The DOI matches its Crossref record; 44 of the 45 references it cites were found in a registry or an index.
Factors Associated With Family Satisfaction With End-of-Life Care in the ICU
Abstract
Background Family satisfaction with end-of-life care in the ICU has not previously been systematically reviewed. Our objective was to perform a review, synthesizing published data identifying factors associated with family satisfaction with end-of-life care in critically ill adult populations. Methods The following electronic databases were searched: MEDLINE (Medical Literature Analysis and Retrieval System Online), MEDLINE Updated, EMBASE (Excerpta Medical Database), CINAHL (Cumulative Index to Nursing and Allied Health Literature), PsycInfo, and PubMed. Two authors reviewed retrieved titles and abstracts. Studies describing nonadult and non-ICU populations or not addressing end-of-life care, family satisfaction, or factors affecting satisfaction were excluded. The remaining articles underwent full review and data extraction by two authors. Quality was assessed using a checklist based on the recommendations of the Consolidated Standards for Reporting Trials group. Results The search yielded 1,072 articles, with 23 articles describing 14 studies meeting inclusion criteria. All studies obtained satisfaction data from family members via surveys and structured interviews. Specific communication strategies increasing satisfaction included: expressions of empathy, nonabandonment, and assurances of comfort and provision of written information. Additionally, support for shared decision-making, family presence at time of death, and specific patient-care measures such as extubation be…
Overview
Integrity signals
Registry
Cites
Statistics
Verification
Claims the paper makes
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
In the citing paper
“Family support interventions may help to reduce these psychological impacts, as suggested by four systematic reviews, 37,71,72,83 and two recent studies. 84,85”
From European Resuscitation Council Guidelines 2021: Ethics of resuscitation and end of life decisions (2021) · cites this paper as [83]
Citations
Cites
Liberati, A., Altman, D. G., Tetzlaff, J., Mulrow, C., Gotzsche, P. C., Ioannidis, J. P. A., Clarke, M., Devereaux, P. J., Kleijnen, J., & Moher, D. (2009) · BMJ · doi:10.1136/bmj.b2700 · Cited by 17,648
CONSORT 2010 Statement: updated guidelines for reporting parallel group randomised trials
the CONSORT Group, Schulz, K. F., Altman, D. G., & Moher, D. (2010) · BMC Medicine · doi:10.1186/1741-7015-8-18 · Cited by 13,371
CONSORT 2010 Statement: updated guidelines for reporting parallel group randomised trials
Schulz, K. F., Altman, D. G., Moher, D., & for the CONSORT Group (2010) · BMJ · doi:10.1136/bmj.c332 · Cited by 9,329
Risk of post-traumatic stress symptoms in family members of intensive care unit patients
Azoulay, E., Pochard, F., Kentish-Barnes, N., Chevret, S., Aboab, J., Adrie, C., Annane, D., Bleichner, G., Bollaert, P. E., Darmon, M., et al. (2005) · American Journal of Respiratory and Critical Care Medicine · doi:10.1164/rccm.200409-1295oc · Cited by 1,332
Use of intensive care at the end of life in the United States: An epidemiologic study*
Angus, D. C., Barnato, A. E., Linde‐Zwirble, W. T., Weissfeld, L. A., Watson, R. S., Rickert, T., & Rubenfeld, G. D. (2004) · Critical Care Medicine · doi:10.1097/01.ccm.0000114816.62331.08 · Cited by 1,157
Family response to critical illness: Postintensive care syndrome–family
Davidson, J. E., Jones, C., & Bienvenu, O. J. (2012) · Critical Care Medicine · doi:10.1097/ccm.0b013e318236ebf9 · Cited by 936
McDonagh, J. R., Elliott, T. B., Engelberg, R. A., Treece, P. D., Shannon, S. E., Rubenfeld, G. D., Patrick, D. L., & Curtis, J. R. (2004) · Critical Care Medicine · doi:10.1097/01.ccm.0000127262.16690.65 · Cited by 489
Azoulay, E., Pochard, F., Chevret, S., Jourdain, M., Bornstain, C., Wernet, A., Cattaneo, I., Annane, D., Brun, F., Bollaert, P.-E., et al. (2002) · American Journal of Respiratory and Critical Care Medicine · doi:10.1164/ajrccm.165.4.200108-006oc · Cited by 368
White, D. B. (2007) · Archives of Internal Medicine · doi:10.1001/archinte.167.5.461 · Cited by 345
Gries, C., Engelberg, R. A., Kross, E. K., Zatzick, D., Nielsen, E. L., Downey, L., & Curtis, J. R. (2009) · CHEST Journal · doi:10.1378/chest.09-1291 · Cited by 337
Heyland, D. K., & Tranmer, J. E. (2001) · Journal of Critical Care · doi:10.1053/jcrc.2001.30163 · Cited by 276
Azoulay, É., Pochard, F., Chevret, S., Adrie, C., Annane, D., Bleichner, G., Bornstain, C., Bouffard, Y., Cohen, Y., Feissel, M., et al. (2004) · Critical Care Medicine · doi:10.1097/01.ccm.0000139693.88931.59 · Cited by 272
Curtis, J. R., Nielsen, E. L., Treece, P. D., Downey, L., Dotolo, D., Shannon, S. E., Back, A. L., Rubenfeld, G. D., & Engelberg, R. A. (2011) · American Journal of Respiratory and Critical Care Medicine · doi:10.1164/rccm.201006-1004oc · Cited by 269
Integrating Palliative and Critical Care: Evaluation of a Quality-Improvement Intervention
Curtis, J. R., Treece, P. D., Nielsen, E. L., Downey, L., Shannon, S. E., Braungardt, T., Owens, D. A., Steinberg, K. P., & Engelberg, R. A. (2008) · American Journal of Respiratory and Critical Care Medicine · doi:10.1164/rccm.200802-272oc · Cited by 226
Clinician statements and family satisfaction with family conferences in the intensive care unit*
Stapleton, R. D., Engelberg, R. A., Wenrich, M. D., Goss, C. H., & Curtis, J. R. (2006) · Critical Care Medicine · doi:10.1097/01.ccm.0000218409.58256.aa · Cited by 211
Family Member Satisfaction With End-of-Life Decision Making in the ICU
Gries, C., Curtis, J. R., Wall, R. J., & Engelberg, R. A. (2008) · CHEST Journal · doi:10.1378/chest.07-1773 · Cited by 188
Communication in Critical Care: Family Rounds in the Intensive Care Unit
Jacobowski, N., Girard, T. D., Mulder, J. A., & Ely, E. W. (2010) · American Journal of Critical Care · doi:10.4037/ajcc2010656 · Cited by 178
Schmidt, M., & Azoulay, É. (2012) · Current Opinion in Critical Care · doi:10.1097/mcc.0b013e328357f141 · Cited by 176
Family Satisfaction in the ICU
Wall, R. J., Curtis, J. R., Cooke, C. R., & Engelberg, R. A. (2007) · CHEST Journal · doi:10.1378/chest.07-0419 · Cited by 169
HAZARDS OF OPIATE MISMANAGEMENT IN THE ICU
Mularski, R. A., Mularski, K., & Asch, S. (2005) · CHEST Journal · doi:10.1378/chest.128.1.280 · Cited by 159
Anderson, W. G., Arnold, R. M., Angus, D. C., & Bryce, C. L. (2009) · Journal of Critical Care · doi:10.1016/j.jcrc.2007.12.010 · Cited by 156
Empathy and Life Support Decisions in Intensive Care Units
Selph, R. B., Shiang, J., Engelberg, R. A., Curtis, J. R., & White, D. B. (2008) · Journal of General Internal Medicine · doi:10.1007/s11606-008-0643-8 · Cited by 156
Malacrida, R., Cm, B., Degrate, A., Martinez, M., Badia, F. B., Piazza, J., Vizzardi, N., Wullschleger, R., & Rapin, C. H. (1998) · Critical Care Medicine · doi:10.1097/00003246-199807000-00018 · Cited by 148
Mularski, R. A., Heine, C. E., Osborne, M. L., Ganzini, L. K., & Curtis, J. R. (2005) · CHEST Journal · doi:10.1016/s0012-3692(15)37958-7 · Cited by 145
Kodish, E. D., & Post, S. G. (1995) · Journal of Clinical Oncology · doi:10.1200/jco.1995.13.7.1817 · Cited by 139
Gerstel, E., Engelberg, R. A., Koepsell, T. D., & Curtis, J. R. (2008) · American Journal of Respiratory and Critical Care Medicine · doi:10.1164/rccm.200711-1617oc · Cited by 136
Using the medical record to evaluate the quality of end-of-life care in the intensive care unit*
Glavan, B. J., Engelberg, R. A., Downey, L., & Curtis, J. R. (2008) · Critical Care Medicine · doi:10.1097/ccm.0b013e318168f301 · Cited by 134
Spiritual care of families in the intensive care unit*
Wall, R. J., Engelberg, R. A., Gries, C., Glavan, B. J., & Curtis, J. R. (2007) · Critical Care Medicine · doi:10.1097/01.ccm.0000259382.36414.06 · Cited by 124
Does Palliative Care Improve Quality? A Survey of Bereaved Family Members
Gelfman, L. P., Meier, D. E., & Morrison, R. S. (2008) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2007.09.008 · Cited by 121
Schenker, Y., White, D. B., Crowley‐Matoka, M., Dohan, D. P., Tiver, G. A., & Arnold, R. M. (2013) · Journal of Palliative Medicine · doi:10.1089/jpm.2012.0331 · Cited by 91
Casarett, D., Pickard, A., Bailey, F. A., Ritchie, C. S., Furman, C. D., Rosenfeld, K., Shreve, S., & Shea, J. A. (2008) · Journal of Palliative Medicine · doi:10.1089/jpm.2007.0104 · Cited by 87
Hunt, K. J., Shlomo, N., & Addington-Hall, J. M. (2013) · BMC Medical Research Methodology · doi:10.1186/1471-2288-13-3 · Cited by 73
Identifying Elements of ICU Care That Families Report as Important But Unsatisfactory
Osborn, T. R., Curtis, J. R., Nielsen, E. L., Back, A. L., Shannon, S. E., & Engelberg, R. A. (2012) · CHEST Journal · doi:10.1378/chest.11-3277 · Cited by 63
Surveys to Assess Satisfaction with End-of-Life Care
Casarett, D., Crowley, R., & Hirschman, K. B. (2003) · Journal of Pain and Symptom Management · doi:10.1016/s0885-3924(02)00636-x · Cited by 62
Friedenberg, A. S., Levy, M. M., Ross, S. M., & Evans, L. (2012) · Journal of Palliative Medicine · doi:10.1089/jpm.2011.0261 · Cited by 54
Family Satisfaction Following the Death of a Loved One in an Inner City MICU
Kaufer, M., Murphy, P., Barker, K., & Mosenthal, A. C. (2008) · American Journal of Hospice and Palliative Medicine® · doi:10.1177/1049909108319262 · Cited by 47
Withdrawal of Life Support: How the Family Feels, and Why
Keenan, S., Mawdsley, C., Plotkin, D., Webster, G. K., & Priestap, F. A. (2000) · Journal of Palliative Care · doi:10.1177/082585970001601s08 · Cited by 46
Palliative care teams in the intensive care unit: a randomised, controlled, feasibility study
Cheung, W., Aggarwal, G., Fugaccia, E., Thanakrishnan, G., Milliss, D., Anderson, R., Stock, D., Bird, H., Tan, J., & Fryc, A. C. (2010) · Critical Care and Resuscitation · doi:10.1016/s1441-2772(23)01353-4 · Cited by 42
Preparing Families of Intensive Care Patients for Withdrawal of Life Support: A Pilot Study
Kirchhoff, K. T., Palzkill, J., Kowalkowski, J. A., Mørk, A., & Gretarsdottir, E. (2008) · American Journal of Critical Care · doi:10.4037/ajcc2008.17.2.113 · Cited by 25
Family perceptions of end-of-life care in an urban ICU.
Kjerulf, M., Regehr, C., Popova, S. R., & BAKER, A. J. (2005) · PubMed · Cited by 15
Evaluation of End-of-Life Cancer Care in the ICU
Kinoshita, S., & Miyashita, M. (2012) · American Journal of Hospice and Palliative Medicine® · doi:10.1177/1049909112446805 · Cited by 14
Is Dying in an ICU a Sign of Poor Quality End-of-Life Care?
White, D. B., Ernecoff, N. C., Billings, J. A., & Arnold, R. M. (2013) · American Journal of Critical Care · doi:10.4037/ajcc2013604 · Cited by 14
Azoulay, É., & Siegel, M. D. (2011) · American Journal of Respiratory and Critical Care Medicine · doi:10.1164/rccm.201010-1759ed · Cited by 5
Evaluation of an EOL Critical Care Nurse Liaison Program
Robley, L. R., & Denton, S. (2006) · Journal of Hospice and Palliative Nursing · doi:10.1097/00129191-200609000-00014 · Cited by 5
Cited by
Sorted by citations
Bereavement Support on the Frontline of COVID-19: Recommendations for Hospital Clinicians
Selman, L. E., Chao, D., Sowden, R., Marshall, S., Chamberlain, C., & Koffman, J. (2020) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2020.04.024 · Cited by 261
Palliative care in intensive care units: why, where, what, who, when, how
Mercadante, S., Gregoretti, C., & Cortegiani, A. (2018) · BMC Anesthesiology · doi:10.1186/s12871-018-0574-9 · Cited by 300
European Resuscitation Council Guidelines 2021: Ethics of resuscitation and end of life decisions
Mentzelopoulos, S. D., Couper, K., Voorde, P. V. D., Druwé, P., Blom, M., Perkins, G. D., Lulic, I., Djakow, J., Raffay, V., Lilja, G., et al. (2021) · Resuscitation · doi:10.1016/j.resuscitation.2021.02.017 · Cited by 246
“Communication in the context of shared decision-making is associated with higher patient/ family satisfaction and increased decisional confidence, as suggested by four systematic reviews.(65,71,72,74) Key components of this”
BackgroundAnderson, R., Bloch, S., Armstrong, M., Stone, P. C., & Low, J. (2019) · Palliative Medicine · doi:10.1177/0269216319852007 · Cited by 240
Vanderspank‐Wright, B., Efstathiou, N., & Vandyk, A. D. (2017) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2017.09.012 · Cited by 74
Metadata
- Authors
- Hinkle, L. J., Bosslet, G. T., & Torke, A. M.
- Affiliations
- Indiana University Health (US)
- Corresponding author
- Hinkle, Laura J.
- Venue
- Chest
- Publisher
- Elsevier BV
- Published
- 2015-01
- Volume
- 147
- Issue
- 1
- Pages
- 82-93
- ISSN
- 0012-3692 (ISSN-L)
- OpenAlex
- W2012744799
- Cited by
- 142
- References
- 45
- Citations by year
- 2026: 8 · 2025: 8 · 2024: 12 · 2023: 5 · 2022: 15 · 2021: 23 · 2020: 24 · 2019: 20 · 2018: 9 · 2017: 8 · 2016: 7 · 2015: 3
- FWCI
- 0.93
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- CHEST Journal (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Critical Care and Intensive Care Medicine › Family and Patient Care in Intensive Care Units
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Keywords
- family satisfaction, end-of-life care, intensive care unit, family communication, shared decision-making, palliative care, empathy, family presence at death, critical illness
- MeSH terms
- Decision Making, Family, Humans, Intensive Care Units, Patient Participation, Personal Satisfaction, Terminal Care
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review