Is there equity in initial access to formal dementia care in Europe? The Andersen Model applied to the Actifcare cohort
Open accessAbstract
OBJECTIVES: In the current study, the Anderson model is used to determine equitable access to dementia care in Europe. Predisposing, enabling, and need variables were investigated to find out whether there is equitable access to dementia-specific formal care services. Results can identify which specific factors should be a target to improve access. METHODS: A total of 451 People with middle-stage dementia and their informal carers from eight European countries were included. At baseline, there was no use of formal care yet, but people were expected to start using formal care within the next year. Logistic regressions were carried out with one of four clusters of service use as dependent variables (home social care, home personal care, day care, admission). The independent variables (predisposing, enabling, and need variables) were added to the regression in blocks. RESULTS: The most significant predictors for the different care clusters are disease severity, a higher sum of (un)met needs, hours spent on informal care, living alone, age, region of residence, and gender. CONCLUSION: The Andersen model provided for this cohort the insight that (besides need factors) the predisposing variables region of residence, gender, and age do play a role in finding access to care. In addition, it showed us that the numbers of hours spent on informal care, living alone, needs, and disease severity are also important predictors within the model's framework. Health care professionals should pay attention to these predisposing factors to ensure that they do not become barriers for those in need for care.
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
Such variations can exist due to the social gradient in wider determinants of health, differences in local funding and service equity, the make-up of local healthcare systems and regional differences in population composition.
“Such variations can exist due to the social gradient in wider determinants of health, differences in local funding and service equity, the make-up of local healthcare systems and regional differences in population composition [34,35,36,37].”
From The Impact of demographic, socio-economic and geographic factors on mortality risk among people living with dementia in England (2002–2016) (2021) · cites this paper as [36]
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Cites
Folstein, M. F., Folstein, S. E., & McHugh, P. R. (1975) · Journal of Psychiatric Research · doi:10.1016/0022-3956(75)90026-6 · Cited by 88,282 · see citing works
Hirono, N., Mori, E., Ikejiri, Y., Imamura, T., Shimomura, T., Hashimoto, M., Yamashita, H., & Ikeda, M. (1997) · PubMed · Cited by 21,010 · see citing works
Kok, J. S., Berg, I. J., & Scherder, E. J. A. (2013) · Dementia and Geriatric Cognitive Disorders Extra · doi:10.1159/000353441 · Cited by 20,589 · see citing works
Older Adults' Reasons for Using Technology while Aging in Place
Peek, S. T. M., Luijkx, K. G., Rijnaard, M. D., Nieboer, M. E., van der Voort, C. S., Aarts, S., van Hoof, J., Vrijhoef, H. J., & Wouters, E. (2015) · Gerontology · doi:10.1159/000430949 · Cited by 19,803 · see citing works
Sensitivity and False Alarm Rate of a Fall Sensor in Long-Term Fall Detection in the Elderly
Kangas, M., Korpelainen, R., Vikman, I., Nyberg, L., & Jämsä, T. J. (2014) · Gerontology · doi:10.1159/000362720 · Cited by 19,003 · see citing works
Assessment of Older People: Self-Maintaining and Instrumental Activities of Daily Living
Lawton, M. P., & Brody, E. M. (1969) · The Gerontologist · doi:10.1093/geront/9.3_part_1.179 · Cited by 18,540 · see citing works
Assessment of older people: self-maintaining and instrumental activities of daily living.
Lawton, M., & Brody, E. M. (1969) · The gerontologist · doi:10.1097/00006199-197005000-00029 · Cited by 18,276 · see citing works
The Clinical Dementia Rating (CDR): Current version and scoring rules
Morris, J. C. (1993) · Neurology · doi:10.1212/wnl.43.11.2412-a · Cited by 9,882 · see citing works
Revisiting the Behavioral Model and Access to Medical Care: Does it Matter?
Andersen, R. M. (1995) · Journal of Health and Social Behavior · doi:10.2307/2137284 · Cited by 9,831 · see citing works
Prevalence of frailty in community-dwelling older persons: a systematic review
Collard, R. M., Boter, H., Schoevers, R. A., & Oude Voshaar, R. C. (2012) · Journal of the American Geriatrics Society · doi:10.1111/j.1532-5415.2012.04054.x · Cited by 3,073 · see citing works
The worldwide costs of dementia 2015 and comparisons with 2010
Wimo, A., Guerchet, M., Ali, G., Wu, Y., Prina, A. M., Winblad, B., Jönsson, L., Liu, Z., & Prince, M. (2017) · Alzheimer's & Dementia · doi:10.1016/j.jalz.2016.07.150 · Cited by 1,066 · see citing works
Self-citationInequalities in access to medical care by income in developed countries
van Doorslaer, E. K. A. (2006) · Canadian Medical Association Journal · doi:10.1503/cmaj.050584 · Cited by 956 · see citing works
Staging Dementia Using Clinical Dementia Rating Scale Sum of Boxes Scores
O’Bryant, S. E. (2008) · Archives of Neurology · doi:10.1001/archneur.65.8.1091 · Cited by 885 · see citing works
Equity of access to health care services:
Goddard, M., & Smith, P. (2001) · Social Science & Medicine · doi:10.1016/s0277-9536(00)00415-9 · Cited by 667 · see citing works
Predictors of nursing home admission for persons with dementia
Gaugler, J. E., Yu, F., Krichbaum, K., & Wyman, J. F. (2009) · Medical Care · doi:10.1097/mlr.0b013e31818457ce · Cited by 617 · see citing works
Equity of access to health care: outlining the foundations for action
Oliver, A., & Mossialos, E. A. (2004) · Journal of Epidemiology & Community Health · doi:10.1136/jech.2003.017731 · Cited by 507 · see citing works
Why caregivers of people with dementia and memory loss don't use services
Brodaty, H., Thomson, C., Thompson, C. L., & Fine, M. D. (2005) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.1322 · Cited by 486 · see citing works
Prediction of Institutionalisation in Dementia
Luppa, M., Luck, T., Brähler, E., König, H., & Riedel-Heller, S. G. (2008) · Dementia and Geriatric Cognitive Disorders · doi:10.1159/000144027 · Cited by 298 · see citing works
Gaugler, J. E., Kane, R. L., Kane, R. L., & Newcomer, R. (2005) · The Gerontologist · doi:10.1093/geront/45.2.177 · Cited by 290 · see citing works
Predictors of health and human services use by persons with dementia and their family caregivers
Toseland, R. W., McCallion, P., Gerber, T., & Banks, S. (2002) · Social Science & Medicine · doi:10.1016/s0277-9536(01)00240-4 · Cited by 192 · see citing works
Application of Resource Utilization in Dementia (RUD) instrument in a global setting
Wimo, A. B., Gustavsson, A., Jönsson, L., Winblad, B. G., Hsu, M., & Gannon, B. (2012) · Alzheimer s & Dementia · doi:10.1016/j.jalz.2012.06.008 · Cited by 179 · see citing works
Self-citationPhillipson, L., Jones, S. C., & Magee, C. (2013) · Health & Social Care in the Community · doi:10.1111/hsc.12036 · Cited by 118 · see citing works
Kerpershoek, L., de Vugt, M. E., Wolfs, C. A. G., Woods, B. T., Jelley, H., Orrell, M. W., Stephan, A., Bieber, A., Meyer, G., Selbæk, G., et al. (2017) · Aging & Mental Health · doi:10.1080/13607863.2017.1390732 · Cited by 90 · see citing works
Self-citationPredictive Factors for the Objective Burden of Informal Care in People With Dementia
Wolfs, C. A. G., Kessels, A. G. H., Severens, J. L., Brouwer, W. B. F., de Vugt, M. E., Verhey, F. R. J., & Dirksen, C. D. (2011) · Alzheimer Disease & Associated Disorders · doi:10.1097/wad.0b013e31823a6108 · Cited by 85 · see citing works
Self-citationEenoo, L. V., Declercq, A., Onder, G., Finne‐Soveri, H., Garms-Homolová, V., Jónsson, P. V., Dix, O., Smit, J. H., van Hout, H. P. J., & van der Roest, H. G. (2015) · European Journal of Public Health · doi:10.1093/eurpub/ckv152 · Cited by 85 · see citing works
The ABC of Alzheimer's Disease: ADL and Improving Day-to-Day Functioning of Patients
Potkin, S. G. (2002) · International Psychogeriatrics · doi:10.1017/s1041610203008640 · Cited by 80 · see citing works
CANE: Camberwell Assessment of Need for the Elderly
Orrell, M. W., & Hancock, G. A. (2004) · UCL Discovery (University College London) · Cited by 75 · see citing works
Self-citationHellström, Y., Andersson, M., & Hallberg, I. R. (2004) · Health & Social Care in the Community · doi:10.1111/j.1365-2524.2004.00519.x · Cited by 71 · see citing works
Kerpershoek, L., de Vugt, M. E., Wolfs, C. A. G., Jelley, H., Orrell, M. W., Woods, B. T., Stephan, A., Bieber, A., Meyer, G., Engedal, K., et al. (2016) · BMC Health Services Research · doi:10.1186/s12913-016-1672-3 · Cited by 54 · see citing works
Self-citationFormal and informal care for people with dementia: Factors associated with service receipt
Schneider, J. M., Hallam, A., Murray, J., Foley, B., Atkin, L., Banerjee, S., Islam, M. K., & MANN, A. H. (2002) · Aging & Mental Health · doi:10.1080/13607860220142486 · Cited by 53 · see citing works
Roelands, M., Oost, P. V., & Depoorter, A. (2007) · Health & Social Care in the Community · doi:10.1111/j.1365-2524.2007.00730.x · Cited by 44 · see citing works
Wimo, A. B., Sjölund, B., Sköldunger, A., Johansson, L., Nordberg, G., & Strauss, E. I. V. (2010) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.2488 · Cited by 35 · see citing works
Self-citationColey, N., Gallini, A., Garès, V., Gardette, V., Andrieu, S., Vellas, B., Reynish, E., Ousset, P. J., Andrieu, S., Burns, A., et al. (2015) · Journal of the American Medical Directors Association · doi:10.1016/j.jamda.2015.09.010 · Cited by 20 · cited 2× · see citing works
“Previous studies have shown that spousal caregivers often express reluctance to start using formal care because they perceive their tasks as a moral obligation.(25) Previous studies have found comparable results, with associations between a higher amount of caregiving hours and subsequent institutionalisation.”
ResultMerkuri, N., Croy, A., Henry, S., Hajrić, A., Ilieva, I., Mehrabian-Spasova, S., Mimica, N., Diakou, N., Seleari, M., Holmerová, I., et al. (2017) · Cited by 19 · see citing works
Flagged first, then by citations
1 of the 35 references couldn’t be matched to a known paper.
Research works printed but not linked: 2
- [10]Dementia W. A public health priority. 2012. ISBN. 2012; 978(92): 4.
- [33]OECD, Health at a Glance. OECD Indicators. 2017. Paris: OECD Publishing; 2017: 216.
Cited by
Sorted by citations
Angelopoulou, E., Papachristou, N., Bougea, A. M., Stanitsa, E., Kontaxopoulou, D., Fragkiadaki, S., Pavlou, D., Koros, C., Değirmenci, Y., Papatriantafyllou, J. D., et al. (2022) · Medicina · doi:10.3390/medicina58121705 · Cited by 53 · see citing works
Post-diagnosis young-onset dementia care in the National Disability Insurance Scheme
Cations, M., Day, S., Laver, K., Withall, A., & Draper, B. (2021) · Australian & New Zealand Journal of Psychiatry · doi:10.1177/00048674211011699 · Cited by 24 · see citing works
Watson, J., Darlington-Pollock, F., Green, M., Giebel, C., & Akpan, A. (2021) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph182413405 · Cited by 21 · see citing works
Use of Services by People Living Alone With Cognitive Impairment: A Systematic Review
Rosenwohl‐Mack, A., Dubbin, L. A., Chodos, A. H., Dulaney, S., Fang, M.-L. E., Merrilees, J. J., & Portacolone, E. (2021) · Innovation in Aging · doi:10.1093/geroni/igab004 · Cited by 20 · see citing works
Giebel, C., Lion, K., Mackowiak, M., Chattat, R., Kumar, P. N. S., Cations, M., Gabbay, M., Moyle, W., Ottoboni, G., Rymaszewska, J., et al. (2022) · BMC Geriatrics · doi:10.1186/s12877-022-02821-1 · Cited by 18 · see citing works
Do caregiver profiles predict the use of dementia care services? Findings from the Actifcare study
Kerpershoek, L., Woods, B. T., Wolfs, C. A. G., Verhey, F. R. J., Jelley, H., Bieber, A., Stephan, A., Michelet, M., Selbæk, G., Handels, R. L. H., et al. (2018) · Aging & Mental Health · doi:10.1080/13607863.2018.1544215 · Cited by 17 · see citing works
Self-citationBarriers to accessing and receiving mental health care for paid and unpaid carers of older adults
Giebel, C. M., Prato, L., Metcalfe, S., & Barrow, H. (2024) · Health Expectations · doi:10.1111/hex.14029 · Cited by 14 · see citing works
A survey of OR/MS models on care planning for frail and elderly patients
Williams, E., Gärtner, D., & Harper, P. (2021) · Operations Research for Health Care · doi:10.1016/j.orhc.2021.100325 · Cited by 14 · see citing works
Rahman, A., Hydén, L., & Kelfve, S. (2021) · BMC Health Services Research · doi:10.1186/s12913-021-06891-6 · Cited by 13 · see citing works
The landscape of inequalities in dementia across Europe: First insights from the INTERDEM taskforce
Giebel, C. M., Harding, E., Volkmer, A., Chirico, I., Hopper, L., Szcześniak, D. M., Talbot, C. V., Diaz-Ponce, A. M., Gove, D., Knapp, M. R. J., et al. (2024) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.6096 · Cited by 11 · see citing works
Self-citationMonfared, A. A. T., Barrows, S., Fox, L., Herbel, B., Herring, W. L., Krumbach, A., & Zhang, Q. (2025) · Neurology and Therapy · doi:10.1007/s40120-025-00790-2 · Cited by 9 · see citing works
Scerri, A., Schou‐Juul, F., da Silva, R. C. G., Serrat, R., Grech, A., Jarašiūnaitė–Fedosejeva, G., Celdrán, M., Trypka, E., Xuereb, C. B., Yaylagül, N. K., et al. (2025) · Dementia · doi:10.1177/14713012251341374 · Cited by 8 · see citing works
People Living with a Dementia Diagnosis with No Eldercare at all: Who Are They?
Rahman, A., Hydén, L., & Kelfve, S. (2022) · Journal of Aging & Social Policy · doi:10.1080/08959420.2022.2111165 · Cited by 7 · see citing works
Parra-Rizo, M. A., & Sanchís-Soler, G. (2022) · Revista de PSICOLOGÍA DE LA SALUD · doi:10.21134/pssa.v10i1.810 · Cited by 6 · see citing works
Illiger, K., Walter, U., & Koppelin, F. (2021) · Health Care For Women International · doi:10.1080/07399332.2021.1876064 · Cited by 6 · see citing works
Care-Seeking Delay of Patients with Heart Failure in China: A Mixed-Method Study
Xu, M., Ruan, T., Huang, X., Han, B., Li, Y., Ding, Y., & Zhu, L. (2024) · ESC Heart Failure · doi:10.1002/ehf2.14757 · Cited by 5 · see citing works
Magalhães, J. D. P., Faria‐Fortini, I., de Menezes, K. K. P., Lara, I. A., Batista, L. R., Sant’Anna, R. V., & Faria, C. D. C. D. M. (2024) · Topics in Stroke Rehabilitation · doi:10.1080/10749357.2024.2304969 · Cited by 4 · see citing works
Kim, H., & Kim, Y. (2020) · PLoS ONE · doi:10.1371/journal.pone.0238258 · Cited by 3 · see citing works
Clare, L., Martyr, A., Caulfield, M., Gamble, L. D., Charlwood, C., Ward, J., Hulme, C. T., Prina, M. A., & Oyebode, J. R. (2025) · Systematic Reviews · doi:10.1186/s13643-025-03002-y · Cited by 2 · see citing works
Assessing technologies in dementia care: A conceptual health-economic model
Fu, J., Handels, R. L. H., Arendse, M., Arets, T., Bartholomeus, E., Blom, M., Bolt, S., Bosse, T., Boumans, R., Gerritsen, D. L., et al. (2026) · Journal of Alzheimer s Disease · doi:10.1177/13872877251415203 · Cited by 1 · see citing works
Self-citationUribe, F. L., Arteaga, Ó., Bruchhausen, W., Cheung, G., Cullum, S. J., Fuentes‐García, A., Miranda‐Castillo, C., Kerse, N. M., Kirk, R., Muru‐Lanning, M., et al. (2021) · Sustainability · doi:10.3390/su131810247 · Cited by 1 · see citing works
People living with dementia using eldercare in Sweden
Rahman, A. (2023) · Linköping studies in arts and science · doi:10.3384/9789180751872 · Cited by 1 · see citing works
Factors Affecting Unmet Needs in Elderly with Cognitive Decline - Using 2019 Community Health Survey
Park, J., & Kim, M.-W. (2022) · Journal of Pharmaceutical Negative Results · doi:10.47750/pnr.2022.13.s03.088
Watson, J. (2024) · International Psychogeriatrics · doi:10.1017/s1041610224000632
Giebel, C. M., Lion, K., Maćkowiak, M., Chattat, R., Kumar, P. N. S., Cations, M., Gabbay, M., Moyle, W., Ottoboni, G., Rymaszewska, J., et al. (2022) · Figshare · doi:10.6084/m9.figshare.19164512
- Authors
- Kerpershoek, L., de Vugt, M., Wolfs, C., Orrell, M., Woods, B., Jelley, H., Meyer, G., Bieber, A., Stephan, A., Selbæk, G., Michelet, M., Wimo, A., Handels, R., Irving, K., Hopper, L., Gonçalves‐Pereira, M., Balsinha, C., Zanetti, O., Portolani, D., Verhey, F., & the Actifcare Consortium
- Affiliations
- Maastricht University (NL)
- Maastricht University Alzheimer Centrum Limburg NL The Netherlands
- University of Nottingham (GB)
- Bangor University (GB)
- Martin Luther University Halle-Wittenberg (DE)
- Oslo University Hospital (NO)
- Karolinska Institutet (SE)
- Dublin City University (IE)
- Universidade Nova de Lisboa (PT)
- Centro San Giovanni di Dio Fatebenefratelli (IT)
- IRCSS Istituto Centro S. Giovanni di Dio Fatebenefratelli Brescia IT
- ORCID
- Venue
- International Journal of Geriatric Psychiatry
- Publisher
- Wiley
- Published
- 2019-11-06
- Volume
- 35
- Issue
- 1
- Pages
- 45-52
- ISSN
- 0885-6230 (ISSN-L)
- 1099-1166
- PMC
- PMC6916585
- OpenAlex
- W2982108208
- Cited by
- 26
- References
- 35
- Citations by year
- 2026: 1 · 2025: 3 · 2024: 5 · 2023: 1 · 2022: 6 · 2021: 7 · 2020: 1 · 2019: 1 · 2018: 1
- FWCI
- 2.98
- Type
- journal article
- Language
- en
- Open access
- hybrid
- doi.org
- Licence
- Locations
- International Journal of Geriatric Psychiatry (publishedVersion, cc-by)
- Europe PMC (PubMed Central) (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- Research Publications (Maastricht University) (publishedVersion, cc-by)
- Portuguese National Funding Agency for Science, Research and Technology (RCAAP Project by FCT) (submittedVersion, other-oa)
- Dublin City University Open Access Institutional Repository (Dublin City University) (submittedVersion, other-oa)
- NORA - Norwegian Open Research Archives (submittedVersion, cc-by)
- Research Publications (Maastricht University) (submittedVersion, other-oa)
- Funders
- EU Joint Programme – Neurodegenerative Disease Research (733051001)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › General Health Professions › Geriatric Care and Nursing Homes
- Social Sciences › Psychology › Social Psychology › Mental Health Treatment and Access
- Keywords
- dementia care, health care access, health equity, Andersen Behavioral Model, informal caregivers, home care, daycare centers, institutionalization, unmet needs, disease severity, living alone, gender differences, regional disparities
- MeSH terms
- Health Equity, Aged, Aged, 80 and over, Dementia, Europe, Female, Health Services Accessibility, Humans, Male, Middle Aged, Models, Theoretical, Cohort Studies
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review