Barriers to recruiting ethnic minorities to mental health research: a systematic review
Open accessAbstract
Disparities in the prevalence of mental illness are widely reported for people from ethnic minorities. Unlike the United States, there is no legislation for clinical research in the UK to mandate the inclusion of ethnic minorities and they are underrepresented in European trials compared with those conducted in the United States. This restricts generalization of research findings. This systematic review of the barriers to the recruitment of ethnic minority participants into psychiatric research is based on a comprehensive literature search. Nine included papers explore such barriers based on the authors’ and participants’ experiences of research. These barriers are mainly categorized as: participant related, practical issues, family/community related, health service related and research process issues. This review provides a compilation of important barriers to recruitment which can facilitate future research. The barriers that were identified are not all unique to participants from ethnic minorities, although the way in which they manifest themselves is often distinct in minority groups. It is important that these barriers are considered when designing research design so that solutions to overcome such obstacles can be incorporated in research protocols from the start and appropriate resources allocated. Copyright © 2014 John Wiley & Sons, Ltd .
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The higher proportion of White and female individuals reflects the tendency for White females to attend mental health services more often and their greater likelihood of participating in research studies.
“reflecting the tendency for White females to attend mental health services more often than their male/non-White counterparts, and their greater likelihood of participating in research studies [46, 47].”
Cites
Effective recruitment and retention of minority research participants.
Yancey, A., Ortega, A., & Kumanyika, S. (2006) · Annual Review of Public Health · doi:10.1146/annurev.publhealth.27.021405.102113 · Cited by 1,247 · see citing works
Barriers to recruiting underrepresented populations to cancer clinical trials: a systematic review
Ford, J. G., Howerton, M. W., Lai, G. Y., Gary, T. L., Bolen, S., Gibbons, M. C., Tilburt, J., Baffi, C., Tanpitukpongse, T. P., Wilson, R. F., et al. (2008) · Cancer · doi:10.1002/cncr.23157 · Cited by 1,083 · see citing works
Fearon, P., Kirkbride, J. B., Morgan, C., Dazzan, P., Morgan, K. D., Lloyd, T., Hutchinson, G. A., Tarrant, J., Fung, W. L. A., Holloway, J. D., et al. (2006) · Psychological Medicine · doi:10.1017/s0033291706008774 · Cited by 541 · see citing works
Why ethnic minority groups are under-represented in clinical trials: A review of the literature
Hussain-Gambles, M., Atkin, K., & Leese, B. (2004) · Health and Social Care in the Community · doi:10.1111/j.1365-2524.2004.00507.x · Cited by 447 · see citing works
Miranda, J. M., Duan, N., Sherbourne, C. D., Schoenbaum, M., Lagomasino, I. T., Jackson‐Triche, M., & Wells, K. B. (2003) · Health Services Research · doi:10.1111/1475-6773.00136 · Cited by 308 · see citing works
Race and risk of schizophrenia in a US birth cohort: another example of health disparity?
Bresnahan, M., Begg, M., Brown, A. S., Schaefer, C., Sohler, N., Insel, B. J., Vella, L., & Susser, E. (2007) · International Journal of Epidemiology · doi:10.1093/ije/dym041 · Cited by 273 · see citing works
Acculturative Stress, Depression, and Suicidal Ideation Among Central American Immigrants
Hovey, J. D. (2000) · Suicide and Life-Threatening Behavior · doi:10.1111/j.1943-278x.2000.tb01071.x · Cited by 167 · see citing works
Recruitment and Retention of Older Minorities in Mental Health Services Research
Areán, P. A., Alvidrez, J., Nery, R., Estes, C. L., & Linkins, K. W. (2003) · The Gerontologist · doi:10.1093/geront/43.1.36 · Cited by 162 · see citing works
Recruiting and retaining low-income Latinos in psychotherapy research.
Miranda, J. M., Azocar, F., Organista, K. C., Muñoz, R. F., & al, E. (1996) · Journal of Consulting and Clinical Psychology · doi:10.1037//0022-006x.64.5.868 · Cited by 157 · see citing works
Thompson, E. E., Neighbors, H. W., Munday, C. C., & Jackson, J. S. (1996) · Journal of Consulting and Clinical Psychology · doi:10.1037/0022-006x.64.5.861 · Cited by 123 · see citing works
Bhui, K. S., McKenzie, K. J., & Rasul, F. (2007) · BMC Public Health · doi:10.1186/1471-2458-7-336 · Cited by 120 · see citing works
Recruiting and retaining low-income Latinos in psychotherapy research.
Miranda, J. M., Azocar, F., Organista, K. C., et al. (1996) · Journal of Consulting and Clinical Psychology · doi:10.1037/0022-006x.64.5.868 · Cited by 116 · see citing works
Gater, R. A., Tomenson, B., Percival, C., Chaudhry, N., Waheed, W., Dunn, G., Macfarlane, G. J., & Creed, F. H. (2008) · Social Psychiatry and Psychiatric Epidemiology · doi:10.1007/s00127-008-0426-x · Cited by 79 · see citing works
Self-citationCooper, J., Husain, N., Webb, R. T., Waheed, W., Kapur, N., Guthrie, E., & Appleby, L. (2006) · Social Psychiatry and Psychiatric Epidemiology · doi:10.1007/s00127-006-0099-2 · Cited by 79 · see citing works
Self-citationMiranda, J. M. (1996) · Journal of Consulting and Clinical Psychology · doi:10.1037/0022-006x.64.5.848 · Cited by 64 · see citing works
Gallagher-Thompson, D. E., Singer, L. S., Depp, C. A., Mausbach, B. T., Cárdenas, V., & Coon, D. W. (2004) · American Journal of Geriatric Psychiatry · doi:10.1097/00019442-200409000-00006 · Cited by 62 · see citing works
Research with Severely Mentally Ill Latinas: Successful Recruitment and Retention Strategies
Loue, S., & Sajatovic, M. (2007) · Journal of Immigrant and Minority Health · doi:10.1007/s10903-007-9063-9 · Cited by 52 · see citing works
Engaging Asian Americans for Mental Health Research: Challenges and Solutions
Chen, H., Kramer, E. J., Chen, T., & Chung, H. (2005) · Journal of Immigrant Health · doi:10.1007/s10903-005-2644-6 · Cited by 49 · see citing works
Recruiting Latino women in the U.S. and women in Mexico in postpartum depression prevention research
Le, H., Lara, M. A., & Perry, D. F. (2008) · Archives of Women s Mental Health · doi:10.1007/s00737-008-0009-6 · Cited by 45 · see citing works
Aliyu, M. H., Calkins, M. E., Swanson, C. L., Lyons, P. D., Savage, R. M., May, R., Wiener, H. W., Devlin, B., Nimgaonkar, V. L., Ragland, J. D., et al. (2006) · Schizophrenia Research · doi:10.1016/j.schres.2006.06.027 · Cited by 38 · see citing works
Bridging the Gap: Recruitment of African-American Women Into Mental Health Research Studies
Meinert, J. A. (2003) · Academic Psychiatry · doi:10.1176/appi.ap.27.1.21 · Cited by 28 · see citing works
Recruitment of ethnic minorities to asthma studies.
Sheikh, A., Panesar, S. S., Lasserson, T., & Netuveli, G. (2004) · PubMed Central · Cited by 16 · see citing works
Psychiatric services for ethnic minority groups: a third way?
Waheed, W., Husain, N., & Creed, F. H. (2003) · The British Journal of Psychiatry · doi:10.1192/bjp.183.6.562-a · Cited by 13 · see citing works
Self-citationMiranda, J. M. (1996) · Journal of Consulting and Clinical Psychology · doi:10.1037//0022-006x.64.5.848 · Cited by 5 · see citing works
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A paradigm for understanding trust and mistrust in medical research: The Community VOICES study
Smirnoff, M., Wilets, I. F., Ragin, D. F., Adams, R., Holohan, J., Rhodes, R., Winkel, G. H., Ricci, E., Clesca, C., & Richardson, L. D. (2018) · AJOB Empirical Bioethics · doi:10.1080/23294515.2018.1432718 · Cited by 190 · see citing works
Hughes-Morley, A., Young, B., Waheed, W., Small, N., & Bower, P. (2015) · Journal of Affective Disorders · doi:10.1016/j.jad.2014.10.005 · Cited by 132 · see citing works
Self-citationWaheed, W., Hughes-Morley, A., Woodham, A., Allen, G., & Bower, P. (2015) · BMC Psychiatry · doi:10.1186/s12888-015-0484-z · Cited by 118 · see citing works
Self-citation“I See Me Here”: Mental Health Content, Community, and Algorithmic Curation on TikTok
Milton, A., Ajmani, L., DeVito, M. A., & Chancellor, S. (2023) · CHI Conference on Human Factors in Computing Systems · doi:10.1145/3544548.3581489 · Cited by 117 · see citing works
Pratap, A., Renn, B. N., Volponi, J. J., Mooney, S. D., Gazzaley, A. H., Areán, P. A., & Anguera, J. A. (2018) · Journal of Medical Internet Research · doi:10.2196/10130 · Cited by 116 · see citing works
Pardhan, S., Sehmbi, T., Wijewickrama, R. C. A., Onumajuru, H., & Piyasena, P. (2025) · International Journal for Equity in Health · doi:10.1186/s12939-025-02431-4 · Cited by 116 · see citing works
Rodríguez-Torres, E., González-Pérez, M. M., & Díaz-Pérez, C. (2021) · Contemporary Clinical Trials Communications · doi:10.1016/j.conctc.2021.100829 · Cited by 115 · see citing works
Matcham, F., Leightley, D., Siddi, S., Lamers, F., White, K. M., Annas, P., de Girolamo, G., Difrancesco, S., Haro, J. M., Horsfall, M., et al. (2022) · BMC Psychiatry · doi:10.1186/s12888-022-03753-1 · Cited by 110 · see citing works
Degnan, A., Baker, S., Edge, D., Nottidge, W., Noke, M., Press, C. J., Husain, N., Rathod, S., & Drake, R. (2017) · Psychological Medicine · doi:10.1017/s0033291717002264 · Cited by 110 · see citing works
Farooqi, A. M., Jutlla, K., Raghavan, R., Wilson, A. M., Uddin, M. S., Akroyd, C., Patel, N., Campbell-Morris, P. P., & Farooqi, A. (2022) · BMC Medical Research Methodology · doi:10.1186/s12874-021-01489-2 · Cited by 96 · see citing works
Online peer to peer support: Qualitative analysis of UK and US open mental health Facebook groups
Prescott, J., Rathbone, A. L., & Brown, G. (2020) · Digital Health · doi:10.1177/2055207620979209 · Cited by 92 · see citing works
Self-citationLim, A. S. M., Hoek, H. W., Ghane, S., Deen, M. L., & Blom, J. D. (2018) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2018.00089 · Cited by 90 · see citing works
Prajapati, R., & Liebling, H. (2021) · Journal of Racial and Ethnic Health Disparities · doi:10.1007/s40615-021-00993-x · Cited by 87 · see citing works
Best practices for researching diverse groups.
Burlew, A. K., Peteet, B. J., McCuistian, C. L., & Miller-Roenigk, B. D. (2019) · American Journal of Orthopsychiatry · doi:10.1037/ort0000350 · Cited by 74 · see citing works
Winter, S. J., Rosas, L. G., Romero, P. P., Sheats, J. L., Buman, M. P., Baker, C., & King, A. C. (2015) · Journal of Immigrant and Minority Health · doi:10.1007/s10903-015-0241-x · Cited by 74 · see citing works
Bower, P., Grigoroglou, C., Anselmi, L., Kontopantelis, E., Sutton, M., Ashworth, M. J., Evans, P. H., Lock, S., Smye, S. W., & Abel, K. M. (2020) · BMC Medicine · doi:10.1186/s12916-020-01555-4 · Cited by 73 · see citing works
Self-citationSchultze‐Lutter, F., Michel, C., Ruhrmann, S., & SCHIMMELMANN, B. G. (2017) · Psychological Medicine · doi:10.1017/s0033291717002586 · Cited by 66 · see citing works
Barriers and recruitment strategies for precarious status migrants in Montreal, Canada
Fête, M., Aho, J., Benoit, M., Cloos, P., & Ridde, V. (2019) · BMC Medical Research Methodology · doi:10.1186/s12874-019-0683-2 · Cited by 66 · see citing works
The challenges ahead for psychedelic ‘medicine’
Muthukumaraswamy, S. D., Forsyth, A., & Sumner, R. L. (2022) · Australian & New Zealand Journal of Psychiatry · doi:10.1177/00048674221081763 · Cited by 59 · see citing works
Risk of bias in randomized clinical trials on psychedelic medicine: A systematic review
Hovmand, O. R., Poulsen, E. D., Arnfred, S., & Storebø, O. J. (2023) · Journal of Psychopharmacology · doi:10.1177/02698811231180276 · Cited by 57 · see citing works
Isaacs, T., Hunt, D. S., Ward, D. M., Rooshenas, L., & Edwards, L. (2016) · Journal of Medical Internet Research · doi:10.2196/jmir.6374 · Cited by 53 · see citing works
Strategies for research participant engagement: A synthetic review and conceptual framework
Wong, C. A., Song, W. B., Jiao, M. G., O'Brien, E. C., Ubel, P. A., Wang, G., & Scales, C. D. (2021) · Clinical Trials · doi:10.1177/17407745211011068 · Cited by 51 · see citing works
Language as Multi-Level Barrier in Health Research and the Way Forward
Ransing, R. S., Vadivel, R., Halabi, S. E., Jatchavala, C., Shalbafan, M., Noël, C., Noor, I. M., Yee, A. H. A., Gürcan, A., & Ramalho, R. (2021) · Indian Journal of Psychological Medicine · doi:10.1177/02537176211052071 · Cited by 48 · see citing works
An Ethics Checklist for Digital Health Research in Psychiatry: Viewpoint
Shen, F. X., Silverman, B. C., Monette, P., Kimble, S., Rauch, S. L., & Baker, J. T. (2022) · Journal of Medical Internet Research · doi:10.2196/31146 · Cited by 43 · see citing works
Masood, Y., Bower, P., Waheed, M. W., Brown, G., & Waheed, W. (2019) · Contemporary Clinical Trials · doi:10.1016/j.cct.2019.01.004 · Cited by 43 · see citing works
Self-citationAhad, M. A. A., Demšar, U., Sullivan, F., & Kulu, H. (2022) · PLoS ONE · doi:10.1371/journal.pone.0264394 · Cited by 39 · see citing works
Goff, S. L., Youssef, Y., Pekow, P. S., White, K. O., Guhn‐Knight, H., Lagu, T. C., Mazor, K. M., & Lindenauer, P. K. (2016) · Journal of Racial and Ethnic Health Disparities · doi:10.1007/s40615-015-0192-x · Cited by 38 · see citing works
Reaching and recruiting Turkish migrants for a clinical trial through Facebook: A process evaluation
İnce, B. Ü., Cuijpers, P. J., Hof, E. V., & Riper, H. M. (2014) · Internet Interventions · doi:10.1016/j.invent.2014.05.003 · Cited by 36 · see citing works
What can we learn from trial decliners about improving recruitment? Qualitative study
Hughes-Morley, A., Young, B., Hempel, R., Russell, I. T., Waheed, W., & Bower, P. (2016) · Trials · doi:10.1186/s13063-016-1626-4 · Cited by 34 · see citing works
Self-citationEvaluating a tool to improve engagement and recruitment of under-served groups in trials
Morris, L., Dumville, J., Treweek, S., Miah, N., Curtis, F., & Bower, P. (2022) · Trials · doi:10.1186/s13063-022-06747-2 · Cited by 32 · see citing works
Self-citationMorris, A. C., Macdonald, A., Moghraby, O. S., Stringaris, A. K., Hayes, R. D., Simonoff, E. A., Ford, T. J., & Downs, J. M. (2020) · Child and Adolescent Mental Health · doi:10.1111/camh.12396 · Cited by 30 · see citing works
Waheed, W., Mirza, N., Waheed, M. W., Blakemore, A., Kenning, C., Masood, Y., Matthews, F. E., & Bower, P. (2019) · International Journal of Methods in Psychiatric Research · doi:10.1002/mpr.1806 · Cited by 29 · see citing works
Self-citationToward dynamic phenotypes and the scalable measurement of human behavior
Germine, L. T., Strong, R. W., Singh, S. M., & Sliwinski, M. J. (2020) · Neuropsychopharmacology · doi:10.1038/s41386-020-0757-1 · Cited by 29 · see citing works
Abraham, J., Holzer, K. J., Lenard, E. M., Meng, A., Pennington, B. R. T., Wolfe, R. C., Haroutounian, S., Calfee, R. P., Hammil, C. W., Kozower, B. D., et al. (2023) · American Journal of Geriatric Psychiatry · doi:10.1016/j.jagp.2023.09.003 · Cited by 28 · see citing works
Blanchet, R., Sanou, D., Nana, C. P., Pauzé, E., Batal, M., & Giroux, I. (2016) · Journal of Immigrant and Minority Health · doi:10.1007/s10903-016-0536-6 · Cited by 27 · see citing works
Assessment of Psychopathology in Young Children
Briggs‐Gowan, M. J., Godoy, L., Heberle, A. E., & Carter, A. S. (2016) · Wiley eBooks · doi:10.1002/9781119125556.devpsy101 · Cited by 25 · see citing works
Benjamin, L., Gillard, S., Nielsen, J. J., da Silva, M. E. P., & Sin, J. (2025) · Trauma Violence & Abuse · doi:10.1177/15248380251320982 · Cited by 24 · see citing works
Scott, T., Gil‐Rivas, V., & Cachelin, F. M. (2018) · Cultural Diversity & Ethnic Minority Psychology · doi:10.1037/cdp0000228 · Cited by 24 · see citing works
Rogers, M. L., Bloch‐Elkouby, S., & GALYNKER, I. I. (2022) · Psychiatry Research · doi:10.1016/j.psychres.2022.114522 · Cited by 22 · see citing works
Recruiting African American Children for Research: An Ecological Systems Theory Approach
Graves, D. R., & Sheldon, J. P. (2017) · Western Journal of Nursing Research · doi:10.1177/0193945917704856 · Cited by 22 · see citing works
Javed, M., Sprecher, E. A., Carter, B., Elhassan, L., Hiller, R. M., Holmes, L., Park, J., Robinson, C., Selwyn, J., Shelton, K. H., et al. (2025) · The British Journal of Social Work · doi:10.1093/bjsw/bcaf066 · Cited by 21 · see citing works
Vogel, A., Comteße, H., & Rosner, R. (2020) · Child and Adolescent Psychiatry and Mental Health · doi:10.1186/s13034-020-00320-y · Cited by 21 · see citing works
Engaging in Late-Life Mental Health Research: a Narrative Review of Challenges to Participation
Newmark, J., Gebara, M. A., Aizenstein, H. J., & Karp, J. F. (2020) · Current Treatment Options in Psychiatry · doi:10.1007/s40501-020-00217-9 · Cited by 21 · see citing works
Manjra, I. I., & Masic, U. (2021) · Journal of Clinical Psychology · doi:10.1002/jclp.23249 · Cited by 21 · see citing works
Ekezie, W. C., Cassambai, S., Czyznikowska, B., Curtis, F., O’Mahoney, L. L., Willis, A., Chudasama, Y., Khunti, K. K., & Farooqi, A. M. (2023) · Health Expectations · doi:10.1111/hex.13944 · Cited by 21 · see citing works
DuBay, M. F., Sideris, J. H., & Rouch, E. F. (2022) · Autism Research · doi:10.1002/aur.2783 · Cited by 20 · see citing works
Ward, A. R., Sibley, M. H., Musser, E. D., Campez, M., Bubnik-Harrison, M. G., Meinzer, M. C., & Yeguez, C. E. (2019) · ADHD Attention Deficit and Hyperactivity Disorders · doi:10.1007/s12402-019-00293-9 · Cited by 19 · see citing works
Bains, K., Bicknell, S., Jovanović, N., Conneely, M., McCabe, R., Copello, A. G., Fletcher-Rogers, J., Priebe, S., & Janković, J. (2023) · BMC Medicine · doi:10.1186/s12916-023-02978-5 · Cited by 18 · see citing works
Coleman, S. B., Nixon, J., Keen, J., Muir, D., Wilson, L., McGinnis, E., Stubbs, N. C., Dealey, C., & Nelson, E. A. (2016) · BMC Medical Research Methodology · doi:10.1186/s12874-016-0257-5 · Cited by 18 · see citing works
Baker, F. A., Blauth, L., Bloska, J., Bukowska, A. A., Flynn, L. M., Hsu, M., Janus, E., Johansson, K., Odell‐Miller, H., Miller, H., et al. (2023) · Contemporary Clinical Trials Communications · doi:10.1016/j.conctc.2023.101079 · Cited by 17 · see citing works
Ruphrect-Smith, H., Davies, S., Jacob, J., & Edbrooke-Childs, J. H. (2023) · European Child & Adolescent Psychiatry · doi:10.1007/s00787-023-02233-5 · Cited by 16 · see citing works
Stack‐Cutler, H. L., Schnirer, L., & Dare, L. (2017) · Journal of Community Psychology · doi:10.1002/jcop.21880 · Cited by 16 · see citing works
Aliyas, Z., Collins, P., Chrun-Tremblay, S., Bayram, T., & Frohlich, K. L. (2023) · International Journal of Public Health · doi:10.3389/ijph.2022.1605296 · Cited by 15 · see citing works
Untapped Potential of Unobtrusive Observation for Studying Health Behaviors
Benton, J. S., & French, D. (2023) · JMIR Public Health and Surveillance · doi:10.2196/46638 · Cited by 14 · see citing works
Social media use for supporting mental health (SMILE)
Brown, G., Rathbone, A. L., & Prescott, J. (2021) · Mental Health Review Journal · doi:10.1108/mhrj-10-2020-0079 · Cited by 14 · see citing works
Self-citationMilton, A., Maestre, J. F., Roy, A., Umbach, R., & Chancellor, S. (2024) · CHI Conference on Human Factors in Computing Systems · doi:10.1145/3613904.3641894 · Cited by 13 · see citing works
Recruitment strategies for British South Asians in 5 depression trials: A mixed method study
Waheed, W., Husain, N., Allen, G., Atif, N., Aseem, S., Waquas, A., Garrett, C., Sheikh, S., Syed, A., Gask, L. L., et al. (2015) · Journal of Affective Disorders · doi:10.1016/j.jad.2015.06.046 · Cited by 13 · see citing works
Self-citationChang, T. E., Brill, C. D., Traeger, L. N., Bedoya, C. A., Inamori, A., Hagan, P. N., Flaherty, K., Hails, K. A., Yeung, A., & Trinh, N. (2014) · Journal of Immigrant and Minority Health · doi:10.1007/s10903-014-0130-8 · Cited by 13 · see citing works
‘We're happy as we are’: the experience of living with possible undiagnosed dementia
Henley, J., Hillman, A., Jones, I. R., Woods, B. T., MacLeod, C. A., Pentecost, C., & Clare, L. (2021) · Ageing and Society · doi:10.1017/s0144686x21001495 · Cited by 12 · see citing works
Biggs, K., Dix, C., Shiely, F., Treweek, S. P., Shepherd, V., Lane, J. A., Green, H., Isaacs, T., Willis, A., & Cooper, C. L. (2024) · NIHR Open Research · doi:10.3310/nihropenres.13524.1 · Cited by 11 · see citing works
Fearon, K. (2019) · Methodological Innovations · doi:10.1177/2059799119841933 · Cited by 11 · see citing works
Perinatal mental ill health: the experiences of women from ethnic minority groups
Watson, H. L., & Soltani, H. (2019) · British Journal of Midwifery · doi:10.12968/bjom.2019.27.10.642 · Cited by 11 · see citing works
‘Running Towards the Bullets’: Moral Injury in Critical Care Nursing in the COVID-19 Pandemic
Griffin, M., Hamilton, P., Harness, O., Credland, N., & McMurray, R. G. (2023) · Journal of Management Inquiry · doi:10.1177/10564926231182566 · Cited by 10 · see citing works
O’Shea, D. M., Wit, L. D., Tanner, J. J., Kurasz, A. M., Amofa, P., Perez-Lao, A. R., Levy, S.-A. T., Chandler, M. J., & Smith, G. E. (2022) · Archives of Clinical Neuropsychology · doi:10.1093/arclin/acac018 · Cited by 10 · see citing works
Roche, M., Mukadam, N., Adelman, S., & Livingston, G. (2018) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.4891 · Cited by 10 · see citing works
Onwumere, J., Gentle, A., Obanubi, R., Davis, A., Karuga, M., Ali, R., BeFine Study Team, & Cardi, V. (2023) · Health Expectations · doi:10.1111/hex.13892 · Cited by 9 · see citing works
Faluyi, D., Ovseiko, P. V., Dziedzic, K., Scott, F., on behalf of the NIHR Race Equality Public Action Group, Tulloch, A., Barker, C., Wallace-Watson, C., Cole, J., Castledine, J., et al. (2024) · Research Involvement and Engagement · doi:10.1186/s40900-024-00569-z · Cited by 9 · see citing works
Cultural adaptations of digital therapeutics
Naslund, J. A., & Spagnolo, J. (2022) · Elsevier eBooks · doi:10.1016/b978-0-323-90045-4.00001-0 · Cited by 9 · see citing works
Multidimensional ADHD Symptom Profiles: Associations with Adverse Childhood Experiences
Rodriguez, V. J., Basurto, K. S., Finley, J.-C. A., Liu, Q., Khalid, E., Halliburton, A. M., Tse, P. K. Y., Resch, Z. J., Soble, J. R., & Ulrich, D. M. (2025) · Archives of Clinical Neuropsychology · doi:10.1093/arclin/acae050 · Cited by 8 · see citing works
Bianchi, L., Kelemen, M., Shivji, A. K., Tallant, J., & Timmons, S. (2024) · Sociology of Health & Illness · doi:10.1111/1467-9566.13870 · Cited by 8 · see citing works
Degnan, A., Berry, K., James, S., & Edge, D. (2018) · Psychiatry Research · doi:10.1016/j.psychres.2018.03.013 · Cited by 8 · see citing works
Haack, L. M., Jiménez, E. A. A., Delucchi, K., Beaulieu, A., & Pfiffner, L. J. (2019) · Evidence-Based Practice in Child and Adolescent Mental Health · doi:10.1080/23794925.2018.1560236 · Cited by 8 · see citing works
Kaufmann, L., Baldofski, S., Golsong, K., Kohls, E., & Rummel‐Kluge, C. (2025) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2025.1470554 · Cited by 7 · see citing works
Glover, C. M., Arfanakis, K., Aggarwal, N. T., Bennett, D. A., Márquez, D. X., & Barnes, L. L. (2022) · Journal of Alzheimer s Disease · doi:10.3233/jad-220861 · Cited by 7 · see citing works
Masood, Y., Nishio, A. A., Starling, B., Dawson, S., Salsberg, J., Blackburn, S. J., van Vliet, E., & Pittens, C. A. C. M. (2024) · European Journal of General Practice · doi:10.1080/13814788.2024.2322996 · Cited by 7 · see citing works
Smith, A. J., Fortune, Z., Phillips, R., Walters, P., Lee, G., MANN, A. H., Tylee, A. T., & Barley, E. A. (2014) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2014.04.006 · Cited by 7 · see citing works
How do participants in clinical trials compare with other patients with schizophrenia?
Freudenthal, R., Marston, L., Stansfeld, J. L., Priebe, S., & Moncrieff, J. (2021) · Contemporary Clinical Trials Communications · doi:10.1016/j.conctc.2021.100803 · Cited by 7 · see citing works
Sheriff, R. S., Sinclair, E. W. C., Young, J., Bhamra, S., Chandler, L., Arachchige, T. N., Adams, H., Bonsaver, L., Riga, E., Bergin, L., et al. (2024) · BJPsych Bulletin · doi:10.1192/bjb.2023.102 · Cited by 6 · see citing works
Xavier, R. M., Shanavas, Y., Britt, B. M., & George, W. T. (2023) · PLoS ONE · doi:10.1371/journal.pone.0284356 · Cited by 6 · see citing works
Peters, S., Cook, L., Littlewood, D. L., Awenat, Y. F., Drake, R., Gill, J., Gorton, A., Haddock, G., Harris, K., Hozhabrafkan, K., et al. (2022) · SSM - Mental Health · doi:10.1016/j.ssmmh.2022.100157 · Cited by 6 · see citing works
Muddle, S., Kustner, C., Cook, R., & Wilkinson‐Tough, M. (2022) · Journal of Family Therapy · doi:10.1111/1467-6427.12410 · Cited by 6 · see citing works
Gogoi, M., Baggaley, R. F., Silva, L., Lal, Z. Z., Reilly, H., Modhwadia, V., Pan, D., Bird, P. W., Nellums, L. B., & Pareek, M. (2025) · Health Expectations · doi:10.1111/hex.70337 · Cited by 5 · see citing works
Struble, L. M., Potempa, K. M., Lichtenberg, P. A., Croff, R. L., Ellis, A., & Dodge, H. H. (2023) · Journal of Multidisciplinary Healthcare · doi:10.2147/jmdh.s427946 · Cited by 5 · see citing works
Kangavary, A., Halliday, E. R., Durocher, J. S., & Ehrenreich, J. T. (2023) · Clinical Case Studies · doi:10.1177/15346501231198889 · Cited by 5 · see citing works
Edwards, L., Rooshenas, L., & Isaacs, T. (2016) · JMIR Research Protocols · doi:10.2196/resprot.5195 · Cited by 5 · see citing works
Hmong Older Adults’ Perceptions of Insider and Outsider Researchers
Lor, M., & Bowers, B. J. (2018) · Nursing Research · doi:10.1097/nnr.0000000000000277 · Cited by 5 · see citing works
Baiden, D., & Evans, M. K. (2022) · Journal of Transcultural Nursing · doi:10.1177/10436596221090268 · Cited by 5 · see citing works
Service user engagement by ethnicity groups at a children’s gender identity service in the UK
Manjra, I. I., Russell, I., Maninger, J., & Masic, U. (2022) · Clinical Child Psychology and Psychiatry · doi:10.1177/13591045221102650 · Cited by 5 · see citing works
Lim, C. S. F., Hernández, M., Gaona, L., & Barrio, C. (2020) · Community Mental Health Journal · doi:10.1007/s10597-020-00670-z · Cited by 5 · see citing works
Involvement of People with Intellectual Disabilities and Their Carers in Research
Rabbitte, S., & Adam, S. (2023) · Journal of Psychosocial Rehabilitation and Mental Health · doi:10.1007/s40737-023-00371-2 · Cited by 4 · see citing works
Special issues raised by evolving areas of clinical research
DeRenzo, E. G., Singer, E. A., & Moss, J. (2020) · Elsevier eBooks · doi:10.1016/b978-0-12-386935-7.00014-1 · Cited by 4 · see citing works
Brown, G., Woodham, A., Marshall, M., Thornicroft, G., SZMUKLER, G. I., Birchwood, M. J., Waquas, A., Farrelly, S. E., & Waheed, W. (2014) · Journal of Racial and Ethnic Health Disparities · doi:10.1007/s40615-014-0024-4 · Cited by 4 · see citing works
Self-citationEnhancing inclusivity of older Black and African American adults in mental health research
Auguste, E. J., McDuffie, D. L., Ighodaro, E. T., & Moye, J. A. (2022) · Clinical Gerontologist · doi:10.1080/07317115.2022.2133453 · Cited by 4 · see citing works
Treatments for child neglect: A scoping review
Erens, B., Wijnen, S., & Simon, E. (2025) · Child Abuse & Neglect · doi:10.1016/j.chiabu.2025.107685 · Cited by 3 · see citing works
Bard, S., Degnan, A., Berry, K., & Edge, D. (2021) · Psychosis · doi:10.1080/17522439.2020.1856173 · Cited by 3 · see citing works
Improving Clinical Research to Inform Advocacy Initiatives with Underserved Individuals.
Burgess, C., & Batchelder, A. (2020) · PubMed · Cited by 3 · see citing works
Beckley, A., Głogowska, M., Waite, F., Bee, P., & Freeman, D. H. (2025) · Trials · doi:10.1186/s13063-025-08882-y · Cited by 2 · see citing works
Smith, M., Jones, A., Zormati, P., Brady, L., Clark, A., Kamal, A., Karawalli, F., Khan, S., Mengoni, S. E., Mir, G., et al. (2025) · Pilot and Feasibility Studies · doi:10.1186/s40814-025-01691-9 · Cited by 2 · see citing works
Coenen, T., Maerevoet, M., Chen, S., Brouwer, M. D., Hoecke, S. V., Koster, E. H. W., Abeele, M. V., & Bombeke, K. (2025) · JMIR mhealth and uhealth · doi:10.2196/67141 · Cited by 2 · see citing works
Who is Willing to Participate in Genetic Research? Exploring Barriers and Predictors
O’Connor, S. M., & Garrison, S. M. (2025) · Behavior Genetics · doi:10.1007/s10519-025-10243-z · Cited by 2 · see citing works
- Authors
- Brown, G., Marshall, M., Bower, P., Woodham, A., & Waheed, W.
- Affiliations
- Division of Psychiatry, School of Medicine University of Manchester Manchester UK
- University of Manchester (GB)
- Venue
- International Journal of Methods in Psychiatric Research
- Publisher
- Wiley
- Published
- 2014-01-28
- Volume
- 23
- Issue
- 1
- Pages
- 36-48
- ISSN
- 1049-8931 (ISSN-L)
- 1557-0657
- PMC
- PMC6878438
- OpenAlex
- W2139259838
- Cited by
- 158
- References
- 22
- Citations by year
- 2026: 12 · 2025: 20 · 2024: 15 · 2023: 20 · 2022: 27 · 2021: 12 · 2020: 14 · 2019: 8 · 2018: 7 · 2017: 5 · 2016: 8 · 2015: 3 · 2014: 6
- FWCI
- 1.14
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- International Journal of Methods in Psychiatric Research (publishedVersion)
- Europe PMC (PubMed Central) (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- UBIR (University of Greater Manchester) (submittedVersion)
- Research Explorer (The University of Manchester) (submittedVersion)
- Edge Hill University Research Information Repository (Edge Hill University) (submittedVersion)
- Funders
- Medical Research Council (MR/K025635/1)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics in Clinical Research
- Social Sciences › Psychology › Social Psychology › Mental Health Treatment and Access
- Social Sciences › Sociology and Political Science › Cultural Competency in Health Care
- Keywords
- ethnic minorities, research recruitment, barriers to participation, mental health research, underrepresentation in clinical trials, health disparities, health service barriers, research design, participant experiences
- MeSH terms
- Mental Disorders, Humans, Mental Health, Minority Groups, Research Design, Patient Selection
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