Impact of death and dying on the personal lives and practices of palliative and hospice care professionals
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Background Working within the landscape of death and dying, professionals in palliative and hospice care provide insight into the nature of mortality that may be of benefit to individuals facing the end of life. Much less is known about how these professionals incorporate these experiences into their personal lives and clinical practices. Methods This ethnographic inquiry used semi-structured interviews and participant observation to elicit an in-depth understanding of the impact of death and dying on the personal lives of national key leaders (n = 6) and frontline clinicians (n = 24) involved in end-of-life care in Canada. Analysis of findings occurred in the field through constant comparative method and member checking, with more formal levels of analysis occurring after the data-collection phase. Results Eleven specific themes, organized under three overarching categories (past, present and future), were discovered. Early life experiences with death were a common and prominent feature, serving as a major motivator in participants' career path of end-of-life care. Clinical exposure to death and dying taught participants to live in the present, cultivate a spiritual life, reflect on their own mortality and reflect deeply on the continuity of life. Interpretation Participants reported that their work provided a unique opportunity for them to discover meaning in life through the lessons of their patients, and an opportunity to incorporate these teachings in their own lives. Although Western society has been described as a "death-denying" culture, the participants felt that their frequent exposure to death and dying was largely positive, fostering meaning in the present and curiosity about the continuity of life.
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Palliative care practitioners have reported that frequent exposure to death can help them to live in the present, enhance meaning, cultivate a spiritual life and develop curiosity about the continuity of life.
“Contrary to what one would intuitively think about the work with the dying, palliative care practitioners have reported that frequent exposure to death can help them to live in the present, enhance meaning, cultivate a spiritual life and develop curiosity about the continuity of life [2].”
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Cites
Discipline and Punish: The Birth of the Prison.
Tarbet, D. W., Foucault, M., & Sheridan, A. (1978) · Eighteenth-Century Studies · doi:10.2307/2737970 · Cited by 19,269 · see citing works
Discipline and Punish: The Birth of the Prison.
Zukin, S., Foucault, M., & Sheridan, A. (1996) · Contemporary Sociology A Journal of Reviews · doi:10.2307/2077073 · Cited by 15,425 · see citing works
Ethnography: Principles and Practice
Hammersley, M., & Atkinson, P. (1983) · Cited by 7,730 · see citing works
Discipline and Punish: The Birth of the Prison
Foucault, M. (2020) · Duke University Press eBooks · doi:10.1515/9780822390169-058 · Cited by 2,733 · see citing works
Steinhauser, K. E. (2000) · JAMA · doi:10.1001/jama.284.19.2476 · Cited by 2,518 · see citing works
(1995) · Medical Entomology and Zoology · Cited by 2,472 · see citing works
Critical Issues in Qualitative Research Methods.
Russell, C. K., & Morse, J. M. (1994) · Contemporary Sociology A Journal of Reviews · doi:10.2307/2076454 · Cited by 2,232 · see citing works
Fetterman, D. M. (2020) · Sage eBooks · doi:10.4135/9781071909874 · Cited by 1,936 · see citing works
Ethnography: Principles in Practice.
Gibbons, J. A., Hammersley, M., & Atkinson, P. (1986) · Contemporary Sociology A Journal of Reviews · doi:10.2307/2070079 · Cited by 1,605 · see citing works
Atkinson, P., Coffey, A. J., Delamont, S., Lofland, J., & Lofland, L. H. (2001) · SAGE Publications Ltd eBooks · doi:10.4135/9781848608337 · Cited by 1,231 · see citing works
Qualitative Nursing Research: A Contemporary Dialogue
Morse, J. M. (1991) · Sage eBooks · doi:10.4135/9781483349015 · Cited by 1,002 · see citing works
Nursing Research: A Qualitative Perspective
Munhall, P. L. (1986) · Andalas University Repository (Andalas University) · Cited by 987 · see citing works
The Patient Dignity Inventory: A Novel Way of Measuring Dignity-Related Distress in Palliative Care
Chochinov, H. M., Hassard, T. H., McClement, S., Hack, T. F., Kristjanson, L. J., Harlos, M., Sinclair, S., & Murray, A. (2008) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2007.12.018 · Cited by 430 · see citing works
Self-citationHebert, R. S., Schulz, R., Copeland, V. C., & Arnold, R. M. (2008) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2007.12.010 · Cited by 258 · see citing works
The Landscape of Distress in the Terminally Ill
Chochinov, H. M., Hassard, T. H., McClement, S., Hack, T. F., Kristjanson, L. J., Harlos, M., Sinclair, S., & Murray, A. (2009) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2009.04.021 · Cited by 168 · see citing works
Self-citationA Thematic Review of the Spirituality Literature within Palliative Care
Sinclair, S., Pereira, J., & Bouchal, S. R. (2006) · Journal of Palliative Medicine · doi:10.1089/jpm.2006.9.464 · Cited by 166 · see citing works
Self-citationThe denial of death thesis: sociological critique and implications for palliative care
Zimmermann, C., & Rodin, G. (2004) · Palliative Medicine · doi:10.1191/0269216304pm858oa · Cited by 162 · see citing works
Holland, J. M., & Neimeyer, R. A. (2005) · Palliative & Supportive Care · doi:10.1017/s1478951505050297 · Cited by 147 · see citing works
Historical and cultural variants on the good death
Walter, T. (2003) · BMJ · doi:10.1136/bmj.327.7408.218 · Cited by 142 · see citing works
An Exploratory Study of Spiritual Care at the End of Life
Daaleman, T. P., Usher, B. M., Williams, S. W., Rawlings, J., & Hanson, L. C. (2008) · The Annals of Family Medicine · doi:10.1370/afm.883 · Cited by 136 · see citing works
Textbook of Palliative Medicine
(2009) · CRC Press eBooks · doi:10.1201/b13272 · Cited by 133 · see citing works
Qualitative Nursing Research: A Free-for-All?
Morse, J. M. (1991) · Sage eBooks · doi:10.4135/9781483349015.n2 · Cited by 114 · see citing works
Is there such a thing as a good death?
Walters, G. (2004) · Palliative Medicine · doi:10.1191/0269216304pm908oa · Cited by 97 · see citing works
The Caregiver's Perspective on Existential and Spiritual Distress in Palliative Care
Boston, P. H., & Mount, B. M. (2006) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2006.01.009 · Cited by 95 · see citing works
Spirituality and Job Satisfaction among Hospice Interdisciplinary Team Members
Clark, L., Leedy, S. A., McDonald, L., et al. (2007) · Journal of Palliative Medicine · doi:10.1089/jpm.2007.0035 · Cited by 77 · see citing works
The Hope Experience of Older Bereaved Women Who Cared for a Spouse With Terminal Cancer
Holtslander, L. F., & Duggleby, W. (2009) · Qualitative Health Research · doi:10.1177/1049732308329682 · Cited by 77 · see citing works
Coping strategies, emotional outcomes and spiritual quality of life in palliative care nurses
Desbiens, J., & Fillion, L. (2007) · International Journal of Palliative Nursing · doi:10.12968/ijpn.2007.13.6.23746 · Cited by 73 · see citing works
The Experience of Hope for Informal Caregivers of Palliative Patients
Holtslander, L. F., Duggleby, W., Williams, A., & Wright, K. E. (2005) · Journal of Palliative Care · doi:10.1177/082585970502100408 · Cited by 71 · see citing works
Collective soul: The spirituality of an interdisciplinary palliative care team
Sinclair, S., Bouchal, S. R., Pereira, J., & Guebert, N. (2006) · Palliative & Supportive Care · doi:10.1017/s1478951506060032 · Cited by 65 · see citing works
Self-citationBailey, M., Moran, S., & Graham, M. M. (2009) · International Journal of Palliative Nursing · doi:10.12968/ijpn.2009.15.1.37952 · Cited by 58 · see citing works
Saunders, C., Summers, D., & Teller, N. (1981) · DigitalGeorgetown (Georgetown University Library) · doi:10.1080/13576279609696251 · Cited by 55 · see citing works
Reflexivity in Fieldwork: Toward a Ferninist Epistemology
Anderson, J. M. (1991) · Journal of Nursing Scholarship · doi:10.1111/j.1547-5069.1991.tb00654.x · Cited by 54 · see citing works
The Importance of Spirituality in Hospice Work: A Study of Hospice Professionals
Millison, M. B., & Dudley, J. R. (1990) · The Hospice Journal · doi:10.1080/0742-969x.1990.11882678 · Cited by 37 · see citing works
Spirituality and the caregiver
Millison, M. B. (1988) · American Journal of Hospice Care · doi:10.1177/104990918800500211 · Cited by 27 · see citing works
An Exploratory Study of Spiritual Care at the End of Life
Rawlings, J., Daaleman, T. P., Williams, S. W., et al. (2020) · Carolina Digital Repository (University of North Carolina at Chapel Hill) · doi:10.17615/6mg4-y214 · Cited by 16 · see citing works
Mapping Religion and Spirituality in an Irish Palliative Care Setting
MacConville, Ú. (2006) · OMEGA - Journal of Death and Dying · doi:10.2190/63pd-0flj-8cx5-ldty · Cited by 6 · see citing works
Flagged first, then by citations
Research works printed but not linked: 6
- O'Connor P, Kaplan M. The role of the interdisciplinary team in providing spiritual care: an attitudinal study of hospice workers. In: Wald F, editor. In quest of the spiritual component of care for the terminally ill. New Haven (CT): Yale University Press; 1986. p. 51-62.
- Vance D. Nurses' attitudes towards spirituality and patient care. Medsurg Nursing 2001;10:264-8.
- Hoad T. Oxford concise dictionary of English etymology. New York (NY): Oxford University Press; 1996.
- Atkinson P, Hammersley M. Ethnography: principles in prac- tice. 3rd ed. London (UK): Routledge; 2007.
- Anderson JM. Reflexivity in fieldwork: toward a feminist epis- temology. Image J Nurs Sch 1991;23:115-8.
- Junker B. Field work. Chicago (IL): University of Chicago Press; 1960.
Cited by
Sorted by citations
Sansó, N., Galiana, L., Oliver, A., Pascual, A., Sinclair, S., & Benito, E. (2015) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2015.02.013 · Cited by 330 · see citing works
Self-citationCompassion in Health Care: An Empirical Model
Sinclair, S., McClement, S., Raffin-Bouchal, S., Hack, T. F., Hagen, N. A., McConnell, S., & Chochinov, H. M. (2016) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2015.10.009 · Cited by 328 · see citing works
“An interview guide was developed (Table 2) based on a literature review and our research team’s previous experience conducting research with patients approaching end of life.(12,31,32)”
BackgroundMethodSelf-citationOrellana-Rios, C. L., Radbruch, L., Kern, M., Regel, Y. U., Anton, A., Sinclair, S., & Schmidt, S. (2018) · BMC Palliative Care · doi:10.1186/s12904-017-0219-7 · Cited by 162 · see citing works
Self-citationPerez, G. K., Haime, V., Jackson, V., Chittenden, E., Mehta, D. H., & Park, E. R. (2015) · Journal of Palliative Medicine · doi:10.1089/jpm.2014.0221 · Cited by 103 · see citing works
Hospice nurses’ emotional challenges in their encounters with the dying
Ingebretsen, L. P., & Sagbakken, M. (2016) · International Journal of Qualitative Studies on Health and Well-being · doi:10.3402/qhw.v11.31170 · Cited by 61 · see citing works
Spiritual needs assessments and measurements
Lunder, U., Furlan, M., & Simonič, A. (2011) · Current Opinion in Supportive & Palliative Care · doi:10.1097/spc.0b013e3283499b20 · Cited by 37 · see citing works
Fisher, S., Gillanders, D., & Ferreira, N. (2022) · British Journal of Health Psychology · doi:10.1111/bjhp.12565 · Cited by 22 · see citing works
Roche, N., Darzins, S., Oakman, J., & Stuckey, R. (2025) · OMEGA - Journal of Death and Dying · doi:10.1177/00302228221117902 · Cited by 16 · see citing works
Smith, P., Vasileiou, K., & Kagee, A. (2020) · South African Journal of Psychology · doi:10.1177/0081246320902300 · Cited by 6 · see citing works
- Authors
- Sinclair, S.
- Affiliations
- University of Manitoba (CA)
- Corresponding author
- Sinclair, S.
- ORCID
- Sinclair, S.
- Venue
- Canadian Medical Association Journal
- Publisher
- CMA Joule Inc.
- Published
- 2010-12-06
- Volume
- 183
- Issue
- 2
- Pages
- 180-187
- ISSN
- 0820-3946 (ISSN-L)
- 1488-2329
- PMC
- PMC3033923
- OpenAlex
- W2130828943
- Cited by
- 143
- References
- 36
- Citations by year
- 2026: 2 · 2025: 14 · 2024: 13 · 2023: 6 · 2022: 8 · 2021: 15 · 2020: 8 · 2019: 11 · 2018: 3 · 2017: 7 · 2016: 7 · 2015: 15 · 2014: 12 · 2013: 11 · 2012: 7
- FWCI
- 7.00
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Locations
- Canadian Medical Association Journal (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- Funders
- University of Manitoba
- Canadian Institutes of Health Research
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Social Sciences › Anthropology › Death, Funerary Practices, and Mourning
- Keywords
- death and dying, palliative care professionals, end-of-life care, career motivation, spiritual life, meaning in life, continuity of life, frontline clinicians
- MeSH terms
- Adaptation, Psychological, Anthropology, Cultural, Attitude to Death, Canada, Health Personnel, Humans, Palliative Care, Personal Satisfaction, Professional-Patient Relations, Hospice Care, Spirituality
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