Cited by 64Autism Spectrum Disorder ResearchPatient Satisfaction in HealthcareAdolescent and Pediatric Healthcare

A Pilot Study of Autism-Specific Care Plans During Hospital Admission

Broder-Fingert, Sarabeth, Shui, Amy, Ferrone, Christine, Iannuzzi, Dorothea, Cheng, Erika R., Giauque, Ann, Connors, Susan, McDougle, Christopher J. +3 more·2016·Pediatrics

Abstract

BACKGROUND AND OBJECTIVE: Hospital admissions can be difficult for patients with autism spectrum disorder (ASD). We created an autism-specific care plan (ACP) to help improve the hospital experience for patients with ASD, and we tested feasibility and acceptability and compared the experience of care for children with and without an ACP. METHODS: We performed a nonrandomized, retrospective chart review of all patients with ASD and a hospital admission from January 2013 to December 2013 (n = 142) to determine feasibility of the intervention. We then mailed surveys to all 142 families to measure experience with the ACP and to compare experience of care in those who did and did not have an ACP. Using multivariable linear regression we assessed the association of experience of care with ACP use while adjusting for covariates. RESULTS: The ACP was well tolerated by parents and used frequently by staff. Compared with parents who did not use the ACP, parents who used the ACP reported a better experience relating to their general hospital experience (B = 1.48, P < .001) and staff attention to their child’s ASD-specific needs (B = 3.07, P < .001). CONCLUSIONS: According to this pilot study, care plans are feasible and hold promise to improve the experience of care for children with ASD and their families in the hospital setting.

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Crossref · 10.1542/peds.2015-2851r

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Authors
Broder-Fingert, S., Shui, A., Ferrone, C., Iannuzzi, D., Cheng, E. R., Giauque, A., Connors, S., McDougle, C. J., Donelan, K., Neumeyer, A., & Kuhlthau, K.
Affiliations
  • Boston Medical Center, Division of General Pediatrics, Boston University School of Medicine, Boston, Massachusetts;
  • Biostatistics Center, and
  • Harvard University (US)
  • Massachusetts General Hospital (US)
Venue
Pediatrics
Published
2016-02-01
Volume
137
Issue
Supplement_2
Pages
S196-S204
ISSN
  • 0031-4005 (ISSN-L)
  • 1098-4275
OpenAlex
W2292760889
Cited by
64
References
26
Citations by year
2026: 5 · 2025: 5 · 2024: 9 · 2023: 5 · 2022: 4 · 2021: 13 · 2020: 11 · 2019: 3 · 2018: 7 · 2017: 1 · 2016: 1
FWCI
2.55
Type
journal article
Language
en
Open access
closed
Locations
  • PEDIATRICS (publishedVersion)
  • PubMed (publishedVersion)
Topics
  • Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
  • Health Sciences › Health Professions › General Health Professions › Patient Satisfaction in Healthcare
  • Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
Keywords
autism spectrum disorder, hospitalization, hospital experience, children with autism, feasibility and acceptability, pediatric hospital care
MeSH terms
Autism Spectrum Disorder, Attitude to Health, Hospitalization, Humans, Parents, Patient Care Planning, Pilot Projects, Surveys and Questionnaires, Retrospective Studies, Linear Models

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