Cited by 23 · see citing works
Chiu, M. Y.-L., Wei, G. F.-W., & Lee, S. (2006) · International Journal of Social Psychiatry · doi:10.1177/0020764006065155 · Cited by 22 · see citing works
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Haeney, O., Moholkar, R., Taylor, N., & Harrison, T. (2007) · Psychiatric Bulletin · doi:10.1192/pb.bp.106.013714 · Cited by 22 · see citing works
Hawsawi, T., Stein‐Parbury, J., Orr, F., Roche, M. A., & Gill, K. H. (2021) · International Journal of Mental Health Nursing · doi:10.1111/inm.12908 · Cited by 18 · see citing works
Rose, D. S., Barnes, M., Crawford, M., Omeni, E., MacDonald, D., & Wilson, A. (2014) · Health Services and Delivery Research · doi:10.3310/hsdr02100 · Cited by 16 · see citing works
Goulet, M., Larue, C., & Chouinard, C. (2015) · Santé mentale au Québec · doi:10.7202/1032382ar · Cited by 16 · see citing works
Kramarz, E., Lyles, S., Fisher, H. L., & Riches, S. (2020) · Psychosis · doi:10.1080/17522439.2020.1781234 · Cited by 15 · see citing works
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Ahuja, A., & Williams, R. (2010) · International Journal of Consumer Studies · doi:10.1111/j.1470-6431.2010.00904.x · Cited by 15 · see citing works
Family carers of people with learning disabilities: common themes across caring
Yannamani, N., Zia, A., & Khalil, N. (2009) · Psychiatry · doi:10.1016/j.mppsy.2009.07.007 · Cited by 14 · see citing works
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Towle, A. (2007) · Journal of Health Services Research & Policy · doi:10.1258/135581907779497585 · Cited by 11 · see citing works
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Russell, S. (2014) · Arrow@dit (Dublin Institute of Technology) · Cited by 2 · see citing works
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Tita, D. N. (2013) · Anglia Ruskin Research Online (Anglia Ruskin University)
Mbambo, E. (2013) · Wolverhampton Intellectual Repository and E-Theses (University of Wolverhampton)
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- Authors
- Livingston, G., & Cooper, C.
- Venue
- Advances in Psychiatric Treatment
- Publisher
- Cambridge University Press (CUP)
- Published
- 2004-03
- Volume
- 10
- Issue
- 2
- Pages
- 85-92
- ISSN
- 1355-5146 (ISSN-L)
- 1472-1481
- OpenAlex
- W2147888174
- Cited by
- 65
- References
- 27
- Citations by year
- 2025: 1 · 2024: 2 · 2023: 1 · 2022: 2 · 2021: 1 · 2020: 1 · 2019: 4 · 2018: 2 · 2017: 2 · 2016: 8 · 2015: 1 · 2014: 5 · 2013: 5 · 2012: 3
- FWCI
- 7.91
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Advances in Psychiatric Treatment (publishedVersion)
- UCL Discovery (University College London) (submittedVersion)
- Topics
- Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
- Social Sciences › Psychology › Clinical Psychology › Psychiatric care and mental health services
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Innovations in Medical Education
- Keywords
- user participation, caregiver involvement, mental health training, professional education, social service workers, voluntary organisations, mental health policy
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