The DOI matches its Crossref record; 117 of the 119 references it cites were found in a registry or an index.
Patients’ experiences of chronic non-malignant musculoskeletal pain: a qualitative systematic review
Open accessAbstract
BACKGROUND: Musculoskeletal (MSK) pain is one of the most predominant types of pain and accounts for a large portion of the primary care workload. AIM: To systematically review and integrate the findings of qualitative research to increase understanding of patients' experiences of chronic non-malignant MSK pain. DESIGN AND SETTING: Synthesis of qualitative research using meta-ethnography using six electronic databases up until February 2012 (Medline, Embase, Cinahl, Psychinfo, Amed and HMIC). METHOD: Databases were searched from their inception until February 2012, supplemented by hand-searching contents lists of specific journals for 2001-2011 and citation tracking. Full published reports of qualitative studies exploring adults' own experience of chronic non-malignant MSK pain were eligible for inclusion. RESULTS: Out of 24 992 titles, 676 abstracts, and 321 full texts were screened, 77 papers reporting 60 individual studies were included. A new concept of pain as an adversarial struggle emerged. This adversarial struggle was to: 1) affirm self; 2) reconstruct self in time; 3) construct an explanation for suffering; 4) negotiate the healthcare system; and 5) prove legitimacy. However, despite this struggle there is also a sense for some patients of 6) moving forward alongside pain. CONCLUSIONS: This review provides a theoretical underpinning for improving patient experience and facilitating a therapeutic collaborative partnership. A conceptual model is presented, which offers opportunities for improvement by involving patients, showing them their pain is understood, and forming the basis to help patients move forward alongside their pain.
Overview
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Verification
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
The cited source says what the claim attributes to it.
In the citing paper
“The way pain patients feel is often dismissed in health care [8,9].”
In the citing paper
“In spite of a number of recent studies in this area, however, in their meta-analysis, Bawa et al. demonstrated only limited evidence in support of mindfulness-based interventions for patients with chronic pain and called for more and better studies in this area [70, 71].”
From Identification and Management of Chronic Pain in Primary Care: a Review (2016) · cites this paper as [71]
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Citations
Cites
The Need for a New Medical Model: A Challenge for Biomedicine
Engel, G. L. (1977) · Science · doi:10.1126/science.847460 · Cited by 12,887
Survey of chronic pain in Europe: Prevalence, impact on daily life, and treatment
Breivik, H., Collett, B., Ventafridda, V., Cohen, R., & Gallacher, D. (2006) · European Journal of Pain · doi:10.1016/j.ejpain.2005.06.009 · Cited by 5,486
Noblit, G., & Hare, R. (1988) · doi:10.4135/9781412985000 · Cited by 2,723
Checklists for improving rigour in qualitative research: a case of the tail wagging the dog?
Barbour, R. S. (2001) · BMJ · doi:10.1136/bmj.322.7294.1115 · Cited by 2,613
Methods for the synthesis of qualitative research: a critical review
Barnett-Page, E., & Thomas, J. (2009) · BMC Medical Research Methodology · doi:10.1186/1471-2288-9-59 · Cited by 2,386
Synthesising qualitative and quantitative evidence: A review of possible methods
Dixon-Woods, M., Agarwal, S., Jones, D., Young, B., & Sutton, A. (2005) · Journal of Health Services Research & Policy · doi:10.1177/135581960501000110 · Cited by 2,132
The epidemiology of chronic pain in the community
Elliott, A. M., Smith, B. H., Penny, K. I., Smith, W. C., & Chambers, W. A. (1999) · The Lancet · doi:10.1016/s0140-6736(99)03057-3 · Cited by 1,191
Using meta ethnography to synthesise qualitative research: a worked example
Britten, N., Campbell, R., Pope, C., Donovan, J., Morgan, M., & Pill, R. (2002) · Journal of Health Services Research & Policy · doi:10.1258/135581902320432732 · Cited by 1,110
Campbell, R., Pound, P., Pope, C., Britten, N., Pill, R., Morgan, M., & Donovan, J. (2003) · Social Science & Medicine · doi:10.1016/s0277-9536(02)00064-3 · Cited by 921
Werner, A., & Malterud, K. (2003) · Social Science & Medicine · doi:10.1016/s0277-9536(02)00520-8 · Cited by 709
Research works printed but not linked: 8
- Sandelowski M Barrosso J (2007) Handbook for synthesising qualitative research (Springer Publishing Company, New York, NY).
- 10.1258/1355819052801804 · DOI · Paper page
- Charmaz K (2006) Constructing grounded theory (Sage Publications, Thousand Oaks, CA).
- Raymond, 2000, Experience of fibromyalgia. Qualitative study, Can Fam Phys, 46, 1100
- Leder D (1990) The absent body (University of Chicago Press, Chicago, IL).
- Lupton D (1994) Medicine as culture (Sage Publications, London).
- Annandale E (1998) The sociology of health medicine. A critical introduction (Polity Press, Cambridge).
- Snelgrove S Liossi C (June, 2013) Chronic Illness, Living with chronic low back pain: a metasynthesis of qualitative research. http://chi.sagepub.com/content/early/2013/04/10/1742395313476901 (accessed 4 Nov 2013). 14.
Cited by
Sorted by citations
Briggs, A. M., Cross, M., Hoy, D. G., Sànchez-Riera, L., Blyth, F., Woolf, A. D., & MARCH, L. M. (2016) · The Gerontologist · doi:10.1093/geront/gnw002 · Cited by 764
Impact of Chronic Pain on Patients’ Quality of Life: A Comparative Mixed-Methods Study
Hadi, M. A., McHugh, G. A., & Closs, S. J. (2018) · Journal of Patient Experience · doi:10.1177/2374373518786013 · Cited by 461
“Previous quantitative and qualitative studies have also reported compromised PF among chronic pain patients (1,11).”
Qualitative Evidence Synthesis: Where Are We at?
Flemming, K., & Noyes, J. (2021) · International Journal of Qualitative Methods · doi:10.1177/1609406921993276 · Cited by 369
“When you do see one it is an absolute pleasure to read—see for example Toye et al., 2013, Gomersall et al., 2011.”
BackgroundIdentification and Management of Chronic Pain in Primary Care: a Review
Mills, S., Torrance, N., & Smith, B. H. (2016) · Current Psychiatry Reports · doi:10.1007/s11920-015-0659-9 · Cited by 216
Wideman, T. H., Edwards, R. R., Walton, D. M., Martel, M. O., Hudon, A., & Seminowicz, D. A. (2019) · The Clinical Journal of Pain · doi:10.1097/ajp.0000000000000670 · Cited by 187
Toyé, F., Seers, K., Hannink, E., & Barker, K. L. (2017) · BMC Medical Research Methodology · doi:10.1186/s12874-017-0392-7 · Cited by 130
“This figure shows the records identified, reasons: not specifically chronic [26–28], out of scope [29–37]; not patients experience [38, 39]; not a QES [40–45]; not possible to link QES findings to specific primary studies [46]; provided findings [47, 48] from a full report [9].”
BackgroundSelf-citationQualitative systematic reviews: their importance for our understanding of research relevant to pain
Seers, K. (2014) · British Journal of Pain · doi:10.1177/2049463714549777 · Cited by 100
“The first three might seem relatively straightforward, although Lee et al.12 emphasised both the importance and nuances of the reading stage, and Toye et al.13 discuss the complexities of making quality assessments of qualitative papers and searching for this type of study.”
BackgroundSelf-citationMeta-synthesis of qualitative research: the challenges and opportunities
Mohammed, M. A., Moles, R. J., & Chen, T. F. (2016) · International Journal of Clinical Pharmacy · doi:10.1007/s11096-016-0289-2 · Cited by 105
“Although their early work was focused on educational research and a small number of closely related ethnographic studies [10], its applicability for health care research and suitability to synthesize nonethnographic as well as large number of studies has been demonstrated [8, 10, 13, 16, 63, 64].”
Chronic pain: definitions and diagnosis
Kang, Y., Trewern, L., Jackman, J., McCartney, D., & Soni, A. (2023) · BMJ · doi:10.1136/bmj-2023-076036 · Cited by 80
Diagnostic experience of patients with fibromyalgia – A meta-ethnography
Mengshoel, A. M., Sim, J., Ahlsen, B., & Madden, S. (2017) · Chronic Illness · doi:10.1177/1742395317718035 · Cited by 72
Understanding long-term opioid prescribing for non-cancer pain in primary care: a qualitative study
McCrorie, C., Closs, S. J., House, A. O., Petty, D. R., Ziegler, L. E., Glidewell, L., West, R. M., & Foy, R. (2015) · BMC Family Practice · doi:10.1186/s12875-015-0335-5 · Cited by 72
“Our patient accounts are broadly consistent with those in a recent meta-ethnography of qualitative studies, particularly in the ‘adversarial struggle’ patients faced in constructing explanations for their symptoms and negotiating the healthcare system [30].”
BackgroundResultMindful Self-Compassion program for chronic pain patients: A randomized controlled trial.
Torrijos‐Zarcero, M., Mediavilla, R., Rodríguez‐Vega, B., Del Río‐Diéguez, M., López‐Álvarez, I., Rocamora‐González, C., & Palao‐Tarrero, Á. (2021) · European Journal of Pain · doi:10.1002/ejp.1734 · Cited by 71
Leaviss, J., Davis, S., Ren, S., Hamilton, J., Scope, A., Booth, A., Sutton, A., Parry, G. D., Buszewicz, M., Moss-Morris, R. E., et al. (2020) · Health Technology Assessment · doi:10.3310/hta24460 · Cited by 71
Slater, H., Jordan, J. M., Chua, J., Schütze, R., Wark, J. D., & Briggs, A. M. (2016) · BMJ Open · doi:10.1136/bmjopen-2016-014007 · Cited by 59
“While these experiences have similarities with adult populations with persistent musculoskeletal pain,33–37 what is striking is that young people are frequently the least likely to seek help or to access professional help for their pain,38 39 especially when they have comorbid mental health conditions.14 40 In this co…”
BackgroundQuality-of-Life in Achilles Tendinopathy: An Exploratory Study
Ceravolo, M. L., Gaida, J. E., & Keegan, R. J. (2018) · Clinical Journal of Sport Medicine · doi:10.1097/jsm.0000000000000636 · Cited by 55
Purdie, F., & Morley, S. (2016) · Pain · doi:10.1097/j.pain.0000000000000638 · Cited by 53
“setbacks and difficulties are encountered as a result of the physical restrictions of pain and their impact on social role performance [7; 28; 31].”
BackgroundThe core qualities and competencies of the intensive and critical care nurse, a meta‐ethnography
Henriksen, K. F., Hansen, B. S., Wøien, H., & Tønnessen, S. (2021) · Journal of Advanced Nursing · doi:10.1111/jan.15044 · Cited by 60
Physical Therapy in the Treatment of Central Pain Mechanisms for Female Sexual Pain
Vandyken, C., & Hilton, S. (2016) · Sexual Medicine Reviews · doi:10.1016/j.sxmr.2016.06.004 · Cited by 42
Wiklund, M., Fjellman‐Wiklund, A., Stålnacke, B., Hammarström, A., & Lehti, A. (2016) · Global Health Action · doi:10.3402/gha.v9.31542 · Cited by 42
“This finding is supported by other studies (49, 50).”
BackgroundResultCunningham, M., France, E. F., Ring, N., Uny, I., Duncan, E., Roberts, R. J., Jepson, R. G., Maxwell, M., Turley, R. L., & Noyes, J. (2019) · Health Services and Delivery Research · doi:10.3310/hsdr07040 · Cited by 39
van Rysewyk, S., Blomkvist, R., Crighton, R., Hodson, F., Roomes, D., Shea, E., Smith, B. H., & Toyé, F. (2023) · British Journal of Pain · doi:10.1177/20494637231196426 · Cited by 39
“2013 [23] Synthesise reviews to improve understanding and thus best practice for people with MSK To February 2012 60 Noblit and Hare metaethnography 6 conceptual categories and 1 theme”
BackgroundThe Landscape of Chronic Pain: Broader Perspectives
Johnson, M. I. (2019) · Medicina · doi:10.3390/medicina55050182 · Cited by 41
“The amorphous character of pain does not sit comfortably with the objective nature of medical practice and evidence suggests that chronic pain patients have difficulties convincing health care professionals of the existence of pain [7,9,10].”
BackgroundMankelow, J., Ryan, C. G., Taylor, P., & Martin, D. (2020) · Musculoskeletal Science and Practice · doi:10.1016/j.msksp.2020.102249 · Cited by 38
What is Pain-Related Suffering? Conceptual Critiques, Key Attributes, and Outstanding Questions
Stilwell, P., Hudon, A., Meldrum, K., Pagé, M. G., & Wideman, T. H. (2021) · Journal of Pain · doi:10.1016/j.jpain.2021.11.005 · Cited by 42
“For example, people living with pain report worrying about their future and a loss of their sense of self, identity, roles, or control.(3,11,24,37,60,64,87,88) Although there is evidence for suffering as a selfreflective process, we must ask: is this the only mode of suffering? This is a key challenge our field of pai…”
BackgroundBujak, B. K., Regan, E. W., Beattie, P., & Harrington, S. (2019) · Pain Management · doi:10.2217/pmt-2018-0087 · Cited by 38
Meanings of "acceptance" for patients with long-term pain when starting rehabilitation
Biguet, G., Nilsson Wikmar, L., Bullington, J., Flink, B., & Löfgren, M. (2016) · Disability and Rehabilitation · doi:10.3109/09638288.2015.1076529 · Cited by 30
“Helpful for a positive process was being believed by health professionals and significant others, getting support and explanations, and acquiring strategies to influence the pain, disability and psychological distress [16,25].”
BackgroundInfluentialThe Impact of Reassurance on Musculoskeletal (MSK) Pain: A Qualitative Review
Cheung, L. K., & Soundy, A. (2021) · Behavioral Sciences · doi:10.3390/bs11110150 · Cited by 37
Zhang, K., Hannan, E., Scholes-Robertson, N. J., Baumgart, A., Guha, C., Kerklaan, J., Hanson, C. S., Craig, J. C., Davison, S. N., Hecking, M., et al. (2020) · Pain · doi:10.1097/j.pain.0000000000001931 · Cited by 27
Patient-centered consultations for persons with musculoskeletal conditions
Belton, J. L., Birkinshaw, H., & Pincus, T. (2022) · Chiropractic & Manual Therapies · doi:10.1186/s12998-022-00466-w · Cited by 29
Lynch, A. D., Bove, A. M., Ammendolia, C., & Schneider, M. (2017) · The Spine Journal · doi:10.1016/j.spinee.2017.11.019 · Cited by 27
Moore, A. J., & Gooberman‐Hill, R. (2020) · Health Expectations · doi:10.1111/hex.13098 · Cited by 25
‘It makes you think’ – exploring the impact of qualitative films on pain clinicians
Toyé, F., & Jenkins, S. (2014) · British Journal of Pain · doi:10.1177/2049463714549776 · Cited by 25
“9(1) 65 –69 © The British Pain Society 2014 Reprints and permissions: sagepub.”
BackgroundCarr, E., Wallace, J. E., Onyewuchi, C., Hellyer, P. W., & Kogan, L. (2018) · Anthrozoos · doi:10.1080/08927936.2018.1505267 · Cited by 29
“People who endure chronic pain often face an adversarial struggle as they reconstruct their lives, negotiate the health care system, and prove legitimacy (toye et al., 2013).”
BackgroundSelf-citationCognitive Behavioral Therapy for Chronic Pelvic Pain: What Is It and Does It Work?
Lackner, J. M., Clemens, J. Q., Radziwon, C. D., Danforth, T. L., Ablove, T. S., Krasner, S. S., Vargovich, A. M., O’Leary, P. C., Marotto, T., & Naliboff, B. D. (2024) · The Journal of Urology · doi:10.1097/ju.0000000000003847 · Cited by 28
“…“not real,” inexplicable and mental in nature and move away from the search for an elusive biomedical explanation/“fix” toward multimodal treatments 73 and clinical practices that are more patient-centered, efficient, and firmly grounded in contemporary (ie, bio-psychosocial) understanding of…”
BackgroundMusculoskeletal health conditions among older populations in urban slums in sub-Saharan Africa
Aboderin, I., & Nanyonjo, A. (2017) · Best Practice & Research Clinical Rheumatology · doi:10.1016/j.berh.2017.11.001 · Cited by 24
Hooten, W. M., Dvorkin, J., Warner, N. S., Pearson, A. C. S., Murad, M. H., & Warner, D. O. (2019) · Journal of Pain Research · doi:10.2147/jpr.s202376 · Cited by 25
Wernli, K., Smith, A. J., Coll, F., Campbell, A., Kent, P. M., & O’Sullivan, P. (2022) · European Journal of Pain · doi:10.1002/ejp.2022 · Cited by 24
“Rigorous replicated single- case, mixed method designs that can readily accommodate heterogeneity provide viable options for research from a person- specific, individualized perspective (Kerry et al., 2012; Kratochwill et al., 2012; Lillie et al., 2011; Toye et al., 2013).”
BackgroundOpioid deprescribing: Qualitative perspectives from those with chronic non-cancer pain
Hamilton, M., Gnjidic, D., Lin, C. C., Jansen, J., Weir, K. R., Shaheed, C. A., Blyth, F., & Mathieson, S. (2022) · Research in Social and Administrative Pharmacy · doi:10.1016/j.sapharm.2022.07.043 · Cited by 23
Jaouni, S. K. A., El-Fiky, E. A., Mourad, S. A., Ibrahim, N. K., Kaki, A. M., Rohaiem, S. M., Qari, M. H., Tabsh, L. M., & Aljawhari, A. A. (2017) · Saudi Medical Journal · doi:10.15537/smj.2017.1.15154 · Cited by 23
Qualitative Evidence Synthesis
Booth, A. (2017) · Springer eBooks · doi:10.1007/978-981-10-4068-9_15 · Cited by 23
Johnson, M. I., Bonacaro, A., Georgiadis, E. M., & Woodall, J. (2022) · Health Promotion International · doi:10.1093/heapro/daac128 · Cited by 22
“…of the lived experience of persistent pain reveal that patients feel that their report of pain is not believed by health care professionals (Toye et al., 2013; Toye et al., 2014) and that practitioners sometimes feel scepticism about the presence of chronic pain in patients revealing…”
Lyle, S., Williamson, E. M., Darton, F., Griffiths, F. E., & Lamb, S. E. (2016) · Disability and Rehabilitation · doi:10.1080/09638288.2016.1177611 · Cited by 24
“[42,43] Despite persistent similarities with Toye et al’s [41] meta-ethnography, this paper illustrates the need for studies on chronic MSK conditions not to assume that older and younger people’s experiences can be conflated.”
BackgroundResultInfluentialMankelow, J., Ryan, C. G., Taylor, P. C., Casey, M., Naisby, J., Thompson, K., McVeigh, J. G., Seenan, C., Cooper, K., Hendrick, P. A., et al. (2022) · BMC Medical Education · doi:10.1186/s12909-022-03488-3 · Cited by 21
Hopkins, R. E., Degenhardt, L. J., Campbell, G., Farnbach, S., & Gisev, N. (2022) · BMC Health Services Research · doi:10.1186/s12913-022-08946-8 · Cited by 24
“[37]: participants felt let down by the health system, yet compelled to continue engaging with said system.”
BackgroundExploring the value of qualitative research films in clinical education
Toyé, F., Jenkins, S., Seers, K., & Barker, K. L. (2015) · BMC Medical Education · doi:10.1186/s12909-015-0491-2 · Cited by 20
“The themes from this review [28, 29] are summarised in Fig.”
BackgroundSelf-citationPragmatic but flawed: the NICE guideline on chronic pain
Eccleston, C., Aldington, D. J., Moore, A., & Williams, A. C. D. C. (2021) · The Lancet · doi:10.1016/s0140-6736(21)01058-8 · Cited by 19
Martínez-Calderón, J., Matias-Soto, J., & Luque-Suárez, A. (2022) · Journal of Orthopaedic and Sports Physical Therapy · doi:10.2519/jospt.2022.10707 · Cited by 22
Lindgreen, P., Rolving, N., Nielsen, C. V., & Lomborg, K. E. (2016) · Orthopaedic Nursing · doi:10.1097/nor.0000000000000259 · Cited by 18
“Thus, patients are urged to fi nd the appropriate balance between expressing their pain to defend their right to treatment while concealing their pain to seem “normal” ( Toye et al., 2013 ).”
BackgroundResultInfluentialSchwarz, B., Banaschak, H., Heyme, R., von Kardorff, E., Reims, N., Streibelt, M., & Bethge, M. (2023) · Die Rehabilitation · doi:10.1055/a-2129-2731 · Cited by 17
“[ 20 – 23 , 39 – 42 , 44 , 48 , 49 , 51 , 52 ] ( L o n g - t e r m ) s y m p t o m s t h a t fl u c t u a t e , fl a r e u p , a n d a r e i n v i s i b l e o r un p r e d i c t a b l e i n t e r m s o f f r e q u e n c y a n d i n t e n s i t y a r e d e s c r i b e d a s t h e m o s t c h a ll e…”
InfluentialHill, R. J., McKernan, L. C., Wang, L., & Coronado, R. A. (2017) · Journal of Manual & Manipulative Therapy · doi:10.1080/10669817.2017.1323608 · Cited by 19
Lidocaine for postoperative pain after cardiac surgery: a systematic review
Boswell, M. R., Moman, R. N., Burtoft, M. A., Gerdes, H., Martinez, J. S., Gerberi, D., Wittwer, E. D., Murad, M. H., & Hooten, W. M. (2021) · Journal of Cardiothoracic Surgery · doi:10.1186/s13019-021-01549-0 · Cited by 16
Nitel Araştırmaların Analizi: Meta-Sentez
Güneş, D., & Erdem, R. (2022) · Anadolu Üniversitesi Sosyal Bilimler Dergisi · doi:10.18037/ausbd.1227313 · Cited by 19
Pain through the perspective of art and creativity: insights from the Unmasking Pain project
Johnson, M. I., Chazot, P. L., Cole, F., Cruickshank, R., Fuller, D., Keyse, C., Singh, B., Strickson, A., Tabasam, G., Tregidden, E., et al. (2023) · Frontiers in Pain Research · doi:10.3389/fpain.2023.1179116 · Cited by 16
Belton, J. L., Slater, H., Ravindran, T. K. S., & Briggs, A. M. (2022) · Journal of Orthopaedic and Sports Physical Therapy · doi:10.2519/jospt.2022.11427 · Cited by 16
Taimeh, D., Leeson, R., & Fedele, S. (2023) · Journal of Oral & Facial Pain and Headache · doi:10.11607/ofph.3112 · Cited by 16
Chronic pain concepts of pediatricians: a qualitative survey
Locher, C., Wörner, A., Carlander, M., Kossowsky, J., Dratva, J., & Koechlin, H. (2023) · PAIN Reports · doi:10.1097/pr9.0000000000001060 · Cited by 13
“Some studies revealed that the patient’s perspective is linked to symptom relief and the healing process in general.(44,45,50) Along similar lines, it has been suggested that pediatricians’ beliefs about chronic pain are important for the course of treatment, including how they educate patients and families about pain.”
BackgroundNøst, T. H., Steinsbekk, A., Riseth, L., Bratås, O., & Grønning, K. (2017) · BMC Health Services Research · doi:10.1186/s12913-017-2668-3 · Cited by 13
“The informants’ descriptions of living with chronic pain were similar to findings in other studies [7, 16, 17, 38], and therefore not elaborated on here.”
Result“Power of Storytelling”: A Content Analysis of Chronic Pain Narratives on YouTube
Devan, H., Elphick-laveta, T., Lynch, M., MacDonell, K., Marshall, D. C., Tuhi, L., & Grainger, R. (2021) · Canadian Journal of Pain · doi:10.1080/24740527.2021.1929117 · Cited by 13
“The causes of chronic pain are multifactorial and are frequently misunderstood by both health practitioners and the public.(4) Furthermore, due to the often invisible nature of the condition, people living with chronic pain can be marginalized by society and clinicians and their realities minimized.”
BackgroundGoldman, R. E., Broderick, J. E., Junghaenel, D. U., Bolton, A., May, M., Schneider, S., & Stone, A. A. (2021) · Frontiers in Pain Research · doi:10.3389/fpain.2021.692567 · Cited by 13
Twomey, M., Sammon, D., & Nagle, T. (2020) · Journal of Decision System · doi:10.1080/12460125.2020.1809781 · Cited by 13
Løchting, I., Grotle, M., Storheim, K., Foldal, V. S., Standal, M. I., Fors, E. A., & Eik, H. (2020) · BMC Public Health · doi:10.1186/s12889-020-09804-0 · Cited by 11
Beyond the binaries: reshaping pain communication through arts workshops
Tarr, J., Cornish, F., & Gonzalez‐Polledo, E. (2018) · Sociology of Health & Illness · doi:10.1111/1467-9566.12669 · Cited by 11
Narratives of life with long-term low back pain: A follow up interview study
Angel, S., Jensen, L. D., Maribo, T., Gonge, B. K., & Buus, N. (2017) · Scandinavian Journal of Pain · doi:10.1016/j.sjpain.2017.09.018 · Cited by 11
Ehrhardt, M. D., Gray, K. N., Kuhn, B. L., Lannon, E. W., Palit, S., Sturycz, C. A., Guereca, Y. M., Payne, M. F., Hellman, N. M., Toledo, T. A., et al. (2020) · Ethnicity and Health · doi:10.1080/13557858.2020.1760215 · Cited by 11
“struggling to prove legitimacy of pain, struggling to maintain sense of self in spite of pain) was present (Toye et al. 2013).”
BackgroundYu, L., Scott, W., Goodman, R., Driscoll, L., & McCracken, L. (2021) · British Journal of Pain · doi:10.1177/2049463721994863 · Cited by 10
“17 The specific objectives were (1) to examine previously supported two-factor structures for the SEQ and reduce items using CFA, (2) to examine the reliability and validity of the newly validated, shorter SEQ, (3) to examine whether scores from the shorter SEQ appear sensitive to change after the treatment, and wheth…”
Long, J., Briggs, M., Long, A., & Astin, F. (2016) · Journal of Advanced Nursing · doi:10.1111/jan.12998 · Cited by 11
“Health professionals have an important role in helping people come to terms with diagnosis of a LTC (Toye et al. 2013) and the study provides qualitative evidence of the potential benefits of MMIs in equipping patients to accept and manage LTCs more effectively.”
BackgroundSelf-citationPatients' experiences of living with persistent back pain
van Griensven, H. (2015) · International journal of osteopathic medicine · doi:10.1016/j.ijosm.2015.03.003 · Cited by 10
Incorporating personal narratives in positive psychology interventions to manage chronic pain
Georgiadis, E. M., & Johnson, M. I. (2023) · Frontiers in Pain Research · doi:10.3389/fpain.2023.1253310 · Cited by 11
Casey, M., Smart, K. M., Hearty, C., Lowry, D., & Doody, C. (2019) · Physiotherapy Practice and Research · doi:10.3233/ppr-180120 · Cited by 9
Taimeh, D., Leeson, R., Fedele, S., & Ríordáin, R. N. (2022) · Oral Surgery · doi:10.1111/ors.12762 · Cited by 9
Rolin-Gilman, C., Fournier, B., & Cleverley, K. (2017) · Pain Management Nursing · doi:10.1016/j.pmn.2017.03.002 · Cited by 9
Nizza, I. E., Smith, J. A., & Kirkham, J. A. (2022) · Frontiers in Pain Research · doi:10.3389/fpain.2022.901271 · Cited by 11
Mohrsen, A., Sørensen, T., Lund, H., Rasmussen, S. Z., Jensen, A., Skov, K. B., & Rathleff, M. (2024) · International Journal of Sports Physical Therapy · doi:10.26603/001c.92908 · Cited by 8
“Play!”: Combatting Pathocentric Epistemic Injustice in Chronic Pain Care
Charette, M. (2024) · Qualitative Health Research · doi:10.1177/10497323241300437 · Cited by 8
“These economies are pervasive in the case of chronic pain (Buchman et al., 2017; Della Croce, 2023; Toye et al., 2013).”
Okuhara, T., Okada, H., Yokota, R., & Kagawa, Y. (2025) · Patient Education and Counseling · doi:10.1016/j.pec.2025.109402 · Cited by 10
A Qualitative Examination of Pain Centrality Among Veterans of Iraq and Afghanistan Conflicts
Outcalt, S. D., Nicolaidis, C., Bair, M. J., Myers, L. J., Miech, E. J., & Matthias, M. S. (2016) · Pain Medicine · doi:10.1093/pm/pnw137 · Cited by 8
Parkes, T., Foster, R., McAuley, A., Steven, D., Matheson, C., & Baldacchino, A. (2022) · Drugs Education Prevention and Policy · doi:10.1080/09687637.2021.2022100 · Cited by 7
Should Physicians Disclose Their Own Health Challenges? Perspectives of Patients With Chronic Pain
Chang, H. A., Iuliano, K. R., Tackett, S. A., Treisman, G. J., Erdek, M. A., & Chisolm, M. S. (2022) · Journal of Patient Experience · doi:10.1177/23743735221128675 · Cited by 7
Nelson, E.-U. E., & Kitchen, C. (2022) · Drug and Alcohol Review · doi:10.1111/dar.13559 · Cited by 7
Healthcare priorities in patients with chronic facial pain of temporomandibular disorders
Taimeh, D., Ríordáin, R. N., Fedele, S., & Leeson, R. (2022) · Oral Diseases · doi:10.1111/odi.14483 · Cited by 7
Choi, W., Kim, B.-K., Kim, K.-D., Moon, O.-K., & Yeum, D. (2016) · Industrial Health · doi:10.2486/indhealth.2015-0201 · Cited by 7
Yu, L., & McCracken, L. M. (2024) · Current Opinion in Psychology · doi:10.1016/j.copsyc.2024.101972 · Cited by 6
Parents’ and Teachers’ Perceptions of Physical Activity in Schools: A Meta-Ethnography
Porcuna, V. A., & Rodríguez‐Martin, B. (2020) · The Journal of School Nursing · doi:10.1177/1059840520972005 · Cited by 6
“Despite the controversy surrounding the quality appraisal of qualitative studies (Eakin & Mykhalovskiy, 2003), studies must provide an adequate description of the concepts and be methodologically sound (Campbell et al., 2011; Toye et al., 2013).”
BackgroundJohnson, M. I. (2025) · Frontiers in Pain Research · doi:10.3389/fpain.2025.1641571 · Cited by 11
“First-person research suggests that individuals living with persistent (chronic) pain bene fi t from approaches that validate their pain through meaningful explanations so that they feel their personal stories are heard and acknowledged (49, 82).”
Montesó‐Curto, P., Chavarría, M. L. P., Colás, L. S., & Toussaint, L. L. (2023) · Healthcare · doi:10.3390/healthcare11111531 · Cited by 5
Tait, R. C., Chibnall, J. T., & Kalauokalani, D. K. (2021) · Journal of Pain · doi:10.1016/j.jpain.2021.04.009 · Cited by 5
Misje, M., Ask, T., Skouen, J. S., Anderson, B., & Magnussen, L. H. (2023) · Physiotherapy Theory and Practice · doi:10.1080/09593985.2023.2227967 · Cited by 5
“Qualitative studies support the complexity of the condition and describe living with chronic musculoskeletal pain as an “adversarial struggle on multiple levels” including sense of body and self, “time, relationships and health care” (Toye et al., 2013).”
The suffering of chronic pain patients on a wait list: Are they amenable to narrative therapy?
Carr, E., McCaffrey, G., & Ortiz, M. (2017) · Canadian Journal of Pain · doi:10.1080/24740527.2017.1316173 · Cited by 5
“835).(43) There continues to be emphasis on initiatives to improve patient–physician communication, because”
BackgroundSelf-citationRönne-Petersén, L., Niemi, M., Walach, H., Lavebratt, C., Yang, L. L., Gerdle, B., Ghafouri, B., & Falkenberg, T. (2024) · PLoS ONE · doi:10.1371/journal.pone.0308924 · Cited by 4
Stone, S., Wainwright, E. M., Guest, A. J., Ghiglieri, C. G., Zeyen, A., & Gooberman‐Hill, R. (2025) · PLoS ONE · doi:10.1371/journal.pone.0327984 · Cited by 5
Naeem, H. (2025) · Philosophy & Technology · doi:10.1007/s13347-025-00988-0 · Cited by 5
“As a result, patients often feel disbelieved and misunderstood (Tosas, 2021; Toye et al., 2013 ), compounding their suffering and hindering treatment.”
Liddiard, K. J., Brown, C. A., & Raynor, A. J. (2024) · Healthcare · doi:10.3390/healthcare12161655 · Cited by 4
“A reasonable hypothesis was that the experience of rehabilitation as personally meaningful may be reflected in the circumstances of how therapy was resolved [72].”
BackgroundJohnson, M. I. (2025) · Behavioral Sciences · doi:10.3390/bs15050703 · Cited by 6
“Patients frequently feel their pain is not taken seriously and that unique cultural, social, and individual experiences that place pain in a broader existential context are overlooked (Nichols et al., 2020; Srikesavan et al., 2023; Toye et al., 2013, 2014, 2017a, 2017b, 2022).”
Exploring the experiences of individuals living with persistent pain using a visual art diary
Lou, J. C., Pourkazemi, F., & Mackenzie, L. A. (2022) · British Journal of Occupational Therapy · doi:10.1177/03080226221079239 · Cited by 4
“Pain signals can wholly capture an individual’s attention, often leading to repeated internalisation of the perceived threat of pain and potentially damaging their personal identity (Toye et al., 2013).”
BackgroundDudley, M., Olson, R. E., Mescouto, K. A., & Setchell, J. (2024) · Health Sociology Review · doi:10.1080/14461242.2024.2350501 · Cited by 4
“In the confessional context of doctor-patient interactions (Mayes, 2009), patients professed to clinicians their status as a ‘ good person ’ (Toye et al., 2013) and active member of society by discussing their work, or aspirations to be physically active and independent.”
InfluentialTraeger, A. C., Reed, B. J., O’Connor, D. A., Hoffmann, T., Machado, G. C., Bonner, C., Maher, C. G., & Buchbinder, R. (2018) · BMJ Open · doi:10.1136/bmjopen-2017-019470 · Cited by 4
Lundberg, T., & Melander, S. (2019) · Qualitative Health Research · doi:10.1177/1049732319837227 · Cited by 7
Gormsen, L. K. (2025) · Journal of Pain Research · doi:10.2147/jpr.s508125 · Cited by 3
“Furthermore, they describe their pain in broken sentences, taking a little break to gain time to express her-/himself more accurately, the pain patient Carl said: Yes… it is many things.”
Kealy, E., & Hebron, C. (2024) · Physiotherapy Theory and Practice · doi:10.1080/09593985.2023.2300400 · Cited by 3
“This fear may represent the journey of uncertainty that they have been on, while trying to gain answers for their pain, which has often left them feeling invalidated (Toye et al., 2013, 2021; Toye, Seers, Hannink, and Barker, 2017).”
Hedén, L., Berglund, M., & Gillsjö, C. (2020) · Journal of Aging Research · doi:10.1155/2020/7597524 · Cited by 3
Metadata
- Authors
- Toye, F., Seers, K., Allcock, N., Briggs, M., Carr, E., Andrews, J., & Barker, K.
- Affiliations
- University of Warwick (GB)
- Glasgow Caledonian University (GB)
- Leeds Beckett University (GB)
- University of Calgary (CA)
- Nuffield Orthopaedic Centre (GB)
- Venue
- British Journal of General Practice
- Published
- 2013-12
- Volume
- 63
- Issue
- 617
- Pages
- e829-e841
- ISSN
- 0960-1643 (ISSN-L)
- 1478-5242
- PMC
- PMC3839392
- OpenAlex
- W2091768352
- Cited by
- 156
- References
- 119
- Citations by year
- 2026: 13 · 2025: 19 · 2024: 14 · 2023: 18 · 2022: 18 · 2021: 18 · 2020: 10 · 2019: 6 · 2018: 6 · 2017: 12 · 2016: 13 · 2015: 4 · 2014: 5
- FWCI
- 0.93
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- British Journal of General Practice (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- Research Explorer (The University of Manchester) (submittedVersion)
- ResearchOnline (submittedVersion)
- Funders
- National Institute for Health and Care Research (09/2001/09, PDA/01/05/010)
- Topics
- Health Sciences › Health Professions › Physical Therapy, Sports Therapy and Rehabilitation › Musculoskeletal pain and rehabilitation
- Social Sciences › Arts and Humanities › History and Philosophy of Science › Medicine, History, and Philosophy
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Pediatric Pain Management Techniques
- Keywords
- patient experience, self-affirmation, pain coping, legitimacy, patient-provider partnership, conceptual model, primary care
- MeSH terms
- Adaptation, Psychological, Adolescent, Adult, Aged, Aged, 80 and over, Humans, Interpersonal Relations, Middle Aged, Patient Acceptance of Health Care, Self Concept, Stress, Psychological, Qualitative Research, Young Adult, Chronic Pain, Musculoskeletal Pain
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
