A Pilot Study of Autism-Specific Care Plans During Hospital Admission
Abstract
BACKGROUND AND OBJECTIVE: Hospital admissions can be difficult for patients with autism spectrum disorder (ASD). We created an autism-specific care plan (ACP) to help improve the hospital experience for patients with ASD, and we tested feasibility and acceptability and compared the experience of care for children with and without an ACP. METHODS: We performed a nonrandomized, retrospective chart review of all patients with ASD and a hospital admission from January 2013 to December 2013 (n = 142) to determine feasibility of the intervention. We then mailed surveys to all 142 families to measure experience with the ACP and to compare experience of care in those who did and did not have an ACP. Using multivariable linear regression we assessed the association of experience of care with ACP use while adjusting for covariates. RESULTS: The ACP was well tolerated by parents and used frequently by staff. Compared with parents who did not use the ACP, parents who used the ACP reported a better experience relating to their general hospital experience (B = 1.48, P < .001) and staff attention to their child’s ASD-specific needs (B = 3.07, P < .001). CONCLUSIONS: According to this pilot study, care plans are feasible and hold promise to improve the experience of care for children with ASD and their families in the hospital setting.
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Accessing hospital or clinic-based healthcare can be particularly challenging for children with autism.
“Accessing hospital or clinic- based healthcare can be particularly challenging for children with autism.”
From A meta‐synthesis of how parents of children with autism describe their experience of accessing and using routine healthcare services for their children (2021) · cites this paper as Broder-Fingert et al., 2016
An autism-specific care plan was perceived by parents to result in HCPs communicating more effectively with enhanced consideration of the impact of procedural requirements in light of a child's sensory, regulation and behavioural support needs.
“In addition, the care plan was perceived to result in HCPs communicating more effectively with enhanced consideration of the impact of procedural requirements in light of a child's sensory, regulation and behavioural support needs (Broder- Fingert et al., 2016).”
From A meta‐synthesis of how parents of children with autism describe their experience of accessing and using routine healthcare services for their children (2021) · cites this paper as Broder-Fingert et al., 2016
Children with autism are required to interact with unfamiliar people in environments which may exacerbate stress and agitation.
“They are required to interact with unfamiliar people in environments which may exacerbate stress and agitation (Broder- Fingert et al., 2016).”
From A meta‐synthesis of how parents of children with autism describe their experience of accessing and using routine healthcare services for their children (2021) · cites this paper as Broder-Fingert et al., 2016
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- Authors
- Broder-Fingert, S., Shui, A., Ferrone, C., Iannuzzi, D., Cheng, E. R., Giauque, A., Connors, S., McDougle, C. J., Donelan, K., Neumeyer, A., & Kuhlthau, K.
- Affiliations
- Boston Medical Center, Division of General Pediatrics, Boston University School of Medicine, Boston, Massachusetts;
- Biostatistics Center, and
- Harvard University (US)
- Massachusetts General Hospital (US)
- ORCID
- Venue
- Pediatrics
- Publisher
- American Academy of Pediatrics (AAP)
- Published
- 2016-02-01
- Volume
- 137
- Issue
- Supplement_2
- Pages
- S196-S204
- ISSN
- 0031-4005 (ISSN-L)
- 1098-4275
- OpenAlex
- W2292760889
- Cited by
- 64
- References
- 26
- Citations by year
- 2026: 5 · 2025: 5 · 2024: 9 · 2023: 5 · 2022: 4 · 2021: 13 · 2020: 11 · 2019: 3 · 2018: 7 · 2017: 1 · 2016: 1
- FWCI
- 2.55
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- PEDIATRICS (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Health Sciences › Health Professions › General Health Professions › Patient Satisfaction in Healthcare
- Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
- Keywords
- autism spectrum disorder, hospitalization, hospital experience, children with autism, feasibility and acceptability, pediatric hospital care
- MeSH terms
- Autism Spectrum Disorder, Attitude to Health, Hospitalization, Humans, Parents, Patient Care Planning, Pilot Projects, Surveys and Questionnaires, Retrospective Studies, Linear Models
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