Testing Family-Centered, Function-Focused Care in Hospitalized Persons with Dementia
Open accessAbstract
AIM: Hospital-acquired disability causes decreased quality of life for patients with dementia and family caregivers, and increased societal costs. MATERIALS & METHODS: A comparative, repeated measures study tested the feasibility and preliminary efficacy of the family-centered, function-focused care intervention (Fam-FFC) in dyads of hospitalized, medical patients with dementia and family caregivers (FCGs). RESULTS: The intervention group demonstrated better activities of daily living and walking performance, and less severity/duration of delirium and hospital readmissions, but no significant differences in gait/balance. FCGs showed increased preparedness for caregiving and less anxiety but no significant differences in depression, strain and mutuality. CONCLUSION: Fam-FFC presents a possible pathway to meeting the Triple Aim of improved patient care, improved patient health and reduced costs for persons with dementia.
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Online self-care education showed potential to improve mental health, wellbeing, and self-efficacy, helping carers feel more confident in their roles, and supported higher engagement in patient-focused interventions.
“Interventions to support carers were limited, though online self-care education showed potential to improve mental health, wellbeing, and self-efficacy, helping carers feel more confident in their roles, and supported higher engagement in patient-focused interventions (CMOC30) [28, 44, 52, 63, 68, 100, 101].”
From Do hospital-to-home transitions work for older adults with multiple long-term conditions including dementia? A realist review (2025) · cites this paper as [68]
The Results (Family caregiver outcomes; page not provided) report less caregiver anxiety and greater preparedness for caregiving, and the Methods (Implementation of the intervention; page not provided) describe caregiver involvement in patient care. The intervention was hospital-based family-centered care, not online self-care education; the paper does not report improved wellbeing or self-efficacy, or show that increased confidence caused greater engagement. (LLM, conf=0.88)
Experimental — accuracy not yet measuredInterventions to support carers were limited.
“Interventions to support carers were limited, though online self-care education showed potential to improve mental health, wellbeing, and self-efficacy, helping carers feel more confident in their roles, and supported higher engagement in patient-focused interventions (CMOC30) [28, 44, 52, 63, 68, 100, 101].”
From Do hospital-to-home transitions work for older adults with multiple long-term conditions including dementia? A realist review (2025) · cites this paper as [68]
In “The role of the family caregiver of the hospitalized person with dementia” (page unavailable), the paper says interventions that let family caregivers practice appropriate care during hospitalization are “greatly needed.” That supports a shortage in this specific setting, but it does not establish that interventions to support carers generally were limited. (LLM, conf=0.78)
Experimental — accuracy not yet measuredExisting structures that had been adapted for dementia reported some improvement in preparing carers to support the patient's needs during transitions, but often neglected to provide health and wellbeing support for the carer.
“Existing structures that had been adapted for dementia (e.g., online education programmes) reported some improvement in preparing carers to support the patient’s needs during transitions, but often neglected to provide health and wellbeing support for the carer [28, 44, 52, 63, 68, 100, 101].”
From Do hospital-to-home transitions work for older adults with multiple long-term conditions including dementia? A realist review (2025) · cites this paper as [68]
The Results (Family caregiver outcomes; page unavailable) report improved caregiver preparedness after Fam-FFC, supporting that part of the claim. They also report less caregiver anxiety, so this study does not support the assertion that the intervention neglected carers’ health and wellbeing; it does not evaluate online education programmes or whether existing structures often do so. (LLM, conf=0.85)
Experimental — accuracy not yet measuredTransitional care interventions focused on including carers before discharge to support their engagement with care at home.
“Similarly, transitional care interventions focused on including carers before discharge to support their engagement with care at home [44, 52, 68].”
From Do hospital-to-home transitions work for older adults with multiple long-term conditions including dementia? A realist review (2025) · cites this paper as [68]
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A Scoping Review of Care Trajectories across Multiple Settings for Persons with Dementia
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Recruiting and Retaining Dyads of Hospitalized Persons with Dementia and Family Caregivers
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Empowering Family Care Partners to Optimize Delirium Care for Persons Living With Dementia
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- Authors
- Boltz, M., Chippendale, T., Resnick, B., & Galvin, J. E.
- Affiliations
- Boston College (US)
- New York University (US)
- University of Maryland, Baltimore (US)
- Florida Atlantic University (US)
- Venue
- Neurodegenerative Disease Management
- Publisher
- Informa UK Limited
- Published
- 2015-06
- Volume
- 5
- Issue
- 3
- Pages
- 203-215
- ISSN
- 1758-2024 (ISSN-L)
- 1758-2032
- PMC
- PMC4529403
- OpenAlex
- W1916281318
- Cited by
- 85
- References
- 45
- Citations by year
- 2026: 3 · 2025: 12 · 2024: 6 · 2023: 12 · 2022: 6 · 2021: 10 · 2020: 13 · 2019: 8 · 2018: 7 · 2017: 1 · 2016: 4 · 2015: 3
- FWCI
- 4.06
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- Neurodegenerative Disease Management (publishedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- Funders
- National Institute on Aging (R01 AG040211‐A1, R01AG040211, P30AG028747)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › General Health Professions › Geriatric Care and Nursing Homes
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Keywords
- dementia, hospitalized patients, family-centered care, function-focused care, family caregivers, caregiver dyads, activities of daily living, walking performance, delirium, hospital readmission, caregiver anxiety, caregiver depression, caregiver burden, gait and balance, feasibility, Triple Aim
- MeSH terms
- Activities of Daily Living, Aged, Aged, 80 and over, Anxiety, Delirium, Dementia, Depression, Postural Balance, Feasibility Studies, Female, Follow-Up Studies, Gait, Hospitalization, Humans, Male, Middle Aged, Patient Compliance, Severity of Illness Index, Treatment Outcome, Caregivers
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