Cited by 439Social Media in Health EducationHealth Literacy and Information AccessibilitySocial Media and Politics

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Seeking Support on Facebook: A Content Analysis of Breast Cancer Groups

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Bender, Jacqueline L, Jimenez-Marroquin, Maria-Carolina, Jadad, Alejandro R·2011·Journal of Medical Internet Research

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Abstract

BACKGROUND: Social network sites have been growing in popularity across broad segments of Internet users, and are a convenient means to exchange information and support. Research on their use for health-related purposes is limited. OBJECTIVE: This study aimed to characterize the purpose, use, and creators of Facebook groups related to breast cancer. METHODS: We searched Facebook (www.Facebook.com) using the term breast cancer. We restricted our analysis to groups that were related to breast cancer, operated in English, and were publicly available. Two of us independently extracted information on the administrator and purpose of the group, as well as the number of user-generated contributions. We developed a coding scheme to guide content analysis. RESULTS: We found 620 breast cancer groups on Facebook containing a total of 1,090,397 members. The groups were created for fundraising (277/620, 44.7%), awareness (236, 38.1%), product or service promotion related to fundraising or awareness (61, 9%), or patient/caregiver support (46, 7%). The awareness groups as a whole contained by far the most members (n = 957,289). The majority of groups (532, 85.8%) had 25 wall posts or fewer. The support oriented groups, 47% (27/57) of which were established by high school or college students, were associated with the greatest number of user-generated contributions. CONCLUSIONS: Facebook groups have become a popular tool for awareness-raising, fundraising, and support-seeking related to breast cancer attracting over one million users. Given their popularity and reach, further research is warranted to explore the implications of social network sites as a health resource across various health conditions, cultures, ages, and socioeconomic groups.

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Authors: Bender, J. L., Jimenez-Marroquin, M.-C., & Jadad, A. R.
Affiliations: University Health Network (CA)
Corresponding author: Bender, Jacqueline L
ORCID: Bender, Jacqueline L
Jadad, Alejandro R
Venue: Journal of Medical Internet Research
Publisher: JMIR Publications Inc.
Published: 2011-02-04
Volume: 13
Issue: 1
Pages: e16
ISSN: 1438-8871 (ISSN-L)
DOI: 10.2196/jmir.1560
PMC: PMC3221337
OpenAlex: W2095995897
Cited by: 438
References: 34
Citations by year: 2026: 7 · 2025: 10 · 2024: 16 · 2023: 21 · 2022: 16 · 2021: 41 · 2020: 38 · 2019: 39 · 2018: 37 · 2017: 28 · 2016: 48 · 2015: 25 · 2014: 38 · 2013: 41 · 2012: 27
FWCI: 36.80
Type: journal article
Language: en
Open access: gold
doi.org
Licence: cc-by
Locations: Journal of Medical Internet Research (publishedVersion, cc-by)
Europe PMC (PubMed Central) (publishedVersion, cc-by)
PubMed Central (publishedVersion, cc-by)
PubMed (publishedVersion)
DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
Funders: University of Toronto
Topics: Social Sciences › Health › Social Media in Health Education
Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
Social Sciences › Communication › Social Media and Politics
Keywords: breast cancer, Facebook groups, social network sites, online support, patient support, fundraising, awareness raising, user-generated content, health information seeking
MeSH terms: Breast Neoplasms, Female, Fund Raising, Health Promotion, Humans, Peer Group, Social Support, Internet

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Seeking Support on Facebook: A Content Analysis of Breast Cancer Groups

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