Cited by 156Family and Disability Support ResearchDown syndrome and intellectual disability researchWilliams Syndrome Research

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Stress in Families of Young Children with Down Syndrome, Williams Syndrome, and Smith-Magenis Syndrome

Fidler, Deborah J., Hodapp, Robert M., Dykens, Elisabeth M.·2000·Early Education & Development

DOI 10.1207/s15566935eed1104_2

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Abstract

This study examined whether stress levels differ in families of young children with three different genetic etiologies of mental retardation, and whether child characteristics associated with those genetic etiologies may help explain these differences. Participants were sixty families of young children with Down syndrome, Williams syndrome, and Smith-Magenis syndrome. All children were between the ages of 3 and 10 years. Parents completed Achenbach's Child Behavior Checklist, the Questionnaire on Resources and Stress-Friedrich edition, and a demographic questionnaire. Families of children with Down syndrome experienced significantly less Pessimism than the other two etiology groups and significantly less Parent and Family Problems than families of children with Smith-Magenis syndrome. The strongest predictor of Parent and Family Problems was maladaptive behavior in Smith-Magenis syndrome, younger age in Down syndrome, and both maladaptive behavior and younger age in Williams syndrome. Maladaptive behavior predicted Pessimism in families of children with Smith-Magenis syndrome, but none of the variables examined significantly predicted Pessimism in the other two syndromes. The importance of behavioral phenotype research is discussed for practitioners working with young children with mental retardation and their families.

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Authors: Fidler, D. J., Hodapp, R. M., & Dykens, E. M.
ORCID: Fidler, Deborah J.
Hodapp, Robert M.
Dykens, Elisabeth M.
Venue: Early Education & Development
Publisher: Informa UK Limited
Published: 2000-07
Volume: 11
Issue: 4
Pages: 395-406
ISSN: 1040-9289 (ISSN-L)
1556-6935
DOI: 10.1207/s15566935eed1104_2
OpenAlex: W2035153824
Cited by: 156
References: 25
Citations by year: 2026: 2 · 2025: 4 · 2024: 6 · 2023: 4 · 2022: 8 · 2021: 6 · 2020: 4 · 2019: 11 · 2018: 5 · 2017: 8 · 2016: 8 · 2015: 4 · 2014: 11 · 2013: 9 · 2012: 11
FWCI: 3.14
Type: journal article
Language: en
Open access: closed
Locations: Early Education and Development (publishedVersion)
Topics: Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Down syndrome and intellectual disability research
Life Sciences › Neuroscience › Developmental Neuroscience › Williams Syndrome Research
Keywords: family stress, Down syndrome, Williams syndrome, Smith-Magenis syndrome, intellectual disability, pessimism, maladaptive behavior, behavioral phenotypes, young children

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Stress in Families of Young Children with Down Syndrome, Williams Syndrome, and Smith-Magenis Syndrome

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