Cited by 1,247Mental Health and Patient InvolvementParticipatory Visual Research MethodsCommunity Health and Development

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Negotiating the coresearcher mandate – service users’ experiences of doing collaborative research on mental health

Moltu, Christian, Stefansen, Jon, Svisdahl, Marit, Veseth, Marius·2012·Disability and Rehabilitation

DOI 10.3109/09638288.2012.656792

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Abstract

Purpose: Traditionally, the voices of service users have been silent in research into mental health issues. A Norwegian research network, however, recognizes the importance of involving service users as coresearchers and initiated a training program in research methodology and design intended to empower them as active participants in research projects. In this article, we explore how these coresearchers with a mental health service user background experience their participation in projects as well as in attending the training: What is it like being a service user coresearcher in collaborative studies on issues in mental health? How do coresearchers negotiate their roles and mandate? Method: We used focus groups as our data collection method, transcribed the group discussions verbatim, and analyzed the transcriptions using qualitative methodology. We then took the preliminary analyses back to the participants for discussion, auditing, and reanalysis. Results: We identified themes that represent important social processes around which the participants developed a consensual understanding: self-definition, constructive differentiation and negotiations. Conclusion: Our findings generate hypotheses on how participatory research into mental health issues can be fruitfully organized, in a way that empowers service users to active and constructive participation.Implications for RehabilitationParticipatory research on issues in mental health holds potential for empowering service users.Collaborating with service users in research puts weight on the lived experiences of mental distress and on the expertise of the first person perspective.Organizing a formal training and peer group context in this kind of research can contribute to the service user coresearchers process of defining their own mandate in the research process as well as to help them constructively differentiate themselves from the roles of other researchers.

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Authors: Moltu, C., Stefansen, J., Svisdahl, M., & Veseth, M.
Affiliations: Helse Førde (NO)
Akershus University Hospital (NO)
Corresponding author: Moltu, Christian
ORCID: Moltu, Christian
Veseth, Marius
Venue: Disability and Rehabilitation
Publisher: Informa UK Limited
Published: 2012-04-10
Volume: 34
Issue: 19
Pages: 1608-1616
ISSN: 0963-8288 (ISSN-L)
1464-5165
DOI: 10.3109/09638288.2012.656792
OpenAlex: W2134302857
Cited by: 1,247
References: 34
Citations by year: 2026: 162 · 2025: 220 · 2024: 179 · 2023: 153 · 2022: 106 · 2021: 157 · 2020: 126 · 2019: 58 · 2018: 54 · 2017: 15 · 2016: 8 · 2015: 6 · 2013: 3
FWCI: 5.11
Type: journal article
Language: en
Open access: closed
Locations: Disability and Rehabilitation (publishedVersion)
PubMed (publishedVersion)
Funders: Division of Materials Research
Topics: Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
Social Sciences › Sociology and Political Science › Participatory Visual Research Methods
Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Community Health and Development
Keywords: participatory research, mental health research, user involvement in research, role negotiation, mandate, empowerment, lived experience, peer groups, first-person perspective
MeSH terms: Mental Disorders, Community Participation, Cooperative Behavior, Health Personnel, Health Services Research, Humans, Mental Health, Mental Health Services, Norway, Patient Participation, Patients, Surveys and Questionnaires, Negotiating, Focus Groups, Qualitative Research

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Negotiating the coresearcher mandate – service users’ experiences of doing collaborative research on mental health

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