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Patients’ experiences of chronic non-malignant musculoskeletal pain: a qualitative systematic review
Open accessAbstract
BACKGROUND: Musculoskeletal (MSK) pain is one of the most predominant types of pain and accounts for a large portion of the primary care workload. AIM: To systematically review and integrate the findings of qualitative research to increase understanding of patients' experiences of chronic non-malignant MSK pain. DESIGN AND SETTING: Synthesis of qualitative research using meta-ethnography using six electronic databases up until February 2012 (Medline, Embase, Cinahl, Psychinfo, Amed and HMIC). METHOD: Databases were searched from their inception until February 2012, supplemented by hand-searching contents lists of specific journals for 2001-2011 and citation tracking. Full published reports of qualitative studies exploring adults' own experience of chronic non-malignant MSK pain were eligible for inclusion. RESULTS: Out of 24 992 titles, 676 abstracts, and 321 full texts were screened, 77 papers reporting 60 individual studies were included. A new concept of pain as an adversarial struggle emerged. This adversarial struggle was to: 1) affirm self; 2) reconstruct self in time; 3) construct an explanation for suffering; 4) negotiate the healthcare system; and 5) prove legitimacy. However, despite this struggle there is also a sense for some patients of 6) moving forward alongside pain. CONCLUSIONS: This review provides a theoretical underpinning for improving patient experience and facilitating a therapeutic collaborative partnership. A conceptual model is presented, which offers opportunities for improvement by involving patients, showing them their pain is understood, and forming the basis to help patients move forward alongside their pain.
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“The way pain patients feel is often dismissed in health care [8,9].”
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“In spite of a number of recent studies in this area, however, in their meta-analysis, Bawa et al. demonstrated only limited evidence in support of mindfulness-based interventions for patients with chronic pain and called for more and better studies in this area [70, 71].”
From Identification and Management of Chronic Pain in Primary Care: a Review (2016) · cites this paper as [71]
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- Charmaz K (2006) Constructing grounded theory (Sage Publications, Thousand Oaks, CA).
- Raymond, 2000, Experience of fibromyalgia. Qualitative study, Can Fam Phys, 46, 1100
- Leder D (1990) The absent body (University of Chicago Press, Chicago, IL).
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- Snelgrove S Liossi C (June, 2013) Chronic Illness, Living with chronic low back pain: a metasynthesis of qualitative research. http://chi.sagepub.com/content/early/2013/04/10/1742395313476901 (accessed 4 Nov 2013). 14.
Cited by
Sorted by citations
Briggs, A. M., Cross, M., Hoy, D. G., Sànchez-Riera, L., Blyth, F., Woolf, A. D., & MARCH, L. M. (2016) · The Gerontologist · doi:10.1093/geront/gnw002 · Cited by 764
Impact of Chronic Pain on Patients’ Quality of Life: A Comparative Mixed-Methods Study
Hadi, M. A., McHugh, G. A., & Closs, S. J. (2018) · Journal of Patient Experience · doi:10.1177/2374373518786013 · Cited by 461
“Previous quantitative and qualitative studies have also reported compromised PF among chronic pain patients (1,11).”
Qualitative Evidence Synthesis: Where Are We at?
Flemming, K., & Noyes, J. (2021) · International Journal of Qualitative Methods · doi:10.1177/1609406921993276 · Cited by 369
“When you do see one it is an absolute pleasure to read—see for example Toye et al., 2013, Gomersall et al., 2011.”
BackgroundIdentification and Management of Chronic Pain in Primary Care: a Review
Mills, S., Torrance, N., & Smith, B. H. (2016) · Current Psychiatry Reports · doi:10.1007/s11920-015-0659-9 · Cited by 216
Wideman, T. H., Edwards, R. R., Walton, D. M., Martel, M. O., Hudon, A., & Seminowicz, D. A. (2019) · The Clinical Journal of Pain · doi:10.1097/ajp.0000000000000670 · Cited by 187
Metadata
- Authors
- Toye, F., Seers, K., Allcock, N., Briggs, M., Carr, E., Andrews, J., & Barker, K.
- Affiliations
- University of Warwick (GB)
- Glasgow Caledonian University (GB)
- Leeds Beckett University (GB)
- University of Calgary (CA)
- Nuffield Orthopaedic Centre (GB)
- Venue
- British Journal of General Practice
- Published
- 2013-12
- Volume
- 63
- Issue
- 617
- Pages
- e829-e841
- ISSN
- 0960-1643 (ISSN-L)
- 1478-5242
- PMC
- PMC3839392
- OpenAlex
- W2091768352
- Cited by
- 156
- References
- 119
- Citations by year
- 2026: 13 · 2025: 19 · 2024: 14 · 2023: 18 · 2022: 18 · 2021: 18 · 2020: 10 · 2019: 6 · 2018: 6 · 2017: 12 · 2016: 13 · 2015: 4 · 2014: 5
- FWCI
- 0.93
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- British Journal of General Practice (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- Research Explorer (The University of Manchester) (submittedVersion)
- ResearchOnline (submittedVersion)
- Funders
- National Institute for Health and Care Research (09/2001/09, PDA/01/05/010)
- Topics
- Health Sciences › Health Professions › Physical Therapy, Sports Therapy and Rehabilitation › Musculoskeletal pain and rehabilitation
- Social Sciences › Arts and Humanities › History and Philosophy of Science › Medicine, History, and Philosophy
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Pediatric Pain Management Techniques
- Keywords
- patient experience, self-affirmation, pain coping, legitimacy, patient-provider partnership, conceptual model, primary care
- MeSH terms
- Adaptation, Psychological, Adolescent, Adult, Aged, Aged, 80 and over, Humans, Interpersonal Relations, Middle Aged, Patient Acceptance of Health Care, Self Concept, Stress, Psychological, Qualitative Research, Young Adult, Chronic Pain, Musculoskeletal Pain
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
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