The DOI matches its Crossref record; 53 of the 54 references it cites were found in a registry or an index.
Advances in Patient Reported Outcomes: The NIH PROMIS Measures
Open accessAbstract
Patient reported outcomes (PROs) are questionnaire measures of patients’ symptoms, functioning, and health-related quality of life. They are designed to provide important clinical information that generally cannot be captured with objective medical testing. Recent legislative developments in the United States support greater efforts to include patients’ reports of health experience to evaluate treatment outcomes, engage in shared decision-making, and prioritize the focus of treatment. PROs have garnered increased attention by the Food and Drug Administration (FDA) for evaluating drugs and medical devices. Recent calls for comparative effectiveness research favor inclusion of PROs. In 2004, the National Institutes of Health launched a research initiative to improve the clinical research enterprise by developing state-of-the-art PROs. The NIH Patient Reported Outcomes Measurement System (PROMIS) and Assessment Center are the products of that initiative. Adult, pediatric, and parent-proxy item banks have been developed using contemporary psychometric methods, yielding rapid, accurate measurement. PROMIS currently provides tools for assessing physical, mental, and social health using short-form and computer adaptive testing methods. The PROMIS tools are being adopted for use in clinical trials and translational research. They are also being introduced in clinical medicine to assess a broad range of disease outcomes. There is potential for use of PROs to improve quality of care and disease outcomes, to provide patient-centered assessment for comparative effectiveness research, and to enable a common metric for tracking outcomes across providers and medical systems.
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Cella, D., Yount, S., Rothrock, N., Gershon, R., Cook, K., Reeve, B., Ader, D., Fries, J. F., Bruce, B., & Rose, M. (2007) · Medical Care · doi:10.1097/01.mlr.0000258615.42478.55 · Cited by 3,118
Self-citationU.S. Department of Health and Human Services FDA Center for Drug Evaluation and Research, U.S. Department of Health and Human Services FDA Center for Biologics Evaluation and Research, & U.S. Department of Health and Human Services FDA Center for Devices and Radiological Health (2006) · Health and Quality of Life Outcomes · doi:10.1186/1477-7525-4-79 · Cited by 2,856
Psychometric Evaluation and Calibration of Health-Related Quality of Life Item Banks
Reeve, B. B., Hays, R. D., Bjørner, J. B., Cook, K. F., Crane, P. K., Teresi, J. A., Thissen, D., Revicki, D. A., Weiss, D. J., Hambleton, R. K., et al. (2007) · Medical Care · doi:10.1097/01.mlr.0000250483.85507.04 · Cited by 1,491
Self-citationTowards a global definition of patient centred care
Stewart, M. (2001) · BMJ · doi:10.1136/bmj.322.7284.444 · Cited by 1,114
Using quality of life measures in the clinical setting
Higginson, I. J., & Carr, A. J. (2001) · BMJ · doi:10.1136/bmj.322.7297.1297 · Cited by 982
Why the nation needs a policy push on patient-centered health care
Epstein, R. M., Fiscella, K., Lesser, C. S., & Stange, K. C. (2010) · Health Affairs · doi:10.1377/hlthaff.2009.0888 · Cited by 866
Valderas, J. M., Kotzeva, A., Espallargues, M., Guyatt, G., Ferrans, C. E., Halyard, M. Y., Revicki, D. A., Symonds, T., Parada, A., & Alonso, J. (2008) · Quality of Life Research · doi:10.1007/s11136-007-9295-0 · Cited by 775
Gravel, K., Légaré, F., & Graham, I. D. (2006) · Implementation Science · doi:10.1186/1748-5908-1-16 · Cited by 755
Evaluation of Item Candidates: The PROMIS Qualitative Item Review
DeWalt, D. A., Rothrock, N., Yount, S., & Stone, A. A. (2007) · Medical Care · doi:10.1097/01.mlr.0000254567.79743.e2 · Cited by 719
Self-citationEllwood, P. M. (1988) · New England Journal of Medicine · doi:10.1056/nejm198806093182327 · Cited by 698
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Metadata
- Authors
- Broderick, J., DeWit, E. M., Rothrock, N., Crane, P., & Forrest, C. B.
- Affiliations
- Stony Brook University (US)
- Northwestern University (US)
- University of Washington (US)
- University of Pennsylvania (US)
- Venue
- eGEMs (Generating Evidence & Methods to improve patient outcomes)
- Publisher
- Ubiquity Press, Ltd.
- Published
- 2013-02-08
- Volume
- 1
- Issue
- 1
- Pages
- 12
- ISSN
- 2327-9214 (ISSN-L)
- PMC
- PMC4371419
- OpenAlex
- W1908118904
- Cited by
- 244
- References
- 54
- Citations by year
- 2026: 6 · 2025: 13 · 2024: 25 · 2023: 23 · 2022: 34 · 2021: 31 · 2020: 26 · 2019: 21 · 2018: 25 · 2017: 14 · 2016: 10 · 2015: 5 · 2014: 10
- FWCI
- 11.40
- Type
- journal article
- Language
- en
- Open access
- diamond
- doi.org
- Licence
- cc-by-nc-nd
- Locations
- eGEMs (Generating Evidence & Methods to improve patient outcomes) (publishedVersion, cc-by-nc-nd)
- Europe PMC (PubMed Central) (publishedVersion, cc-by-nc-nd)
- PubMed Central (publishedVersion, cc-by-nc-nd)
- PubMed (publishedVersion)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion)
- Funders
- Children's Hospital of Philadelphia (U01AR057956)
- Northwestern University (U54AR057951, U54AR057943, U01AR052177)
- University of Washington (U01AR052171, U01AR057954)
- University of Pittsburgh (U01AR052155)
- Georgetown University (U01AR057971)
- Australian Government
- National Institutes of Health (5u01ar057940-04, U01AR057940)
- University of California, Los Angeles (U01AR057936)
- University of North Carolina at Chapel Hill (U01AR052181)
- National Institute of Arthritis and Musculoskeletal and Skin Diseases (U01AR052171, U01AR057956, U01AR057967, U01AR052186, U01-AR-057940, U01AR057936, U54AR057943, U01AR057929, U01AR052170, U01AR052158, U01AR052155, U01AR052177, U01AR052181, U01AR057971, U01AR057954, U01AR057948, U54AR057926, U54AR057951)
- Common Fund
- Topics
- Social Sciences › Decision Sciences › Management Science and Operations Research › Psychometric Methodologies and Testing
- Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
- Health Sciences › Nursing › Research and Theory › Health Education and Validation
- Keywords
- patient-reported outcomes, PROMIS, item bank, computerized adaptive testing, health-related quality of life, physical function, mental health, social health, shared decision-making, comparative effectiveness research, patient-centered outcomes, outcome measurement
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