eHealth for Breast Cancer Survivors: Use, Feasibility and Impact of an Interactive Portal
Open accessAbstract
BACKGROUND: MijnAVL is an interactive portal including patient education, overview of appointments, access to the electronic medical records (EMR), patient-reported outcomes, plus feedback and physical activity support. OBJECTIVE: With this study we aimed to evaluate the use, feasibility, and impact of MijnAVL among breast cancer survivors. METHODS: We included survivors currently or recently treated with curative intent, who completed questions on sociodemographics, patient activation (PAM), quality of life (SF-36), and physical activity (IPAQ). MijnAVL could be used noncommittally for four months. Log data were collected retrospectively and participants completed questions on acceptability, satisfaction, and the PAM, SF-36 and IPAQ. RESULTS: Ninety-two women (mean age 49.5 years, 59% on-treatment) participated, with a mean number of logins of 8.7. Overview of appointments (80% of participants) and access to the EMR (90%) were most frequently used and most highly valued. Average website user satisfaction was 3.8 on a 5-point scale. Although participants reported having more knowledge and experiencing more control of their situation after using MijnAVL, PAM scores did not change significantly. Three domains of the SF-36 (role functioning - emotional, mental health, and social functioning) and median vigorous physical activity improved significantly over time. The burden of MijnAVL for professionals was limited. CONCLUSIONS: User experiences were positive and exposure to MijnAVL was accompanied by improvements in three quality of life domains and vigorous physical activity. Tailored features may be needed to enhance the usefulness and efficacy of MijnAVL. Research with a controlled design is needed to confirm our findings.
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
Log data analyses in eHealth research have mainly focused on descriptive statistics such as number of logins, time spent, and frequency of use of different elements by all users as a group.
“Log data analyses in eHealth research have mainly focused on descriptive statistics, such as the number of logins, time spent, and the frequency of use of the different elements by all users as a group [18-20].”
From Opening the Black Box of Electronic Health: Collecting, Analyzing, and Interpreting Log Data (2017) · cites this paper as [20]
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Cites
The theory of planned behavior
Ajzen, I. (1991) · Organizational Behavior and Human Decision Processes · doi:10.1016/0749-5978(91)90020-t · Cited by 90,587 · see citing works
User Acceptance of Information Technology: Toward A Unified View1
Venkatesh, V., Morris, M. G., Davis, G. B., & Davis, F. D. (2003) · MIS Quarterly · doi:10.2307/30036540 · Cited by 45,035 · see citing works
International physical activity questionnaire: 12-country reliability and validity
CRAIG, C. L., MARSHALL, A. L., SJ??STR??M, M., BAUMAN, A. E., BOOTH, M. L., AINSWORTH, B. E., PRATT, M., EKELUND, U., YNGVE, A., SALLIS, J. F., et al. (2003) · Medicine & Science in Sports & Exercise · doi:10.1249/01.mss.0000078924.61453.fb · Cited by 21,619 · see citing works
Health Promotion by Social Cognitive Means
Bandura, A. (2004) · Health Education & Behavior · doi:10.1177/1090198104263660 · Cited by 7,238 · see citing works
MCHORNEY, C. A., JOHNE, W., & ANASTASIAE, R. (1993) · Medical Care · doi:10.1097/00005650-199303000-00006 · Cited by 6,681 · see citing works
Prince, S. A., Adamo, K. B., Hamel, M., Hardt, J., Connor Gorber, S., & Tremblay, M. (2008) · International Journal of Behavioral Nutrition and Physical Activity · doi:10.1186/1479-5868-5-56 · Cited by 3,162 · see citing works
From Cancer Patient to Cancer Survivor: Lost in Transition
(2005) · PsycEXTRA Dataset · doi:10.1037/e720092007-001 · Cited by 2,364 · see citing works
Hibbard, J. H., & Greene, J. (2013) · Health Affairs · doi:10.1377/hlthaff.2012.1061 · Cited by 1,787 · see citing works
Buntin, M. B., Burke, M. F., Hoaglin, M. C., & Blumenthal, D. (2011) · Health Affairs · doi:10.1377/hlthaff.2011.0178 · Cited by 1,311 · see citing works
Wantland, D. J., Portillo, C. J., Holzemer, W. L., Slaughter, R., & McGhee, E. M. (2004) · Journal of Medical Internet Research · doi:10.2196/jmir.6.4.e40 · Cited by 966 · see citing works
Blumenthal, D. (2009) · New England Journal of Medicine · doi:10.1056/nejmp0912825 · Cited by 727 · see citing works
Brouwer, W., Kroeze, W., Crutzen, R., de Nooijer, J., de Vries, N. K., Brug, J., & Oenema, A. (2011) · Journal of Medical Internet Research · doi:10.2196/jmir.1639 · Cited by 455 · see citing works
van der Vaart, R., van Deursen, A. J., Drossaert, C. H., Taal, E., van Dijk, J. A., & van de Laar, M. A. (2011) · Journal of Medical Internet Research · doi:10.2196/jmir.1840 · Cited by 404 · see citing works
The conceptualization and empirical validation of web site user satisfaction
Muylle, S., Moenaert, R. K., & Despontin, M. (2003) · Information & Management · doi:10.1016/s0378-7206(03)00089-2 · Cited by 358 · see citing works
Morrison, L. G., Yardley, L., Powell, J., & Michie, S. (2012) · Telemedicine and e-Health · doi:10.1089/tmj.2011.0062 · Cited by 290 · see citing works
Rademakers, J. J. D. J. M., Nijman, J., van der Hoek, L., Heijmans, M., & Rijken, M. (2012) · BMC Public Health · doi:10.1186/1471-2458-12-577 · Cited by 230 · see citing works
Adherence in Internet-based interventions.
(2008) · PubMed Central · Cited by 215 · see citing works
van den Berg, S. W., Gielissen, M. F. M., Custers, J. A. E., van der Graaf, W. T. A., Ottevanger, P. B., & Prins, J. B. (2015) · Journal of Clinical Oncology · doi:10.1200/jco.2013.54.9386 · Cited by 201 · see citing works
Chronic Health Conditions and Internet Behavioral Interventions
Schubart, J. R., Stuckey, H. L., GANESHAMOORTHY, A., & Sciamanna, C. (2011) · CIN Computers Informatics Nursing · doi:10.1097/ncn.0b013e3182155274 · Cited by 154 · see citing works
Internet use by cancer survivors: current use and future wishes
van de Poll-Franse, L. V., & van Eenbergen, M. C. H. J. (2008) · Supportive Care in Cancer · doi:10.1007/s00520-008-0419-z · Cited by 146 · see citing works
Squiers, L., Rutten, L. J. F., Treiman, K., et al. (2005) · Journal of Health Communication · doi:10.1080/10810730500263620 · Cited by 136 · see citing works
SCHUBART, J. R., STUCKEY, H. L., GANESHAMOORTHY, A., & SCIAMANNA, C. N. (2011) · CIN: Computers, Informatics, Nursing · doi:10.1097/ncn.0b013e3182065eed · Cited by 135 · see citing works
Ryhänen, A. M., Siekkinen, M., Rankinen, S., Korvenranta, H., & Leino‐Kilpi, H. (2009) · Patient Education and Counseling · doi:10.1016/j.pec.2009.08.005 · Cited by 132 · see citing works
Empowerment of Cancer Survivors Through Information Technology: An Integrative Review
Groen, W. G., Kuijpers, W., Oldenburg, H. S., Wouters, M. W., Aaronson, N. K., & van Harten, W. H. (2015) · Journal of Medical Internet Research · doi:10.2196/jmir.4818 · Cited by 126 · see citing works
Self-citationTowards a personalised approach to aftercare: a review of cancer follow-up in the UK
Davies, N. J., & Batehup, L. (2011) · Journal of Cancer Survivorship · doi:10.1007/s11764-010-0165-3 · Cited by 114 · see citing works
Bender, J. L., Jimenez, M. C., Ferris, L. E., Katz, J. D., & Jadad, A. R. (2012) · Supportive Care in Cancer · doi:10.1007/s00520-012-1655-9 · Cited by 69 · see citing works
An interactive portal to empower cancer survivors: a qualitative study on user expectations
Kuijpers, W., Groen, W. G., Loos, R., Oldenburg, H. S. A., Wouters, M. W. J. M., Aaronson, N. K., & van Harten, W. H. (2015) · Supportive Care in Cancer · doi:10.1007/s00520-015-2605-0 · Cited by 58 · see citing works
Self-citationKuijpers, W., Groen, W. G., Oldenburg, H. S., Wouters, M. W., Aaronson, N. K., & van Harten, W. H. (2015) · JMIR Research Protocols · doi:10.2196/resprot.3796 · Cited by 32 · see citing works
Self-citationRodriguez, E. S., Thom, B., & Schneider, S. M. (2011) · Oncology nursing forum · doi:10.1188/11.onf.476-482 · Cited by 21 · see citing works
Flagged first, then by citations
Cited by
Sorted by citations
Ghanbari, E., Yektatalab, S., & Mehrabi, M. (2021) · JMIR mHealth and uHealth · doi:10.2196/19262 · Cited by 104 · see citing works
Opening the Black Box of Electronic Health: Collecting, Analyzing, and Interpreting Log Data
Sieverink, F., Kelders, S., Poel, M., & van Gemert-Pijnen, L. (2017) · JMIR Research Protocols · doi:10.2196/resprot.6452 · Cited by 88 · see citing works
Børøsund, E., Mirkovic, J., Clark, M. M., Ehlers, S. L., Andrykowski, M. A., Bergland, A., Westeng, M., & Solberg Nes, L. (2018) · JMIR Formative Research · doi:10.2196/formative.9954 · Cited by 73 · see citing works
“Examples of promising findings include improved self-efficacy for coping with cancer through the use of a Web-based stress management workbook for breast cancer patients [27], improved QoL and physical activity for breast cancer survivors through use of a Web-based portal [28], and improved QoL and reduced distress fo…”
BackgroundElkefi, S., Trapani, D., & Ryan, S. (2023) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2023.105065 · Cited by 64 · see citing works
Pilot testing an app-based stress management intervention for cancer survivors
Børøsund, E., Varsi, C., Clark, M. M., Ehlers, S. L., Andrykowski, M. A., Sleveland, H. R. S., Bergland, A., & Nes, L. S. (2020) · Translational Behavioral Medicine · doi:10.1093/tbm/ibz062 · Cited by 49 · see citing works
A systematic review of eHealth technologies for breast cancer supportive care
Gyawali, B., Bowman, M., Sharpe, I., Jalink, M., Srivastava, S., & Wijeratne, D. T. (2023) · Cancer Treatment Reviews · doi:10.1016/j.ctrv.2023.102519 · Cited by 28 · see citing works
Ringwald, J., Marwedel, L., Junne, F., Ziser, K., Schäffeler, N., Gerstner, L., Wallwiener, M., Brucker, S. Y., Hautzinger, M., Zipfel, S., et al. (2017) · JMIR Cancer · doi:10.2196/cancer.7973 · Cited by 22 · see citing works
- Authors
- Kuijpers, W., Groen, W. G., Oldenburg, H. S., Wouters, M. W., Aaronson, N. K., & van Harten, W. H.
- Affiliations
- The Netherlands Cancer Institute (NL)
- ORCID
- Venue
- JMIR Cancer
- Publisher
- JMIR Publications Inc.
- Published
- 2016-05-10
- Volume
- 2
- Issue
- 1
- Pages
- e3
- ISSN
- 2369-1999 (ISSN-L)
- PMC
- PMC5369634
- OpenAlex
- W2409089748
- Cited by
- 77
- References
- 29
- Citations by year
- 2026: 2 · 2025: 3 · 2024: 5 · 2023: 10 · 2022: 12 · 2021: 14 · 2020: 8 · 2019: 7 · 2018: 9 · 2017: 7
- FWCI
- 4.14
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- cc-by
- Locations
- JMIR Cancer (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- UvA-DARE (University of Amsterdam) (submittedVersion, cc-by)
- University of Twente Research Information (submittedVersion, cc-by)
- Data Archiving and Networked Services (DANS) (submittedVersion, other-oa)
- Funders
- KWF Kankerbestrijding
- Topics
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Health Sciences › Health Professions › General Health Professions › Mobile Health and mHealth Applications
- Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
- Keywords
- breast cancer survivors, e-health, patient activation, quality of life, physical activity, patient-reported outcomes, patient education, user satisfaction, feasibility
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
