Access to Health Information and Support: A Public Highway or a Private Road?

Eng, Thomas R.; Maxfield, Andrew; Patrick, Kevin; Deering, Mary Jo; Ratzan, Scott C.; Gustafson, David H.

doi:10.1001/jama.280.15.1371

Cited by 336Health Literacy and Information AccessibilityICT in Developing CommunitiesDigital Accessibility for Disabilities

Access to Health Information and Support: A Public Highway or a Private Road?

Eng, Thomas R., Maxfield, Andrew, Patrick, Kevin, Deering, Mary Jo, Ratzan, Scott C., Gustafson, David H.·1998·JAMA

DOI 10.1001/jama.280.15.1371

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Abstract

Information and communication technologies may help reduce health disparities through their potential for promoting health, preventing disease, and supporting clinical care for all. Unfortunately, those who have preventable health problems and lack health insurance coverage are the least likely to have access to such technologies. Barriers to access include cost, geographic location, illiteracy, disability, and factors related to the capacity of people to use these technologies appropriately and effectively. A goal of universal access to health information and support is proposed to augment existing initiatives to improve the health of individuals and the public. Both public- and private-sector stakeholders, particularly government agencies and private corporations, will need to collaboratively reduce the gap between the health information "haves" and "have-nots." This will include supporting health information technology access in homes and public places, developing applications for the growing diversity of users, funding research on access-related issues, ensuring the quality of health information and support, enhancing literacy in health and technology, training health information intermediaries, and integrating the concept of universal access to health information and support into health planning processes.

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“there is evidence to suggest that reliance on Web-based interventions may exacerbate health inequalities by excluding those on the “wrong” side of the digital divide.”
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Assessing, Controlling, and Assuring the Quality of Medical Information on the Internet
Silberg, W. M. (1997) · JAMA · doi:10.1001/jama.277.15.1244 · Cited by 2,399 · see citing works
Relationship of Functional Health Literacy to Patients' Knowledge of Their Chronic Disease
Williams, M. V., Baker, D. W., Parker, R. M., & Nurss, J. R. (1998) · Archives of Internal Medicine · doi:10.1001/archinte.158.2.166 · Cited by 1,159 · see citing works
Inadequate Functional Health Literacy Among Patients at Two Public Hospitals
Williams, M. V. (1995) · JAMA · doi:10.1001/jama.1995.03530210031026 · Cited by 1,089 · see citing works
Searching the World Wide Web
Lawrence, S., & Giles, C. L. (1998) · Science · doi:10.1126/science.280.5360.98 · Cited by 975 · see citing works
Bridging the Racial Divide on the Internet
Hoffman, D. L., & Novak, T. P. (1998) · Science · doi:10.1126/science.280.5362.390 · Cited by 450 · see citing works
The health care experience of patients with low literacy
Baker, D. W. (1996) · Archives of Family Medicine · doi:10.1001/archfami.5.6.329 · Cited by 446 · see citing works
The effects of computer-tailored smoking cessation messages in family practice settings.
Strecher, V. J., Kreuter, M. W., den Boer, D.-J., Kobrin, S. C., Hospers, H. J., & Skinner, C. S. (1994) · PubMed · Cited by 417 · see citing works
Patient Reactions to a Program Designed to Facilitate Patient Participation in Treatment Decisions for Benign Prostatic Hyperplasia
Barry, M. J., Fowler, F. J., Mulley, A. G., Henderson, J. V., & Wennberg, J. E. (1995) · Medical Care · doi:10.1097/00005650-199508000-00003 · Cited by 382 · see citing works
An Evidence-Based Approach to Interactive Health Communication A Challenge to Medicine in the Information Age
Robinson, T. N. (1998) · JAMA · doi:10.1001/jama.280.14.1264 · Cited by 311 · see citing works
Communicating with patients who have limited literacy skills. Report of the National Work Group on Literacy and Health.
Weiss, B. D. (1998) · PubMed · Cited by 238 · see citing works
Reaching Seriously At-Risk Populations: Health Interventions in Criminal Justice Settings
Hammett, T. M., Gaiter, J. L., & Crawford, C. (1998) · Health Education & Behavior · doi:10.1177/109019819802500108 · Cited by 174 · see citing works
Dietary Intake Patterns and Sociodemographic Factors in the Atherosclerosis Risk in Communities Study
Shimakawa, T., Sorlie, P. D., Carpenter, M. A., Dennis, B., Tell, G. S., Watson, R. L., & Williams, O. D. (1994) · Preventive Medicine · doi:10.1006/pmed.1994.1133 · Cited by 159 · see citing works
Development and Pilot Evaluation of a Computer-Based Support System for Women with Breast Cancer
Gustafson, D., Wise, M., McTavish, F., Taylor, J. O., Wolberg, W., Stewart, J., Smalley, R., & Bosworth, K. (1993) · Journal of Psychosocial Oncology · doi:10.1300/j077v11n04_05 · Cited by 156 · see citing works
Self-citation
Health care access problems of medically indigent emergency department walk-in patients
Pane, G. A., Farner, M. C., & Salness, K. A. (1991) · Annals of Emergency Medicine · doi:10.1016/s0196-0644(05)80832-7 · Cited by 125 · see citing works
The Emergency Department as a Pathway to Admission for Poor and High-Cost Patients
Stern, R. S. (1991) · JAMA · doi:10.1001/jama.1991.03470160070034 · Cited by 124 · see citing works
Public Access to the Internet
Kahin, B., & Keller, J. H. (1995) · Cited by 103 · see citing works
The use and impact of a computer-based support system for people living with AIDS and HIV infection.
Gustafson, D. H., Hawkins, R. P., Boberg, E. W., Bricker, E., Pingree, S., & Chan, C. (1994) · PubMed Central · Cited by 96 · see citing works
Self-citation
The potential of computers in patient education
Skinner, C. S., Siegfried, J. C., Kegler, M. C., & Strecher, V. J. (1993) · Patient Education and Counseling · doi:10.1016/0738-3991(93)90086-c · Cited by 95 · see citing works
Developers and evaluation of interactive health communication applications
Henderson, J. V., Noell, J. W., Reeves, T. C., Robinson, T. N., & Strecher, V. J. (1999) · American Journal of Preventive Medicine · doi:10.1016/s0749-3797(98)00106-8 · Cited by 85 · see citing works
Consumer health information demand and delivery: implications for libraries.
Deering, M. J., & Harris, J. R. (1996) · PubMed · Cited by 78 · see citing works
Self-citation
The low-income consumer: adjusting the balance of exchange
(1996) · Choice Reviews Online · doi:10.5860/choice.34-0379 · Cited by 77 · see citing works
Electronic self-help and support groups.
Alemi, F., Mosavel, M., Stephens, R., Ghadiri, A., Krishnaswamy, J., & Thakkar, H. (1996) · Medical Care · doi:10.1097/00005650-199610003-00004 · Cited by 67 · see citing works
Perspectives on Organizational Change in the US Medical Care Sector
Fennell, M. L., & Alexander, J. A. (1993) · Annual Review of Sociology · doi:10.1146/annurev.so.19.080193.000513 · Cited by 66 · see citing works
Approaching Equity in Consumer Health Information Delivery: Net Wellness
Morris, T., Guard, J. R., Marine, S. A., Schick, L., Haag, D., Tsipis, G. B., Kaya, B., & Shoemaker, S. (1997) · Journal of the American Medical Informatics Association · doi:10.1136/jamia.1997.0040006 · Cited by 54 · see citing works
Will the disadvantaged ride the information highway? Hopeful answers from a computer‐based health crisis system
Pingree, S., Hawkins, R. P., Gustafson, D. H., Boberg, E. W., Bricker, E., Wise, M. E., Berhe, H., & Hsu, E. (1996) · Journal of Broadcasting & Electronic Media · doi:10.1080/08838159609364357 · Cited by 52 · see citing works
Self-citation
A randomized trial of a telecommunications network for pregnant women who use cocaine.
Alemi, F., Stephens, R., Javalghi, R. G., Dyches, H., Butts, J. M., & Ghadiri, A. (1996) · Medical Care · doi:10.1097/00005650-199610003-00002 · Cited by 48 · see citing works
CHESS: An interactive computer system for women with breast cancer piloted with an under-served population.
Mctavish, F. M., Gustafson, D. H., Owens, B. H., Wise, M. E. J., Taylor, J. O., Apantaku, F. M., Berhe, H., & Thorson, B. (1994) · PubMed Central · Cited by 46 · see citing works
Self-citation
Prenatal alcohol education for low-income women with interactive multimedia
Kinzie, M. B., Schorling, J. B., & Siegel, M. (1993) · Patient Education and Counseling · doi:10.1016/0738-3991(93)90059-6 · Cited by 44 · see citing works
The Future of Quality Measurement and Management in a Transforming Health Care System
Blumenthal, D. (1997) · JAMA · doi:10.1001/jama.1997.03550190090053 · Cited by 44 · see citing works
Policy issues relevant to evaluation of interactive health communication applications
Patrick, K. (1999) · American Journal of Preventive Medicine · doi:10.1016/s0749-3797(98)00103-2 · Cited by 42 · see citing works
Self-citation
Health care providers and purchasers and evaluation of interactive health communication applications
Jimison, H. B. (1999) · American Journal of Preventive Medicine · doi:10.1016/s0749-3797(98)00105-6 · Cited by 36 · see citing works
Personal Empowerment in the Study of Home Internet Use by Low-Income Families
Bier, M. C., Gallo, M. A., Nucklos, E., Sherblom, S. A., & Pennick, M. (1997) · Journal of Research on Computing in Education · doi:10.1080/08886504.1997.10782218 · Cited by 28 · see citing works
A few basic economic facts about research in the medical and related life sciences
Silverstein, S. C., Garrison, H. H., & Heinig, S. J. (1995) · The FASEB Journal · doi:10.1096/fasebj.9.10.7615152 · Cited by 27 · see citing works
Using Interactive Multimedia to Deliver Nutrition Education to Maine's WIC Clients
Carroll, J. M., Stein, C., Byron, M., & Dutram, K. (1996) · Journal of Nutrition Education · doi:10.1016/s0022-3182(96)70011-0 · Cited by 27 · see citing works
The Economic Efficiency of Internet Public Goods
Hallgren, M. M., & McAdams, A. K. (1997) · The MIT Press eBooks · doi:10.7551/mitpress/3867.003.0027 · Cited by 27 · see citing works
GENDER DIFFERENCES in Health and Health Actions Among Community-Dwelling Elders
Musil, C. M. (1998) · Journal of Gerontological Nursing · doi:10.3928/0098-9134-19980201-10 · Cited by 24 · see citing works
Educating Patients at Home
Alemi, F., Stephens, R. C., MUISE, K., Dyches, H., Mosavel, M., & BUTTS, J. (1996) · Medical Care · doi:10.1097/00005650-199610003-00003 · Cited by 21 · see citing works
Use of computer network bulletin board systems by disabled persons.
Hassett, M. E., Lowder, C., & Rutan, D. (1992) · PubMed · Cited by 17 · see citing works
Use of a computer-based health risk appraisal by older adults.
Ellis, L. B. M., Joo, H.-C., & Gross, C. R. (1991) · PubMed · Cited by 13 · see citing works
Computer Integrated Drug Prevention:
Gropper, M., Liraz, Z., Portowicz, D., & Schindler, M. (1996) · Social Work in Health Care · doi:10.1300/j010v22n02_06 · Cited by 12 · see citing works
African American and White Differences in Nutritional Status Among Low-Income Women Attending Public Health Clinics
Liu, T., Soong, S.-J., Wang, X., Wilson, N. P., & Craig, C. B. (1996) · Journal of Health Care for the Poor and Underserved · doi:10.1353/hpu.2010.0392 · Cited by 11 · see citing works
Economic FAQs About the Internet
MacKie–Mason, J. K., & Varian, H. R. (1995) · Journal of Electronic Publishing · doi:10.3998/3336451.0001.110 · Cited by 11 · see citing works
Implementing a Self Care Program
Powell, D. R., Sharp, S. L., Farnell, S. D., & Smith, P. (1997) · AAOHN Journal · doi:10.1177/216507999704500506 · Cited by 9 · see citing works
The Internet and the future of minority health
Yom, S. S. (1996) · JAMA · doi:10.1001/jama.275.9.735 · Cited by 7 · see citing works
Electronic networks, community intermediaries, and the public's health.
The University of North Carolina at Chapel Hill University Libraries (2020) · PubMed · doi:10.17615/y01v-bf95 · Cited by 7 · see citing works
Improving access to knowledge-based health sciences information: early results from a statewide collaborative effort.
McCray, J. C., & Maloney, K. (1997) · PubMed · Cited by 5 · see citing works
Colorectal cancer and cardiac risk reduction using computer-assisted dietary counseling in a low-income minority population.
Watkins, S. A., Hoffman, A., Burrows, R., & Tasker, F. (1994) · PubMed Central · Cited by 5 · see citing works
Health Promotion Communications System
Foran, M., & Campanelli, L. C. (1995) · AAOHN Journal · doi:10.1177/216507999504301102 · Cited by 4 · see citing works
Computers make 'house calls' to patients.
Bergman, R. (1993) · PubMed · Cited by 3 · see citing works

Flagged first, then by citations

Sorted by citations

Literacy and health outcomes: A systematic review of the literature
DeWalt, D. A., Berkman, N. D., Sheridan, S., Lohr, K. N., & Pignone, M. P. (2004) · Journal of General Internal Medicine · doi:10.1111/j.1525-1497.2004.40153.x · Cited by 2,309 · see citing works
Consumer health information seeking on the internet: the state of the art
Cline, R. J. W. (2001) · Health Education Research · doi:10.1093/her/16.6.671 · Cited by 1,708 · see citing works
Trust and Sources of Health Information: The Impact of the Internet and Its Implications for Health Care Providers: Findings From the First Health Information National Trends Survey
Hesse, B. W., Nelson, D. E., Kreps, G. L., Croyle, R. T., Arora, N. K., Rimer, B. K., & Viswanath, K. (2005) · Archives of Internal Medicine · doi:10.1001/archinte.165.22.2618 · Cited by 1,523 · see citing works
Characteristics of online and offline health information seekers and factors that discriminate between them
Cotten, S. R., & Gupta, S. S. (2004) · Social Science & Medicine · doi:10.1016/j.socscimed.2004.02.020 · Cited by 835 · see citing works
Influences, usage, and outcomes of Internet health information searching: Multivariate results from the Pew surveys
Rice, R. E. (2005) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2005.07.032 · Cited by 721 · see citing works
Recent advances: Consumer health informatics
Eysenbach, G. (2000) · BMJ · doi:10.1136/bmj.320.7251.1713 · Cited by 670 · see citing works
Differences in Rural and Urban Health Information Access and Use
Chen, X., Orom, H., Hay, J. L., Waters, E. A., Schofield, E., Li, Y., & Kiviniemi, M. T. (2018) · The Journal of Rural Health · doi:10.1111/jrh.12335 · Cited by 602 · see citing works
Published criteria for evaluating health related web sites: review
Kim, P., Eng, T. R., Deering, M. J., & Maxfield, A. M. (1999) · BMJ · doi:10.1136/bmj.318.7184.647 · Cited by 498 · see citing works
Self-citation
How the internet affects patients' experience of cancer: a qualitative study
Ziébland, S., Chapple, A., Dumelow, C., Evans, J., Prinjha, S., & Rozmovits, L. (2004) · BMJ · doi:10.1136/bmj.328.7439.564 · Cited by 493 · see citing works
Effect of computer support on younger women with breast cancer
Gustafson, D. H., Hawkins, R., Pingree, S., McTavish, F., Arora, N. K., Mendenhall, J., Cella, D. F., Serlin, R. C., Apantaku, F. M., Stewart, J., et al. (2001) · Journal of General Internal Medicine · doi:10.1046/j.1525-1497.2001.016007435.x · Cited by 387 · see citing works
Self-citation
Shortcomings of health information on the Internet
Benigeri, M. (2003) · Health Promotion International · doi:10.1093/heapro/dag409 · Cited by 385 · see citing works
Promoting Health Literacy
McCray, A. T. (2004) · Journal of the American Medical Informatics Association · doi:10.1197/jamia.m1687 · Cited by 377 · see citing works
Social capital and social support on the web: the case of an internet mother site
Drentea, P., & Moren‐Cross, J. L. (2005) · Sociology of Health & Illness · doi:10.1111/j.1467-9566.2005.00464.x · Cited by 370 · see citing works
Use of the Internet as a Health Information Resource Among French Young Adults: Results From a Nationally Representative Survey
Beck, F., Richard, J., Nguyen‐Thanh, V., Montagni, I., Parizot, I., & Renahy, É. (2014) · Journal of Medical Internet Research · doi:10.2196/jmir.2934 · Cited by 363 · see citing works
Internet Use for Health Information Among College Students
Escoffery, C., Miner, K. R., Adame, D. D., Butler, S., McCormick, L. K., & Mendell, E. (2005) · Journal of American College Health · doi:10.3200/jach.53.4.183-188 · Cited by 355 · see citing works
Adolescent Cybersurfing for Health Information
Borzekowski, D. L. G., & Rickert, V. I. (2001) · Archives of Pediatrics and Adolescent Medicine · doi:10.1001/archpedi.155.7.813 · Cited by 345 · see citing works
Consumer Evaluation of the Quality of Online Health Information: Systematic Literature Review of Relevant Criteria and Indicators
Sun, Y., Zhang, Y., Gwizdka, J., & Trace, C. B. (2019) · Journal of Medical Internet Research · doi:10.2196/12522 · Cited by 333 · see citing works
An Evidence-Based Approach to Interactive Health Communication A Challenge to Medicine in the Information Age
Robinson, T. N. (1998) · JAMA · doi:10.1001/jama.280.14.1264 · Cited by 311 · see citing works
Understanding Health Literacy for Strategic Health Marketing: eHealth Literacy, Health Disparities, and the Digital Divide
Bodie, G. D., & Dutta, M. J. (2008) · Health Marketing Quarterly · doi:10.1080/07359680802126301 · Cited by 310 · see citing works
Evidence-based Patient Choice and Consumer health informatics in the Internet age
Eysenbach, G., & Jadad, A. R. (2001) · Journal of Medical Internet Research · doi:10.2196/jmir.3.2.e19 · Cited by 295 · see citing works
The Patient-Physician Relationship in the Internet Age: Future Prospects and the Research Agenda
Gerber, B. S., & Eiser, A. R. (2001) · Journal of Medical Internet Research · doi:10.2196/jmir.3.2.e15 · Cited by 290 · see citing works
Effect of internet support on the long-term maintenance of weight loss
Harvey‐Berino, J., Pintauro, S., Buzzell, P., & Gold, E. C. (2004) · Obesity Research · doi:10.1038/oby.2004.40 · Cited by 283 · see citing works
What do patients with prostate or breast cancer want from an Internet site? A qualitative study of information needs
Rozmovits, L., & Ziébland, S. (2003) · Patient Education and Counseling · doi:10.1016/s0738-3991(03)00116-2 · Cited by 260 · see citing works
Chronic illness and health-seeking information on the Internet
Ayers, S. L., & Kronenfeld, J. J. (2007) · Health An Interdisciplinary Journal for the Social Study of Health Illness and Medicine · doi:10.1177/1363459307077547 · Cited by 256 · see citing works
Health Disparities, Communication Inequalities, and eHealth
Viswanath, K., & Kreuter, M. W. (2007) · American Journal of Preventive Medicine · doi:10.1016/j.amepre.2007.02.012 · Cited by 238 · see citing works
The importance of being expert: the quest for cancer information on the Internet
Ziébland, S. (2004) · Social Science & Medicine · doi:10.1016/j.socscimed.2004.02.019 · Cited by 225 · see citing works
Determinants of Internet use as a preferred source of information on personal health
Lemire, M., Paré, G., Sicotte, C., & HARVEY, C. (2008) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2008.03.002 · Cited by 219 · see citing works
Web-Based Interventions for Behavior Change and Self-Management: Potential, Pitfalls, and Progress
Murray, E. (2012) · Medicine 2.0 · doi:10.2196/med20.1741 · Cited by 219 · see citing works
Use of e-Health Services between 1999 and 2002: A Growing Digital Divide
Hsu, J. (2004) · Journal of the American Medical Informatics Association · doi:10.1197/jamia.m1672 · Cited by 214 · see citing works
Internet use and social support in women with breast cancer.
Fogel, J., Albert, S. M., Schnabel, F. R., Ditkoff, B. A., & Neugut, A. I. (2002) · Health Psychology · doi:10.1037/0278-6133.21.4.398 · Cited by 210 · see citing works
Use of the Internet by Women with Breast Cancer
Fogel, J., Albert, S. M., Schnabel, F. R., Ditkoff, B. A., & Neugut, A. I. (2002) · Journal of Medical Internet Research · doi:10.2196/jmir.4.2.e9 · Cited by 194 · see citing works
A Framework for Characterizing eHealth Literacy Demands and Barriers
Chan, C., & Kaufman, D. R. (2011) · Journal of Medical Internet Research · doi:10.2196/jmir.1750 · Cited by 189 · see citing works
Utilization of Internet Technology by Low-Income Adults: The Role of Health Literacy, Health Numeracy, and Computer Assistance
Jensen, J. D., King, A. J., Davis, L. A., & Guntzviller, L. M. (2010) · Journal of Aging and Health · doi:10.1177/0898264310366161 · Cited by 181 · see citing works
Examining Health Information–Seeking Behaviors of Older Adults
CHAUDHURI, S., LE, T., WHITE, C., THOMPSON, H., & DEMIRIS, G. (2013) · CIN: Computers, Informatics, Nursing · doi:10.1097/01.ncn.0000432131.92020.42 · Cited by 175 · see citing works
Internet-based Patient Self-care: The Next Generation of Health Care Delivery
Forkner-Dunn, J. (2003) · Journal of Medical Internet Research · doi:10.2196/jmir.5.2.e8 · Cited by 162 · see citing works
Barriers to information access, perceived health competence, and psychosocial health outcomes: test of a mediation model in a breast cancer sample
Arora, N. K., Johnson, P., Gustafson, D. H., McTavish, F., Hawkins, R. P., & Pingree, S. (2002) · Patient Education and Counseling · doi:10.1016/s0738-3991(01)00170-7 · Cited by 160 · see citing works
Self-citation
Health information seeking on the Internet: a double divide? Results from a representative survey in the Paris metropolitan area, France, 2005–2006
Renahy, É., Parizot, I., & Chauvin, P. (2008) · BMC Public Health · doi:10.1186/1471-2458-8-69 · Cited by 159 · see citing works
Diffusion of Social Media Among Public Relations Practitioners in Health Departments Across Various Community Population Sizes
Avery, E. J., Lariscy, R. W., Amador, E., Ickowitz, T., Primm, C., & Taylor, A. R. (2010) · Journal of Public Relations Research · doi:10.1080/10627261003614427 · Cited by 155 · see citing works
Information Gathering Over Time by Breast Cancer Patients
Satterlund, M., McCaul, K. D., & Sandgren, A. K. (2003) · Journal of Medical Internet Research · doi:10.2196/jmir.5.3.e15 · Cited by 149 · see citing works
Designing websites for persons with cognitive deficits: Design and usability of a psychoeducational intervention for persons with severe mental illness.
Rotondi, A. J., Sinkule, J., Haas, G. L., Spring, M. B., Litschge, C. M., Newhill, C. E., Ganguli, R., & ANDERSON, C. M. (2007) · Psychological Services · doi:10.1037/1541-1559.4.3.202 · Cited by 148 · see citing works
Preferences for self-management support: Findings from a survey of diabetes patients in safety-net health systems
Sarkar, U., Piette, J. D., Gonzales, R., Lessler, D. S., Chew, L. D., Reilly, B. M., Johnson, J. L., Brunt, M., Huang, J. C., Regenstein, M., et al. (2007) · Patient Education and Counseling · doi:10.1016/j.pec.2007.09.008 · Cited by 148 · see citing works
A Historical Overview of Health Disparities and the Potential of eHealth Solutions
Gibbons, M. C. (2005) · Journal of Medical Internet Research · doi:10.2196/jmir.7.5.e50 · Cited by 137 · see citing works
The role of e-health and consumer health informatics for evidence-based patient choice in the 21st century
Eysenbach, G., & Diepgen, T. L. (2001) · Clinics in Dermatology · doi:10.1016/s0738-081x(00)00202-9 · Cited by 132 · see citing works
Health information seeking and use outside of the medical encounter: Is it associated with race and ethnicity?
Rooks, R. N., Wiltshire, J. C., Elder, K. T., BeLue, R., & Gary, L. C. (2011) · Social Science & Medicine · doi:10.1016/j.socscimed.2011.09.040 · Cited by 124 · see citing works
Internet Usage Among Women with Breast Cancer: An Exploratory Study
Pereira, J. L., Koski, S. L., Hanson, J., Bruera, E. D., & Mackey, J. R. (2000) · Clinical Breast Cancer · doi:10.3816/cbc.2000.n.013 · Cited by 124 · see citing works
What Predicts Patients' Interest in the Internet as a Health Resource in Primary Care in England?
Mead, N., Varnam, R., Rogers, A. E., & Roland, M. O. (2003) · Journal of Health Services Research & Policy · doi:10.1177/135581960300800108 · Cited by 120 · see citing works
Patients’ perspectives of the doctor–patient relationship and information giving across a range of literacy levels
Shaw, A., Ibrahim, S., Reid, F., USSHER, M. H., & Rowlands, G. (2008) · Patient Education and Counseling · doi:10.1016/j.pec.2008.09.026 · Cited by 118 · see citing works
Questionnaire survey of California consumers' use and rating of sources of health care information including the Internet.
Pennbridge, J., Moya, R., & Rodrigues, L. (1999) · Europe PMC (PubMed Central) · Cited by 109 · see citing works
Review: Disparities in Long-Term Care
Konetzka, R. T., & Werner, R. M. (2009) · Medical Care Research and Review · doi:10.1177/1077558709331813 · Cited by 107 · see citing works
eHealth Technology and Internet Resources
Cashen, M., Dykes, P. C., & Gerber, B. S. (2004) · The Journal of Cardiovascular Nursing · doi:10.1097/00005082-200405000-00010 · Cited by 103 · see citing works
Health care consumer's use and trust of health information sources
Smith, D. L. (2011) · Journal of Communications In Healthcare · doi:10.1179/1753807611y.0000000010 · Cited by 104 · see citing works
Racial/ethnic differences and potential psychological benefits in use of the internet by women with breast cancer
Fogel, J., Albert, S. M., Schnabel, F. R., Ditkoff, B. A., & Neugut, A. I. (2002) · Psycho-Oncology · doi:10.1002/pon.617 · Cited by 103 · see citing works
Examining Associations between Health Information Seeking Behavior and Adult Education Status in the U.S.: An Analysis of the 2012 PIAAC Data
Feinberg, I. Z., Frijters, J. C., Johnson‐Lawrence, V., Greenberg, D., Nightingale, E., & Moodie, C. (2016) · PLoS ONE · doi:10.1371/journal.pone.0148751 · Cited by 98 · see citing works
Determinants of the frequency of online health information seeking: Results of a Web-based survey conducted in France in 2007
Renahy, É., Parizot, I., & Chauvin, P. (2010) · Informatics for Health and Social Care · doi:10.3109/17538150903358784 · Cited by 101 · see citing works
Health information for patients: time to look beyond patient information leaflets
Colledge, A., Car, J., Donnelly, A., & Majeed, A. (2008) · Journal of the Royal Society of Medicine · doi:10.1258/jrsm.2008.080149 · Cited by 101 · see citing works
Internet Use Among People Living with HIV/AIDS: Association of Health Information, Health Behaviors, and Health Status
Kalichman, S. C., Benotsch, E. G., Weinhardt, L. S., Austin, J. A., & Luke, W. (2002) · AIDS Education and Prevention · doi:10.1521/aeap.14.1.51.24335 · Cited by 95 · see citing works
‘With woman’ philosophy: examining the evidence, answering the questions
Carolan, M. C., & HODNETT, E. D. (2007) · Nursing Inquiry · doi:10.1111/j.1440-1800.2007.00360.x · Cited by 94 · see citing works
Interactive Multimedia and Risk Communication
Strecher, V. J., Greenwood, T., Wang, C., & Dumont, D. (1999) · JNCI Monographs · doi:10.1093/oxfordjournals.jncimonographs.a024188 · Cited by 92 · see citing works
Interactive Behavior Change Technology to Support Diabetes Self-Management
Piette, J. D. (2007) · Diabetes Care · doi:10.2337/dc07-1046 · Cited by 90 · see citing works
Information literacy—what it is about?
Saranto, K., & Hovenga, E. J. S. (2004) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2004.03.002 · Cited by 87 · see citing works
The Internet and Psychoactive Substance Use Among Innovative Drug Users
Boyer, E. W., Shannon, M. W., & Hibberd, P. L. (2005) · PEDIATRICS · doi:10.1542/peds.2004-1199 · Cited by 87 · see citing works
Uncertainty, responsibility, and the evolution of the physician/patient relationship
Henry, M. S. (2006) · Journal of Medical Ethics · doi:10.1136/jme.2005.013987 · Cited by 87 · see citing works
Cell phone disconnection disrupts access to healthcare and health resources: A technology maintenance perspective
Gonzales, A. L., Ems, L., & Suri, V. R. (2014) · New Media & Society · doi:10.1177/1461444814558670 · Cited by 86 · see citing works
Parents of Deaf Children Seeking Hearing Loss-Related Information on the Internet: the Australian Experience
Porter, A., & Edirippulige, S. (2007) · The Journal of Deaf Studies and Deaf Education · doi:10.1093/deafed/enm009 · Cited by 85 · see citing works
Unmet psychosocial needs of Pennsylvanians with cancer: 1986–2005
Barg, F. K., Cronholm, P. F., Straton, J. B., Keddem, S., Knott, K., Grater, J., Houts, P., & Palmer, S. C. (2007) · Cancer · doi:10.1002/cncr.22820 · Cited by 84 · see citing works
Internet Breast Health Information Use and Coping among Women with Breast Cancer
Fogel, J. (2004) · CyberPsychology & Behavior · doi:10.1089/109493104322820129 · Cited by 84 · see citing works
Evaluation of the quality and contents of diabetes mellitus patient education on Internet
Thakurdesai, P. A., Kole, P. L., & Pareek, R. (2004) · Patient Education and Counseling · doi:10.1016/j.pec.2003.04.001 · Cited by 83 · see citing works
Genome-Based Health Literacy: A New Challenge for Public Health Genomics
Syurina, E. V., Branković, I., Probst-Hensch, N. M., & Brand, A. M. (2011) · Public Health Genomics · doi:10.1159/000324238 · Cited by 83 · see citing works
Unweaving the Web: An Exploratory Study of Low-Literate Adults' Navigation Skills on the World Wide Web
Zarcadoolas, C., Blanco, M., Boyer, J. F., & Pleasant, A. (2002) · Journal of Health Communication · doi:10.1080/10810730290088157 · Cited by 82 · see citing works
Learning Needs of Postpartum Women: Does Socioeconomic Status Matter?
Sword, W. A., & Watt, S. (2005) · Birth · doi:10.1111/j.0730-7659.2005.00350.x · Cited by 77 · see citing works
Patients' Interest in Reading Their Medical Record
Fowles, J. B., Kind, A., Craft, C. E., Kind, E. A., Mandel, J. L., & Adlis, S. A. (2004) · Archives of Internal Medicine · doi:10.1001/archinte.164.7.793 · Cited by 75 · see citing works
Concepts of access for people with learning difficulties: towards a shared understanding
Nind, M., & Seale, J. (2009) · Disability & Society · doi:10.1080/09687590902789446 · Cited by 74 · see citing works
Obituary Listing
(1998) · JAMA · doi:10.1001/jama.280.18.1636 · Cited by 74 · see citing works
Patients' Reasons for Refraining from Discussing Internet Health Information with Their Healthcare Providers
Imes, R. S., Bylund, C. L., Sabee, C. M., Routsong, T. R., & Sanford, A. A. (2008) · Health Communication · doi:10.1080/10410230802460580 · Cited by 73 · see citing works
Stroke literacy in Central Harlem
Willey, J. Z., Williams, O. A., & Boden-Albala, B. M. (2009) · Neurology · doi:10.1212/wnl.0b013e3181c51a7d · Cited by 71 · see citing works
Perceptions of cancer‐related information among cancer survivors: A report from the American Cancer Society's Studies of Cancer Survivors
McInnes, D. K., Cleary, P. D., Stein, K., Ding, L., Mehta, C. C., & Ayanian, J. Z. (2008) · Cancer · doi:10.1002/cncr.23713 · Cited by 70 · see citing works
An Exploratory Study of Predictors of Participation in a Computer Support Group for Women With Breast Cancer
Shaw, B. R., Hawkins, R. P., Arora, N., Mctavish, F. M., Pingree, S., & Gustafson, D. H. (2006) · CIN Computers Informatics Nursing · doi:10.1097/00024665-200601000-00007 · Cited by 67 · see citing works
Self-citation
The Evolution and Advancement of Health Communication Inquiry
Kreps, G. L. (2001) · Annals of the International Communication Association · doi:10.1080/23808985.2001.11678988 · Cited by 62 · see citing works
Online palliative care and oncology patient education resources through Google: Do they meet national health literacy recommendations?
Prabhu, A. V., Crihalmeanu, T., Hansberry, D. R., Agarwal, N., Glaser, C., Clump, D. A., Heron, D. E., & Beriwal, S. (2017) · Practical Radiation Oncology · doi:10.1016/j.prro.2017.01.013 · Cited by 63 · see citing works
Web-Based Symptom Management for Women With Recurrent Ovarian Cancer: A Pilot Randomized Controlled Trial of the WRITE Symptoms Intervention
Donovan, H. S., Ward, S. E., Sereika, S. M., Knapp, J. E., Sherwood, P. R., Bender, C. M., Edwards, R. P., Fields, M. M., & Ingel, R. (2013) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2013.04.005 · Cited by 62 · see citing works
A systematic critique of diabetes on the world wide web for patients and their physicians
Bedell, S., Agrawal, A., & Petersen, L. E. (2004) · Int. J. Medical Informatics · doi:10.1016/j.ijmedinf.2004.04.011 · Cited by 70 · see citing works
Leveraging Quality Improvement to Achieve Equity in Health Care
Green, A. R., Tan‐McGrory, A., Cervantes, M. C., & Betancourt, J. R. (2010) · The Joint Commission Journal on Quality and Patient Safety · doi:10.1016/s1553-7250(10)36065-x · Cited by 62 · see citing works
Testing the Usability of Two Automated Home-Based Patient-Management Systems
Farzanfar, R., Finkelstein, J., & Friedman, R. H. (2004) · Journal of Medical Systems · doi:10.1023/b:joms.0000023297.50379.3c · Cited by 61 · see citing works
Reproductive knowledge and patient education needs among Indonesian women infertility patients attending three fertility clinics
Bennett, L. R., Wiweko, B., Bell, L., Shafira, N., Pangestu, M., Adayana, I. B. P., Hinting, A., & Armstrong, G. (2014) · Patient Education and Counseling · doi:10.1016/j.pec.2014.11.016 · Cited by 60 · see citing works
Accessibility of Web Sites Containing Colorectal Cancer Information to Adults with Limited Literacy (United States)
Kaphingst, K. A., Zanfini, C. J., & Emmons, K. M. (2006) · Cancer Causes & Control · doi:10.1007/s10552-005-5116-3 · Cited by 60 · see citing works
Spatial clusters of autism births and diagnoses point to contextual drivers of increased prevalence
Mazumdar, S., Winter, A. S., Liu, K., & Bearman, P. (2012) · Social Science & Medicine · doi:10.1016/j.socscimed.2012.11.032 · Cited by 59 · see citing works
Public Librarians as a Resource for Promoting Health: Results from the Health for Everyone in Libraries Project (HELP) Librarian Survey
Linnan, L. A., Wildemuth, B. M., Gollop, C. J., Hull, P., Silbajoris, C., & Monnig, R. (2004) · Health Promotion Practice · doi:10.1177/1524839903258018 · Cited by 59 · see citing works
Collectivistic health promotion tools: Accounting for the relationship between culture, food and nutrition
Parker, A. G., & Grinter, R. E. (2013) · International Journal of Human-Computer Studies · doi:10.1016/j.ijhcs.2013.08.008 · Cited by 57 · see citing works
Examination of Media Channels and Types as Health Information Sources for Adolescents: Comparisons for Black/White, Male/Female, Urban/Rural
Lariscy, R. W., Reber, B. H., & Paek, H. (2010) · Journal of Broadcasting & Electronic Media · doi:10.1080/08838150903550444 · Cited by 58 · see citing works
Using Patient-Generated Health Data From Mobile Technologies for Diabetes Self-Management Support
Nundy, S., Lu, C.-Y. E., Hogan, P. C., Mishra, A., & Peek, M. E. (2014) · Journal of Diabetes Science and Technology · doi:10.1177/1932296813511727 · Cited by 58 · see citing works
Health education and the digital divide: building bridges and filling chasms
Bernhardt, J. M. (2000) · Health Education Research · doi:10.1093/her/15.5.527 · Cited by 58 · see citing works
Use of the Internet as a Resource for Consumer Health Information: Results of the Second Osteopathic Survey of Health Care in America (OSTEOSURV-II)
Licciardone, J. C., Smith‐Barbaro, P., & Coleridge, S. T. (2001) · Journal of Medical Internet Research · doi:10.2196/jmir.3.4.e31 · Cited by 57 · see citing works
Use of Computer Kiosks for Breast Cancer Education in Five Community Settings
Kreuter, M. W., Black, W. J., Friend, L., Booker, A. C., Klump, P., Bobra, S., & Holt, C. L. (2006) · Health Education & Behavior · doi:10.1177/1090198106290795 · Cited by 55 · see citing works
Ethical issues in Internet research.
Hoerger, M. P., & Currell, C. (2011) · American Psychological Association eBooks · doi:10.1037/13272-018 · Cited by 55 · see citing works
Consumer Health Informatics
Lewis, D. L., & Friedman, C. P. (2000) · Computers in health care · doi:10.1007/978-1-4757-3252-8_24 · Cited by 54 · see citing works
Patterns of Internet use and impact on patients with melanoma
Sabel, M. S., Strecher, V. J., Schwartz, J. L., Wang, T. S., Karimipour, D. J., Orringer, J. S., Johnson, T. M., & Bichakjian, C. K. (2005) · Journal of the American Academy of Dermatology · doi:10.1016/j.jaad.2004.10.874 · Cited by 53 · see citing works
A Community-Based Participatory Health Information Needs Assessment to Help Eliminate Diabetes Information Disparities
Carlson, B. A., Neal, D., Magwood, G., Jenkins, C. H., King, M. G., & Hossler, C. L. (2006) · Health Promotion Practice · doi:10.1177/1524839906288694 · Cited by 51 · see citing works
Improving the effectiveness of adjuvant psychological treatment for women with breast cancer: The feasibility of providing online support
Owen, J. E., Klapow, J. C., Roth, D. L., Nabell, L. M., & Tucker, D. C. (2003) · Psycho-Oncology · doi:10.1002/pon.733 · Cited by 51 · see citing works
As causas sociais das iniqüidades em saúde no Brasil
da Saúde, C. N. S. D. S. (2008) · Editora FIOCRUZ eBooks · doi:10.7476/9788575415917 · Cited by 49 · see citing works
Measuring the Impact of a Moving Target: Towards a Dynamic Framework for Evaluating Collaborative Adaptive Interactive Technologies
O’Grady, L., Witteman, H., Bender, J. L., Urowitz, S., Wiljer, D., & Jadad, A. R. (2009) · Journal of Medical Internet Research · doi:10.2196/jmir.1058 · Cited by 43 · see citing works

Authors: Eng, T. R., Maxfield, A., Patrick, K., Deering, M. J., Ratzan, S. C., & Gustafson, D. H.
Affiliations: United States Department of Health and Human Services (US)
ORCID: Patrick, Kevin
Ratzan, Scott C.
Gustafson, David H.
Venue: JAMA
Publisher: American Medical Association (AMA)
Published: 1998-10-21
Volume: 280
Issue: 15
Pages: 1371
ISSN: 0002-9955 (ISSN-L)
0098-7484
DOI: 10.1001/jama.280.15.1371
OpenAlex: W2038610585
Cited by: 335
References: 49
Citations by year: 2026: 2 · 2025: 3 · 2024: 4 · 2023: 3 · 2022: 5 · 2021: 5 · 2020: 3 · 2019: 9 · 2018: 11 · 2017: 9 · 2016: 18 · 2015: 7 · 2014: 18 · 2013: 18 · 2012: 6
FWCI: 33.79
Type: journal article
Language: en
Open access: closed
Locations: JAMA (publishedVersion)
PubMed (publishedVersion)
Topics: Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
Physical Sciences › Computer Science › Information Systems › ICT in Developing Communities
Social Sciences › Human Factors and Ergonomics › Digital Accessibility for Disabilities
Keywords: health information technology, health information access, health disparities, digital divide, health literacy, health insurance coverage, technology access barriers, health planning, universal access, disease prevention
MeSH terms: Delivery of Health Care, Health Services Needs and Demand, Medical Informatics, Public Health, Private Sector, Public Sector, Internet

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Access to Health Information and Support: A Public Highway or a Private Road?

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