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Assessing Genetic Risks: Implications for Health and Social Policy
Abstract
Raising hopes for disease treatment and prevention, but also the specter of discrimination and designer genes, genetic testing is potentially one of the most socially explosive developments of our time. This book presents a current assessment of this rapidly evolving field, offering principles for actions and research and recommendations on key issues in genetic testing and screening.Advantages of early genetic knowledge are balanced with issues associated with such knowledge: availability of treatment, privacy and discrimination, personal decisionmaking, public health objectives, cost, and more. Among the important issues covered: Quality control in genetic testing. Appropriate roles for public agencies, private health practitioners, and laboratories. Value-neutral education and counseling for persons considering testing. Use of test results in insurance, employment, and other settings.
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Citations
Cited by
Technical report: ethical and policy issues in genetic testing and screening of children
Ross, L. F., Saal, H. M., David, K. L., & Anderson, R. R. (2013) · Genetics in Medicine · doi:10.1038/gim.2012.176 · Cited by 448
Genetic Discrimination: Perspectives of Consumers
Lapham, E. V., Kozma, C., & Weiss, J. O. (1996) · Science · doi:10.1126/science.274.5287.621 · Cited by 314
Informed Consent for Population-Based Research Involving Genetics
Beskow, L. M. (2001) · JAMA · doi:10.1001/jama.286.18.2315 · Cited by 272
Race, Ethnicity, and Genomics: Social Classifications as Proxies of Biological Heterogeneity
Foster, M. W., & Sharp, R. R. (2002) · Genome Research · doi:10.1101/gr.99202 · Cited by 200
Barlow-Stewart, K., Burnett, L., Proos, A., Howell, V, Huq, F., Lazarus, R., & Aizenberg, H. (2003) · Journal of Medical Genetics · doi:10.1136/jmg.40.4.e45 · Cited by 66
Metadata
- Venue
- National Academies Press eBooks
- Publisher
- National Academies Press
- Published
- 1994-01-01
- OpenAlex
- W2470422166
- Cited by
- 372
- References
- 0
- FWCI
- 58.69
- Type
- book
- Language
- en
- Open access
- closed
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- Assessing Genetic Risks: Implications for Health and Social Policy. (1994). National Academies Press eBooks. https://doi.org/10.17226/2057
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Contains information from the Semantic Scholar Academic Graph Datasets, made available under the ODC Attribution License (ODC-BY 1.0).
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