Critical issues in transition and survivorship for adolescents and young adults with cancers
Abstract
The majority of children, adolescents, and young adults diagnosed with cancer will become long‐term survivors with many potential years of life ahead of them. Their journey from health through diagnosis and treatment to survivorship involves multiple transitions. Transitional services that should be available throughout this journey include health‐related education, health surveillance and screening, management of cancer‐related complications, and psychosocial support relevant to their developmental needs. Survivors require lifelong care that focuses not only on the medical risks arising from their cancer therapy, but also the psychosocial, educational, and vocational implications of surviving cancer. Because many community health care providers lack familiarity with the health risks associated with childhood or adolescent/young adult cancer, survivors must have sufficient health knowledge to advocate for risk‐based cancer‐related follow‐up; the provision of a treatment summary and care plan at the conclusion of their cancer therapy is an important tool for facilitating this process. The availability of resources for survivors varies by geography, health care system, and survivor characteristics. Adolescents and young adults who receive their care outside of a pediatric cancer center have particularly limited access. The limitations in cancer center resources (along with survivor preference) strongly suggest that the long‐term care of survivors will need to be shared between the cancer centers and primary care providers in survivors' communities. Cancer 2011;117(10 suppl):2335–41. © 2011 American Cancer Society.
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While symptom management has been identified as a significant issue in young adult cancer survivors' transitions to survivorship, their symptom management needs largely go unmet.
“While symptom management has been identified as a significant issue in YA’s transitions to survivorship [23, 24], YA’s symptom management needs largely go unmet.”
From Improving symptom management for survivors of young adult cancer: rationale and study protocol for a pilot randomized controlled trial (2024) · cites this paper as [23]
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- Authors
- Nathan, P. C., Hayes‐Lattin, B., Sisler, J. J., & Hudson, M. M.
- Affiliations
- Hospital for Sick Children (CA)
- Oregon Health & Science University (US)
- CancerCare Manitoba (CA)
- St. Jude Children's Research Hospital (US)
- Corresponding author
- Nathan, Paul C.
- Venue
- Cancer
- Publisher
- Wiley
- Published
- 2011-04-26
- Volume
- 117
- Issue
- S10
- Pages
- 2335-2341
- ISSN
- 0008-543X (ISSN-L)
- 1097-0142
- OpenAlex
- W2012419679
- Cited by
- 179
- References
- 37
- Citations by year
- 2026: 8 · 2025: 7 · 2024: 10 · 2023: 13 · 2022: 15 · 2021: 8 · 2020: 13 · 2019: 10 · 2018: 16 · 2017: 13 · 2016: 21 · 2015: 17 · 2014: 9 · 2013: 9 · 2012: 7
- FWCI
- 7.97
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Cancer (publishedVersion)
- PubMed (publishedVersion)
- Funders
- Canadian Institutes of Health Research
- Topics
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Childhood Cancer Survivors' Quality of Life
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
- Keywords
- adolescent and young adult cancer, cancer survivorship, care transitions, long-term follow-up, cancer-related complications, psychosocial support, primary care, health education
- MeSH terms
- Adolescent, Delivery of Health Care, Health Services Needs and Demand, Humans, Mental Health, Neoplasms, Patient Education as Topic, Reproduction, Social Behavior, Health Behavior, Survivors, Sexuality, Young Adult
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