What explains high life satisfaction in men living with Duchenne muscular dystrophy? A preliminary study to inform psychological intervention
Open accessAbstract
Introduction: There are increasing numbers of men with Duchenne muscular dystrophy (mDMD). For those who struggle to live with the condition, psychological interventions may be helpful. However, it is unclear how these should be tailored for mDMD. To inform intervention, this study assessed whether 2 well‐validated psychological models (Leventhal's Self‐Regulatory Model; Psychological Flexibility Model) could explain variation in life satisfaction (LS). Methods: Sixteen mDMD, aged 18–43 years, completed an online survey comprised of questionnaire measures of LS, mood, and both psychological models: Illness Perceptions (Leventhal's Self‐Regulatory Model); engagement in meaningful activity, and acceptance/awareness of difficult thoughts and feelings (Psychological Flexibility Model). A median split enabled comparison of high and low LS groups. Results: Those with higher LS were characterized by the ability to undertake personally meaningful activity in acceptance of difficult thoughts and feelings. Conclusions: Results supported the Psychological Flexibility Model. However, methodological limitations mean that these findings should be considered preliminary. Muscle Nerve 56: 163–166, 2017.
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
There is evidence that ACT processes such as psychological flexibility predict functioning and quality of life in MND and other progressive, incurable and/or life-limiting conditions, including muscle disorders, Duchenne muscular dystrophy and palliative care populations.
“there is evidence that ACT processes such as psychological flexibility predict functioning and quality of life in MND [25] and other progressive, incurable and/or life-limiting conditions, including muscle disorders [26–28], Duchenne muscular dystrophy [29] and palliative care populations [30].”
From A randomised controlled trial of acceptance and commitment therapy plus usual care compared to usual care alone for improving psychological health in people with motor neuron disease (COMMEND): study protocol. (2022) · cites this paper as [29]
The Results report that psychological-flexibility measures differentiated men with Duchenne muscular dystrophy who had high versus low life satisfaction. The study does not establish that these processes predict functioning, and its group comparison does not establish prospective prediction of quality of life. (LLM, conf=0.84)
Experimental — accuracy not yet measured
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Cites
The PHQ-9: Validity of a brief depression severity measure
Kroenke, K., Spitzer, R. L., & Williams, J. B. W. (2001) · Journal of General Internal Medicine · doi:10.1046/j.1525-1497.2001.016009606.x · Cited by 44,910 · see citing works
The satisfaction with life scale
Diener, E., Emmons, R. A., Larsen, R. J., & Griffin, S. (1985) · Journal of Personality Assessment · doi:10.1207/s15327752jpa4901_13 · Cited by 31,768 · see citing works
A Brief Measure for Assessing Generalized Anxiety Disorder: The GAD-7
Spitzer, R. L., Kroenke, K., Williams, J. B. W., & Löwe, B. (2006) · Archives of Internal Medicine · doi:10.1001/archinte.166.10.1092 · Cited by 31,765 · see citing works
The Brief Illness Perception Questionnaire
Broadbent, E., Petrie, K. J., Main, J., & Weinman, J. (2006) · Journal of Psychosomatic Research · doi:10.1016/j.jpsychores.2005.10.020 · Cited by 3,431 · see citing works
Measuring experiential avoidance: A preliminary test of a working model
Hayes, S. C., Strosahl, K., Wilson, K. G., Bissett, R. T., Pistorello, J., Toarmino, D., Polusny, M. A., Dykstra, T. A., Batten, S. V., Bergan, J., et al. (2004) · The Psychological Record · doi:10.1007/bf03395492 · Cited by 2,140 · see citing works
Bushby, K. M. D., Finkel, R. S., Birnkrant, D. J., Case, L. E., Clemens, P. R., Cripe, L. H., Kaul, A., Kinnett, K., McDonald, C. M., Pandya, S., et al. (2009) · The Lancet Neurology · doi:10.1016/s1474-4422(09)70271-6 · Cited by 2,052 · see citing works
Handbook of Psychology and Health
Gatchel, R. J., Baum, A. E., & Singer, J. E. (2021) · Routledge eBooks · doi:10.4324/9781003161530 · Cited by 1,321 · see citing works
The dimensions of health outcomes: the health assessment questionnaire, disability and pain scales.
Fries, J. F., Spitz, P. W., & Young, D. Y. (1982) · PubMed · Cited by 1,312 · see citing works
The development and initial validation of the cognitive fusion questionnaire
Gillanders, D. T., Bolderston, H., Bond, F. W., Dempster, M., Flaxman, P. E., Campbell, L., Kerr, S., Tansey, L., Noel, P., Ferenbach, C., et al. (2014) · Behavior Therapy · doi:10.1016/j.beth.2013.09.001 · Cited by 837 · see citing works
Graham, C. D., Gouick, J., Krahé, C., & Gillanders, D. (2016) · Clinical Psychology Review · doi:10.1016/j.cpr.2016.04.009 · Cited by 476 · see citing works
Self-citationImprovement of survival in Duchenne Muscular Dystrophy: retrospective analysis of 835 patients.
Passamano, L., Taglia, A., Palladino, A., Viggiano, E., D′Ambrosio, P., Scutifero, M., Cecio, M. R., Torre, V., Luca, F. D., Picillo, E., et al. (2012) · Europe PMC (PubMed Central) · Cited by 326 · see citing works
Brain function in Duchenne muscular dystrophy
Anderson, J. L., Head, S. I., Rae, C. D., & Morley, J. W. (2002) · Brain · doi:10.1093/brain/awf012 · Cited by 310 · see citing works
Trompetter, H. R., ten Klooster, P. M., Schreurs, K. M. G., Fledderus, M., Westerhof, G. J., & Bohlmeijer, E. T. (2013) · Psychological Assessment · doi:10.1037/a0033813 · Cited by 184 · cited 4× · see citing works
“Facets of psychological flexibility were measured using 3 questionnaires: (1) the Engaged Living Scale (ELS)17 captured valued-living, the extent of engagement in personally meaningful activity; (2) the Acceptance and Action Questionnaire (AAQ)18 measured experiential acceptance, the extent to which one is open to exp…”
MethodInfluentialRahbek, J., Werge, B., Madsen, A., et al. (2005) · Developmental Neurorehabilitation · doi:10.1080/13638490400010191 · Cited by 125 · see citing works
Pangalila, R. F., van den Bos, G. A. M., Bartels, B., Bergen, M. P., Stam, H. J., & Roebroeck, M. E. (2015) · Archives of Physical Medicine and Rehabilitation · doi:10.1016/j.apmr.2015.02.012 · Cited by 111 · see citing works
Role of disease severity, illness perceptions, and mood on quality of life in muscle disease
Rose, M. R., Sadjadi, R., Weinman, J., Akhtar, T., Pandya, S., Kissel, J. T., Jackson, C. E., & the Muscle Study Group (2012) · Muscle & Nerve · doi:10.1002/mus.23320 · Cited by 73 · see citing works
Self-citationRecent advances in the management of Duchenne muscular dystrophy
Strehle, E., & Straub, V. W. (2015) · Archives of Disease in Childhood · doi:10.1136/archdischild-2014-307962 · Cited by 56 · see citing works
The Influence of Psychological Flexibility on Life Satisfaction and Mood in Muscle Disorders.
Graham, C. D., Gouick, J., Ferreira, N., & Gillanders, D. (2016) · Rehabilitation Psychology · doi:10.1037/rep0000092 · Cited by 54 · see citing works
Self-citationPangalila, R. F., van den Bos, G. A. M., Bartels, B., et al. (2015) · Journal of Rehabilitation Medicine · doi:10.2340/16501977-1898 · Cited by 52 · see citing works
Schmid, J., Lutz, S., Geers, B., et al. (2013) · Neuropediatrics · doi:10.1055/s-0033-1347935 · Cited by 50 · see citing works
Graham, C. D., Weinman, J., Sadjadi, R., Chalder, T., Petty, R., Hanna, M. G., Turner, C., Parton, M., Maddison, P., Radunovic, A., et al. (2014) · Clinical Rehabilitation · doi:10.1177/0269215513511340 · Cited by 47 · see citing works
Self-citationGraham, C. D., Simmons, Z., Stuart, S. R., & Rose, M. R. (2015) · Muscle & Nerve · doi:10.1002/mus.24487 · Cited by 43 · see citing works
Self-citation
Flagged first, then by citations
Cited by
Sorted by citations
Psychological flexibility: Positive implications for mental health and life satisfaction
Lucas, J. J., & Moore, K. A. (2020) · Health Promotion International · doi:10.1093/heapro/daz036 · Cited by 102 · see citing works
“The hypothesis that psychological flexibility would have a direct effect on life satisfaction was supported and is consistent with past research (Wicksell, Renofalt et al., 2008; Graham, Gouick et al., 2016; Graham and Rose, 2017).”
ResultGould, R. L., Thompson, B. J., Rawlinson, C., Kumar, P., White, D., Serfaty, M. A., Graham, C. D., McCracken, L. M., Bursnall, M., Bradburn, M., et al. (2022) · BMC Neurology · doi:10.1186/s12883-022-02950-5 · Cited by 16 · see citing works
“[26–28], Duchenne muscular dystrophy [29] and palliative care populations [30].”
BackgroundSelf-citationLi, Y., Yang, F.-L., Pan, C., Chu, Q.-Q., & Tang, Q.-P. (2021) · Frontiers in Psychology · doi:10.3389/fpsyg.2021.655518 · Cited by 7 · see citing works
“Theoretically, the ability to pursue valued goals in the presence of unwanted private events has a positive impact on life satisfaction (Graham et al., 2016; Graham and Rose, 2017).”
Background
- Authors
- Graham, C. D., & Rose, M. R.
- Affiliations
- University of Leeds (GB)
- King's College Hospital (GB)
- Corresponding author
- Graham, Christopher D.
- Venue
- Muscle & Nerve
- Publisher
- Wiley
- Published
- 2017-03-31
- Volume
- 56
- Issue
- 1
- Pages
- 163-166
- ISSN
- 0148-639X (ISSN-L)
- 1097-4598
- OpenAlex
- W2560816310
- Cited by
- 14
- References
- 22
- Citations by year
- 2025: 3 · 2024: 1 · 2023: 1 · 2022: 3 · 2021: 1 · 2020: 1 · 2019: 2 · 2018: 2
- FWCI
- 2.09
- Type
- journal article
- Language
- en
- Open access
- Locations
- Muscle & Nerve (publishedVersion)
- PubMed (publishedVersion)
- White Rose Research Online (University of Leeds, The University of Sheffield, University of York) (acceptedVersion)
- Strathprints: The University of Strathclyde institutional repository (University of Strathclyde) (submittedVersion)
- Research Portal (Queen's University Belfast) (submittedVersion)
- Topics
- Social Sciences › Psychology › Social Psychology › Psychological Well-being and Life Satisfaction
- Social Sciences › Psychology › Clinical Psychology › Mindfulness and Compassion Interventions
- Health Sciences › Medicine › Genetics › Neurogenetic and Muscular Disorders Research
- Keywords
- Duchenne muscular dystrophy, life satisfaction, psychological flexibility, self-regulatory model, illness perception, meaningful activities, psychological intervention, mood
- MeSH terms
- Adolescent, Adult, Aged, Female, Humans, Male, Middle Aged, Models, Psychological, Online Systems, Personal Satisfaction, Psychotherapy, Surveys and Questionnaires, Case-Control Studies, Muscular Dystrophy, Duchenne, Young Adult
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
