The Ethical Implications of Personal Health Monitoring
Open accessAbstract
Personal Health Monitoring (PHM) uses electronic devices which monitor and record health-related data outside a hospital, usually within the home. This paper examines the ethical issues raised by PHM. Eight themes describing the ethical implications of PHM are identified through a review of 68 academic articles concerning PHM. The identified themes include privacy, autonomy, obtrusiveness and visibility, stigma and identity, medicalisation, social isolation, delivery of care, and safety and technological need. The issues around each of these are discussed. The system / lifeworld perspective of Habermas is applied to develop an understanding of the role of PHMs as mediators of communication between the institutional and the domestic environment. Furthermore, links are established between the ethical issues to demonstrate that the ethics of PHM involves a complex network of ethical interactions. The paper extends the discussion of the critical effect PHMs have on the patient's identity and concludes that a holistic understanding of the ethical issues surrounding PHMs will help both researchers and practitioners in developing effective PHM implementations.1
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
One risk presented by H-IoT is the simplification of health and patient care to parameters and processes that can be easily measured or automated.
“One risk presented by H-IoT is the simplification of health and patient care to parameters and processes that can be easily measured or automated.”
From Ethics of the health-related internet of things: a narrative review (2017) · cites this paper as Mittelstadt et al. 2014
H-IoT can limit assessment of a patient's condition to a narrow range of easily measurable or quantifiable considerations, which could bias assessment towards an overly optimistic prediction of the technology's effects.
“H-IoT can limit assessment of a patient's condition to a narrow range of easily measurable or quantifiable considerations, which could bias assessment towards an overly optimistic prediction of the technology's effects (Mittelstadt et al. 2014;Coeckelbergh 2013).”
From Ethics of the health-related internet of things: a narrative review (2017) · cites this paper as Mittelstadt et al. 2014
Institutions and physicians may be tempted to 'close down' discourses with patients by placing greater importance on 'objective' H-IoT monitoring data than the patient's subjective experience and voice.
“Institutions and physicians may be tempted to 'close down' discourses with patients by placing greater importance on 'objective' H-IoT monitoring data than the patient's subjective experience and voice (Coeckelbergh 2013;Mittelstadt et al. 2014).”
From Ethics of the health-related internet of things: a narrative review (2017) · cites this paper as Mittelstadt et al. 2014
Existing academic discourse tends to conceive of the ethical possibilities of H-IoT in terms of harms and benefits for individual patients, clinicians, developers or medical organisations.
“Despite this, existing academic discourse tends to conceive of the ethical possibilities of H-IoT in terms of harms and benefits for individual patients, clinicians, developers or medical organisations (Mittelstadt et al. 2013(Mittelstadt et al. , 2014)).”
From Ethics of the health-related internet of things: a narrative review (2017) · cites this paper as Mittelstadt et al. 2014
As a mediator placed between the physician and patient, H-IoT changes the dependencies between clinicians and patients by turning some degree of the patient's ongoing care over to a technological artefact.
“As a mediator placed between the physician and patient (Mittelstadt et al. 2014), H-IoT changes the dependencies between clinicians and patients by turning some degree of the patient's ongoing care over to a technological artefact.”
From Ethics of the health-related internet of things: a narrative review (2017) · cites this paper as Mittelstadt et al. 2014
DL-based methods have provided state-of-the-art performance in many medical image analysis tasks.
“In this regard, researchers are developing learning-based methods using such large-scale datasets, particularly, DL-based methods have provided the state-of-the-art performance in many medical image analysis tasks [168].”
From Explainable, trustworthy, and ethical machine learning for healthcare: A survey (2022) · cites this paper as [168]
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Cites
Three Approaches to Qualitative Content Analysis
Hsieh, H.-F., & Shannon, S. E. (2005) · Qualitative Health Research · doi:10.1177/1049732305276687 · Cited by 44,601 · see citing works
Gadamer, H. G., Weinsheimer, J. C., & Marshall, D. G. (1960) · Cited by 9,238 · see citing works
Melnick, V. L., & Dubler, N. N. (1985) · Contemporary Issues in Biomedicine, Ethics, and Society · doi:10.1007/978-1-4612-5174-3 · Cited by 1,986 · see citing works
Making Strategy: The Journey of Strategic Management
Eden, C., & Ackermann, F. (1998) · SAGE Publications Ltd eBooks · doi:10.4135/9781446217153 · Cited by 1,126 · see citing works
Wireless sensor networks for personal health monitoring: Issues and an implementation
Milenković, A., Otto, C., & Jovanov, E. (2006) · Computer Communications · doi:10.1016/j.comcom.2006.02.011 · Cited by 1,023 · see citing works
A review of smart homes—Present state and future challenges
Chan, M., Estève, D., Escriba, C., & Campo, E. (2008) · Computer Methods and Programs in Biomedicine · doi:10.1016/j.cmpb.2008.02.001 · Cited by 1,007 · see citing works
The Theory of Communicative Action. Vol. 1: Reason and the Rationalization of Society.
Funk, N., Habermas, J., & McCarthy, T. (1986) · The Philosophical Review · doi:10.2307/2185595 · Cited by 984 · see citing works
Surveillance as social sorting : privacy, risk, and digital discrimination
Lyon, D. (2003) · Cited by 868 · see citing works
Reason and the rationalization of society
Habermas, J., & McCarthy, T. (1984) · Beacon Press eBooks · Cited by 816 · see citing works
Older adults' attitudes towards and perceptions of ‘smart home’ technologies: a pilot study
Demiris, G., Rantz, M., Aud, M. A., Marek, K. D., Tyrer, H. W., Skubic, M., & Hussam, A. A. (2004) · Medical Informatics and the Internet in Medicine · doi:10.1080/14639230410001684387 · Cited by 669 · see citing works
Eden, C. (1988) · European Journal of Operational Research · doi:10.1016/0377-2217(88)90002-1 · Cited by 639 · see citing works
Smart homes — Current features and future perspectives
Chan, M., Campo, É., Esteve, D., & Fourniols, J.-Y. (2009) · Maturitas · doi:10.1016/j.maturitas.2009.07.014 · Cited by 584 · see citing works
Lifeworld and system : a critique of functionalist reason
Habermas, J., & McCarthy, T. (1987) · Beacon Press eBooks · Cited by 542 · see citing works
Elderly persons’ perception and acceptance of using wireless sensor networks to assist healthcare
Steele, R., Lo, A., Secombe, C., & Wong, Y. K. (2009) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2009.08.001 · Cited by 508 · see citing works
Barry, C. A., Stevenson, F. A., Britten, N., Barber, N., & Bradley, C. P. (2001) · Social Science & Medicine · doi:10.1016/s0277-9536(00)00351-8 · Cited by 464 · see citing works
Sadri, F. (2011) · ACM Computing Surveys · doi:10.1145/1978802.1978815 · Cited by 365 · see citing works
Henderson, C., Knapp, M., Fernandez, J.-L., Beecham, J., Hirani, S. P., Cartwright, M., Rixon, L., Beynon, M., Rogers, A., Bower, P., et al. (2013) · BMJ · doi:10.1136/bmj.f1035 · Cited by 364 · see citing works
Williams, A. (2002) · Social Science & Medicine · doi:10.1016/s0277-9536(01)00209-x · Cited by 343 · see citing works
Technology Studies to Meet the Needs of People With Dementia and Their Caregivers
Topo, P. (2009) · Journal of Applied Gerontology · doi:10.1177/0733464808324019 · Cited by 332 · see citing works
Ageing-in-place with the use of ambient intelligence technology: Perspectives of older users
van Hoof, J., Kort, H. S. M., Rutten, P. G. S., & Duijnstee, M. S. H. (2011) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2011.02.010 · Cited by 304 · see citing works
Review of ICT-based services for identified unmet needs in people with dementia
Lauriks, S., Reinersmann, A., Van der Roest, H. G., Meiland, F. J. M., Davies, R. J., Moelaert, F., Mulvenna, M. D., Nugent, C. D., & Dröes, R. M. (2007) · Ageing Research Reviews · doi:10.1016/j.arr.2007.07.002 · Cited by 291 · see citing works
Sensor technology for smart homes
Ding, D., Cooper, R. A., Pasquina, P. F., & Pasquina, L. F. (2011) · Maturitas · doi:10.1016/j.maturitas.2011.03.016 · Cited by 272 · see citing works
Zwijsen, S. A., Niemeijer, A. R., & Hertogh, C. M. P. M. (2011) · Aging & Mental Health · doi:10.1080/13607863.2010.543662 · Cited by 266 · see citing works
Designing robots for the elderly: Appearance issue and beyond
Wu, Y.-H., Fassert, C., & Rigaud, A. (2011) · Archives of Gerontology and Geriatrics · doi:10.1016/j.archger.2011.02.003 · Cited by 257 · see citing works
Social, Economic, and Ethical Implications of Ambient Intelligence and Ubiquitous Computing
Bohn, J., Coroamă, V. C., Langheinrich, M., Mattern, F., & Rohs, M. (2005) · Ambient Intelligence · doi:10.1007/3-540-27139-2_2 · Cited by 234 · see citing works
Balancing rights and risks: Conflicting perspectives in the management of wandering in dementia
Robinson, L. A., Hutchings, D., Corner, L., Finch, T. L., Hughes, J. C., Brittain, K., & Bond, J. (2007) · Health Risk & Society · doi:10.1080/13698570701612774 · Cited by 220 · see citing works
Courtney, K. L., Demiris, G., Rantz, M., & Skubic, M. (2008) · Journal of Innovation in Health Informatics · doi:10.14236/jhi.v16i3.694 · Cited by 197 · see citing works
Telemedicine Experience for Chronic Care in COPD
de Toledo, P., Jiménez-Fernández, S., del Pozo, F., Roca, J., Alonso, A., & Hernández, C. (2006) · IEEE Transactions on Information Technology in Biomedicine · doi:10.1109/titb.2005.863877 · Cited by 188 · see citing works
Defining Obtrusiveness in Home Telehealth Technologies: A Conceptual Framework
Hensel, B. K., Demiris, G., & Courtney, K. L. (2006) · Journal of the American Medical Informatics Association · doi:10.1197/jamia.m2026 · Cited by 180 · see citing works
Collecting and analyzing qualitative data: Hermeneutic principles, methods and case examples
Patterson, M. E., & Williams, D. R. (2002) · Cited by 178 · see citing works
Courtney, K. L. (2007) · Methods of Information in Medicine · doi:10.3414/me9104 · Cited by 173 · see citing works
Findings from a participatory evaluation of a smart home application for older adults
Demiris, G., Oliver, D. P., Dickey, G., Skubic, M., & Rantz, M. (2008) · Technology and Health Care · doi:10.3233/thc-2008-16205 · Cited by 169 · see citing works
Ethical challenges of telemedicine and telehealth
KAPLAN, B., & LITEWKA, S. (2008) · Cambridge Quarterly of Healthcare Ethics · doi:10.1017/s0963180108080535 · Cited by 167 · see citing works
Coughlin, J. F., D’Ambrosio, L. A., Reimer, B., & Pratt, M. R. (2007) · Conference proceedings · doi:10.1109/iembs.2007.4352665 · Cited by 167 · see citing works
Privacy versus autonomy: A tradeoff model for smart home monitoring technologies
Townsend, D. I., Knoefel, F. D., & Goubran, R. A. (2011) · Annual International Conference of the IEEE Engineering in Medicine and Biology Society (EMBC) · doi:10.1109/iembs.2011.6091176 · Cited by 153 · see citing works
Niemeijer, A. R., Frederiks, B. J. M., Riphagen, I. I., Legemaate, J., Eefsting, J. A., & Hertogh, C. M. P. M. (2010) · International Psychogeriatrics · doi:10.1017/s1041610210000037 · Cited by 146 · see citing works
Essén, A. (2008) · Social Science & Medicine · doi:10.1016/j.socscimed.2008.03.005 · Cited by 145 · see citing works
Edgar, A. (2006) · Routledge eBooks · doi:10.4324/9780203608715 · Cited by 144 · see citing works
Percival, J., & Hanson, J. (2006) · Critical Social Policy · doi:10.1177/0261018306068480 · Cited by 142 · see citing works
Landau, R., Auslander, G. K., Werner, S., Shoval, N., & Heinik, J. (2010) · Qualitative Health Research · doi:10.1177/1049732309359171 · Cited by 139 · see citing works
Telecare, telehealth and telemedicine
Stowe, S., & Harding, S. (2010) · European Geriatric Medicine · doi:10.1016/j.eurger.2010.04.002 · Cited by 136 · see citing works
Agree, E. M., Freedman, V. A., Cornman, J. C., Wolf, D. A., & Marcotte, J. E. (2005) · The Journals of Gerontology Series B · doi:10.1093/geronb/60.5.s272 · Cited by 134 · see citing works
Mayora, O., Bardram, J. E., Tröster, G., & Bert Arnrich, A. (2009) · Methods of Information in Medicine · doi:10.3414/me09-02-0044 · Cited by 129 · see citing works
Implicit Normativity in Evidence-Based Medicine: A Plea for Integrated Empirical Ethics Research
Molewijk, A. C., Stiggelbout, A. M., Otten, W., Dupuis, H. M., & Kievit, J. (2003) · Health Care Analysis · doi:10.1023/a:1025390030467 · Cited by 125 · see citing works
Freedom and Privacy in Ambient Intelligence
Brey, P. (2005) · Ethics and Information Technology · doi:10.1007/s10676-006-0005-3 · Cited by 111 · see citing works
Welsh, S., Hassiotis, A., O'mahoney, G., & Deahl, M. (2003) · Aging & Mental Health · doi:10.1080/1360786031000150658 · Cited by 109 · see citing works
Practitioners’ perceptions of advertising strategies for digital media
Truong, Y., McColl, R., & Kitchen, P. J. (2010) · International Journal of Advertising · doi:10.2501/s0265048710201439 · Cited by 106 · see citing works
Piloting tele-monitoring in COPD: a mixed methods exploration of issues in design and implementation
Ure, J., Pinnock, H., Hanley, J., Kidd, G., Smith, E. M., Tarling, A., Pagliari, C., Sheikh, A., MacNee, W., & McKinstry, B. (2011) · Primary Care Respiratory Journal · doi:10.4104/pcrj.2011.00065 · Cited by 106 · see citing works
Mahoney, D. F., Purtilo, R., Webbe, F. M., Alwan, M., Bharucha, A. J., Adlam, T. D., Jimison, H. B., Turner, B., & Becker, S. A. (2007) · Alzheimer s & Dementia · doi:10.1016/j.jalz.2007.04.388 · Cited by 98 · see citing works
The Emerging Field of Technoethics
Luppicini, R. (2009) · IGI Global eBooks · doi:10.4018/978-1-60566-022-6.ch001 · Cited by 90 · see citing works
Smart Home Technologies: Insights into Generation-Specific Acceptance Motives
Gaul, S., & Ziefle, M. (2009) · Lecture notes in computer science · doi:10.1007/978-3-642-10308-7_22 · Cited by 89 · see citing works
Using Reality Mining to Improve Public Health and Medicine
Pentland, A., Lazer, D. M. J., Brewer, D. D., & Heibeck, T. (2009) · Studies in health technology and informatics · doi:10.3233/978-1-60750-050-6-93 · Cited by 88 · see citing works
Ethical frontiers of ICT and older users: cultural, pragmatic and ethical issues
McLean, A. (2011) · Ethics and Information Technology · doi:10.1007/s10676-011-9276-4 · Cited by 87 · see citing works
Smart homes for people with neurological disability: State of the art
Gentry, T. (2009) · NeuroRehabilitation (Reading, MA) · doi:10.3233/nre-2009-0517 · Cited by 86 · see citing works
Securing the elderly body: dementia, surveillance, and the politics of “Aging in Place
Kenner, A. M. (2002) · Surveillance & Society · doi:10.24908/ss.v5i3.3423 · Cited by 86 · see citing works
Privacy, identity and security in ambient intelligence: A scenario analysis
Friedewald, M., Vildjiounaite, E., Punie, Y., & Wright, D. (2007) · Telematics and Informatics · doi:10.1016/j.tele.2005.12.005 · Cited by 86 · see citing works
Acceptance of pervasive healthcare systems: A comparison of different implementation concepts
Ziefle, M., & Röcker, C. (2010) · International Conference on Pervasive Computing Technologies for Healthcare · doi:10.4108/icst.pervasivehealth2010.8915 · Cited by 85 · see citing works
“Smart Homes” for Patients at the End of Life
Demiris, G., & Hensel, B. (2009) · Journal of Housing For the Elderly · doi:10.1080/02763890802665049 · Cited by 80 · see citing works
Facing the future: Seeking ethics for everyday surveillance
Lyon, D. (2001) · Ethics and Information Technology · doi:10.1023/a:1012227629496 · Cited by 76 · see citing works
ETHICAL IMPLICATIONS OF LIFESTYLE MONITORING DATA IN AGEING RESEARCH
Bowes, A. M., Dawson, A. S. F., & Bell, D. (2011) · Information Communication & Society · doi:10.1080/1369118x.2010.530673 · Cited by 71 · see citing works
Somatic Surveillance: Corporeal Control through Information Networks
Monahan, T., & Wall, T. (2002) · Surveillance & Society · doi:10.24908/ss.v4i3.3446 · Cited by 68 · see citing works
Gale, N., & Sultan, H. (2013) · Health & Place · doi:10.1016/j.healthplace.2013.01.006 · Cited by 63 · see citing works
Multisensor Fusion in Smartphones for Lifestyle Monitoring
Ganti, R., Srinivasan, S., & Gacic, A. (2010) · doi:10.1109/bsn.2010.10 · Cited by 63 · see citing works
Feenberg, A., Licht, J., Kane, K. P., Moran, K., & Smith, R. A. (1996) · Journal of the Neurological Sciences · doi:10.1016/0022-510x(96)00093-7 · Cited by 59 · see citing works
Ethical Considerations Regarding the Use of Technology for Older Adults: The Case of Telehealth
Demiris, G., Doorenbos, A. Z., & Towle, C. (2009) · Research in Gerontological Nursing · doi:10.3928/19404921-20090401-02 · Cited by 57 · see citing works
Courtney, K. L., Demiris, G., & Hensel, B. K. (2007) · Medical Informatics and the Internet in Medicine · doi:10.1080/14639230701447735 · Cited by 56 · see citing works
Dorsten, A., Sifford, K. S., Bharucha, A. J., Mecca, L. P., & Wactlar, H. D. (2009) · Journal of Empirical Research on Human Research Ethics · doi:10.1525/jer.2009.4.1.25 · Cited by 54 · see citing works
Potential Intrusiveness of Aware Home Technology: Perceptions of Older Adults
Melenhorst, A.-S., Fisk, A. D., Mynatt, E. D., & Rogers, W. A. (2004) · Proceedings of the Human Factors and Ergonomics Society Annual Meeting · doi:10.1177/154193120404800209 · Cited by 52 · see citing works
Wearable health systems: From smart technologies to real applications
Lymberis, A., & Gatzoulis, L. (2006) · doi:10.1109/iembs.2006.260948 · Cited by 46 · see citing works
Landau, R., Werner, S., Auslander, G. K., Shoval, N., & Heinik, J. (2010) · International Psychogeriatrics · doi:10.1017/s1041610210001316 · Cited by 45 · see citing works
Palm, E. (2013) · Health Care Analysis · doi:10.1007/s10728-011-0199-3 · Cited by 44 · see citing works
Ambient intelligence, ethics and privacy
van Hoof, J., Kort, H. S. M., Markopoulos, P., & Soede, M. (2007) · Gerontechnology · doi:10.4017/gt.2007.06.03.005.00 · Cited by 44 · see citing works
Environments for ageing, assistive technology and self-determination: ethical perspectives
Remmers, H. (2010) · Informatics for Health and Social Care · doi:10.3109/17538157.2010.528649 · Cited by 43 · see citing works
Rigby, M. (2007) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2007.03.002 · Cited by 42 · see citing works
Good computing: a pedagogically focused model of virtue in the practice of computing (part 1)
Huff, C., Barnard, L. K., & Frey, W. J. (2008) · Journal of Information Communication and Ethics in Society · doi:10.1108/14779960810916246 · Cited by 42 · see citing works
Kosta, E., Pitkänen, O., Niemelä, M., & Kaasinen, E. (2010) · Science and Engineering Ethics · doi:10.1007/s11948-009-9150-5 · Cited by 41 · see citing works
The ideal application of surveillance technology in residential care for people with dementia
Niemeijer, A. R., Frederiks, B. J. M., Depla, M. F. I. A., Legemaate, J., Eefsting, J. A., & Hertogh, C. M. P. M. (2011) · Journal of Medical Ethics · doi:10.1136/jme.2010.040774 · Cited by 38 · see citing works
Froggatt, K. A., Hockley, J., Parker, D., & Brazil, K. (2010) · Health & Place · doi:10.1016/j.healthplace.2010.11.001 · Cited by 37 · see citing works
Demiris, G. (2009) · Annual International Conference of the IEEE Engineering in Medicine and Biology Society (EMBC) · doi:10.1109/iembs.2009.5333800 · Cited by 36 · see citing works
Medical biometrics in mobile health monitoring
Agrafioti, F., Bui, F. M., & Hatzinakos, D. (2011) · Security and Communication Networks · doi:10.1002/sec.227 · Cited by 32 · see citing works
How to Test Electronic Adherence Monitoring Devices for Use in Daily Life
Bleser, L. D., Geest, S. D., Vincke, B., Ruppar, T. M., Vanhaecke, J., & Dobbels, F. (2011) · CIN Computers Informatics Nursing · doi:10.1097/ncn.0b013e31821a1555 · Cited by 26 · see citing works
Sensor Networks for Continuous Health Monitoring
Neild, I., Heatley, D., Kalawsky, R. S., & Bowman, P. (2004) · BT Technology Journal · doi:10.1023/b:bttj.0000047127.01462.49 · Cited by 25 · see citing works
Some non-technology implications for wider application of robots assisting older people
Tiwari, P., Warren, J., Day, K., & McDonald, B. A. (2010) · ResearchSpace (University of Auckland) · Cited by 21 · see citing works
Monahan, T., & Fisher, J. A. (2010) · International Journal of Technology Assessment in Health Care · doi:10.1017/s0266462310001133 · Cited by 21 · see citing works
Palm, E., Nordgren, A., Verweij, M. F., & Göran, C. (2013) · Studies in health technology and informatics · doi:10.3233/978-1-61499-256-1-105 · Cited by 18 · see citing works
Technology and ethical dilemmas in a medical setting: Privacy, professional autonomy, life and death
Lankshear, G., & Mason, D. (2001) · Ethics and Information Technology · doi:10.1023/a:1012248219018 · Cited by 16 · see citing works
Ethical issues of personal health monitoring: a literature review
Mittelstadt, B., Fairweather, N., Shaw, M., & McBride, N. K. (2011) · Cited by 16 · see citing works
Self-citationRequirements and Ethical Issues for Sensor-Augmented Environments in Elderly Care
Fugger, E., Prazak, B., Hanke, S., & Wassertheurer, S. (2007) · Lecture notes in computer science · doi:10.1007/978-3-540-73279-2_99 · Cited by 15 · see citing works
Data Safety and Monitoring for Research Involving Remote Health Monitoring
Kovach, K. A., Aubrecht, J., Dew, M. A., Myers, B. A., & Dabbs, A. D. (2011) · Telemedicine Journal and e-Health · doi:10.1089/tmj.2010.0219 · Cited by 15 · see citing works
Surveillance at workplace and at home
Vuokko, R. (2008) · Journal of Information Communication and Ethics in Society · doi:10.1108/14779960810866800 · Cited by 14 · see citing works
The Web-Rhetoric of Companies Offering Home-Based Personal Health Monitoring
Nordgren, A. (2011) · Health Care Analysis · doi:10.1007/s10728-011-0174-z · Cited by 14 · see citing works
Personal health monitoring: ethical considerations for stakeholders
Nordgren, A. (2013) · Journal of Information Communication and Ethics in Society · doi:10.1108/jices-06-2013-0015 · Cited by 14 · see citing works
Disappearing for a while - using white lies in pervasive computing
Bagüés, S. A., Zeidler, A., Valdivielso, C. F., & Matias, I. R. (2007) · ACM Workshop on Privacy in the Electronic Society (WPES) · doi:10.1145/1314333.1314349 · Cited by 13 · see citing works
Gammon, D., Christiansen, E. K., & Wynn, R. (2009) · Journal of Medical Ethics · doi:10.1136/jme.2008.027920 · Cited by 12 · see citing works
The Lighthouse Alarm and Locator trial – A pilot study
Melander‐Wikman, A., Jansson, M., Hallberg, J., Mörtberg, C., & Gard, G. E. (2007) · Technology and Health Care · doi:10.3233/thc-2007-15304 · Cited by 11 · see citing works
Puech, M. (2013) · International Journal of Technoethics · doi:10.4018/jte.2013070103 · Cited by 9 · see citing works
The future: Communication in an ambient intelligence environment
Fellbaum, K. (2008) · Technology and Disability · doi:10.3233/tad-2008-20209 · Cited by 7 · see citing works
INTELLECTUAL HANDICAP - ACHIEVEMENT OF POTENTIAL
Page‐Hanify, B. (2010) · Australian Occupational Therapy Journal · doi:10.1111/j.1440-1630.1980.tb01135.x · Cited by 3 · see citing works
Flagged first, then by citations
2 of the 100 references couldn’t be matched to a known paper.
Research works printed but not linked: 2
- Martin, S., Cunningham, C., & Nugent, C. (2007). Ethical Considerations for Integrating Technol- ogy. Alzheimer's Care Today, 8, 251-258. doi: doi:10.1097/01.ALCAT.0000281873.66023. · DOI
- Mittelstadt, B., Fairweather, N. B., McBride, N., & Shaw, M. (2013). Privacy, Risk and Personal Health Monitoring. ETHICOMP 2013 Conference Proceed- ings (pp. 340-351).
Cited by
Sorted by citations
The ethics of big data: current and foreseeable issues in biomedical contexts
Mittelstadt, B. D., & Floridi, L. (2016) · Science and Engineering Ethics · doi:10.1007/s11948-015-9652-2 · Cited by 714 · see citing works
Self-citationExplainable, trustworthy, and ethical machine learning for healthcare: A survey
Rasheed, K., Qayyum, A., Ghaly, M., Al-Fuqaha, A., Razi, A., & Qadir, J. (2022) · Computers in Biology and Medicine · doi:10.1016/j.compbiomed.2022.106043 · Cited by 372 · see citing works
Ethics of the health-related internet of things: a narrative review
Mittelstadt, B. (2017) · Ethics and Information Technology · doi:10.1007/s10676-017-9426-4 · Cited by 154 · see citing works
Self-citationThe Ethics of Big Data: Current and Foreseeable Issues in Biomedical Contexts
Mittelstadt, B., & Floridi, L. (2016) · Law, governance and technology series · doi:10.1007/978-3-319-33525-4_19 · Cited by 161 · see citing works
Self-citationApplication of Ethics for Providing Telemedicine Services and Information Technology
Moghbeli, F., Langarizadeh, M., & Ali, A. (2017) · Medical Archives · doi:10.5455/medarh.2017.71.351-355 · Cited by 129 · see citing works
“There are several countries with very limited internet band width to use the net (50).”
BackgroundThe Limits of Empowerment: How to Reframe the Role of mHealth Tools in the Healthcare Ecosystem
Morley, J., & Floridi, L. (2019) · Science and Engineering Ethics · doi:10.1007/s11948-019-00115-1 · Cited by 112 · see citing works
Scaling Up Research on Drug Abuse and Addiction Through Social Media Big Data
Kim, S., Marsch, L. A., Hancock, J. T., & Das, A. K. (2017) · Journal of Medical Internet Research · doi:10.2196/jmir.6426 · Cited by 94 · see citing works
Owens, J., & Cribb, A. (2017) · Philosophy & Technology · doi:10.1007/s13347-017-0266-2 · Cited by 78 · see citing works
Paraman, P., & Anamalah, S. (2022) · Ai & Society · doi:10.1007/s00146-022-01458-3 · Cited by 50 · see citing works
Designing the Health-related Internet of Things: Ethical Principles and Guidelines
Mittelstadt, B. (2017) · Information · doi:10.3390/info8030077 · Cited by 60 · see citing works
Self-citationEthical Questions in Medical Electronic Adherence Monitoring
Campbell, J. I., Eyal, N., Musiimenta, A., & Haberer, J. (2016) · Journal of general internal medicine · doi:10.1007/s11606-015-3502-4 · Cited by 53 · see citing works
Is there a duty to participate in digital epidemiology?
Mittelstadt, B., Benzler, J., Engelmann, L., Prainsack, B., & Vayena, E. (2018) · Life Sciences Society and Policy · doi:10.1186/s40504-018-0074-1 · Cited by 50 · see citing works
Self-citationSimblett, S. K., Evans, J., Greer, B., Curtis, H., Matcham, F., Radaelli, M., Mulero, P., Arévalo, M. J., Polhemus, A. M., Ferrão, J. C., et al. (2019) · Multiple Sclerosis and Related Disorders · doi:10.1016/j.msard.2019.04.020 · Cited by 36 · see citing works
Remote heart rate monitoring - Assessment of the Facereader rPPg by Noldus
Benedetto, S., Caldato, C., Greenwood, D. C., Bartoli, N., Pensabene, V., & Actis, P. (2019) · PLoS ONE · doi:10.1371/journal.pone.0225592 · Cited by 34 · see citing works
The Ethics of Biomedical ‘Big Data’ Analytics
Mittelstadt, B. (2019) · Philosophy & Technology · doi:10.1007/s13347-019-00344-z · Cited by 31 · see citing works
Self-citationHogle, L. F. (2016) · Law, governance and technology series · doi:10.1007/978-3-319-33525-4_17 · Cited by 28 · see citing works
Near-term ethical challenges of digital twins
Mittelstadt, B. (2021) · Journal of Medical Ethics · doi:10.1136/medethics-2021-107449 · Cited by 26 · see citing works
Self-citationWearables, the Marketplace and Efficiency in Healthcare: How Will I Know That You’re Thinking of Me?
Howard, M. (2021) · Philosophy & Technology · doi:10.1007/s13347-021-00473-4 · Cited by 18 · see citing works
From Individual to Group Privacy in Biomedical Big Data
Mittelstadt, B. (2018) · Cambridge University Press eBooks · doi:10.1017/9781108147972.017 · Cited by 17 · see citing works
Self-citationKerr, J. I., Naegelin, M., Benk, M., von Wangenheim, F., Meins, E., Viganò, E., & Ferrario, A. (2023) · Journal of Medical Internet Research · doi:10.2196/44131 · Cited by 19 · see citing works
Gilmartin, C., Arbe-Barnes, E. H., Diamond, M., Fretwell, S., McGivern, E. J., Vlazaki, M., & Zhu, L. (2018) · Philosophy Ethics and Humanities in Medicine · doi:10.1186/s13010-018-0065-0 · Cited by 17 · see citing works
An Ethical Analysis of Personal Health Monitoring in the UK
Mittelstadt, B. (2018) · ORBIT Journal · doi:10.29297/orbit.v1i3.69 · Cited by 12 · see citing works
Self-citationRemote Technologies and Filial Obligations at a Distance: New Opportunities and Ethical Challenges
Tian, Y., Jotterand, F., & Wangmo, T. (2023) · Asian Bioethics Review · doi:10.1007/s41649-023-00256-3 · Cited by 10 · see citing works
Doing Away with the Agential Bias: Agency and Patiency in Health Monitoring Applications
Wagner, N. (2018) · Philosophy & Technology · doi:10.1007/s13347-018-0313-7 · Cited by 10 · see citing works
Remote Monitoring for Understanding Mechanisms and Prediction in Psychiatry
Gillett, G., & Saunders, K. E. A. (2019) · Current Behavioral Neuroscience Reports · doi:10.1007/s40473-019-00176-3 · Cited by 10 · see citing works
A realisation of ethical concerns with smartphone personal health monitoring apps
Jiya, T. (2016) · ACM SIGCAS Computers and Society · doi:10.1145/2874239.2874285 · Cited by 6 · see citing works
Personal health monitoring in the armed forces – scouting the ethical dimension
Bovens, D., van Baarle, E., & Molewijk, B. C. (2023) · BMC Medical Ethics · doi:10.1186/s12910-023-00899-9 · Cited by 6 · see citing works
Dorji, T., & Wangchuk, P. (2024) · Asian Journal of Ethics in Health and Medicine · doi:10.51847/xv2l2pctu9 · Cited by 4 · see citing works
Analyzing Affordances of Digital Occupational Health Systems
Yassaee, M., & Winter, R. (2017) · Hawaii International Conference on System Sciences (HICSS) · doi:10.24251/hicss.2017.432 · Cited by 4 · see citing works
Development and Presentation of an Ethical Framework for Health and Medical Apps
Tokgöz, P., Eger, H., Funke, S. S., Gutjar, A., Nguyen-Thi, T., & Dockweiler, C. (2019) · Journal of the International Society for Telemedicine and eHealth · doi:10.29086/jisfteh.7.e15 · Cited by 4 · see citing works
Wearable Devices for Long COVID: Prospects, Challenges and Options
Chan, H. Y. (2024) · Asian Bioethics Review · doi:10.1007/s41649-023-00272-3 · Cited by 4 · see citing works
Mbonu, C. C., Kilanko, O., Kilanko, M. B., & Babalola, P. O. (2022) · Green energy and technology · doi:10.1007/978-3-030-95820-6_12 · Cited by 4 · see citing works
Mittelstadt, B., & Floridi, L. (2016) · Law, governance and technology series · doi:10.1007/978-3-319-33525-4_1 · Cited by 3 · see citing works
Self-citationA CO‐LIBERATORY FRAMEWORK FOR BIG DATA
Johnson, M. K., & Robertson, R. S. (2023) · Zygon® · doi:10.1111/zygo.12880 · Cited by 2 · see citing works
Understanding Various IOT healthcares and its Characterization
(2022) · doi:10.46632/eae/1/2/6 · Cited by 2 · see citing works
Ethics of the Health-Related Internet of Things: A Narrative ReviewPreprint
Mittelstadt, B. (2017) · SSRN Electronic Journal · doi:10.2139/ssrn.2932221 · Cited by 2 · see citing works
Self-citationDependence on Digital Medicine in Resource-Limited Settings
Campbell, J. I., Haberer, J. E., Musiimenta, A., & Eyal, N. (2018) · The American Journal of Bioethics · doi:10.1080/15265161.2018.1498949 · Cited by 2 · see citing works
Design Principles for Digital Occupational Health Systems
Yassaee, M. (2017) · Lecture notes in business information processing · doi:10.1007/978-3-319-59336-4_2 · Cited by 5 · see citing works
Campbell, J. I. (2016) · Digital Access to Scholarship at Harvard (DASH) (Harvard University)
(2016) · Elsevier eBooks · doi:10.1016/b978-1-78548-025-6.50015-4
Applied Ethics for Future Managers
Kacetl, J., & Semrádová, I. (2023) · Hradec Economic Days ... · doi:10.36689/uhk/hed/2023-01-027
Farič, N., Contreras, R., Chen, L., Saied, I., Smola, F., Hillston, J. E., Wilkinson, H. A., Lewis, S., & Fleuriot, J. (2025) · doi:10.2196/preprints.84451
Designing Democratic Toolkits for Making Expressive Interactive Physical Prototypes
van Iterson, H. C. (2026) · International Conference on Tangible, Embedded, and Embodied Interaction (TEI) · doi:10.1145/3731459.3779038
Interactive and connected rehabilitation systems for e-health
Tannous, H. (2018) · theses.fr (ABES) · doi:10.70675/90a73d45z3300z439bz9f95zd8bcc6cc0e7d
- Authors
- Mittelstadt, B., Fairweather, B., Shaw, M., & McBride, N.
- Affiliations
- De Montfort University (GB)
- Venue
- International Journal of Technoethics
- Publisher
- IGI Global Scientific Publishing
- Published
- 2014-07-01
- Volume
- 5
- Issue
- 2
- Pages
- 37-60
- ISSN
- 1947-3451 (ISSN-L)
- 1947-346X
- OpenAlex
- W2005467228
- Cited by
- 44
- References
- 100
- Citations by year
- 2026: 1 · 2025: 1 · 2024: 2 · 2023: 5 · 2022: 4 · 2021: 2 · 2019: 6 · 2018: 7 · 2017: 8 · 2016: 6 · 2015: 2
- FWCI
- 5.28
- Type
- journal article
- Language
- ng
- Open access
- green
- philarchive.org
- Licence
- other-oa
- Locations
- International Journal of Technoethics (publishedVersion)
- PhilPapers (PhilPapers Foundation) (submittedVersion, other-oa)
- RePEc: Research Papers in Economics (submittedVersion)
- DMU Open Research Archive (De Montfort University) (submittedVersion)
- PhilPapers (PhilPapers Foundation) (submittedVersion)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics and bioethics in healthcare
- Health Sciences › Health Professions › General Health Professions › Mobile Health and mHealth Applications
- Physical Sciences › Computer Science › Information Systems › Bioethics and Human Rights Issues
- Keywords
- personal health monitoring, ethics of health technology, privacy, patient autonomy, obtrusiveness, stigma, medicalization, social isolation, health care delivery, patient identity, home monitoring devices
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
