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Cited by 872Health Systems, Economic Evaluations, Quality of LifeChildhood Cancer Survivors' Quality of LifePediatric Pain Management Techniques

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Quality-of-life measures in chronic diseases of childhood

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Eiser, C., Morse, R.·2001·Health Technology Assessment
DOI 10.3310/hta5040
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Abstract

SCOPE OF THE REPORT: This report is concerned with the evaluation of measures broadly designed to measure quality of life (QoL) in children and adolescents, either by self-report or proxy raters. Four research questions were identified: (1) To what extent are adult measures used in the evaluation of healthcare interventions in children? (2) How appropriate are adult measures for use with children? (3) To what extent do child self-reports correspond with assessments made by parents and carers? (4) How feasible and reliable are proxy measures of QoL in different disease contexts? OBJECTIVES: (1) To review the state of the art with regard to measurement of QoL for children. (2) To make recommendations regarding the value of currently available measures for different purposes. (3) To identify further research needs. METHOD: Electronic databases were searched for the period 1980-July 1999 for articles relating to measures of QoL, health status or well-being in children (under 18 years) with chronic disease. Handsearching of relevant journals and cross-referencing with reference lists in identified articles was also carried out. Key workers in the field were contacted for additional information, and the Internet was searched for relevant websites. RESULTS: Forty-three measures were identified (19 generic and 24 disease-specific). Sixteen measures allowed for completion by children and parent/caregiver; seven only allowed for completion by a proxy, and the remainder (n = 17) allowed only for child completion. The measures were described as QoL (n = 30), health status, (n = 2), perception of illness (n = 1), life satisfaction (n = 1) and quality of well-being (n = 1). RESULTS - TO WHAT EXTENT ARE ADULT MEASURES USED IN THE EVALUATION OF HEALTHCARE INTERVENTIONS IN CHILDREN?: Three studies were identified where adult measures were used with very few changes made for children. In 11 studies involving nine separate measures of QoL, adult measures were used as a model for work with children. RESULTS - HOW APPROPRIATE ARE ADULT MEASURES FOR USE WITH CHILDREN?: Adult measures may fail to tap the specific aspects of QoL that are important to the child. Measures based on adult work impose considerable response burden for children, in terms of length, reading skills and response scale. Wording and format of adult measures may need to be modified to account for children's cognitive and language skills. More basic research is needed to determine the level of response burden that children of different ages can manage. Assessments of difficulty (e.g. reading age) need to be routinely included with information about new measures. RESULTS - TO WHAT EXTENT DO CHILD SELF-REPORTS CORRESPOND WITH ASSESSMENTS MADE BY PARENTS AND CARERS?: Fourteen studies were identified in which concor-dance between child and parent was investigated, often as part of the development of a new measure. There was some evidence for greater concordance between child and parent for physical functioning compared with social and emotional domains, but greater heterogeneity in the latter measures may contribute to inconsistent results. There was no simple relationship between concordance and moderating variables such as age, gender and illness, but this conclusion was addressed only very rarely. RESULTS - HOW FEASIBLE AND RELIABLE ARE PROXY MEASURES OF QOL IN DIFFERENT DISEASE CONTEXTS?: Only five papers fulfilled the review criteria. Evaluation is difficult because authors fail to justify their choice of measures, and do not report critical information such as completion rates or missing data. Use of existing measures can potentially eliminate the time and expense required to develop a comprehensive measure of QoL, but a full battery of standardised tests may be expensive in terms of time for administration and scoring. In addition, battery measures tend to be lengthy and therefore demanding for sick patients. They are not recommended for work with children. RECOMMENDATIONS FOR RESEARCH - MINIMUM CRITERIA FOR NEW MEASURES: A set of procedures needs to be established for the development of new measures. These need to draw on the experience gained in development of child and adult measures to date. Basic research to enhance understanding of how children interpret questions in QoL measures is recommended. We need to understand the differences in meaning of items between children and adults, and between children of different ages. Some attempt to develop measures for children of 6 years or more have been reported, and these should be further developed. (ABSTRACT TRUNCATED)

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Research works printed but not linked: 100

  1. It's official: university makes you happier and healthier. The Times 2 2000 Apr 11;Pages 8-9.
  2. Nussbaum MC. The fragility of goodness. Cambridge: Cambridge University Press; 1986.
  3. Ditesheim JA, Templeton JMJ. Short-term v long- term quality of life in children following repair of high imperforate anus. J Pediatr Surg 1987;22(7):581-7.
  4. Herndon DN, LeMaster J, Beard S, Bernstein N, Lewis SR, Rutan TC, et al. The quality of life after major thermal injury in children: an analysis of 12 survivors with greater than or equal to 80% total body, 70% third-degree burns. J Trauma 1986; 26(7):609-19.
  5. Lansky SB, List MA, Lansky LL, Ritter-Sterr C, Miller D. The measurement of performance in childhood cancer patients. Cancer 1987;60:1651-6.
  6. Stein REK, Jessop DJ. Functional Status II(R): a measure of child health status. Med Care 1990;28(11):1041-55.
  7. Bullinger M, Ravens-Sieberer U. Health related QOL assessment in children: a review of the literature. Revue Europeenne de Psychologie Appliquee 1995;45(4):245-54.
  8. Koot HM. The study of quality of life in children and adolescents with chronic disabling conditions: concepts and methods. In: Koot HM, Wallander JL, editors. Quality of life in children and adolescents: concepts, methods and findings. UK: Harwood Academic Press. In press.
  9. Newacheck PW, Halfon N. Prevalence and impact of disability and chronic conditions in children. Am J Public Health 1998;88:610-7. References
  10. Metcalfe MA, Baum JD. Incidents of insulin dependent diabetes in children under 15 year in the British Isles during 1988. BMJ 1991;302:443-7.
  11. Engel BT. Psychosomatic medicine, behavioural medicine, just plain medicine. Psychosom Med 1986;48:466-79.
  12. Feeny D, Furlong W, Boyle M, Torrance GW. Multi- attribute health-status classification systems: health utilities index. Pharmacoeconomics 1995;7:490-502.
  13. Starfield B. Measure of outcome: a proposed scheme. Milbank Q 1974;52:39-50.
  14. Bowling A. Measuring disease. Buckingham: Open University Press; 1995.
  15. Aaronson NK, Meyeravitz BE, Bard M, Bloom JR, Fauzy FI, Feldstein M, et al. Quality of life research in oncology: past achievements and future priorities. Cancer 1991;67(3):839-43.
  16. Ware JE. Conceptualising disease impact and treatment outcomes. Cancer 1984;53:2316-23.
  17. Smith KW, Avis NE, Assmann SF. Distinguishing between quality of life and health status in quality of life research: a meta-anlysis. Qual Life Res 1999;8(5):447-59.
  18. Fallowfield L. An overview of quality of life measure- ments. In: Trimble MR, Dodson WE, editors. Epilepsy and quality of life. New York: Raven Press; 1994.
  19. Ware JE, Sherbourne CD. The MOS 36-item short- form health survey (SF-36): conceptual framework and items selection. Med Care 1992;30:473-83.
  20. Feeny DH, Torrance GW. Incorporating utility- based quality-of-life assessment measures in clinical- trials -2 examples. Med Care 1989;27:S190-S204.
  21. Boyle MH, Offord DR, Hoffman HG, Catlin GP, Byles JA, Cadman DT, et al. Ontario Child Health Study: methodology. Arch Gen Psychiatry 1987;44:826-31.
  22. Bradlyn AS, Ritchey AK, Harris CV, Moore IM, O'Brien RT, Parsons SK, et al. Quality of life research in pediatric oncology. Cancer 1996;78(6):1333-9.
  23. Nunnally J. Psychometric theory. 2nd ed. New York: McGraw-Hill; 1978.
  24. Bradley C. Measuring quality of life in diabetes. In: Marshall SM, Home PD, Rizza RA. editors. The Diabetes Annual/10. Elsevier Science; 1996.
  25. Fayers PM, Hand DJ, Bjordal K, Groenvold M. Causal indicators in quality of life research. Qual Life Res 1997;6:393-406.
  26. Alsarraf R, Jung CJ, Perkins J, Crowley C, Gates GA. Otitis media health status evaluation: a pilot Clinical/functional health study for the investigation of cost-effective outcomes of recurrent acute otitis media treatment. Ann Otol Rhinol Laryngol 1998;107(2):120-8
  27. Asikainen I, Kaste M, Sarna S. Predicting late outcome for patients with traumatic brain injury Sample aged 0.8-71 referred to a rehabilitation programme: a study of 508 Finnish patients 5 years or more after Clinical/functional injury. Brain Inj 1998;12(2):95-107
  28. Asonuma K, Inomata Y, Uemoto S, Egawa H, Kiuchi T, Okajima H, et al. Growth and quality of Clinical (height and life after living-related liver transplantation in children. Pediatr Transplant 1998;2(1):64-9 recovery weight)
  29. Balestrini MR, Zanette M, Micheli R, Fornari M, Solero CL, Broggi G. Hemispheric cerebral Survival tumors in children. Long-term prognosis concerning survival rate and quality of life - Neuropsychological considerations on a series of 64 cases operated upon. Childs Nerv Syst 1990;6(3):143-7 assessment only
  30. Baumgardner DJ, Burtea ED. Quality-of-life in technology-dependent children receiving home Qualitative interviews care, and their families -a qualitative study. WMJ 1998;97(8):51-5
  31. Bender BG. Measurement of quality of life in pediatric asthma clinical trials. Ann Allergy Review Asthma Immunol 1996;77(6):438-45
  32. Berardo DH, Berardo FM. Quality of life across age and family stage. J Palliat Care Comment 1992;8(3):52-5
  33. Berdeaux G, Hervie C, Smajda C, Marquis P. Parental quality of life and recurrent ENT Parental QoL infections in their children: development of a questionnaire. Rhinitis Survey Group. Qual Life Res 1998;7(6):501-12
  34. Boggs SR, Graham-Pole J, Miller EM. Life-threatening illness and invasive treatment: the future Review article of quality of life assessment and research in pediatric oncology. In: Johnson JH, Johnson SB, editors. Advances in child health psychology. Gainseville, FL: University of Florida Press; 1991
  35. Bradford R. Children's psychological health status -the impact of liver transplantation: a review. Review J R Soc Med 1991;84(9):550-3
  36. Bradlyn AS, Harris CV, Spieth LE. Quality of life assessment in pediatric oncology: a retrospective Review review of phase III reports. Soc Sci Med 1995;41(10):1463-5
  37. Bradlyn AS, Pollock BH. Assessment of quality of life. N Engl J Med 1996;335(7):521
  38. Bullinger M, Bullinger M, Ravens-Sieberer U. Health related QOL assessment in children: Review a review of the literature. Eur Rev Appl Psychol/Revue Europeenne de Psychologie Appliquee 1995;45(4):245-54
  39. Casey FA, Craig B G, Mulholland HC. Quality of life in surgically palliated complex congenital Treadmill activity and heart disease. Arch Dis Child 1994;70(5):382-6 school attendance continued Study Excluded studies Chang P. Psychosocial needs of long-term childhood cancer survivors: a review of literature. Review Pediatrician 1991;18(1):20-4
  40. Christie MJ, French D,Weatherstone L,West A.The patients' perceptions of chronic disease and Discussion its management: psychosomatics, holism and quality of life in contemporary management of childhood asthma. Psychother Psychosom 1991;56(4):197-203
  41. Clark DB, Kirisci L. Posttraumatic stress disorder, depression, alcohol use disorders and quality Not a chronic illness of life in adolescents. Anxiety 1996;2(5):226-33
  42. Cohen SR, Suzman K, Simms C, Burstein FD, Riski J, Montgomery GAC. Sleep apnea surgery Surgery versus tracheostomy in children: an exploratory study of the comparative effects on quality of life. Plast Reconstr Surg 1998;102(6):1855-64
  43. Crites LS, Siegel CA. Improving the quality of life for youngsters with HIV. Child Today QoL not measured 1990;19(3):24-7
  44. Crowley MJ, Kazdin AE. Child psychosocial functioning and parent quality of life among clinically Parent QoL referred children. J Child Fam Stud 1998;7(2):233-51
  45. Daniels H, Hogg B. An intercultural comparison of the quality of life of children and youth with Disabilities handicaps in Denmark, Italy, the United Kingdom and Germany. Educ Child Psychol 1991;8(4):74-83
  46. Ditesheim JA,Templeton JMJ. Short-term v long-term quality of life in children following repair No psychometric data of high imperforate anus. J Pediatr Surg 1987;22(7):581-7
  47. Dodson WE. Quality of life measurements in children with epilepsy. In:Trimble MR, Dodson WE, Review editors. Epilepsy and quality of life. New York: Raven Press; 1994
  48. Eiser C, Jenney ME. Measuring symptomatic benefit and quality of life in paediatric oncology Editorial [editorial]. Br J Cancer 1996;73(11):1313-16
  49. Eiser C. Children's quality of life measures. Arch Dis Child 1997;77(4):350-4
  50. Review
  51. Eiser C, Havermans T. Knowledge and attitudes as determinants of 'quality of life' in children Review with asthma. In: Christie MJ, French DJ, editors.The assessment of quality of life in children with asthma. Chur: Harwood; 1994
  52. Enskar K, Carlsson M, von Essen L, Kreuger A, Hamrin E. Development of a tool to measure the Parent QoL life situation of parents of children with cancer. Qual Life Res 1997;6(3):248-56
  53. Erling A. Methodological considerations in the assessment of health-related quality of life in Review children. Acta Paediatr Suppl 1999;88(428):106-7
  54. Faulkner MS, Clark FS. Quality of life for parents of children and adolescents with type 1 diabetes. Parent QoL Diabetes Educ 1998;24(6):721-7
  55. Feldman BM, Ayling-Campos A, Luy L, Stevens D, Silverman ED, Laxer RM. Measuring disability Function in juvenile dermatomyositis: validity of the childhood health assessment questionnaire. J Rheumatol 1995;22(2):326-31
  56. Ferry GD. Quality of life in inflammatory bowel disease: background and definitions. Review J Pediatr Gastroenterol Nutr 1999;28(4):S15-S18
  57. Finkelstein JW. Methods, models, and measures of health-related quality of life for children Review and adolescents. In: Drotar D, editor. Measuring health-related quality of life in children and adolescents. New Jersey: Lawrence Erlbaum; 1998
  58. Finlay AY, Lewis-Jones MS, Sharp JL, Dykes PJ. Children's Dermatology Life Quality Index: Abstract cartoon version validation [abstract]. Br J Dermatol 1998;139:15
  59. continued Study Excluded studies Lenderking WR,Testa MA, Katzenstein D, Hammer S. Measuring quality of life in early HIV Sample aged 13-70 disease: the modular approach. Qual Life Res 1997;6(6):515-30
  60. Leung WC. Use of health services by children. Objective measures of health status are Letter essential [letter; comment]. BMJ 1999;318(7187):877
  61. Lin ST,Yang CP, Liang DC. Health status of patients with childhood acute lymphoblastic leukemia Clinical data in continuous complete remission for over five years.The Taiwan Children's Cancer Study Group. J Formos Med Assoc 1993;92(8):702-10
  62. Lockey RF, DuBuske LM, Friedman B, Petrocella V, Cox F, Rickard K. Nocturnal asthma: effect of Predominantly adult salmeterol on quality of life and clinical outcomes. Chest 1999;115(3):666-73
  63. Mackie PC, Jessen EC, Jarvis SN.The lifestyle assessment questionnaire: an instrument to Disability measure the impact of disability on the lives of children with cerebral palsy and their families. Child Care Health Dev 1998;24(6):473-86
  64. Marra CA, Levine M, McKerrow R, Carleton BC. Overview of health-related quality-of-life Review measures for pediatric patients: application in the assessment of pharmacotherapeutic and pharmacoeconomic outcomes. Pharmacotherapy 1996;16(5):879-88
  65. McGee HM. Quality of life: assessment issues for children with chronic illness and their families. Review In: Christie MJ, French DJ, editors.The assessment of quality of life in children with asthma. Chur: Harwood; 1994
  66. Miller JJ. Long term outcomes and quality of life in juvenile RA [letter; comment]. Letter J Rheumatol 1998;25(6):1244
  67. Miller JR, Colbert AP, Osberg JS.Ventilator dependency: decision-making, daily functioning and No psychometric data quality of life for patients with Duchenne muscular dystrophy. Dev Med Child Neurol 1990;32(12):1078-86
  68. Morel P, Almond PS, Matas AJ, Gillingham KJ, Chau C, Brown A, et al. Long-term quality of life No psychometric data after kidney transplantation in childhood. Transplantation 1991;52(1):47-53
  69. Mostow EN, Byrne J, Connelly RR, Mulvihill JJ. Quality of life in long-term survivors of CNS Adult survivors tumors of childhood and adolescence. J Clin Oncol 1991;9(4):592-9
  70. Mulhern RK, Heideman RL, Khatib ZA, Kovnar EH, Sanford RA, Kun LE. Quality of survival Quality of survival; among children treated for brain stem glioma. Pediatr Neurosurg 1994;20(4):226-32 neurological and behavioural measures Mulhern RK, Horowitz ME, Ochs J, Friedman AG. Assessment of quality of life among pediatric Review patients with cancer. Psychol Assess 1989;1(2):130-8
  71. Myatt HM, Myatt RA.The development of a paediatric quality of life questionnaire to measure Surgery post-operative pain following tonsillectomy. Int J Pediatr Otorhinolaryngol 1998;44(2):115-23
  72. Neff EJ, Dale JC. Assessment of quality of life in school-aged children: a method -Phase 1. No psychometric data Matern Child Nurs J 1990;19(4):313-20
  73. Parsons SK, Brown AP. Evaluation of quality of life of childhood cancer survivors: l Review a methodologica conundrum. Med Pediatr Oncol 1998;Suppl 1:46-53
  74. Price K. Quality of life for terminally ill children. Soc Work 1989;34(1):53-4
  75. Review
  76. Rose MA, Clark-Alexander B. Caregivers of children with HIV/AIDS: quality of life and Parent QoL coping styles. J Assoc Nurses AIDS Care 1998;9(1):58-65
  77. Rosenfeld RM, Goldsmith AJ, Madell JR. How accurate is parent rating of hearing for children QoL not assessed with otitis media? Arch Otolaryngol Head Neck Surg 1998;124(9):989-92
  78. Ruperto N, Ravelli A, Levinson JE, Shear ES, Murray K, Link TB, et al. Long-term health outcomes Predominantly adult and quality of life in American and Italian inception cohorts of patients with juvenile rheumatoid sample arthritis. II. Early predictors of outcome. J Rheumatol 1997;24(5):952-8
  79. Rutishauser C, Sawyer SM, Bowes G. Quality-of-life assessment in children and adolescents with Review asthma. Eur Respir J 1998;12(2):486-94
  80. Saigal S, Rosenbaum P, Hoult L, Furlong W, Feeny D, Burrows E, et al. Conceptual and Review methodological issues in assessing health-related quality of life in children and adolescents: illustration from studies of extremely low birthweight survivors. In: Drotar D, editor. Measuring health-related quality of life in children and adolescents. New Jersey: Lawrence Erlbaum; 1998
  81. Schor EL. Children's health and the assessment of health-related quality of life. In: Drotar D, Review editor. Measuring health-related quality of life in children and adolescents. New Jersey: Lawrence Erlbaum; 1998
  82. Schulz RM, Dye J, Jolicoeur L, Cafferty T,Watson J. Quality-of-life factors for parents of children Parent QoL with asthma. J Asthma 1994;31(3):209-19
  83. Sejima H, Ito M, Shiraishi H, Kobayashi A, Kishi K, Mori CA. Quality of life in schoolchildren and No psychometric students with epilepsy: a survey by questionnaire for nurse-teachers in Shimane prefecture. properties Jpn J Psychiatry Neurol 1993;47(2):359-60
  84. Singh G, Athreya BH, Fries JF, Goldsmith DP. Measurement of health status in children with Function juvenile rheumatoid arthritis. Arthritis Rheum 1994;37(12):1761-9
  85. Skuse D, Elgar K, Morris E A B S. Quality of life in Turner syndrome is related to chromosomal Social and educational constitution: implications for genetic counselling and management. Acta Paediatr Suppl adjustment 1999;88(428):110-13
  86. Slavc I, Salchegger C, Hauer C, Urban C, Oberbauer R, Pakisch B, et al. Follow-up and quality of Survival and neurological survival of 67 consecutive children with CNS tumors. Childs Nerv Syst 1994;10(7):433-43 sequelae
  87. Sokal EM. Quality of life after orthotopic liver transplantation in children. An overview of Review physical, psychological and social outcome. Eur J Pediatr 1995;154(3):171-5
  88. Spieth LE, Harris CV. Assessment of health-related quality of life in children and adolescents: Review an integrative review. J Pediatr Psychol 1996;21(2):175-93
  89. Staab D,Wenninger K, Gebert N, Rupprath K, Bisson S,Trettin M, et al. Quality of life in patients Parent QoL with cystic fibrosis and their parents: what is important besides disease severity? Thorax 1998;53(9):727-31
  90. Stabler B, Frank NC. Quality of life and the psychiatric status of individuals treated with GH in Review childhood. In: Drotar D, editor. Measuring health-related quality of life in children and adolescents. New Jersey: Lawrence Erlbaum; 1998
  91. Stone RD, Beasley PJ,Treacy SJ,Twente AW,Vacanti JP. Children and families can achieve normal Qualitative psychological adjustment and a good quality of life following pediatric liver transplantation: a long-term study. Transplant Proc 1997;29(1-2):1571-2
  92. Testa MA, Simonson DC. "Assessment of quality of life": Reply. N Engl J Med 1996;335(7):521-2
  93. Townsend M, Feeny DH, Guyatt GH, Furlong WJ, Seip AE, Dolovich JA. Evaluation of the burden Burden of illness of illness for pediatric asthmatic patients and their parents. Ann Allergy 1991;67(4):403-8
  94. van der Sluis CK, Kingma J, Eisma WH, Duis HJ. Pediatric polytrauma: short-term and long-term Older than 18 years of outcomes. J Trauma 1997;43(3):501-6 age at follow-up
  95. Vivier PM, Bernier JA, Starfield B. Current approaches to measuring health outcomes in pediatric Review research. Curr Opin Pediatr 1994;6(5):530-7
  96. Wiklund I, Erling A, Albertsson-Wikland K. Critical review of measurement issues in quality of life Review assessment for children with growth problems. In: Drotar D, editor. Measuring health-related quality of life in children and adolescents. New Jersey: Lawrence Erlbaum; 1998
  97. Wray J, Radley-Smith R,Yacoub M. Effect of cardiac or heart-lung transplantation on the quality Development and of life of the paediatric patient. Qual Life Res 1992;1(1):41-6 cognitive function
  98. Yang TF,Wong TT, Kwan SY, Chang KP, Lee YC, Hsu TC. Quality of life and life satisfaction in Family QoL families after a child has undergone corpus callostomy. Epilepsia 1996;37(1):76-80
  99. Yu VY, Manlapaz ML,Tobin J, Carse EA, Charlton MP, Gore JR. Improving health status in extremely Clinical indicators low birthweight children between two and five years. Early Hum Dev 1992;30(3):229-39
  100. Zamberlan KE. Quality of life in school-age children following liver transplantation. No psychometric data Matern Child Nurs J 1992;20(3-4):167-229 Cognition

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Authors
Eiser, C., & Morse, R.
Affiliations
University of Sheffield (GB)
Venue
Health Technology Assessment
Publisher
National Institute for Health and Care Research
Published
2001
Volume
5
Issue
4
Pages
1-157
ISSN
  • 1366-5278 (ISSN-L)
  • 2046-4924
DOI
10.3310/hta5040
OpenAlex
W2314780373
Cited by
872
References
184
Citations by year
2026: 2 · 2025: 17 · 2024: 16 · 2023: 27 · 2022: 29 · 2021: 30 · 2020: 18 · 2019: 33 · 2018: 22 · 2017: 24 · 2016: 35 · 2015: 32 · 2014: 44 · 2013: 34 · 2012: 46
FWCI
61.67
Type
journal article
Language
en
Open access
Licence
Locations
  • Health Technology Assessment (publishedVersion, cc-by)
  • PubMed (publishedVersion)
  • DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
Funders
Health Technology Assessment programme (96/48/02)
Topics
  • Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
  • Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Childhood Cancer Survivors' Quality of Life
  • Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Pediatric Pain Management Techniques
Keywords
quality of life, children with chronic illness, quality of life indicators, proxy reporting, child self-report, response burden, measurement reliability, health assessment, life satisfaction, well-being, generic health status measures, child health policy
MeSH terms
Adolescent, Child, Child, Preschool, Chronic Disease, Female, United Kingdom, Health Services Research, Health Status Indicators, Humans, Male, Quality of Life, Self-Assessment, Children with Disabilities, Disabled Children

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