The DOI matches its Crossref record; 12 of the 12 references it cites were found in a registry or an index.
An Epidemiologic Profile of Children With Special Health Care Needs
Abstract
Objective. To present an epidemiologic profile of children with special health care needs using a new definition of the population developed by the federal Maternal and Child Health Bureau. Methods. We operationalized the new definition using the recently released 1994 National Health Interview Survey on Disability. Estimates are based on 30 032 completed interviews for children <18 years old. The overall response rate was 87%. Results. Eighteen percent of US children <18 years old in 1994, or 12.6 million children nationally, had a chronic physical, developmental, behavioral, or emotional condition and required health and related services of a type or amount beyond that required by children generally. This estimate includes children with existing special health care needs but excludes the at-risk population. Prevalence was higher for older children, boys, African-Americans, and children from low-income and single-parent households. Children with existing special health care needs had three times as many bed days and school absence days as other children. An estimated 11% of children with existing special health care needs were uninsured, 6% were without a usual source of health care, 18% were reported as dissatisfied with one or more aspects of care received at their usual source of care, and 13% had one or more unmet health needs in the past year. Conclusions. A substantial minority of US children were identified as having an existing special health care need using national survey data. Children with existing special health care needs are disproportionately poor and socially disadvantaged. Moreover, many of these children face significant barriers to health care.
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Cites
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Chronic Conditions, Socioeconomic Risks, and Behavioral Problems in Children and Adolescents
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Prevalence and impact of disabling chronic conditions in childhood.
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Self-citationFunctional Status II(R): A Measure of Child Health Status
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Self-citationHow Well They Remember: The Accuracy of Parent Reports
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Cited by
A New Definition of Children With Special Health Care Needs
McPherson, M., Arango, P., Fox, H., Lauver, C., McManus, M., Newacheck, P. W., Perrin, J. M., Shonkoff, J. P., & Strickland, B. (1998) · Pediatrics · doi:10.1542/peds.102.1.137 · Cited by 1,500
Self-citationBethell, C. D., Read, D., Stein, R. E. K., Blumberg, S. J., Wells, N., & Newacheck, P. W. (2002) · Ambulatory Pediatrics · doi:10.1367/1539-4409(2002)002<0038:icwshc>2.0.co;2 · Cited by 698
Self-citationLipkin, P. H., Macias, M. M., COUNCIL ON CHILDREN WITH DISABILITIES, S. O. D. A. B. P., Norwood, K. W., Brei, T. J., Davidson, L. F., Davis, B. E., Ellerbeck, K. A., Houtrow, A. J., Hyman, S. L., et al. (2020) · Pediatrics · doi:10.1542/peds.2019-3449 · Cited by 676
Adolescents with a chronic condition: challenges living, challenges treating
Sawyer, S. M., Drew, S., Yeo, M. S., & Britto, M. T. (2007) · The Lancet · doi:10.1016/s0140-6736(07)60370-5 · Cited by 656
A Review of the Evidence for the Medical Home for Children With Special Health Care Needs
Homer, C. J., Klatka, K., Romm, D., Kuhlthau, K., Bloom, S., Newacheck, P., Van Cleave, J., & Perrin, J. M. (2008) · Pediatrics · doi:10.1542/peds.2007-3762 · Cited by 373
Self-citation
Metadata
- Authors
- Newacheck, P. W., Strickland, B., Shonkoff, J. P., Perrin, J. M., McPherson, M., McManus, M., Lauver, C., Fox, H., & Arango, P.
- Venue
- Pediatrics
- Publisher
- American Academy of Pediatrics (AAP)
- Published
- 1998-07-01
- Volume
- 102
- Issue
- 1
- Pages
- 117-123
- ISSN
- 0031-4005 (ISSN-L)
- 1098-4275
- OpenAlex
- W2008524757
- Cited by
- 573
- References
- 12
- FWCI
- 55.81
- Type
- journal article
- Language
- en
- Open access
- closed
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