Evaluation of Item Candidates: The PROMIS Qualitative Item Review
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One of the PROMIS (Patient-Reported Outcome Measurement Information System) network's primary goals is the development of a comprehensive item bank for patient-reported outcomes of chronic diseases. For its first set of item banks, PROMIS chose to focus on pain, fatigue, emotional distress, physical function, and social function. An essential step for the development of an item pool is the identification, evaluation, and revision of extant questionnaire items for the core item pool. In this work, we also describe the systematic process wherein items are classified for subsequent statistical processing by the PROMIS investigators. Six phases of item development are documented: identification of extant items, item classification and selection, item review and revision, focus group input on domain coverage, cognitive interviews with individual items, and final revision before field testing. Identification of items refers to the systematic search for existing items in currently available scales. Expert item review and revision was conducted by trained professionals who reviewed the wording of each item and revised as appropriate for conventions adopted by the PROMIS network. Focus groups were used to confirm domain definitions and to identify new areas of item development for future PROMIS item banks. Cognitive interviews were used to examine individual items. Items successfully screened through this process were sent to field testing and will be subjected to innovative scale construction procedures.
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The development of the PROMIS-GH-10 was rated inadequate because patients were not specifically involved in selecting the most relevant (sub)domains to be included in the instrument, despite patients' involvement in developing PROMIS items.
“Development was rated inadequate because, despite patients' involvement in developing PROMIS items [69], they were not specifically involved in selecting the most relevant (sub)domains to be included in this instrument (Table 1).”
From Evidence on the measurement properties of health-related quality of life instruments is largely missing in patients with low back pain: A systematic review (2018) · cites this paper as [69]
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PROMIS and FAAM Minimal Clinically Important Differences in Foot and Ankle Orthopedics
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- Authors
- DeWalt, D. A., Rothrock, N., Yount, S., & Stone, A. A.
- Affiliations
- University of North Carolina at Chapel Hill (US)
- Northwestern University (US)
- Stony Brook University (US)
- Corresponding author
- DeWalt, Darren A.
- Venue
- Medical Care
- Published
- 2007-05
- Volume
- 45
- Issue
- 5
- Pages
- S12-S21
- ISSN
- 0025-7079 (ISSN-L)
- PMC
- PMC2810630
- OpenAlex
- W2130986983
- Cited by
- 719
- References
- 37
- Citations by year
- 2026: 18 · 2025: 24 · 2024: 36 · 2023: 60 · 2022: 45 · 2021: 59 · 2020: 55 · 2019: 49 · 2018: 40 · 2017: 51 · 2016: 50 · 2015: 40 · 2014: 28 · 2013: 43 · 2012: 32
- FWCI
- 25.28
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- Medical Care (publishedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- Funders
- National Institute of Arthritis and Musculoskeletal and Skin Diseases (U01AR052171, U01AR052170, U01AR052158, U01AR052155, U01AR052177, U01AR052181)
- Topics
- Social Sciences › Decision Sciences › Management Science and Operations Research › Psychometric Methodologies and Testing
- Social Sciences › Education › Health Education and Validation
- Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
- Keywords
- PROMIS, item bank development, patient-reported outcomes, chronic disease, item selection, test item revision, cognitive interviewing, focus groups, pain, fatigue, emotional distress, physical function, social function, item classification
- MeSH terms
- Adult, Aged, Aged, 80 and over, Chronic Disease, Female, Humans, Information Systems, Interviews as Topic, Male, Middle Aged, Surveys and Questionnaires, Self Disclosure, United States, Outcome Assessment, Health Care, Focus Groups
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