The results from a two-year case study of an information and communication technology support system for family caregivers
Abstract
PURPOSE: The aim was to better understand how information and communication technology (ICT) can provide support to elderly family caregivers caring for significant others suffering from dementia or stroke. METHOD: Ten households equipped with an ICT system, with a family caregiver and a spouse diagnosed with dementia or stroke, were followed and observed in a two-year case study. The family caregivers had regular meetings in groups organised by the municipal care of the elderly. Data from observations, semi-structured interviews, user data from the ICT system and data about the support provided by the municipality has been used to validate the findings. RESULTS: The family caregivers socialised with users in the group as long as the users were stayed in the group. Meetings in the group were an important opportunity for exchanging experiences and to easing one"s mind. The ICT system did not reduce the municipality"s level of services to the participating families. The information built into the system has to be constantly updated to be of interest. CONCLUSIONS: An ICT support must be provided in a context of personal meetings and with a formal caregiver backing. This will empower informal or family caregivers. Such support must give the user the possibility to communicate and get access to the Internet. IMPLICATIONS FOR REHABILITATION: Benefits were obtained when informal caregivers met with a group of people with whom they share the same kind of experiences and were supported by a formal caregiver. Informal caregivers need more attention and recognition. ICT systems can help but must be current and maintain the users interest.
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Information that was available on websites was accessed at the beginning of the intervention but much less so as the intervention continued.
“Information that was available on websites was accessed at the beginning of the intervention but much less so as the intervention continued [37,39].”
From Telehealth Interventions Delivering Home-based Support Group Videoconferencing: Systematic Review (2018) · cites this paper as [39]
Videoconferencing groups reduced feelings of anxiety, isolation, and loneliness.
“Videoconferencing groups helped reduced feelings of anxiety, isolation, and loneliness [36,39,42,44]”
From Telehealth Interventions Delivering Home-based Support Group Videoconferencing: Systematic Review (2018) · cites this paper as [39]
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Telehealth Interventions Delivering Home-based Support Group Videoconferencing: Systematic Review
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- Authors
- Lundberg, S.
- Affiliations
- KTH Royal Institute of Technology (SE)
- Corresponding author
- Lundberg, Stefan
- ORCID
- Lundberg, Stefan
- Venue
- Disability and Rehabilitation: Assistive Technology
- Publisher
- Informa UK Limited
- Published
- 2013-07-15
- Volume
- 9
- Issue
- 4
- Pages
- 353-358
- ISSN
- 1748-3107 (ISSN-L)
- 1748-3115
- OpenAlex
- W2008091959
- Cited by
- 57
- References
- 18
- Citations by year
- 2026: 3 · 2025: 2 · 2024: 4 · 2023: 1 · 2022: 4 · 2021: 6 · 2020: 3 · 2019: 10 · 2018: 6 · 2017: 4 · 2016: 6 · 2015: 5 · 2014: 3
- FWCI
- 12.71
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Disability and Rehabilitation Assistive Technology (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Social Sciences › Demography › Technology Use by Older Adults
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Keywords
- family caregivers, information and communication technologies, dementia, stroke, informal caregivers, caregiver support groups, municipal care services, caregiver empowerment, social support, user-generated content, assistive technology
- MeSH terms
- Aged, Aged, 80 and over, Dementia, Female, Humans, Male, Social Support, Time Factors, Cohort Studies, Caregivers, Internet, Stroke, Videoconferencing, Health Communication, Health Information Exchange
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