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Development of a Brief Diabetes Distress Screening Instrument
Open accessAbstract
PURPOSE: Previous research has documented that diabetes distress, defined as patient concerns about disease management, support, emotional burden, and access to care, is an important condition distinct from depression. We wanted to develop a brief diabetes distress screen instrument for use in clinical settings. METHODS: We assessed 496 community-based patients with type 2 diabetes on the previously validated, 17-item Diabetes Distress Scale (DDS17) and 6 biobehavioral measures: glycated hemoglobin (HbA(1c)); non-high-density-lipoprotein (non-HDL) cholesterol; kilocalories, percentage of calories from fat, and number of fruit and vegetable servings consumed per day; and physical activity as measured by the International Physical Activity Questionnaire. RESULTS: An average item score of > or =3 (moderate distress) discriminated high- from low-distressed subgroups. The 4 DDS17 items with the highest correlations with the DDS17 total (r = .56-.61) were selected. Composites, comprised of 2, 3, and 4 of these items (DDS2, DDS3, DDS4), yielded higher correlations (r=.69-.71). The sensitivity and specificity of the composites were .95 and .85, .93 and .87, and .97 and .86, respectively. The DDS3 had a lower sensitivity and higher percentages of false-negative and false-positive results. All 3 composites significantly discriminated subgroups on HbA(1c), non-HDL cholesterol, and kilocalories consumed per day; none discriminated subgroups on fruit and vegetable servings consumed per day; and only the DDS3 yielded significant results on the International Physical Activity Questionnaire. Because of its psychometric properties and brevity, the DDS2 was selected as a screening instrument. CONCLUSIONS: The DDS2 is a 2-item diabetes distress screening instrument asking respondents to rate on a 6-point scale the degree to which the following items caused distress: (1) feeling overwhelmed by the demands of living with diabetes, and (2) feeling that I am often failing with my diabetes regimen. The DDS17 can be administered to those who have positive findings on the DDS2 to define the content of distress and to direct intervention.
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“Previous analyses identified that the DDS2 had good sensitivity and specificity with the DDS17 (7) and was considered a reliable screening composite for use in clinical practice.”
From When Is Diabetes Distress Clinically Meaningful? (2012) · cites this paper as [7]
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“Previous analyses identified that the DDS2 had good sensitivity and specificity with the DDS17 (7) and was considered a reliable screening composite for use in clinical practice.”
From When Is Diabetes Distress Clinically Meaningful? (2012) · cites this paper as [7]
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Items 101–200 of 473
Todd, P. J., Edwards, F. M., Spratling, L., Patel, N., Amiel, S. A., Sturt, J. A., & Choudhary, P. (2017) · Endocrinology Diabetes & Metabolism · doi:10.1002/edm2.3 · Cited by 35
Diabetes distress and its association with depression in patients with type 2 diabetes in iran.
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Self‐compassion and psychological distress in chronic illness: A meta‐analysis
Baxter, R., & Sirois, F. M. (2024) · British Journal of Health Psychology · doi:10.1111/bjhp.12761 · Cited by 42
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“Health Related Quality of Life will be measured using the Diabetes Distress Scale (DDS4) [58], a 4-item measure of disease specific quality of life.”
MethodTalavera, G. A., Castañeda, S. F., Mendoza, P., Lopez-Gurrola, M., Roesch, S. C., Pichardo, M. S., Garcia, M. L., Munoz, F. A., & Gallo, L. C. (2021) · Translational Behavioral Medicine · doi:10.1093/tbm/ibab052 · Cited by 33
Shiyanbola, O. O., Maurer, M. A., Schwerer, L., Sarkarati, N., Wen, M., Salihu, E. Y., Nordin, J., Xiong, P., Egbujor, U. M., & Williams, S. D. (2022) · Patient Preference and Adherence · doi:10.2147/ppa.s384974 · Cited by 31
Kumar, N., Unnikrishnan, B., Thapar, R., Mithra, P., Kulkarni, V., Holla, R., Bhagawan, D., Kumar, A., & Aithal, S. (2017) · Journal of Natural Science Biology and Medicine · doi:10.4103/0976-9668.210008 · Cited by 35
“[6] DRD can be measured across 4 domains which include physician‐related distress, emotional burden, interpersonal distress, and regimen distress.[7] DRD can bring about unfavorable attitudes among the patients toward tackling the disease such as poor compliance to medication, poor diet control, disinterest in exercis…”
BackgroundWalls, M. L., Sittner, K. J., Aronson, B. D., Forsberg, A., Whitbeck, L. B., & Al’Absi, M. (2017) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph14091074 · Cited by 36
Investigating the Association Between Diabetes Distress and Self-Management Behaviors
Khan, A., & Choudhary, P. (2018) · Journal of Diabetes Science and Technology · doi:10.1177/1932296818789721 · Cited by 32
“A potential barrier to engagement with these self-management behaviors is diabetes distress, which is defined as patient concerns about disease management, support, emotional burden, and access to care.(7) High diabetes distress has 789721 DSTXXX10.”
BackgroundBrady, E. M., Hall, A. P., Baldry, E. L., Chatterjee, S., Daniels, L. J., Edwardson, C. L., Khunti, K. K., Patel, M., Henson, J. J., Rowlands, A. V., et al. (2019) · BMJ Open · doi:10.1136/bmjopen-2018-027773 · Cited by 32
Factors Associated with Diabetes-Related Distress in Type 2 Diabetes Mellitus Patients
Bhaskara, G., Budhiarta, A. A. G., Gotera, W., Saraswati, M. R., Dwipayana, I. M. P., Semadi, I. M. S., Nugraha, I. B. A., Wardani, I. A. K., & Suastika, K. (2022) · Diabetes Metabolic Syndrome and Obesity · doi:10.2147/dmso.s363431 · Cited by 38
“This instrument consists of 17 statements that contain potential problems in T2DM patients that can cause distress and includes four emotional subscales of diabetes-related distress.(10) This instrument has been world widely used to assess diabetes-related distress and has been translated into the Indonesian language.”
BackgroundMethodPredicting Depression among Patients with Diabetes Using Longitudinal Data
Jin, H., Vidyanti, I., Capua, P. D., Wu, B. W., & Wu, S. (2015) · Methods of Information in Medicine · doi:10.3414/me14-02-0009 · Cited by 32
“Second, some predictors used in the model, such as diabetes emotional burden and diabetes regimen distress [32], are not typically available in current medical practices, which may limit the applicability of the model.”
MethodFerguson, M. O., Long, J. A., Zhu, J., Small, D. S., Lawson, B. C. T., Glick, H. A., & Schapira, M. M. (2015) · The Science of Diabetes Self-Management and Care · doi:10.1177/0145721715572446 · Cited by 32
“The number of correct responses corresponds to 4 reading levels: below third grade (0-18), fourth to sixth grade (19-44), seventh to eighth grade (45-60), high school and above (61-66).”
Backgroundthe Australasian Peers for Progress Diabetes Project Investigators, Riddell, M. A., Dunbar, J., Absetz, P., Wolfe, R. S., Li, H., Brand, M., Aziz, Z., & Oldenburg, B. F. (2016) · BMC Public Health · doi:10.1186/s12889-016-3538-3 · Cited by 31
“Additionally participants completed a selfadministered survey at baseline, 6 and 12 months after the start of the intervention seeking information on demographic, clinical, behavioural, quality of life (EQ-5D [32], diabetes distress (DDS-4) [33]), depression (PHQ-9 [34]) diabetes self-care [35], satisfaction with diab…”
BackgroundInfluentialSymptom Experience of Older Adults With Type 2 Diabetes and Diabetes-Related Distress
Hernandez, L., Leutwyler, H. C., Cataldo, J. K., Kanaya, A. M., Swislocki, A., & Chesla, C. A. (2019) · Nursing Research · doi:10.1097/nnr.0000000000000370 · Cited by 32
Psychological problems in patients with type 2 diabetes - clinical considerations
Stanković, Ž., Jašović‐Gašić, M., & Lečić‐Toševski, D. (2013) · Vojnosanitetski pregled · doi:10.2298/vsp1312138s · Cited by 31
Lašaitė, L., Špadienė, A., Savickienė, N., Šķesters, A., & Silova, A. (2014) · Natural Product Communications · doi:10.1177/1934578x1400900931 · Cited by 31
“In the group of patients who used G. biloba extract, a positive correlation between HbA1c level and MDA+HNS level, as well as strong negative correlation between DDS regiment-related distress and POMS anger-hostility score were detected.”
BackgroundMethodInfluentialDiNardo, M. M., Greco, C., Phares, A. D., Beyer, N. M., Youk, A. O., Obrosky, D. S., Morone, N. E., Owen, J. E., Saba, S. K., Suss, S. J., et al. (2022) · BMJ Open Diabetes Research & Care · doi:10.1136/bmjdrc-2021-002631 · Cited by 30
“19 We added the DDS-2 as a second screening tool after the first five veterans were screened because some were unreceptive to the terms ‘feeling scared’ and ‘feeling depressed’ in the PAID-5 scale.”
Kowitt, S. D., Ayala, G. X., Cherrington, A., Horton, L. A., Safford, M. M., Soto, S., Tang, T. S., & Fisher, E. B. (2017) · Annals of Behavioral Medicine · doi:10.1007/s12160-017-9904-2 · Cited by 31
“…( “ feeling overwhelmed with the demands of living with diabetes, ” “ feeling that I am often failing with my diabetes regimen, ” “ not feeling motivated to keep up my diabetes self-management, ” and “ feeling angry, scared, and or/ depressed when I think about living with diabetes ” ) [37].”
BackgroundMethodDiabetes Distress and Associated Factors in Patients with Diabetes Mellitus in South East Nigeria
Onyenekwe, B. M., Young, E. E., Nwatu, C. B., Okafor, C. I., & Ugwueze, C. V. (2020) · Dubai Diabetes and Endocrinology Journal · doi:10.1159/000508706 · Cited by 35
Niroomand, M., Babaniamansour, S., Aliniagerdroudbari, E., Golshaian, A., Meybodi, A. M., & Absalan, A. (2021) · Journal of Diabetes & Metabolic Disorders · doi:10.1007/s40200-020-00721-y · Cited by 29
“Various studies found that the prevalence of DD was related to a patient’s glycemic control status, educational level, income, access to health care, number of diabetic complications, and history of depression [19, 20, 44].”
BackgroundResultPatel, M. R., Resnicow, K., Lang, I., Kraus, K., & Heisler, M. (2018) · Health Education & Behavior · doi:10.1177/1090198117704683 · Cited by 30
Luzuriaga, M., Leite, R. O., Ahmed, H., Saab, P. G., & Garg, R. (2021) · BMJ Open Diabetes Research & Care · doi:10.1136/bmjdrc-2021-002348 · Cited by 29
Rogers, E. A., Hessler, D., Bodenheimer, T. S., Ghorob, A., Vittinghoff, E., & Thom, D. H. (2013) · The Science of Diabetes Self-Management and Care · doi:10.1177/0145721713513178 · Cited by 28
“5 (25) 65 (60) Body mass index, mean ± SD, kg/m2 35.4 ± 12.2 35.1 ± 8.4 A1Ca, mean ± SD, % 6.8 ± 0.7 9.9 ± 1.9 Diabetes Distress Scale Score (1-6), mean ± SD 1.6 ± 0.6 2.5 ± 1.0 PHQ-8b Depression Scale Score (0-24), mean ± SD 2.1 ± 2.8 7.9 ± 5.6 Perceived Diabetes Self-Management Score (8-40), mean ± SD 27 ± 4 21 ± 4…”
InfluentialWu, S., Ell, K., Jin, H., Vidyanti, I., Chou, C., Lee, P.-J., Gross-Schulman, S. G., Sklaroff, L. M., Belson, D., Nezu, A. M., et al. (2018) · Journal of Medical Internet Research · doi:10.2196/jmir.7692 · Cited by 27
Hasan, I., Chowdhury, A. B. M. A., Haque, M. I., & Patterson, C. (2020) · Pediatric Diabetes · doi:10.1111/pedi.13147 · Cited by 28
Mizokami‐Stout, K., Choi, H., Richardson, C. R., Piatt, G., & Heisler, M. (2021) · JMIR Diabetes · doi:10.2196/21400 · Cited by 28
“Although the 2-item Diabetes Distress Scale has been found to correlate well with the larger Diabetes Distress Scale questionnaire, it does not provide subtypes of distress as it only measures emotional distress and this may have impacted our moderator analyses [27].”
MethodResultYakovchenko, V., Hogan, T. P., Houston, T. K., Richardson, L. M., Lipschitz, J. M., Petrakis, B. A., Gillespie, C., & McInnes, D. K. (2019) · Journal of Medical Internet Research · doi:10.2196/14750 · Cited by 28
“Patient questionnaires covered the topics of self-rated health status, adherence, illness perception, health engagement and activation, technology use, experiences with the aTS (usability, usefulness, working alliance), and demographics [24-29].”
Hessler, D., Fisher, L., Strycker, L. A., Arean, P. A., & Bowyer, V. (2015) · Diabetes Research and Clinical Practice · doi:10.1016/j.diabres.2014.12.017 · Cited by 27
“[14] Fisher L, Glasgow R, Mullan JT, Skaff MM, Polonsky WH.”
BackgroundSelf-citationFortenberry, K. T., Wiebe, D. J., & Berg, C. A. (2011) · Psychology and Health · doi:10.1080/08870446.2011.561925 · Cited by 27
Wilson, C., & Twigg, G. (2017) · Journal of the American Pharmacists Association · doi:10.1016/j.japh.2017.11.001 · Cited by 27
Depressive Symptoms in Patients with Type 2 Diabetes Mellitus: Do Stress and Coping Matter?
Shah, B. M., Gupchup, G. V., Borrego, M. E., Raisch, D. W., & Knapp, K. K. (2011) · Stress and Health · doi:10.1002/smi.1410 · Cited by 26
Vallis, M., Burns, K. K., Hollahan, D. E., Ross, S. A., & Hahn, J. (2016) · Canadian Journal of Diabetes · doi:10.1016/j.jcjd.2015.11.002 · Cited by 25
Clarke, J., Proudfoot, J. G., Vatiliotis, V., Verge, C. F., Holmes-Walker, D. J., Campbell, L. V., Wilhelm, K. A., Moravac, C. C., Indu, P. S., & Bridgett, M. (2018) · Health Expectations · doi:10.1111/hex.12662 · Cited by 27
Guo, J., Wang, H., Luo, J., Guo, Y., Xie, Y., Lei, B., Wiley, J. A., & Whittemore, R. (2019) · BMJ Open Diabetes Research & Care · doi:10.1136/bmjdrc-2019-000757 · Cited by 30
Madsen, K. P., Willaing, I., Rod, N. H., Varga, T. V., & Joensen, L. E. (2021) · Journal of Diabetes and its Complications · doi:10.1016/j.jdiacomp.2021.107858 · Cited by 26
He, Q., Liu, Y., Lin, K., Zhao, F., Guo, H., & Shen, Y. (2023) · Nursing Open · doi:10.1002/nop2.1834 · Cited by 33
Acceptability of Implantable Continuous Glucose Monitoring Sensor
Barnard, K. D., Kropff, J., Choudhary, P., Neupane, S., Bain, S. C., Kapitza, C., Forst, T. M., Link, M., MDINGI, C., & DeVries, J. H. (2017) · Journal of Diabetes Science and Technology · doi:10.1177/1932296817735123 · Cited by 26
Who’s distressed? A comparison of diabetes-related distress by type of diabetes and medication
Wardian, J., Tate, J. M., Folaron, I., Graybill, S. D., True, M. W., & Sauerwein, T. J. (2018) · Patient Education and Counseling · doi:10.1016/j.pec.2018.03.001 · Cited by 25
Tanenbaum, M. L., & Gonzalez, J. S. (2012) · The Science of Diabetes Self-Management and Care · doi:10.1177/0145721712452795 · Cited by 26
“Diabetes distress was measured using the Diabetes Distress Scale (DDS), a 17-item self-report measure assessing the experience of distress associated with diabetes over the past month across 4 domains: emotional burden, physician-related distress, regimenrelated distress, and interpersonal distress.(32,33) The total D…”
MethodAbdoli, S., Hessler, D., Vora, A. C., Smither, B., & Stuckey, H. L. (2019) · AJN American Journal of Nursing · doi:10.1097/01.naj.0000615776.64043.be · Cited by 25
Pflugfelder, N. S. (2020) · Journal of Intellectual Capital · doi:10.1108/jic-02-2020-0068 · Cited by 26
Quinn, C. C., Swasey, K. K., Crabbe, J. C. F., Shardell, M. D., Terrin, M. L., Barr, E. A., & Gruber‐Baldini, A. L. (2017) · JMIR mhealth and uhealth · doi:10.2196/mhealth.8910 · Cited by 25
“Four subscales have been identified as distinct areas of potential diabetes distress: emotional burden assesses the extent patients with diabetes feel overwhelmed by their disease, physician-related distress addresses the availability and open communication with health care providers, interpersonal distress assesses f…”
BackgroundLašaitė, L., Ostrauskas, R., Žalinkevičius, R., Jurgevičienė, N., & Radzevičienė, L. (2015) · Journal of Diabetes and its Complications · doi:10.1016/j.jdiacomp.2015.09.012 · Cited by 25
“Diabetes Distress Scale (DDS) was used for evaluation of diabetes distress of the participants (Fisher et al., 2008; Polonsky et al., 2005).”
MethodFisher, L., Guzman, S., Polonsky, W. H., & Hessler, D. (2024) · Diabetic Medicine · doi:10.1111/dme.15446 · Cited by 24
“First, the exclusive use of a total DD score in this study, which has often been used as a statistical criterion for the development of brief DD screening scales, 22 was inadequate.”
Self-citationSeuring, T., Marthoenis, M., Rhode, S., Rogge, L., Rau, H. A., Besançon, S., Zufry, H., Sofyan, H., & Vollmer, S. (2019) · Trials · doi:10.1186/s13063-019-3656-1 · Cited by 24
Gutierrez‐Colina, A. M., Corathers, S. D., Beal, S. J., Baugh, H., Nause, K., & Kichler, J. (2020) · Diabetes Spectrum · doi:10.2337/ds19-0050 · Cited by 32
Slean, G. R., Jacobs, E. A., Lahiff, M., Fisher, L., & Fernández, A. (2012) · Medical Care · doi:10.1097/mlr.0b013e3182641127 · Cited by 24
“A mean EB score Z3 was interpreted as constituting significant or high EB.17 A high EB score was coded as 1, whereas no/low EB was considered the reference category.”
BackgroundInfluentialSelf-citationSchinckus, L., Avalosse, H., den Broucke, S. V., & Mikolajczak, M. (2018) · Personality and Individual Differences · doi:10.1016/j.paid.2018.03.028 · Cited by 29
Aronson, B. D., Sittner, K. J., & Walls, M. L. (2019) · Health Education & Behavior · doi:10.1177/1090198119885416 · Cited by 29
Psychosocial Effects of the Loop Open-Source Automated Insulin Delivery System
Wong, J. J., Hood, K. K., Hanes, S. J., Lal, R., & Naranjo, D. M. (2022) · Journal of Diabetes Science and Technology · doi:10.1177/19322968221105288 · Cited by 23
Canha, D., McMahon, V., Schmitz, S., de Beaufort, C. E., Alzaïd, F., Reznik, Y., Riveline, J., Fagherazzi, G., & Aguayo, G. (2024) · Diabetic Medicine · doi:10.1111/dme.15503 · Cited by 22
“32 Regarding the measurement scales, the consistency of SMDs in adults supports the robustness of the PAID and DDS scales.”
Yu, J., Xu, T., James, R. A., Lu, W., & Hoffman, J. E. (2020) · JMIR Diabetes · doi:10.2196/20888 · Cited by 24
“The 2-item Diabetes Distress Scale has been shown to have high sensitivity and specificity [23].”
MethodPeña-Purcell, N. C., Han, G., Smith, M. L., Peterson, R., & Ory, M. G. (2019) · Diabetes Spectrum · doi:10.2337/ds18-0081 · Cited by 29
“Studies have shown that DD is associated with poor glycemic control, low levels of physical activity, and diet and medication nonadherence (3,12,13).”
BackgroundTradução e adaptação do "Diabetes Distress Scale - DDS" na cultura brasileira
Curcio, R., Alexandre, N. M. C., Torres, H. D. C., & Lima, M. H. M. (2012) · Acta Paulista de Enfermagem · doi:10.1590/s0103-21002012005000025 · Cited by 24
Diabetes distress in Indian children with type 1 diabetes mellitus and their mothers
Lohiya, N., Kajale, N., Lohiya, N. N., Khadilkar, V. V., Gondhalekar, K. M., & Khadilkar, A. V. (2020) · Journal of Pediatric Endocrinology and Metabolism · doi:10.1515/jpem-2020-0339 · Cited by 24
Qualitative analysis of patient responses to the ABCD FreeStyle Libre audit questionnaire
Overend, L., Simpson, E., & Grimwood, T. (2019) · Practical Diabetes · doi:10.1002/pdi.2213 · Cited by 21
Type 1 diabetes and disordered eating ( T1DE ): the ComPASSION Project – Wessex
Partridge, H., Figueiredo, C., Rouse, L., Cross, C., PINDER, C. J., Ryder, J., Bennett, M., & Stacey, N. (2020) · Practical Diabetes · doi:10.1002/pdi.2286 · Cited by 22
Predictors of diabetes distress in patients with type 2 diabetes mellitus
Islam, M. S., Islam, M. S., Karim, M., Alam, U., & Yesmin, K. (2014) · International Journal of Research in Medical Sciences · doi:10.5455/2320-6012.ijrms20140549 · Cited by 20
Yi‐Frazier, J. P., Cochrane, K., Whitlock, K. B., Rosenberg, A. R., Pascual, M., Beauregard, N., Mitrovich, C., Panlasigui, N., & Pihoker, C. (2018) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsy003 · Cited by 20
Diabetes-related distress and its association with the complications of diabetes in Iran
Khashayar, P., Shirzad, N., Zarbini, A., Esteghamati, A., Hemmatabadi, M., & Sharafi, E. (2022) · Journal of Diabetes & Metabolic Disorders · doi:10.1007/s40200-022-01103-2 · Cited by 20
“The second questionnaire was the Persian version of the diabetes distress screening scale (DDS) [13].”
MethodAscertainment of Minimal Clinically Important Differences in the Diabetes Distress Scale–17
Banks, J., Amspoker, A. B., Vaughan, E. M., Woodard, L., & Naik, A. D. (2023) · JAMA Network Open · doi:10.1001/jamanetworkopen.2023.42950 · Cited by 20
Dibley, L. B., Czuber‐Dochan, W., Woodward, S., Wade, T., Bassett, P., Sturt, J. A., Norton, C. S., IBD-DS Patient and Public Involvement Team, Bellamy, A., Cark, C., et al. (2018) · Inflammatory Bowel Diseases · doi:10.1093/ibd/izy108 · Cited by 21
Relationship Between Psychosocial Factors and Glucose Control in Adults With Type 2 Diabetes
Roy, K., Iqbal, S., Gadag, V. G., & Bavington, B. (2020) · Canadian Journal of Diabetes · doi:10.1016/j.jcjd.2020.01.005 · Cited by 23
Patel, R., Crabtree, T. S. J., Taylor, N., Langeland, L., Gazis, A., Mendis, B., Wilmot, E. G., & IDRIS, I. R. (2022) · Diabetic Medicine · doi:10.1111/dme.14793 · Cited by 19
The state of diabetes care and obstacles to better care in Aceh, Indonesia: a mixed-methods study
Sofyan, H., Diba, F., Susanti, S. S., Marthoenis, M., Ichsan, I., Sasmita, N. R., Seuring, T., & Vollmer, S. (2023) · BMC Health Services Research · doi:10.1186/s12913-023-09288-9 · Cited by 19
“The DDS2 measures diabetesdistress based on two questions with a 6-item Likert response scale, going from 1 (no problem) to 6 (serious problem).”
BackgroundMethodInfluentialRiddell, M. A., Renwick, C., Wolfe, R. S., Colgan, S., Dunbar, J., Hagger, V. L., Absetz, P., & Oldenburg, B. F. (2012) · BMC Public Health · doi:10.1186/1471-2458-12-843 · Cited by 19
“Diabetes Distress Diabetes Distress Screening Instrument: DDS4 [30,31] ✓ ✓ ✓ Postal survey”
Cummings, D. M., Lutes, L. D., Littlewood, K., Solar, C. A., Hambidge, B., & Gatlin, P. (2017) · Ethnicity & Disease · doi:10.18865/ed.27.2.155 · Cited by 19
Ismail, K., Stewart, K., Ridge, K., Britneff, E., Freudenthal, R., Stahl, D. R., McCrone, P., Gayle, C., & Doherty, A. M. (2019) · Diabetic Medicine · doi:10.1111/dme.13918 · Cited by 19
“assessment of diabetes-related emotional distress with a score of 40 representing clinical significance.(26) For social functioning, we used the Independent Living StarTM, a multidisciplinary tool originating in the third-sector which has been since adapted and validated for measuring the outcomes of social and psych…”
MethodLiu, Y., Wu, X., Cai, C., Tang, P. Y., Coufal, M. M., Qian, Y., Luu, S., Fisher, E. B., & Jia, W. (2020) · Translational Behavioral Medicine · doi:10.1093/tbm/ibz194 · Cited by 19
“These included the PHQ-8 measure of depression [19], the EQ-5D measure of quality of life [20, 21], and a four-item measure of diabetes specific distress drawn from the Diabetes Distress Scale [22].”
MethodDiscontinued Use of the Loop Insulin Dosing System: A Mixed-Methods Investigation
Wong, J. J., Suttiratana, S. C., Lal, R., Lum, J. W., Lanning, M. S., Dunlap, A., Arbiter, B., Hanes, S. J., Bailey, R. J., Hood, K. K., et al. (2021) · Diabetes Technology & Therapeutics · doi:10.1089/dia.2021.0362 · Cited by 18
Psychometric validation of diabetes distress scale in Bangladeshi population
Akter, J., Islam, R. M., Chowdhury, H. A., Selim, S., Biswas, A., Mozumder, T. A., Broder, J. C., Ilić, D., & Karim, M. N. (2022) · Scientific Reports · doi:10.1038/s41598-021-04671-0 · Cited by 20
Connolly, C., Walsh, J. C., Worlikar, H., Ryan, L., Murray, A., O’Connor, S., Kelly, J., Coleman, S., Vadhiraj, V. V., Newell, E., et al. (2022) · Irish Educational Studies · doi:10.1080/03323315.2021.2022514 · Cited by 17
“’ Cronbach ’ s alpha for the DDS and LER were found to be .93 and .95, respectively, demonstrating excellent internal consistency across the measures.”
MethodInfluentialSarfati, D., McLeod, M., Stanley, J., Signal, V., Stairmand, J., Krebs, J. D., Dowell, A. C., Leung, W. C. Y., Davies, C., & Grainger, R. (2018) · Trials · doi:10.1186/s13063-018-2528-4 · Cited by 27
“Change in score of diabetes-specific outcomes At 4 and 12 months Measured using the Diabetes Distress Scale [39]”
BackgroundMethodInfluentialRamallo‐Fariña, Y., Rivero‐Santana, A., García‐Pérez, L., Bello, M. Á. G., Wägner, A. M., González‐Pacheco, H., Rodríguez‐Rodríguez, L., Kaiser-Girardot, S., Monzón-Monzón, G., Guerra-Marrero, C., et al. (2021) · BMJ Open · doi:10.1136/bmjopen-2021-050804 · Cited by 18
Zgibor, J. C., Maloney, M. A., Malmi, M., Fabio, A., Kuo, S., Solano, F. X., Tilves, D., Tu, L., & Davidson, M. B. (2017) · Contemporary Clinical Trials · doi:10.1016/j.cct.2017.10.003 · Cited by 19
Peyrot, M. F., Rubin, R. R., & Polonsky, W. H. (2008) · Diabetes Technology & Therapeutics · doi:10.1089/dia.2008.0031 · Cited by 18
Self-citationImproving Management of Type 2 Diabetes Using Home-Based Telemonitoring: Cohort Study
Milani, R. V., Chava, P., Wilt, J. K., Entwisle, J., Karam, S., Burton, J. H., & Blonde, L. (2021) · JMIR Diabetes · doi:10.2196/24687 · Cited by 19
“Diabetes-related emotional distress was assessed using the Diabetes Distress Scale [20,21].”
MethodCohen, A. J., Isaacson, N. F., Torby, M., Smith, A. L., Zhang, G., & Patel, M. R. (2022) · American Journal of Preventive Medicine · doi:10.1016/j.amepre.2022.02.022 · Cited by 18
“For psychosocial factors, depressive symptoms (Patient Health Questionnaire-4), 18 diabetes-related distress (Diabetes Distress Scale), 19,20 health literacy, 21 and social support (ENRICHD Social Support Inventory) 22 were examined through validated survey measures.”
MethodDiabetes distress in a Medicaid sample: The role of psychosocial and health-related factors
Verdecias, N., McQueen, A., Nordheim, D. V., Broussard, D. J., Smith, R. E., & Kreuter, M. W. (2023) · Journal of Diabetes and its Complications · doi:10.1016/j.jdiacomp.2023.108495 · Cited by 16
Ell, K., Katon, W. J., Lee, P.-J., Guterman, J. J., & Wu, S. (2015) · General Hospital Psychiatry · doi:10.1016/j.genhosppsych.2015.05.010 · Cited by 17
“Diabetes emotional burden and regimen-related distresswere assessed by a brief diabetes distress instrument DDS-2 [40], and the response score ≥3 highlights a level of distress.”
MethodRees, G., Lamoureux, E. L., Nicolaou, T., Hodgson, L., Weinman, J. A., & Speight, J. (2013) · Diabetic Medicine · doi:10.1111/dme.12192 · Cited by 17
Ramallo‐Fariña, Y., García‐Pérez, L., Castilla‐Rodríguez, I., Perestelo‐Pérez, L., Wägner, A. M., de Pablos-Velasco, P. L., Domínguez, A. C., Cortés, M. B., Vallejo‐Torres, L., Ramírez, M. E., et al. (2015) · Implementation Science · doi:10.1186/s13012-015-0233-1 · Cited by 17
“DDS2, Diabetes Distress Scale [61] It is a validated two-item diabete six-point scale the degree of distr the demands of living with diabe”
MethodLiu, S.-Y., Huang, J., Dong, Q., Li, B., Zhao, X. Y., Xu, R. H., & Yin, H. (2020) · Medicine · doi:10.1097/md.0000000000018831 · Cited by 17
“In addition, 34.85% of the patients reported a decrease in happiness, of which 15.21% had the possibility of concurrent depression, which was in close agreement with Fisher et al[17] view that 70% of the patients with diabetes depression were actually suffering from diabetes and 30% of the patients with high diabetes…”
ResultInfluentialKalra, S., Das, A. K., Baruah, M. P., Unnikrishnan, A. G., Dasgupta, A., Shah, P., Sahay, R. K., Shukla, R., Das, S., TIWASKAR, M. H., et al. (2019) · Diabetes Therapy · doi:10.1007/s13300-019-0614-6 · Cited by 17
A Mindful Approach to Diabetes Self-Management Education and Support for Veterans
DiNardo, M. M., Saba, S. K., Greco, C. M., Broyles, L. M., Terhorst, L. A., Chasens, E. R., Bair, B., Charron-Prochownik, D., & Cohen, S. M. (2017) · The Science of Diabetes Self-Management and Care · doi:10.1177/0145721717738019 · Cited by 19
“65 across different psychosocial, educational, and medical interventions.(3,41,42)”
BackgroundKhan, Y., Imershein, S., Maryniuk, M. D., Armian, H., Turkistani, S. A., BAYOUMI, A. H., Alharbi, M., & Hsu, W. C. (2019) · International Journal of Pharmacy Practice · doi:10.1111/ijpp.12572 · Cited by 16
“Diabetes distress was measured using the validated 2-point Diabetes Distress Scale (DDS-2).([13]) The DDS-2 is a 2-item measure that uses a Likert scale with each item scored from 1 (no distress) to 6 (serious distress)”
BackgroundMethodType 2 Diabetes Self-Management Variables and Predictors
Emery, K. A., Robins, J. L. W., Salyer, J., Thurby-Hay, L., & Djira, G. D. (2021) · Clinical Nursing Research · doi:10.1177/10547738211067322 · Cited by 16
“T2DM distress was not associated with A1c levels in this study, however previous studies showed an association (Fisher et al., 2007, 2008, 2012; Fisher, Glasgow et al., 2010; Fisher, Mullan et al., 2010; Graue et al., 2012).”
BackgroundResultMcGrath, N., McHugh, S., Kearney, P. M., & Toomey, E. C. (2019) · HRB Open Research · doi:10.12688/hrbopenres.12947.1 · Cited by 14
A Collaborative Pilot to Support Patients With Diabetes Through Tailored Food Box Home Delivery
Kempainen, S., Cutts, D. B., Robinson‐O’Brien, R., Lofthus, A. D. K., Gilbertson, D. T., & Mino, R. (2023) · Health Promotion Practice · doi:10.1177/15248399221100792 · Cited by 16
“, 2003), diabetes distress (Fisher et al., 2008), diabetes self-care (Heisler et al.”
BackgroundIncreased depression symptom score in newly diagnosed type 2 diabetes patients
Rathmann, W., Kuß, O., Anderson, D., Busch, S., Hahn, M., Engelhard, J., Zou, M., & Kostev, K. (2018) · Psychiatry Research · doi:10.1016/j.psychres.2017.12.091 · Cited by 18
Diabetes Distress: Assessment and Management of the Emotional Aspect of Diabetes Mellitus
Rariden, C. A. (2019) · The Journal for Nurse Practitioners · doi:10.1016/j.nurpra.2019.06.020 · Cited by 18
Long, J. A., Ganetsky, V. S., Canamucio, A., Dicks, T. N., Heisler, M., & Marcus, S. C. (2020) · JAMA Network Open · doi:10.1001/jamanetworkopen.2020.16369 · Cited by 16
Morrissey, E. C., Casey, B., Hynes, L., Panel, T. D. N. Y. A., Dinneen, S. F., & Byrne, M. (2021) · Pilot and Feasibility Studies · doi:10.1186/s40814-021-00922-z · Cited by 16
Correlates of Depressive Symptoms in Older Adults with Diabetes
Jones, L. C., Clay, O. J., Ovalle, F., Cherrington, A., & Crowe, M. G. (2015) · Journal of Diabetes Research · doi:10.1155/2016/8702730 · Cited by 17
Williams, J. S., Lynch, C. P., Knapp, R. G., & Egede, L. E. (2014) · Trials · doi:10.1186/1745-6215-15-460 · Cited by 16
“Diabetes distress The Diabetes Distress Scale (DDS) is a two-item scale that measures patient concerns about disease management, support, and emotional burden [29].”
BackgroundHessler, D., Fisher, L., Dickinson, M., Dickinson, P., Parra, J., & Potter, M. B. (2022) · Translational Behavioral Medicine · doi:10.1093/tbm/ibac046 · Cited by 15
“Health-related distress was assessed with two items based on the Diabetes Distress Scale (DDS2) [27] and examined continuously (1–5) and using an established threshold 1–1.99 = no/low distress, 2–2.99 = moderate distress, ≥3.00 = high distress; ≥2.00 = elevated distress).”
MethodInfluentialSelf-citationBratke, H., & Sivertsen, B. (2021) · Journal of Pediatric Endocrinology and Metabolism · doi:10.1515/jpem-2021-0041 · Cited by 13
“In addition, all students reporting to have diabetes completed two brief questionnaires assessing diabetesrelated distress: the problem areas in diabetes scale (PAID-1) [21] and the diabetes distress scale (DDS2) [22].”
BackgroundSocial Risk and Clinical Outcomes Among Adults With Type 2 Diabetes
Walker, R. J., Williams, J. S., Linde, S., & Egede, L. E. (2024) · JAMA Network Open · doi:10.1001/jamanetworkopen.2024.25996 · Cited by 16
Dubois, S. K., Lehrer, H. M., Whyne, E. Z., & Steinhardt, M. A. (2020) · International Journal of Behavioral Medicine · doi:10.1007/s12529-020-09894-5 · Cited by 21
“The brief Diabetes Distress Scale (DDS2) [52] was used to measure patients’ level of distress related to their diabetes care.”
Method
Metadata
- Authors
- Fisher, L., Glasgow, R. E., Mullan, J. T., Skaff, M. M., & Polonsky, W. H.
- Affiliations
- University of California, San Francisco (US)
- Kaiser Permanente (US)
- Venue
- The Annals of Family Medicine
- Publisher
- Annals of Family Medicine
- Published
- 2008-05-01
- Volume
- 6
- Issue
- 3
- Pages
- 246-252
- ISSN
- 1544-1709 (ISSN-L)
- 1544-1717
- PMC
- PMC2384991
- OpenAlex
- W1861477559
- Cited by
- 474
- References
- 14
- Citations by year
- 2026: 28 · 2025: 29 · 2024: 43 · 2023: 31 · 2022: 42 · 2021: 46 · 2020: 36 · 2019: 30 · 2018: 32 · 2017: 25 · 2016: 26 · 2015: 33 · 2014: 22 · 2013: 18 · 2012: 9
- FWCI
- 5.46
- Type
- journal article
- Language
- en
- Open access
- diamond
- doi.org
- Locations
- The Annals of Family Medicine (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- Funders
- University of California, San Francisco
- National Institute of Diabetes and Digestive and Kidney Diseases (DK-061937, DK062732, R01DK061937, R01DK062732)
- Topics
- Health Sciences › Medicine › Endocrinology, Diabetes and Metabolism › Diabetes Management and Education
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Health Sciences › Nursing › Research and Theory › Health Education and Validation
- Keywords
- diabetes distress, screening tool, type 2 diabetes, Diabetes Distress Scale, brief screening, psychometric properties, HbA1c, non-HDL cholesterol, physical activity, diet, emotional burden, disease management
- MeSH terms
- Aged, Depression, Major Depressive Disorder, Diabetes Mellitus, Type 2, Female, Glycated Hemoglobin, Humans, Lipoproteins, Male, Mass Screening, Middle Aged, Psychometrics, Self Care, Sensitivity and Specificity, Stress, Psychological, Comorbidity, Sickness Impact Profile
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