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Cited by 98Adolescent and Pediatric HealthcareChild and Adolescent HealthCultural Competency in Health Care

Family-Centered Care for US Children With Special Health Care Needs: Who Gets It and Why?

Coker, Tumaini R., Rodriguez, Michael A., Flores, Glenn·2010·Pediatrics
DOI 10.1542/peds.2009-1994
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Abstract

OBJECTIVE: The goal was to examine racial/ethnic and language disparities in family-centered care (FCC) and in FCC components for children with special health care needs (CSHCN). METHODS: Bivariate and multivariate logistic regression analyses of data from the 2005–2006 National Survey of CSHCN were performed. RESULTS: A total of 66% of CSHCN with a health visit in the past year received FCC. In adjusted analyses, we found lower odds of FCC for Latino (odds ratio: 0.53 [95% confidence interval: 0.45–0.63]), African-American (odds ratio: 0.60 [95% confidence interval: 0.52–0.69]), and other (odds ratio: 0.58 [95% confidence interval: 0.43–0.78]) children, compared with white children, and for children in households with a non-English primary language (odds ratio: 0.48 [95% confidence interval: 0.36–0.64]), compared with those in households with English as the primary language. These disparities persisted after adjustment for child health (condition severity and emotional, behavioral, and developmental needs), socioeconomic (poverty level, parental education, household composition, and residing in a metropolitan statistical area), and access (insurance type, usual source of care, and having a personal physician) factors. Of these factors, only condition severity was significantly associated with the racial/ethnic disparities; none was significantly associated with the language disparities. Disparities were found for Latino and African-American children and children in households with a non-English primary language for the FCC components of time spent with the provider and sensitivity to the family's values and customs. CONCLUSIONS: Robust FCC racial/ethnic and language disparities exist for CSHCN; initial efforts to address these disparities should focus on increasing provider time and cultural sensitivity.

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  • Racial/ethnic differences and language disparities within FCC suggest additional communication barriers that impede partnership building.

    “Racial/ethnic differences and language disparities within FCC [66] suggest additional communication barriers that impede partnership building.”

    From Family-Centered Care: Current Applications and Future Directions in Pediatric Health Care (2012) · cites this paper as [66]

  • Cultural differences may account for additional variation, particularly from immigrant families with different medical experiences.

    “Cultural differences may account for additional variation, particularly from immigrant families with different medical experiences [65, 66].”

    From Family-Centered Care: Current Applications and Future Directions in Pediatric Health Care (2012) · cites this paper as [66]

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Authors
Coker, T. R., Rodriguez, M. A., & Flores, G.
Affiliations
  • Mattel Children's Hospital (US)
  • Family Medicine, David Geffen School of Medicine, University of California, Los Angeles, California;
  • Children's Medical Center (US)
ORCID
Venue
Pediatrics
Publisher
American Academy of Pediatrics (AAP)
Published
2010-06-01
Volume
125
Issue
6
Pages
1159-1167
ISSN
  • 0031-4005 (ISSN-L)
  • 1098-4275
DOI
10.1542/peds.2009-1994
OpenAlex
W2167570121
Cited by
98
References
25
Citations by year
2026: 2 · 2025: 1 · 2024: 1 · 2023: 4 · 2022: 8 · 2021: 9 · 2020: 8 · 2019: 5 · 2018: 8 · 2017: 6 · 2016: 7 · 2015: 8 · 2014: 8 · 2013: 7 · 2012: 5
FWCI
20.42
Type
journal article
Language
en
Open access
closed
Locations
  • PEDIATRICS (publishedVersion)
  • PubMed (publishedVersion)
Topics
  • Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
  • Health Sciences › Health Professions › General Health Professions › Child and Adolescent Health
  • Social Sciences › Sociology and Political Science › Cultural Competency in Health Care
Keywords
family-centered care, children with special health care needs, racial and ethnic disparities, language disparities, Latino children, African American children, cultural sensitivity, condition severity, socioeconomic factors, health care access
MeSH terms
Adolescent, Child, Child Welfare, Child, Preschool, Ethnicity, Family Health, Female, Health Services Needs and Demand, Humans, Infant, Male, Minority Groups, Socioeconomic Factors, United States, Logistic Models, Patient-Centered Care, Cultural Diversity, Children with Disabilities, Disabled Children, Healthcare Disparities

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