Systematic review of psychosocial morbidities among bereaved parents of children with cancer
Open accessAbstract
The objective of this review was to comprehensively summarize existing studies utilizing validated instruments to measure psychosocial outcomes among bereaved parents of children with cancer. This population has increased risks of anxiety, depression, prolonged grief, and poor quality of life. Parental morbidity is associated with psychiatric co‐morbidities, prior loss, economic hardship, duration, and intensity of child's cancer‐therapy, perceptions of medical care, child's quality of life, preparedness for and location of the child's death. Rigorous, prospective research is needed to identify risk‐groups, define outcomes, and design interventions which will improve parental outcomes after the death of a child due to cancer. Pediatr Blood Cancer 2012; 58: 503–512. © 2011 Wiley Periodicals, Inc.
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Bereaved parental anxiety and quality of life scales correlate with level of child anxiety and pain at end of life.
“Bereaved parental anxiety and quality of life scales have correlated with level of child anxiety and pain at end of life,[19–22]”
From Palliative Care as a Standard of Care in Pediatric Oncology (2015) · cites this paper as [21]
In Results, under “Bereaved Parents of Children with Cancer: sub-group comparisons” (page unavailable), the review reports higher anxiety and poorer quality of life among bereaved parents who perceived their child as anxious. It does not report a corresponding association with the child’s pain, and the child’s anxiety was assessed through parental perception rather than a measured level. (LLM, conf=0.86)
Experimental — accuracy not yet measuredEarly integration of palliative care as a standard has potential to improve long-term family wellness outcomes.
“implying early integration of palliative care as a standard of care has potential to improve long-term family wellness outcomes.”
From Palliative Care as a Standard of Care in Pediatric Oncology (2015) · cites this paper as [21]
The Discussion says future research may identify interventions that improve parent and family outcomes after a child’s death from cancer. It does not identify early integration of palliative care as such an intervention or recommend it as a standard of care. The Discussion also notes that evidence on long-term family outcomes is limited; page numbers were not available in our copy. (LLM, conf=0.82)
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- Authors
- Rosenberg, A. R., Baker, K. S., Syrjala, K., & Wolfe, J.
- Affiliations
- Seattle Children's Hospital (US)
- University of Washington (US)
- Boston Children's Hospital (US)
- Corresponding author
- Rosenberg, Abby R.
- Venue
- Pediatric Blood & Cancer
- Publisher
- Wiley
- Published
- 2011-10-28
- Volume
- 58
- Issue
- 4
- Pages
- 503-512
- ISSN
- 1545-5009 (ISSN-L)
- 1545-5017
- PMC
- PMC3270147
- OpenAlex
- W2121511266
- Semantic Scholar
- 4c169f2e7ec47e6a2cbd2f0195b4f12ecf41fa5c
- Cited by
- 160
- References
- 42
- Citations by year
- 2026: 5 · 2025: 6 · 2024: 15 · 2023: 15 · 2022: 10 · 2021: 18 · 2020: 14 · 2019: 11 · 2018: 9 · 2017: 16 · 2016: 9 · 2015: 17 · 2014: 8 · 2013: 5 · 2012: 2
- FWCI
- 0.73
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Pediatric Blood & Cancer (publishedVersion)
- PubMed (publishedVersion)
- Europe PMC (PubMed Central) (acceptedVersion)
- PubMed Central (acceptedVersion)
- Funders
- Ruth L. Kirschstein National Research Service Award (T32CA009351)
- Topics
- Social Sciences › Psychology › Clinical Psychology › Grief, Bereavement, and Mental Health
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Childhood Cancer Survivors' Quality of Life
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Keywords
- parental bereavement, childhood cancer, psychosocial morbidity, anxiety, depression, prolonged grief disorder, quality of life, economic hardship, child death, psychiatric comorbidity
- MeSH terms
- Adolescent, Adult, Anxiety, Child, Child, Preschool, Depression, Female, Grief, Humans, Male, Middle Aged, Neoplasms, Parent-Child Relations, Parents, Quality of Life, Risk Factors, Socioeconomic Factors, MEDLINE, Hospice Care
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