Associations of Family-Centered Care with Health Care Outcomes for Children with Special Health Care Needs

The central role of the propensity score in observational studies for causal effects

ROSENBAUM, P. R., & RUBIN, D. B. (1983) · Biometrika · doi:10.1093/biomet/70.1.41 · Cited by 31,241 · see citing works

Revisiting the Behavioral Model and Access to Medical Care: Does it Matter?

Andersen, R. M. (1995) · Journal of Health and Social Behavior · doi:10.2307/2137284 · Cited by 9,831 · see citing works

Reducing Bias in Observational Studies Using Subclassification on the Propensity Score

Rosenbaum, P. R., & Rubin, D. B. (1984) · Journal of the American Statistical Association · doi:10.1080/01621459.1984.10478078 · Cited by 3,082 · see citing works

The cost of dichotomising continuous variables

Altman, D. G., & Royston, P. (2006) · BMJ · doi:10.1136/bmj.332.7549.1080 · Cited by 2,688 · see citing works

A New Definition of Children With Special Health Care Needs

McPherson, M., Arango, P., Fox, H., Lauver, C., McManus, M., Newacheck, P. W., Perrin, J. M., Shonkoff, J. P., & Strickland, B. (1998) · Pediatrics · doi:10.1542/peds.102.1.137 · Cited by 1,487 · see citing works

What ‘Patient-Centered’ Should Mean: Confessions Of An Extremist

Berwick, D. M. (2009) · Health Affairs · doi:10.1377/hlthaff.28.4.w555 · Cited by 872 · see citing works

Meta‐analysis of family‐centered helpgiving practices research

Dunst, C. J., Trivette, C. M., & Hamby, D. W. (2007) · Mental Retardation and Developmental Disabilities Research Reviews · doi:10.1002/mrdd.20176 · Cited by 691 · see citing works

Understanding the context of healthcare utilization: assessing environmental and provider-related variables in the behavioral model of utilization.

Phillips, K. A., Morrison, K., Andersen, R., & Aday, L. A. (1998) · PubMed Central · Cited by 551 · see citing works

Family-Centered Care and the Pediatrician’s Role

Committee on Hospital Care (2003) · Pediatrics · doi:10.1542/peds.112.3.691 · Cited by 537 · see citing works

A National Profile of Health Care Utilization and Expenditures for Children With Special Health Care Needs

Newacheck, P. W., & Kim, S. E. (2005) · Archives of Pediatrics and Adolescent Medicine · doi:10.1001/archpedi.159.1.10 · Cited by 456 · see citing works

Family centred care: a review of qualitative studies

Shields, L., Pratt, J., & Hunter, J. (2006) · Journal of Clinical Nursing · doi:10.1111/j.1365-2702.2006.01433.x · Cited by 373 · see citing works

A Review of the Evidence for the Medical Home for Children With Special Health Care Needs

Homer, C. J., Klatka, K., Romm, D., Kuhlthau, K., Bloom, S., Newacheck, P., Van Cleave, J., & Perrin, J. M. (2008) · Pediatrics · doi:10.1542/peds.2007-3762 · Cited by 373 · see citing works

Family-Centered Theory: Origins, Development, Barriers, and Supports to Implementation in Rehabilitation Medicine

Bamm, E. L., & Rosenbaum, P. (2008) · Archives of Physical Medicine and Rehabilitation · doi:10.1016/j.apmr.2007.12.034 · Cited by 346 · see citing works

Bridging the divide between families and health professionals’ perspectives on family‐centred care

MacKean, G. L., Thurston, W. E., & Scott, C. M. (2005) · Health Expectations · doi:10.1111/j.1369-7625.2005.00319.x · Cited by 327 · see citing works

Design and operation of the National Survey of Children with Special Health Care Needs, 2001.

Bramlett, M. D., Blumberg, S. J., Ormson, A. E., George, J. M., Williams, K. L., Frasier, A. M., Skalland, B. J., Santos, K. B., Vsetecka, D. M., Morrison, H. M., et al. (2003) · PubMed · Cited by 305 · see citing works

Access to the Medical Home: Results of the National Survey of Children With Special Health Care Needs

Strickland, B. B., McPherson, M. G., Weissman, G., van Dyck, P., Huang, Z. J., & Newacheck, P. W. (2004) · PEDIATRICS · doi:10.1542/peds.113.s4.1485 · Cited by 293 · see citing works

Health services research

(1997) · Journal of General Internal Medicine · doi:10.1046/j.1525-1497.12.s1.3.x · Cited by 290 · see citing works

Family-Centered Bedside Rounds: A New Approach to Patient Care and Teaching

Muething, S. E., Kotagal, U. R., Schoettker, P. J., del Rey, J. G., & DeWitt, T. G. (2007) · Pediatrics · doi:10.1542/peds.2006-2528 · Cited by 270 · see citing works

What is the Prevalence of Children with Special Health Care Needs? Toward an Understanding of Variations in Findings and Methods Across Three National Surveys

Bethell, C. D., Read, D., Blumberg, S. J., & Newacheck, P. W. (2007) · Maternal and Child Health Journal · doi:10.1007/s10995-007-0220-5 · Cited by 235 · see citing works

Improved Outcomes Associated With Medical Home Implementation in Pediatric Primary Care

Cooley, W. C., McAllister, J. W., Sherrieb, K., & Kuhlthau, K. A. (2009) · PEDIATRICS · doi:10.1542/peds.2008-2600 · Cited by 222 · see citing works

Satisfaction With Care and Ease of Using Health Care Services Among Parents of Children With Special Health Care Needs: The Roles of Race/Ethnicity, Insurance, Language, and Adequacy of Family-Centered Care

Ngui, E. M., & Flores, G. (2006) · PEDIATRICS · doi:10.1542/peds.2005-1088 · Cited by 215 · see citing works

Do Pediatricians Think They Are Responsible for Identification and Management of Child Mental Health Problems? Results of the AAP Periodic Survey

Stein, R. E. K., Horwitz, S. M., Storfer‐Isser, A., Heneghan, A. M., Olson, L. M., & Hoagwood, K. (2008) · Ambulatory Pediatrics · doi:10.1016/j.ambp.2007.10.006 · Cited by 212 · see citing works

Satisfaction With Primary Health Care Received by Families of Children With Developmental Disabilities

Liptak, G. S., Orlando, M., Yingling, J. T., Theurer-Kaufman, K. L., Malay, D. P., Tompkins, L. A., & Flynn, J. R. (2006) · Journal of Pediatric Health Care · doi:10.1016/j.pedhc.2005.12.008 · Cited by 180 · see citing works

Multivariate Matching and Bias Reduction in the Surgical Outcomes Study

Silber, J., Rosenbaum, P., Trudeau, M., Even-Shoshan, O., Chen, W., Zhang, X., & Mosher, R. E. (2001) · Medical Care · doi:10.1097/00005650-200110000-00003 · Cited by 179 · see citing works

Defining Family-Centered Rounds

Sisterhen, L. L., Blaszak, R. T., Woods, M. B., & Smith, C. E. (2007) · Teaching and Learning in Medicine · doi:10.1080/10401330701366812 · Cited by 161 · see citing works

Care Coordination for CSHCN: Associations With Family-Provider Relations and Family/Child Outcomes

Turchi, R. M., Berhane, Z., Bethell, C. D., Pomponio, A. D., Antonelli, R. C., & Minkovitz, C. S. (2009) · PEDIATRICS · doi:10.1542/peds.2009-1255o · Cited by 147 · see citing works

Quality of Primary Care and Subsequent Pediatric Emergency Department Utilization

Brousseau, D. C., Hoffmann, R. G., Nattinger, A. B., Flores, G., Zhang, Y., & Gorelick, M. (2007) · Pediatrics · doi:10.1542/peds.2006-3518 · Cited by 145 · see citing works

An Individualized Intervention to Improve Asthma Management Among Urban Latino and African-American Families

Bonner, S., Zimmerman, B. J., Evans, D. J., Irigoyen, M., Resnick, D. J., & Mellins, R. B. (2002) · Journal of Asthma · doi:10.1081/jas-120002198 · Cited by 133 · see citing works

Partnering with patients – a concept ready for action

Hook, M. L. (2006) · Journal of Advanced Nursing · doi:10.1111/j.1365-2648.2006.03993.x · Cited by 131 · see citing works

Using Existing Population-Based Data Sets to Measure the American Academy of Pediatrics Definition of Medical Home for All Children and Children With Special Health Care Needs

Bethell, C. D., Read, D., & Brockwood, K. J. (2004) · PEDIATRICS · doi:10.1542/peds.113.s4.1529 · Cited by 114 · see citing works

Achieving Family and Provider Partnerships for Children With Special Health Care Needs

Denboba, D., McPherson, M. G., Kenney, M. K., Strickland, B., & Newacheck, P. W. (2006) · Pediatrics · doi:10.1542/peds.2006-0383 · Cited by 110 · see citing works

A Family-Centered, Community-Based System of Services for Children and Youth With Special Health Care Needs

Perrin, J. M., Romm, D., Bloom, S. R., Homer, C. J., Kuhlthau, K. A., Cooley, C., Duncan, P., Roberts, R., Sloyer, P. J., Wells, N., et al. (2007) · Archives of Pediatrics and Adolescent Medicine · doi:10.1001/archpedi.161.10.933 · Cited by 107 · see citing works

Parents' Perceptions of Pediatric Primary Care Quality: Effects of Race/Ethnicity, Language, and Access

Seid, M., Stevens, G. D., & Varni, J. W. (2003) · Health Services Research · doi:10.1111/1475-6773.00160 · Cited by 100 · see citing works

Family-Centered Care for US Children With Special Health Care Needs: Who Gets It and Why?

Coker, T. R., Rodriguez, M. A., & Flores, G. (2010) · Pediatrics · doi:10.1542/peds.2009-1994 · Cited by 98 · see citing works

Unmet Need for Therapy Services, Assistive Devices, and Related Services: Data From the National Survey of Children With Special Health Care Needs

Dusing, S. C., Skinner, A. C., & Mayer, M. L. (2004) · Ambulatory Pediatrics · doi:10.1367/a03-202r1.1 · Cited by 97 · see citing works

Parent‐Identified Barriers to Pediatric Health Care: A Process‐Oriented Model

Sobo, E. J., Seid, M., & Gelhard, L. R. (2005) · Health Services Research · doi:10.1111/j.1475-6773.2005.00455.x · Cited by 97 · see citing works

Dilemmas in sharing care: maternal provision of professionally driven therapy for children with disabilities

Leiter, V. (2004) · Social Science & Medicine · doi:10.1016/s0277-9536(03)00258-2 · Cited by 68 · see citing works

Association of Functional Limitation With Health Care Needs and Experiences of Children With Special Health Care Needs

Nageswaran, S., Silver, E. J., & Stein, R. E. K. (2008) · PEDIATRICS · doi:10.1542/peds.2007-1795 · Cited by 66 · see citing works

Comparing Medical Homes for Children with ADHD and Asthma

Toomey, S. L., Homer, C. J., & Finkelstein, J. A. (2010) · Academic Pediatrics · doi:10.1016/j.acap.2009.11.001 · Cited by 33 · see citing works

Factors that Affect Parent Perceptions of Provider–Family Partnership for Children with Special Health Care Needs

Knapp, C. A., Madden, V. L., & Marcu, M. I. (2010) · Maternal and Child Health Journal · doi:10.1007/s10995-009-0503-0 · Cited by 30 · see citing works

Being Specific About Being Special

Davis, M. M., & Brosco, J. P. (2007) · Archives of Pediatrics and Adolescent Medicine · doi:10.1001/archpedi.161.10.1003 · Cited by 24 · see citing works

The Impact of Insurance on Satisfaction and Family-Centered Care for CSHCN

Thompson, L. A., Knapp, C. A., Saliba, H., Giunta, N., Shenkman, E. A., & Nackashi, J. A. (2009) · PEDIATRICS · doi:10.1542/peds.2009-1255n · Cited by 18 · see citing works

Are Rates of Functional Limitations Associated with Access to Care? A State-Level Analysis of the National Survey of Children with Special Health Care Needs

Stein, R. E. K., & Silver, E. J. (2005) · Maternal and Child Health Journal · doi:10.1007/s10995-005-3856-z · Cited by 13 · see citing works

Letter From the Editor

Perrin, J. M. (2002) · Ambulatory Pediatrics · doi:10.1367/1539-4409(2002)002

Untitled work

Wiecha, J. (2001) · doi:10.1367/1539-4409(2001)001

Family-Centered Care: Current Applications and Future Directions in Pediatric Health Care

Kuo, D. Z., Houtrow, A. J., Arango, P., Kuhlthau, K. A., Simmons, J. M., & Neff, J. M. (2012) · Maternal and Child Health Journal · doi:10.1007/s10995-011-0751-7 · Cited by 943 · see citing works

Generalizing Observational Study Results: Applying Propensity Score Methods to Complex Surveys

DuGoff, E. H., Schuler, M., & Stuart, E. A. (2014) · Health Services Research · doi:10.1111/1475-6773.12090 · Cited by 605 · see citing works

An Official American Thoracic Society Clinical Practice Guideline: Pediatric Chronic Home Invasive Ventilation

Sterni, L. M., Collaco, J. M., Baker, C. D., Carroll, J. L., Sharma, G. D., Brożek, J., Finder, J. D., Ackerman, V. L., Arens, R., Boroughs, D. S., et al. (2016) · American Journal of Respiratory and Critical Care Medicine · doi:10.1164/rccm.201602-0276st · Cited by 267 · see citing works

Patient- and Family-Centered Care of Children in the Emergency Department

Dudley, N. C., Ackerman, A. D., Brown, K. M., Snow, S. K., Shook, J. E., Chun, T. H., Conners, G. P., Fuchs, S. M., Gorelick, M. H., Lane, N., et al. (2014) · PEDIATRICS · doi:10.1542/peds.2014-3424 · Cited by 203 · see citing works

Disparities in Unmet Need for Care Coordination: The National Survey of Children’s Health

Toomey, S. L., Chien, A. T., Elliott, M. N., Ratner, J., & Schuster, M. A. (2013) · PEDIATRICS · doi:10.1542/peds.2012-1535 · Cited by 123 · see citing works

“It is like a jungle gym, and everything is under construction”: The parent's perspective of caring for a child with a rare disease

Currie, G., & Szabo, J. (2018) · Child Care Health and Development · doi:10.1111/cch.12628 · Cited by 114 · see citing works

What Is the Future of Family Outcomes and Family-Centered Services?

Bailey, D. B., Raspa, M., & Fox, L. C. (2011) · Topics in Early Childhood Special Education · doi:10.1177/0271121411427077 · Cited by 107 · see citing works

‘It would be much easier if we were just quiet and disappeared’: Parents silenced in the experience of caring for children with rare diseases

Currie, G., & Szabo, J. (2019) · Health Expectations · doi:10.1111/hex.12958 · Cited by 93 · see citing works

Human Factors in Organizational Design and Management

Carayon, P., Hoonakker, P., & Smith, M. J. (2012) · Wiley eBooks · doi:10.1002/9781118131350.ch18 · Cited by 82 · see citing works

Early Detection, Diagnosis and Intervention Services for Young Children with Autism Spectrum Disorder in the European Union (ASDEU): Family and Professional Perspectives

Bejarano‐Martín, Á., Canal‐Bedia, R., Magán‐Maganto, M., Fernández-Álvarez, C. J., Cilleros, M. V. M., Gómez, M. C. S., Primo, P. G., Rose-Sweeney, M., Boilson, A. M., Linertová, R., et al. (2019) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-019-04253-0 · Cited by 73 · see citing works

Child Life Reduces Distress and Pain and Improves Family Satisfaction in the Pediatric Emergency Department

Cristal, N. S., Staab, J. H., Chatham, R., Ryan, S., McNair, B., & Grubenhoff, J. A. (2018) · Clinical Pediatrics · doi:10.1177/0009922818798386 · Cited by 70 · see citing works

Impact of family-centered care in families with children with intellectual disability: A systematic review

Mestre, T. D., Lopes, M. J., Mestre, D. M., Ferreira, R., Costa, A. P., & Caldeira, E. D. C. V. (2024) · Heliyon · doi:10.1016/j.heliyon.2024.e28241 · Cited by 82 · see citing works

Variation in Family Experience of Pediatric Inpatient Care As Measured by Child HCAHPS

Toomey, S. L., Elliott, M. N., Zaslavsky, A. M., Klein, D. J., Ndon, S. U., Hardy, S., Wu, M., & Schuster, M. A. (2017) · PEDIATRICS · doi:10.1542/peds.2016-3372 · Cited by 67 · see citing works

Advocacy for the “Abandonados”: Harnessing Cultural Beliefs for L atino Families and Their Children With Intellectual Disabilities

Cohen, S. R. (2013) · Journal of Policy and Practice in Intellectual Disabilities · doi:10.1111/jppi.12021 · Cited by 64 · see citing works

Service Delivery Outcomes in ASD: Role of Parent Education, Empowerment, and Professional Partnerships

Casagrande, K. A., & Ingersoll, B. R. (2017) · Journal of Child and Family Studies · doi:10.1007/s10826-017-0759-8 · Cited by 59 · see citing works

The Scope of Family-Centred Care Practices, and the Facilitators and Barriers to Implementation of Family-Centred Care for Hospitalised Children and their Families in Developing Countries: An Integrative Review

Phiri, P., Chan, C. W. H., & Wong, C. L. (2020) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2020.05.018 · Cited by 53 · see citing works

The Experience of Military Families with Children with Autism Spectrum Disorders During Relocation and Separation

Kremkow, J. M. D., & Finke, E. H. (2015) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-015-2364-2 · Cited by 52 · see citing works

Strategies for improving family engagement during family‐centered rounds

Kelly, M. M., Xie, A., Carayon, P., DuBenske, L. L., Ehlenbach, M. L., & COX, E. D. (2013) · Journal of Hospital Medicine · doi:10.1002/jhm.2022 · Cited by 52 · see citing works

“Care that matters”: Family-centered care, caregiving burden, and adaptation in parents of children with cancer.

Crespo, C., Santos, S., Tavares, A., & Salvador, Á. (2016) · Families Systems & Health · doi:10.1037/fsh0000166 · Cited by 49 · see citing works

Capturing Unmet Therapy Need Among Young Children With Developmental Delay Using National Survey Data

Magnusson, D., Palta, M., McManus, B. M., Benedict, R. E., & Durkin, M. S. (2015) · Academic Pediatrics · doi:10.1016/j.acap.2015.05.003 · Cited by 48 · see citing works

Factors Associated With Family Experience in Pediatric Inpatient Care

Feng, J. Y., Toomey, S. L., Elliott, M. N., Zaslavsky, A. M., Onorato, S. E., & Schuster, M. A. (2020) · PEDIATRICS · doi:10.1542/peds.2019-1264 · Cited by 42 · see citing works

The Heterogeneity in Financial and Time Burden of Caregiving to Children with Chronic Conditions

Zan, H., & Scharff, R. L. (2014) · Maternal and Child Health Journal · doi:10.1007/s10995-014-1547-3 · Cited by 40 · see citing works

Racial and Ethnic Disparities in Unmet Need for Pediatric Therapy Services: The Role of Family-Centered Care

Magnusson, D., & Mistry, K. B. (2016) · Academic Pediatrics · doi:10.1016/j.acap.2016.06.010 · Cited by 37 · see citing works

Navigating the health-care system in community: Perspectives from Asian immigrant parents of children with special health-care needs

Son, E., Moring, N. S., Igdalsky, L., & Parish, S. L. (2018) · Journal of Child Health Care · doi:10.1177/1367493517753084 · Cited by 38 · see citing works

Needs assessment in unmet healthcare and family support services: A survey of caregivers of children and youth with autism spectrum disorder in Delaware

Srinivasan, S. M., Ekbladh, A., Freedman, B. H., & Bhat, A. N. (2021) · Autism Research · doi:10.1002/aur.2514 · Cited by 49 · see citing works

Adverse Childhood Experiences Are Associated with Unmet Healthcare Needs among Children with Autism Spectrum Disorder

Berg, K. L., Shiu, C. A., Feinstein, R. T., Msall, M. E., & Acharya, K. (2018) · The Journal of Pediatrics · doi:10.1016/j.jpeds.2018.07.021 · Cited by 35 · see citing works

Mothers’ Perceived Barriers to and Recommendations for Health Care Appointment Keeping for Children Who Have Cerebral Palsy

Ballantyne, M., Liscumb, L., Brandon, E., Jaffar, J., Macdonald, A., & Beaune, L. (2019) · Global Qualitative Nursing Research · doi:10.1177/2333393619868979 · Cited by 35 · see citing works

Care coordination for children with medical complexity in Japan: Caregivers' perspectives

Matsuzawa, A., Shiroki, Y., Arai, J., & Hirasawa, A. (2020) · Child Care Health and Development · doi:10.1111/cch.12767 · Cited by 35 · see citing works

Association between parental access to paid sick leave and children's access to and use of healthcare services

Asfaw, A., & Colopy, M. (2017) · American Journal of Industrial Medicine · doi:10.1002/ajim.22692 · Cited by 33 · see citing works

Walking the “Emotional Tightrope” From Pregnancy to Parenthood

McKechnie, A. C., Pridham, K. F., & Tluczek, A. (2015) · Journal of Family Nursing · doi:10.1177/1074840715616603 · Cited by 31 · see citing works

Association of Family-Centered Care with Improved Anticipatory Guidance Delivery and Reduced Unmet Needs in Child Health Care

Kuo, D. Z., Frick, K. D., & Minkovitz, C. S. (2010) · Maternal and Child Health Journal · doi:10.1007/s10995-010-0702-8 · Cited by 30 · see citing works

Challenges Facing Children with Special Healthcare Needs and Their Families: Telemedicine as a Bridge to Care

Hooshmand, M. A., & Yao, K. (2016) · Telemedicine Journal and e-Health · doi:10.1089/tmj.2016.0055 · Cited by 30 · see citing works

Family-Centered Care: How Close Do We Get When Talking to Parents of Children Undergoing Diagnosis for Autism Spectrum Disorders?

Myers, L., Karp, S. M., Dietrich, M. S., Looman, W. S., & Lutenbacher, M. (2020) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-020-04765-0 · Cited by 32 · see citing works

A Pilot Study on Professional Documentation: Do We Write From a Strengths Perspective?

Braun, M. J., Dunn, W., & Tomchek, S. D. (2017) · American Journal of Speech-Language Pathology · doi:10.1044/2017_ajslp-16-0117 · Cited by 30 · see citing works

An Interactive Health Communication Application for Supporting Parents Managing Childhood Long-Term Conditions: Outcomes of a Randomized Controlled Feasibility Trial

Swallow, V. M., Knafl, K. A., Santacroce, S. J., Campbell, M., Hall, A. G., Smith, T., & Carolan, I. (2014) · JMIR Research Protocols · doi:10.2196/resprot.3716 · Cited by 29 · see citing works

Parental Perceptions of Family Centered Care in Medical Homes of Children with Neurodevelopmental Disabilities

Zajicek-Farber, M. L., Lotrecchiano, G. R., Long, T. M., & Farber, J. M. (2015) · Maternal and Child Health Journal · doi:10.1007/s10995-015-1688-z · Cited by 29 · see citing works

Care Coordination with Schools: The Role of Family-Centered Care for Children with Special Health Care Needs

Barnard-Brak, L. M., Stevens, T., & Carpenter, J. (2017) · Maternal and Child Health Journal · doi:10.1007/s10995-016-2203-x · Cited by 29 · see citing works

Care Coordination Impacts on Access to Care for Children with Special Health Care Needs Enrolled in Medicaid and CHIP

Miller, K. (2014) · Maternal and Child Health Journal · doi:10.1007/s10995-013-1312-z · Cited by 28 · see citing works

Apoio social a famílias de crianças com paralisia cerebral

Dezoti, A. P., Alexandre, A. M. C., Freire, M. H. D. S., das Mercês, N. N. A., & Mazza, V. D. A. (2015) · Acta Paulista de Enfermagem · doi:10.1590/1982-0194201500029 · Cited by 26 · see citing works

Family-Centered Care and Positive Developmental Outcomes for Youth With Special Health Care Needs: Variations Across Family Structures

Russell, L. T., Beckmeyer, J. J., & Su‐Russell, C. (2018) · Journal of Family Nursing · doi:10.1177/1074840717745520 · Cited by 26 · see citing works

Risk factors for family time burdens providing and arranging health care for children with special health care needs: Lessons from nonproportional odds models

Miller, J. E., Nugent, C. N., & Russell, L. B. (2015) · Social Science Research · doi:10.1016/j.ssresearch.2015.04.003 · Cited by 25 · see citing works

Living with a child with attention deficit hyperactivity disorder

Laugesen, B., Lauritsen, M. B., Jørgensen, R., Sørensen, E. E., Rasmussen, P., & Grønkjær, M. (2016) · International Journal of Evidence-Based Healthcare · doi:10.1097/xeb.0000000000000079 · Cited by 25 · see citing works

Risk Factors for Tube Feeding at Discharge in Infants Undergoing Neonatal Surgery for Congenital Heart Disease: A Systematic Review

Elgersma, K. M., Trebilcock, A. L., Whipple, M. O., Tanner, L. R., Pilditch, S. J., Shah, K. M., & McKechnie, A. C. (2022) · Pediatric Cardiology · doi:10.1007/s00246-022-03049-x · Cited by 23 · see citing works

Care of the Complex Chronically Ill Child by Generalist Pediatricians: Lessons Learned From Pediatric Palliative Care

Walter, J. K., DeCamp, L. R., Warrier, K. S., Murphy, T., & Keefer, P. M. (2013) · Hospital Pediatrics · doi:10.1542/hpeds.2012-0047 · Cited by 24 · see citing works

Family-Centered Care Measurement and Associations With Unmet Health Care Need Among US Children

Lindly, O. J., Geldhof, G. J., Acock, A. C., Sakuma, K.-L. K., Zuckerman, K. E., & Thorburn, S. (2017) · Academic Pediatrics · doi:10.1016/j.acap.2016.10.018 · Cited by 22 · see citing works

Health Care System Factors Associated with Transition Preparation in Youth with Special Health Care Needs

McKenzie, R., Sanders, L., Bhattacharya, J., & Bundorf, M. K. (2018) · Population Health Management · doi:10.1089/pop.2018.0027 · Cited by 22 · see citing works

Care coordination and unmet need for specialised health services among children with special healthcare needs in the USA: results from a cross-sectional analysis of the national survey of children with special healthcare needs

Graaf, G., & Gigli, K. (2022) · BMJ Open · doi:10.1136/bmjopen-2022-063373 · Cited by 24 · see citing works

Improving Service Access in ASD: A Systematic Review of Family Empowerment Interventions for Children with Special Healthcare Needs

Casagrande, K. A., & Ingersoll, B. R. (2020) · Review Journal of Autism and Developmental Disorders · doi:10.1007/s40489-020-00208-9 · Cited by 21 · see citing works

Which Components of Medical Homes Reduce the Time Burden on Families of Children with Special Health Care Needs?

Miller, J. E., Nugent, C. N., & Russell, L. B. (2014) · Health Services Research · doi:10.1111/1475-6773.12215 · Cited by 21 · see citing works

Evaluation of a Parent Led Curriculum in Developmental Disabilities for Pediatric and Medicine/Pediatric Residents

Kube, D. A., Bishop, E. A., Roth, J. M., & Palmer, F. B. S. C. (2012) · Maternal and Child Health Journal · doi:10.1007/s10995-012-1133-5 · Cited by 21 · see citing works

A National Profile of Health Care and Family Impacts of Children With Muscular Dystrophy and Special Health Care Needs in the United States

Ouyang, L., Grosse, S. D., Fox, M. H., & Bolen, J. (2011) · Journal of Child Neurology · doi:10.1177/0883073811420719 · Cited by 20 · see citing works

Clarifying the Predictive Value of Family‐Centered Care and Shared Decision Making for Pediatric Healthcare Outcomes Using the Medical Expenditure Panel Survey

Lindly, O. J., Zuckerman, K. E., & Mistry, K. B. (2016) · Health Services Research · doi:10.1111/1475-6773.12488 · Cited by 21 · see citing works

Preterm infants are less likely to have a family-centered medical home than term-born peers

Litt, J. S., & McCormick, M. C. (2018) · Journal of Perinatology · doi:10.1038/s41372-018-0180-1 · Cited by 20 · see citing works

Parent‐directed commentaries during children's hearing habilitation appointments: a practice in family‐centred care

Ekberg, K., Scarinci, N., Hickson, L. M. H., & Meyer, C. (2018) · International Journal of Language & Communication Disorders · doi:10.1111/1460-6984.12403 · Cited by 19 · see citing works

Adaptive Leadership in Parents Caring for their Children Born with Life-Threatening Conditions

McKechnie, A. C., Johnson, K. A., Baker, M. J., Docherty, S. L., Leuthner, S. R., & Thoyre, S. M. (2020) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2020.03.018 · Cited by 19 · see citing works

Patient-Centered Outcomes in an Interdisciplinary Clinic for Complex Children with Autism

Suen, C. G., Campbell, K. M., Stoddard, G. J., & Carbone, P. S. (2020) · Journal of Developmental & Behavioral Pediatrics · doi:10.1097/dbp.0000000000000877 · Cited by 18 · see citing works

Patient-centered care and distal radius fracture outcomes: A prospective cohort study analysis

Constand, M. K., MacDermid, J. C., Law, M., & Bello-Haas, V. P. M. D. (2014) · Journal of Hand Therapy · doi:10.1016/j.jht.2014.04.001 · Cited by 17 · see citing works

Are Components of the Medical Home Differentially Associated With Child Health Care Utilization, Health, and Health Promoting Behavior Outcomes?

Long, W. E., Cabral, H., & Garg, A. (2013) · Clinical Pediatrics · doi:10.1177/0009922813479161 · Cited by 17 · see citing works

ADHD and Everyday Life: Healthcare as a Significant Lifeline

Laugesen, B., Lauritsen, M. B., Jørgensen, R., Sørensen, E. E., Grønkjær, M., & Rasmussen, P. (2017) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2017.03.001 · Cited by 17 · see citing works

Geographic, Racial/Ethnic, and Sociodemographic Disparities in Parent-Reported Receipt of Family-Centered Care among US Children

Azuine, R. E., Singh, G. K., Ghandour, R. M., & Kogan, M. D. (2015) · International Journal of Family Medicine · doi:10.1155/2015/168521 · Cited by 16 · see citing works

Research on Family Health and Children and Youth With Special Health Care Needs

Kuhlthau, K. A., Ames, S. G., Ware, A. N., Hoover, C. G., Wells, N., & Shelton, C. (2022) · Academic Pediatrics · doi:10.1016/j.acap.2021.07.019 · Cited by 16 · see citing works

Long-term pediatrician outcomes of a parent led curriculum in developmental disabilities

Keisling, B. L., Bishop, E. A., Kube, D. A., Roth, J. M., & Palmer, F. B. S. C. (2016) · Research in Developmental Disabilities · doi:10.1016/j.ridd.2016.11.004 · Cited by 16 · see citing works

Integrating Family as a Discipline by Providing Parent Led Curricula: Impact on LEND Trainees’ Leadership Competency

Keisling, B. L., Bishop, E. A., & Roth, J. M. (2017) · Maternal and Child Health Journal · doi:10.1007/s10995-016-2217-4 · Cited by 15 · see citing works

A Review of Best Practices for Monitoring and Improving Inpatient Pediatric Patient Experiences

Quigley, D. D., Palimaru, A. I., Lerner, C. F., & Hays, R. D. (2020) · Hospital Pediatrics · doi:10.1542/hpeds.2019-0243 · Cited by 15 · see citing works

Disparities in Patient- and Family-Centered Care Among Children With Health Conditions

Kindratt, T. B., Lark, P., Ray, M., & Brannon, G. E. (2022) · Journal of Patient Experience · doi:10.1177/23743735221092494 · Cited by 14 · see citing works

Psychosocial characteristics and predictors of health‐care use in families of young children with cystic fibrosis in W estern A ustralia

Douglas, T. A., Green, J., Park, J., Turkovic, L., Massie, J., & Shields, L. E. (2015) · Journal of Paediatrics and Child Health · doi:10.1111/jpc.13011 · Cited by 14 · see citing works

Individual and Practice Characteristics Associated With Physician Provision of Recommended Care for Children With Special Health Care Needs

Kuo, D. Z., Robbins, J. M., Burns, K. H., & Casey, P. H. (2011) · Clinical Pediatrics · doi:10.1177/0009922811398961 · Cited by 13 · see citing works

Clinician Perceptions of Family-Centered Care in Pediatric and Congenital Heart Settings

Akram, F., Webb, A., Pidcock, M., Farrar, M. A., & Kasparian, N. A. (2024) · JAMA Network Open · doi:10.1001/jamanetworkopen.2024.22104 · Cited by 12 · see citing works

Developing an eczema action plan

Levy, M. L. (2018) · Clinics in Dermatology · doi:10.1016/j.clindermatol.2018.05.003 · Cited by 12 · see citing works

Association between adverse childhood experiences among children with special healthcare needs and dental care utilization

Wiener, R. C., & Bhandari, R. (2021) · Journal of Public Health Dentistry · doi:10.1111/jphd.12450 · Cited by 10 · see citing works

Improved Family Experience Outcomes in a Pediatric Hospital in Pakistan: Mentoring, Human-Centered Practice, and Theory of Change

Rasheed, M. A., Kedzierski, J. T., & Hasan, B. S. (2021) · NEJM Catalyst · doi:10.1056/cat.21.0099 · Cited by 10 · see citing works

No child is an island: ethical considerations in end-of-life care for children and their families

Rapoport, A., & Morrison, W. E. (2016) · Current Opinion in Supportive and Palliative Care · doi:10.1097/spc.0000000000000226 · Cited by 10 · see citing works

Mothers’ Experiences of Care Coordination for Children with Disabilities: A Qualitative Study

Matsuzawa, A., & Shiroki, Y. (2022) · Children · doi:10.3390/children9060835 · Cited by 9 · see citing works

Medical Complexity of Children with Special Healthcare Needs and Healthcare Experiences

Yun, H., Parker, M. L., Wilson, C. B., & Cui, M. (2024) · Children · doi:10.3390/children11070775 · Cited by 9 · see citing works

Family-centred care research in paediatrics: A scoping review

Butler, A. E., Ridgway, L., Henderson, E. M., Hokke, S., Edvardsson, K., Adams, C., Greenwood, E., East, C. E., Safari, K., Arefadib, N., et al. (2025) · Journal of Child Health Care · doi:10.1177/13674935251337492 · Cited by 10 · see citing works

Parents of children with disabilities' perceptions regarding the quality of interaction with Health professionals working in early intervention: A qualitative descriptive study

Morera‐Balaguer, J., Lillo‐Navarro, C., de Oliveira-Sousa, S. L., Montilla‐Herrador, J., Escolar‐Reina, P., Rodríguez‐Nogueira, Ó., & Medina‐Mirapeix, F. (2022) · Journal of Clinical Nursing · doi:10.1111/jocn.16580 · Cited by 9 · see citing works

Parents’ questions to clinicians within paediatric hearing habilitation appointments for children with hearing impairment

Ekberg, K., Meyer, C., Hickson, L. M. H., & Scarinci, N. (2019) · Patient Education and Counseling · doi:10.1016/j.pec.2019.09.015 · Cited by 8 · see citing works

Family outcomes in early intervention: results from a nationwide study in Portugal

Leite, C. S. C., & Pereira, A. P. D. S. (2019) · Early Child Development and Care · doi:10.1080/03004430.2019.1585348 · Cited by 8 · see citing works

The impact of the COVID‐19 pandemic on families of children with medical complexity: A qualitative study of caregivers' experiences

Tager, J. B., Kenney, A. E., Lim, P. S., Everhart, S. A., Johaningsmeir, S. A., Balistreri, K. A., Morgan‐Tautges, A., Berridge, K. E., Brophey, M. A., Rothschild, C. B., et al. (2023) · Child Care Health and Development · doi:10.1111/cch.13187 · Cited by 7 · see citing works

Collaboration: Perspectives of Occupational Therapists on Complex Family-Centered Care and Family Participation

Humbert, T. K., Cargill, E., Sanders, A., & Wood, C. (2020) · Annals of International Occupational Therapy · doi:10.3928/24761222-20200811-01 · Cited by 7 · see citing works

Healthcare access and adverse family impact among U.S. children ages 0–5 years by prematurity status

Lindly, O. J., Crossman, M. K., Shui, A. M., Kuo, D. Z., Earl, K. M., Kleven, A. R., Perrin, J. M., & Kuhlthau, K. A. (2020) · BMC Pediatrics · doi:10.1186/s12887-020-02058-0 · Cited by 8 · see citing works

Do health literacy disparities explain racial disparities in family-centered care for youths with special health care needs?

Chisolm, D. J., Keedy, H. E., Dolcé, M., Chavez, L. J., Abrams, M. A., & Sanders, L. (2020) · Patient Education and Counseling · doi:10.1016/j.pec.2020.09.023 · Cited by 6 · see citing works

Adverse Childhood Experiences and Family-Centered Care

Ng, A. E., Salam, Z., Tkach, N., & Alcalá, H. E. (2023) · Journal of Prevention · doi:10.1007/s10935-023-00738-y · Cited by 6 · see citing works

Families of Children with Autism Spectrum Disorder: The Role of Family-Centered Care in Perceived Family Challenges

Reinke, J. S., & Solheim, C. A. (2014) · Contemporary perspectives on family research · doi:10.1108/s1530-35352014000008a008 · Cited by 6 · see citing works

Psychometric Testing of Family Centered Care (FCC) Instrument: A Mixed Methods Analysis of Pediatric Nurses and Their Workplace Perceptions of FCC

Paraszczuk, A. M., Feeg, V. D., BETZ, C. L., & Mannino, J. E. (2021) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2021.03.015 · Cited by 6 · see citing works

Understanding Utilization of Outpatient Clinics for Children with Special Health Care Needs in Southern Israel

Peres, H., Glazer, Y., Landau, D., Marks, K. A., Abokaf, H., Belmaker, I., Cohen, A. D., & Shoham‐Vardi, I. (2014) · Maternal and Child Health Journal · doi:10.1007/s10995-013-1427-2 · Cited by 6 · see citing works

Barriers and Enablers to Implementing a High-Dependency Care Model in Pediatric Care

Cassidy, C. E., MacEachern, L., Egar, J., Best, S., Foley, L., Rowe, M. E., & Curran, J. (2019) · Journal of Nursing Care Quality · doi:10.1097/ncq.0000000000000398 · Cited by 6 · see citing works

Factors associated with family-provider partnership among children with ADHD.

Hinojosa, M. S., Fernandez‐Baca, D., & Knapp, C. A. (2012) · PubMed · Cited by 6 · see citing works

The Emotional and Psychological Impact on Families Raising Children With Special Needs: A Primary Care Perspective

Ahmad, M. H., Ali, M., Hassan, M., Ahmad, R. N., Yasin, M. U., Fatima, H., Tayyab, M. A., Jamil, A., Qaiser, A., Zaheer, A., et al. (2026) · Health Science Reports · doi:10.1002/hsr2.71928 · Cited by 8 · see citing works

Disparities in Family-Centered Care Among US Children and Youth with Special Healthcare Needs

Morgan, P. L., Hu, E. H., Woods, A. D., Gloski, C. A., & Wang, Y. (2022) · The Journal of Pediatrics · doi:10.1016/j.jpeds.2022.09.024 · Cited by 5 · see citing works

Implementing a social work care coordination model for children and youth with special health care needs in a rural-urban health system

Swann‐Thomsen, H. E., Sitts, C., Hanks, J., & Tivis, R. D. (2024) · Social Work in Health Care · doi:10.1080/00981389.2024.2304010 · Cited by 5 · see citing works

Benefits of Medical Home Care Reaching Beyond Chronically Ill Teens: Exploring Parent Health-Related Quality of Life

Chavez, L. J., Grannis, C., Dolcé, M., & Chisolm, D. J. (2018) · Academic Pediatrics · doi:10.1016/j.acap.2018.02.007 · Cited by 5 · see citing works

Do Families Exposed to Adverse Childhood Experiences Report Family Centered Care?

Lombardi, B. M., Zerden, L. D. S., Lee, H., & Geffel, K. M. (2022) · Societies · doi:10.3390/soc12060168 · Cited by 4 · see citing works

Mental health of siblings of children with physical illness or physical–mental comorbidity

Qureshi, S. A., Reaume, S. V., Bedard, C., & Ferro, M. A. (2022) · Child Care Health and Development · doi:10.1111/cch.13061 · Cited by 4 · see citing works

Patient Satisfaction Scores Impact Pediatrician Practice Patterns, Job Satisfaction, and Burnout

Sas, D. J., Absah, I., Phelan, S. M., Joshi, A. Y., Creo, A. L., Behl, S., Hanson, K. T., & Kumar, S. (2022) · Clinical Pediatrics · doi:10.1177/00099228221145270 · Cited by 4 · see citing works

Parent and Professional Perceptions and Feedback on the Content of an eHealth Hearing Aid Learning Series for Parents of Children Who Are Deaf or Hard-of-Hearing

Whicker, J. J., Smith, B. K., & Muñoz, K. F. (2020) · Perspectives of the ASHA Special Interest Groups · doi:10.1044/2020_persp-20-00093 · Cited by 4 · see citing works

Connections between Family Centered Care and Medical Homes of Children with Neurodevelopmental Disabilities: Experiences of Diverse Families

Zajicek-Farber, M. L., Long, T. M., Lotrecchiano, G. R., Farber, J. M., & Rodkey, E. (2017) · Journal of Child and Family Studies · doi:10.1007/s10826-017-0662-3 · Cited by 4 · see citing works

Effects of Patient- and Family-Centered Care for Young Adults With Chronic Health Conditions and Their Family Members: A Systematic Review

Allen, D., Scarinci, N., & Hickson, L. M. H. (2019) · Emerging Adulthood · doi:10.1177/2167696819883458 · Cited by 4 · see citing works

The Effect of Family-Centered Empowerment Model on Anxiety of Mothers of Children with Cancer

Akbari, A., Ahmadi, F., Zandi, H., Ghane, E. T., Yadollahifar, S., & Jalili, E. (2021) · Journal of Health and Care · doi:10.52547/jhc.22.4.295 · Cited by 4 · see citing works

Family-Centered Care and Delayed or Missed Pediatric Preventive Care due to the COVID-19 Pandemic

Tabet, M., Kirby, R. S., Boyd, R. V., & Xaverius, P. K. (2024) · Academic Pediatrics · doi:10.1016/j.acap.2024.02.014 · Cited by 3 · see citing works

Evidence for Family-Centered Care for Children With Special Health Care Needs: A Systematic Review

Kuhlthau, K. A., Bloom, S., Van Cleave, J., Knapp, A. A., Romm, D., Klatka, K., Homer, C. J., Newacheck, P. W., & Perrin, J. M. (2011) · Academic Pediatrics · doi:10.1016/j.acap.2010.12.014 · Cited by 355 · see citing works

Care Coordination for CSHCN: Associations With Family-Provider Relations and Family/Child Outcomes

Turchi, R. M., Berhane, Z., Bethell, C. D., Pomponio, A. D., Antonelli, R. C., & Minkovitz, C. S. (2009) · PEDIATRICS · doi:10.1542/peds.2009-1255o · Cited by 147 · see citing works

Association of Family-Centered Care with Improved Anticipatory Guidance Delivery and Reduced Unmet Needs in Child Health Care

Kuo, D. Z., Frick, K. D., & Minkovitz, C. S. (2010) · Maternal and Child Health Journal · doi:10.1007/s10995-010-0702-8 · Cited by 30 · see citing works

Family-Centered Care Measurement and Associations With Unmet Health Care Need Among US Children

Lindly, O. J., Geldhof, G. J., Acock, A. C., Sakuma, K.-L. K., Zuckerman, K. E., & Thorburn, S. (2017) · Academic Pediatrics · doi:10.1016/j.acap.2016.10.018 · Cited by 22 · see citing works

Care Coordination for Children and Youth With Special Health Care Needs: National Survey Results

Cordeiro, A. M., Davis, R., Antonelli, R. C., Rosenberg, H., Kim, J., Berhane, Z., & Turchi, R. M. (2018) · Clinical Pediatrics · doi:10.1177/0009922818783501 · Cited by 21 · see citing works