Parental Grief After Losing a Child to Cancer: Impact of Professional and Social Support on Long-Term Outcomes
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Purpose: It is still uncertain whether or not parents can ever come to terms with the loss of a child and whether professional or social support facilitate the long-term grief process. Methods: A Swedish population-based study, which sent an anonymous, mail-in questionnaire to parents who had lost a child to a malignancy 4 to 9 years earlier, gained the participation of 449 (80%) of 561 parents. Parents were asked whether, and to what extent, they had worked through their grief. Questions were also asked regarding those who provided parents with support. We examined candidate factors to determine their associations with greater likelihood of working through parental grief. Results: Overall, most parents (74%) stated that they had worked through their grief “a lot” or “completely” at the time of the follow-up. Parents who had shared their problems with others during the child's illness (fathers: relative risk [RR], 3.0; 95% CI, 1.8 to 5.0; mothers: RR 1.9; 95% CI, 1.2 to 2.8) and who had access to psychological support during the last month of their child's life (fathers: RR 1.4; 95% CI, 1.0 to 1.8; mothers: RR 1.3; 95% CI, 1.1 to 1.6) were more likely to have worked through their grief. In cases where health care staff offered parents counseling during the child's last month, the parents were more likely to have worked through their grief (fathers: RR 1.5; 95% CI, 1.2 to 1.8; mothers; RR 1.2; 95% CI, 1.1 to 1.4). Conclusion: Most parents eventually work through the grief associated with losing a child to cancer. In the long term, sharing the emotional burden with others facilitates the grieving process.
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Grief after the loss of a child is more intense and persistent than after other types of bereavement.
“It is widely accepted that grief after the loss of a child is more intense and persistent than after other types of bereavement.[1][2][3]”
From Mental health services for parents who lost a child to cancer: if we build them, Will they come? (2015) · cites this paper as [2]
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Cites
Inventory of complicated grief: a scale to measure maladaptive symptoms of loss.
Prigerson, H. G., Maciejewski, P. K., Reynolds, C. F., Bierhals, A. J., Newsom, J. T., Fasiczka, A., Frank, E., Doman, J., & Miller, M. (1995) · Psychiatry Research · doi:10.1016/0165-1781(95)02757-2 · Cited by 1,582 · see citing works
Bowlby, J. (1980) · Medical Entomology and Zoology · Cited by 1,207 · see citing works
Symptoms and Suffering at the End of Life in Children with Cancer
Wolfe, J., Grier, H. E., Klar, N. S., Levin, S. B., Ellenbogen, J. M., Salem-Schatz, S. R., Emanuel, E. J., & Weeks, J. C. (2000) · New England Journal of Medicine · doi:10.1056/nejm200002033420506 · Cited by 1,188 · see citing works
Self-citationMortality in parents after death of a child in Denmark: a nationwide follow-up study
Li, J., Precht, D. H., Mortensen, P. B., & Olsen, J. (2003) · The Lancet · doi:10.1016/s0140-6736(03)12387-2 · Cited by 553 · see citing works
Bereavement: Reactions, Consequences, and Care.
Owen, G., Osterweis, M., Solomon, F., & Green, M. (1985) · Contemporary Sociology A Journal of Reviews · doi:10.2307/2071413 · Cited by 497 · see citing works
Understanding of Prognosis Among Parents of Children Who Died of Cancer
Wolfe, J., Klar, N. S., Grier, H. E., Duncan, J., Salem-Schatz, S. R., Emanuel, E. J., & Weeks, J. C. (2000) · JAMA · doi:10.1001/jama.284.19.2469 · Cited by 466 · see citing works
Self-citationParent and Physician Perspectives on Quality of Care at the End of Life in Children With Cancer
Mack, J. W., Hilden, J. M., Watterson, J., Moore, C., Turner, B., Grier, H. E., Weeks, J. C., & Wolfe, J. (2005) · Journal of Clinical Oncology · doi:10.1200/jco.2005.04.010 · Cited by 346 · see citing works
Self-citationJordan, J. R., & Neimeyer, R. A. (2003) · Death Studies · doi:10.1080/713842360 · Cited by 336 · see citing works
Bereavement and Health: The Psychological and Physical Consequences of Partner Loss.
Glass, T. A., Stroebe, W., & Stroebe, M. (1988) · Contemporary Sociology A Journal of Reviews · doi:10.2307/2074020 · Cited by 308 · see citing works
Zhang, B., El-Jawahri, A. R., & Prigerson, H. G. (2006) · Journal of Palliative Medicine · doi:10.1089/jpm.2006.9.1188 · Cited by 307 · see citing works
DEVELOPMENT AND VALIDATION OF THE HOGAN GRIEF REACTION CHECKLIST
Hogan, D. B. G. N. S., Greenfield, D. B., & Schmidt, L. A. (2001) · Death Studies · doi:10.1080/07481180125831 · Cited by 274 · see citing works
Kreicbergs, U. C., Valdimarsdóttir, U. A., Onelöv, E., Henter, J., & Steineck, G. (2004) · Psychological Medicine · doi:10.1017/s0033291704002740 · Cited by 255 · see citing works
Self-citationDoes Social Support Help in Bereavement?
Stroebe, W., Zech, E., Stroebe, M., & Abakoumkin, G. (2005) · Journal of Social and Clinical Psychology · doi:10.1521/jscp.2005.24.7.1030 · Cited by 243 · see citing works
Grief work, disclosure and counseling: Do they help the bereaved?
Stroebe, W., Schut, H. A. W., & Stroebe, M. (2005) · Clinical Psychology Review · doi:10.1016/j.cpr.2005.01.004 · Cited by 217 · see citing works
Care-Related Distress: A Nationwide Study of Parents Who Lost Their Child to Cancer
Kreicbergs, U. C., Valdimarsdóttir, U. A., Onelöv, E., Björk, O., Steineck, G., & Henter, J. (2005) · Journal of Clinical Oncology · doi:10.1200/jco.2005.08.557 · Cited by 203 · see citing works
Self-citationMiddleton, W., Raphael, B., Martinek, N., & Burnett, P. C. (1998) · Australian & New Zealand Journal of Psychiatry · doi:10.3109/00048679809062734 · Cited by 189 · see citing works
Pathological grief and the activation of latent self-images
Horowitz, M. J., Wilner, N., Marmar, C. R., & KRUPNICK, J. L. (1980) · American Journal of Psychiatry · doi:10.1176/ajp.137.10.1157 · Cited by 165 · see citing works
Rando, T. A., & KOWALSKI, K. (1987) · AJN American Journal of Nursing · doi:10.1097/00000446-198710000-00035 · Cited by 161 · see citing works
Goodenough, B., Drew, D., Higgins, S., & Trethewie, S. (2004) · Psycho-Oncology · doi:10.1002/pon.795 · Cited by 124 · see citing works
New understandings of parental grief: literature review.
Davies, R. (2004) · Journal of Advanced Nursing · doi:10.1111/j.1365-2648.2004.03024.x · Cited by 111 · see citing works
Gender differences in parental grief
Schwab, R. (1996) · Death Studies · doi:10.1080/07481189608252744 · Cited by 101 · see citing works
The Needs of Parents of Pediatric Oncology Patients During the Palliative Care Phase
James, L., & Johnson, B. A. (1997) · Journal of Pediatric Oncology Nursing · doi:10.1177/104345429701400207 · Cited by 87 · see citing works
Murphy, S. A., Chung, I., & Johnson, L. C. (2002) · Research in Nursing & Health · doi:10.1002/nur.10060 · Cited by 70 · see citing works
Factor structure of the Grief Experience Questionnaire (GEQ)
E. Bailley, K. D. (2000) · Death Studies · doi:10.1080/074811800750036596 · Cited by 69 · see citing works
Measuring anxiety and depression in the oncology setting using visual-digital scales
Onelöv, E., Steineck, G., Nyberg, U., Hauksdóttir, A., Kreicbergs, U. C., Henningsohn, L., Bergmark, K. H., & Valdimarsdóttir, U. A. (2007) · Acta Oncologica · doi:10.1080/02841860601156124 · Cited by 53 · see citing works
Self-citationInfluence of Gender on the Problems of Parents of Fatally Ill Children
Cook, J. Α. (1984) · Journal of Psychosocial Oncology · doi:10.1300/j077v02n01_06 · Cited by 51 · see citing works
Life events, social support and depression in haemodialysis patients
Elal, G., & Krespi, M. R. (1999) · Journal of Community & Applied Social Psychology · doi:10.1002/(sici)1099-1298(199901/02)9:1 · Cited by 27 · see citing works
Family coping. Supportive and obstructive factors
Kupst, M. J. (1993) · Cancer · doi:10.1002/1097-0142(19930515)71:10+ · Cited by 17 · see citing works
Flagged first, then by citations
2 of the 30 references couldn’t be matched to a known paper.
Cited by
Sorted by citations
Lannen, P. K., Wolfe, J., Prigerson, H. G., Onelov, E., & Kreicbergs, U. C. (2008) · Journal of Clinical Oncology · doi:10.1200/jco.2007.14.6738 · Cited by 246 · see citing works
Self-citationSense and significance: a mixed methods examination of meaning making after the loss of one's child
Lichtenthal, W. G., Currier, J. M., Neimeyer, R. A., & Keesee, N. J. (2010) · Journal of Clinical Psychology · doi:10.1002/jclp.20700 · Cited by 211 · see citing works
Systematic review of psychosocial morbidities among bereaved parents of children with cancer
Rosenberg, A. R., Baker, K. S., Syrjala, K., & Wolfe, J. (2012) · Pediatric Blood & Cancer · doi:10.1002/pbc.23386 · Cited by 160 · see citing works
Self-citationHospital-based bereavement services following the death of a child: A mixed study review
Donovan, L., Wakefield, C. E., Russell, V., & Cohn, R. J. (2014) · Palliative Medicine · doi:10.1177/0269216314556851 · Cited by 151 · see citing works
Bereavement Follow‐Up After the Death of a Child as a Standard of Care in Pediatric Oncology
Lichtenthal, W. G., Sweeney, C. R., Roberts, K. E., Corner, G. W., Donovan, L. A., Prigerson, H. G., & Wiener, L. (2015) · Pediatric Blood & Cancer · doi:10.1002/pbc.25700 · Cited by 143 · see citing works
Prevalence and Predictors of Parental Grief and Depression after the Death of a Child from Cancer
McCarthy, M. C., Clarke, N. E., Ting, C. L., Conroy, R., Anderson, V. A., & Heath, J. A. (2010) · Journal of Palliative Medicine · doi:10.1089/jpm.2010.0037 · Cited by 142 · see citing works
The Grief of Parents After the Death of a Young Child
Morris, S. E., Fletcher, K., & Goldstein, R. D. (2018) · Journal of Clinical Psychology in Medical Settings · doi:10.1007/s10880-018-9590-7 · Cited by 135 · see citing works
Psychometric properties of the Prolonged Grief Disorder-13 (PG-13) in bereaved Swedish parents
Pohlkamp, L., Kreicbergs, U., Prigerson, H. G., & Sveen, J. (2018) · Psychiatry Research · doi:10.1016/j.psychres.2018.06.004 · Cited by 120 · see citing works
Self-citationKochen, E. M., Jenken, F., Boelen, P. A., Deben, L. M. A., Fahner, J. C., van den Hoogen, A., Teunissen, S. C. C. M., Geleijns, K. P. W., & Kars, M. C. (2020) · BMC Palliative Care · doi:10.1186/s12904-020-0529-z · Cited by 123 · see citing works
Guidance for Pediatric End-of-Life Care
Linebarger, J., Johnson, V., Boss, R. D., & MEDICINE, T. S. O. H. A. P. (2022) · PEDIATRICS · doi:10.1542/peds.2022-057011 · Cited by 119 · see citing works
Mental health services for parents who lost a child to cancer: if we build them, Will they come?
Lichtenthal, W. G., Corner, G. W., Sweeney, C. R., Wiener, L., Roberts, K. E., Baser, R. E., Li, Y., Breitbart, W., Kissane, D. W., & Prigerson, H. G. (2015) · Journal of Clinical Oncology · doi:10.1200/jco.2014.59.0406 · Cited by 111 · see citing works
Maurer, S. H., Hinds, P. S., Spunt, S. L., Furman, W. L., Kane, J. R., & Baker, J. N. (2010) · Journal of Clinical Oncology · doi:10.1200/jco.2009.26.6502 · Cited by 110 · see citing works
Meert, K. L. (2010) · Archives of Pediatrics & Adolescent Medicine · doi:10.1001/archpediatrics.2010.187 · Cited by 104 · see citing works
Interventions for bereaved parents following a child’s death: A systematic review
Endo, K., Yonemoto, N., & Yamada, M. (2015) · Palliative Medicine · doi:10.1177/0269216315576674 · Cited by 94 · see citing works
Klick, J. C., & Hauer, J. (2010) · Current problems in pediatric and adolescent health care · doi:10.1016/j.cppeds.2010.05.001 · Cited by 89 · see citing works
Vern-Gross, T. Z., Lam, C. G., Graff, Z. T., Singhal, S., Levine, D. R., Gibson, D. V., Sykes, A. D., Anghelescu, D. L., Yuan, Y., & Baker, J. N. (2015) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2015.03.008 · Cited by 87 · see citing works
Empowering Bereaved Parents Through the Development of a Comprehensive Bereavement Program
Snaman, J. M., Kaye, E. C., Levine, D. R., Cochran, B., Wilcox, R., Sparrow, C. K., Noyes, N., Clark, L., Avery, W., & Baker, J. N. (2016) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2016.10.359 · Cited by 85 · see citing works
Dyadic Coping of Parents After the Death of a Child
Bergsträßer, E., Inglin, S., Hornung, R., & Landolt, M. A. (2014) · Death Studies · doi:10.1080/07481187.2014.920434 · Cited by 84 · see citing works
Zimmermann, K., Bergsträßer, E., Engberg, S. J., Ramelet, A., Marfurt-Russenberger, K., von der Weid, N., Grandjean, C., Fahrni-Nater, P., & Cignacco, E. (2016) · BMC Palliative Care · doi:10.1186/s12904-016-0098-3 · Cited by 83 · see citing works
Robinson, C., & Pond, R. (2019) · Computers in Human Behavior · doi:10.1016/j.chb.2019.06.011 · Cited by 81 · see citing works
Grief and bereavement in fathers after the death of a child: a systematic review
McNeil, M. J., Baker, J. N., Snyder, I., Rosenberg, A. R., & Kaye, E. C. (2021) · Pediatrics · doi:10.1542/peds.2020-040386 · Cited by 77 · see citing works
Kars, M. C., Grypdonck, M. H. F., Korte-Verhoef, M. C. D., Kamps, W. A., van den Bergh, E. M. , Verkerk, M. A., & van Delden, J. J. M. (2009) · Supportive Care in Cancer · doi:10.1007/s00520-009-0785-1 · Cited by 77 · see citing works
Cao, X., Yang, C., & Wang, D. (2018) · OMEGA - Journal of Death and Dying · doi:10.1177/0030222818755284 · Cited by 80 · see citing works
Feigelman, W. T., Rosen, Z., Joiner, T. E., Silva, C., & Mueller, A. S. (2016) · Death Studies · doi:10.1080/07481187.2016.1226990 · Cited by 75 · see citing works
High, A. C., & Solomon, D. H. (2014) · Communication Monographs · doi:10.1080/03637751.2014.933245 · Cited by 75 · see citing works
They still grieve—a nationwide follow‐up of young adults 2–9 years after losing a sibling to cancer
Sveen, J., Eilegård, A., Steineck, G., & Kreicbergs, U. C. (2013) · Psycho-Oncology · doi:10.1002/pon.3463 · Cited by 73 · see citing works
Self-citationPediatric palliative care—when quality of life becomes the main focus of treatment
Bergsträßer, E. (2012) · European Journal of Pediatrics · doi:10.1007/s00431-012-1710-z · Cited by 69 · see citing works
Parental Grief Following the Death of a Child from Cancer: The Ongoing Odyssey
Snaman, J. M., Kaye, E., Torres, C., Gibson, D. V., & Baker, J. N. (2016) · Pediatric Blood & Cancer · doi:10.1002/pbc.26046 · Cited by 61 · see citing works
Wiener, L., Rosenberg, A., Lichtenthal, W. G., Tager, J. B., & Weaver, M. S. (2018) · Palliative & Supportive Care · doi:10.1017/s1478951517001249 · Cited by 55 · see citing works
Ljungman, L., Boger, M., Ander, M., Ljótsson, B., Cernvall, M., von Essén, L., & Hovén, E. (2016) · PLoS ONE · doi:10.1371/journal.pone.0157076 · Cited by 65 · see citing works
Coping with cancer: The perspective of patients’ relatives
Hagedoorn, M., Kreicbergs, U. C., & Appel, C. (2011) · Acta Oncologica · doi:10.3109/0284186x.2010.536165 · Cited by 61 · see citing works
Self-citationFactors influencing parental readiness to let their child with cancer die
Kars, M. C., Grypdonck, M. H. F., Beishuizen, A., van den Bergh, E. M. , & van Delden, J. J. M. (2010) · Pediatric Blood & Cancer · doi:10.1002/pbc.22532 · Cited by 61 · see citing works
The Grief of Mothers After the Sudden Unexpected Death of Their Infants
Goldstein, R. D., Lederman, R. I., Lichtenthal, W. G., Morris, S. E., Human, M., Elliott, A., Tobacco, D., Angal, J., Odendaal, H. J., Kinney, H. C., et al. (2018) · PEDIATRICS · doi:10.1542/peds.2017-3651 · Cited by 60 · see citing works
Pediatric psycho‐oncology care: standards, guidelines, and consensus reports
Wiener, L. S., Viola, A., Koretski, J. A., Perper, E. D., & Patenaude, A. F. (2014) · Psycho-Oncology · doi:10.1002/pon.3589 · Cited by 56 · see citing works
Jaaniste, T., Coombs, S., Donnelly, T. J., Kelk, N., & Beston, D. (2017) · Children · doi:10.3390/children4110096 · Cited by 55 · see citing works
Lövgren, M., Sveen, J., Nyberg, T., Eilegård, A., Prigerson, H. G., Steineck, G., & Kreicbergs, U. C. (2017) · Journal of Palliative Medicine · doi:10.1089/jpm.2017.0029 · Cited by 54 · see citing works
Self-citationUnderstanding of Prognosis and Goals of Care Among Couples Whose Child Died of Cancer
Edwards, K. E., Neville, B. A., Cook, E. F., Aldridge, S. H., Dussel, V., & Wolfe, J. (2008) · Journal of Clinical Oncology · doi:10.1200/jco.2007.13.4056 · Cited by 52 · see citing works
Self-citationPalliative Care in the Pediatric ICU: Challenges and Opportunities for Family-Centered Practice
Doorenbos, A. Z., Lindhorst, T. P., Starks, H. E., Aisenberg, E., Curtis, J. R., & Hays, R. (2012) · Journal of Social Work in End-of-Life & Palliative Care · doi:10.1080/15524256.2012.732461 · Cited by 52 · see citing works
Bereaved Parents' Experiences of Supportive and Unsupportive Communication
Toller, P. W. (2011) · Southern Communication Journal · doi:10.1080/10417940903159393 · Cited by 51 · see citing works
Aho, A. L., Tarkka, M., Åstedt-Kurki, P. M., Sorvari, L., & Kaunonen, M. (2011) · Death Studies · doi:10.1080/07481187.2011.553318 · Cited by 53 · see citing works
Darbyshire, P., Cleghorn, A., Downes, M., Elford, J., Gannoni, A., McCullagh, C., & Shute, R. (2013) · Journal of Clinical Nursing · doi:10.1111/j.1365-2702.2012.04266.x · Cited by 49 · see citing works
Experiences of African American Parents Following Perinatal or Pediatric Death: A Literature Review
Boyden, J. Y., Kavanaugh, K., Issel, L. M., Eldeirawi, K., & Meert, K. L. (2014) · Death Studies · doi:10.1080/07481187.2013.766656 · Cited by 43 · see citing works
Evaluating a bereavement follow‐up intervention for grieving mothers after the death of a child
Raitio, K., Kaunonen, M., & Aho, A. L. (2015) · Scandinavian Journal of Caring Sciences · doi:10.1111/scs.12183 · Cited by 43 · see citing works
Snaman, J. M., Morris, S. E., Rosenberg, A. R., Holder, R. L., Baker, J. N., & Wolfe, J. (2019) · Supportive Care in Cancer · doi:10.1007/s00520-019-05249-3 · Cited by 44 · see citing works
Self-citationVegsund, H. K., Reinfjell, T., Moksnes, U. K., Eilegård, A., Hjemdal, O., & Eilertsen, M. B. (2019) · PLoS ONE · doi:10.1371/journal.pone.0214138 · Cited by 40 · see citing works
Healing the hearts of bereaved parents: Impact of legacy artwork on grief in pediatric oncology.
Schaefer, M. R., Wagoner, S. T., Young, M., Madan-Swain, A., Barnett, M. D., & Gray, W. (2020) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2020.04.018 · Cited by 36 · see citing works
Bereaved siblings' perception of participating in research—a nationwide study
Eilegård, A., Steineck, G., Nyberg, T., & Kreicbergs, U. C. (2011) · Psycho-Oncology · doi:10.1002/pon.2105 · Cited by 41 · see citing works
Self-citationThe Experiences of Bereaved Parents After the Loss of a Child to Cancer: A Qualitative Metasynthesis
Polita, N. B., deMontigny, F., Neris, R., Alvarenga, W. D. A., Silva-Rodrigues, F., Leite, A., & Nascimento, L. (2020) · Journal of Pediatric Oncology Nursing · doi:10.1177/1043454220944059 · Cited by 38 · see citing works
Absorbing Information about a Child’s Incurable Cancer
Lannen, P., Wolfe, J., Mack, J. W., Onelöv, E., Nyberg, U., & Kreicbergs, U. C. (2010) · Oncology · doi:10.1159/000315732 · Cited by 38 · see citing works
Self-citationFactors That Distinguish Symptoms of Most Concern to Parents from Other Symptoms of Dying Children
Pritchard, M., Burghen, E. A., Gattuso, J. S., West, N. K., Gajjar, P., Srivastava, D. K., Spunt, S. L., Baker, J. N., Kane, J. R., Furman, W. L., et al. (2010) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2009.08.012 · Cited by 38 · see citing works
Stroebe, M., Schut, H. A. W., & Finkenauer, C. (2013) · Family Science · doi:10.1080/19424620.2013.819229 · Cited by 38 · see citing works
Grief and Bereavement in Parents After the Death of a Child in Low- and Middle-Income Countries
McNeil, M. J., Namisango, E., Hunt, J., Powell, R. A., & Baker, J. N. (2020) · Children · doi:10.3390/children7050039 · Cited by 37 · see citing works
Misko, M. D., dos Santos, M. R., Ichikawa, C. R. D. F., de Lima, R. A. G., & Bousso, R. S. (2015) · Revista Latino-Americana de Enfermagem · doi:10.1590/0104-1169.0468.2588 · Cited by 36 · see citing works
Living Through the Life-Altering Loss of a Child: A Narrative Review
Price, J. E., & Jones, A. M. (2015) · Issues in Comprehensive Pediatric Nursing · doi:10.3109/01460862.2015.1045102 · Cited by 36 · see citing works
A photovoice study on the bereavement experience of mothers after the death of a child
Kim, M., Yi, J., Sang, J., & Jung, D.-K. (2019) · Death Studies · doi:10.1080/07481187.2019.1648333 · Cited by 21 · see citing works
Providing Palliative and Hospice Care to Children, Adolescents and Young Adults with Cancer
Pyke‐Grimm, K. A., Fisher, B., Haskamp, A. C., Bell, C. J., & Newman, A. R. (2021) · Seminars in Oncology Nursing · doi:10.1016/j.soncn.2021.151166 · Cited by 35 · see citing works
Contro, N., & Sourkes, B. M. (2012) · Journal of Palliative Care · doi:10.1177/082585971202800105 · Cited by 34 · see citing works
Bereavement Needs of Adults, Children, and Families After Cancer
Kim, Y., Lucette, A., & Loscalzo, M. J. (2013) · The Cancer Journal · doi:10.1097/ppo.0b013e3182a5babe · Cited by 35 · see citing works
Mandrell, B. N., Baker, J. N., Levine, D. R., Gattuso, J. S., West, N. K., Sykes, A. D., Gajjar, A. J., & Broniscer, A. (2016) · Journal of Neuro-Oncology · doi:10.1007/s11060-016-2187-9 · Cited by 33 · see citing works
Pohlkamp, L., Kreicbergs, U. C., & Sveen, J. (2019) · Journal of Clinical Oncology · doi:10.1200/jco.19.01493 · Cited by 33 · see citing works
Self-citationEnd-of-Life Care for Hospitalized Children
Johnson, L., Snaman, J. M., Cupit-Link, M., & Baker, J. N. (2014) · Pediatric Clinics of North America · doi:10.1016/j.pcl.2014.04.012 · Cited by 32 · see citing works
Eggly, S. S., Meert, K. L., BERGER, J. T., Zimmerman, J. J., Anand, K. J. S., Newth, C. J. L., Harrison, R. E., Carcillo, J. A., Dean, J. M., Willson, D. F., et al. (2010) · Pediatric Critical Care Medicine · doi:10.1097/pcc.0b013e3181e8b40c · Cited by 33 · see citing works
Mooney‐Doyle, K., & Deatrick, J. A. (2015) · Palliative & Supportive Care · doi:10.1017/s1478951515000905 · Cited by 31 · see citing works
Thienprayoon, R., Mark, M. S. J., & Grossoehme, D. H. (2017) · Journal of Palliative Medicine · doi:10.1089/jpm.2017.0333 · Cited by 31 · see citing works
Understanding Bereavement: What Every Oncology Practitioner Should Know
Kacel, E. L., Gao, X., & Prigerson, H. G. (2011) · The Journal of Supportive Oncology · doi:10.1016/j.suponc.2011.04.007 · Cited by 31 · see citing works
Maintaining family life balance while facing a child's imminent death—A mixed methods study
Eskola, K., Bergsträßer, E., Zimmermann, K., & Cignacco, E. (2017) · Journal of Advanced Nursing · doi:10.1111/jan.13304 · Cited by 30 · see citing works
Engaging Parents of Children Who Died From Cancer in Research on the Early Grief Experience
Snaman, J. M., Helton, G., Baker, J. N., Morris, S. E., Al‐Sayegh, H., Ma, C., & Wolfe, J. (2020) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2020.09.014 · Cited by 29 · see citing works
Self-citationSnaman, J. M., Mazzola, E., Helton, G., Feifer, D., Morris, S. E., Clark, L., Baker, J. N., & Wolfe, J. (2023) · JCO Oncology Practice · doi:10.1200/op.22.00538 · Cited by 26 · see citing works
Self-citationHenoch, I., Goliath, I., Holm, M., James, I., Sarenmalm, E. K., Hagelin, C. L., Lind, S., Sandgren, A., & Öhlén, J. (2015) · Scandinavian Journal of Caring Sciences · doi:10.1111/scs.12253 · Cited by 26 · see citing works
Zimmermann, K., Cignacco, E., Eskola, K., Engberg, S. J., Ramelet, A., von der Weid, N., & Bergsträßer, E. (2015) · Journal of Advanced Nursing · doi:10.1111/jan.12741 · Cited by 26 · see citing works
Weaver, M. S., Lichtenthal, W. G., Larson, K., & Wiener, L. S. (2018) · Pediatric Blood & Cancer · doi:10.1002/pbc.27489 · Cited by 26 · see citing works
Schaefer, M. R., Spencer, S. K., Barnett, M. D., Reynolds, N. C., & Madan‐Swain, A. (2019) · Journal of Palliative Medicine · doi:10.1089/jpm.2018.0329 · Cited by 26 · see citing works
Much is left unspoken: Self‐reports from families in pediatric oncology
Lövgren, M., Udo, C., Alvariza, A., & Kreicbergs, U. C. (2020) · Pediatric Blood & Cancer · doi:10.1002/pbc.28735 · Cited by 25 · see citing works
Self-citationNikkola, I., Kaunonen, M., & Aho, A. L. (2013) · Journal of Clinical Nursing · doi:10.1111/j.1365-2702.2012.04247.x · Cited by 25 · see citing works
Peer Supporters' Experiences of a Bereavement Follow-up Intervention for Grieving Parents
Aho, A. L., Åstedt-Kurki, P. M., & Kaunonen, M. (2014) · OMEGA - Journal of Death and Dying · doi:10.2190/om.68.4.d · Cited by 26 · see citing works
Schoonover, K. L., Prokop, L., & Lapid, M. I. (2022) · Journal of Palliative Care · doi:10.1177/08258597211062762 · Cited by 22 · see citing works
Gerrish, N. J., Neimeyer, R. A., & Bailey, S. (2014) · Journal of Constructivist Psychology · doi:10.1080/10720537.2014.904700 · Cited by 24 · see citing works
Bergsträßer, E., Zimmermann, K., Eskola, K., Lück, P., Ramelet, A., & Cignacco, E. (2015) · Journal of Advanced Nursing · doi:10.1111/jan.12650 · Cited by 24 · see citing works
Impact of a Neonatal-Bereavement-Support DVD on Parental Grief: A Randomized Controlled Trial
Rosenbaum, J. L., Smith, J. R., Yan, Y., Abram, N., & Jeffe, D. B. (2014) · Death Studies · doi:10.1080/07481187.2014.946628 · Cited by 25 · see citing works
Legacy Building in Pediatric End-of-Life Care through Innovative Use of a Digital Stethoscope
Andrews, E., Hayes, A., Cerulli, L., Miller, E. G., & Slamon, N. B. (2020) · Palliative Medicine Reports · doi:10.1089/pmr.2020.0028 · Cited by 23 · see citing works
Eli, B., Liang, Y., Chen, Y., Huang, X. M., & Liu, Z. (2021) · Journal of Affective Disorders · doi:10.1016/j.jad.2021.08.123 · Cited by 22 · see citing works
Thienprayoon, R., Alessandrini, E. A., Frimpong-Manso, M., & Grossoehme, D. H. (2018) · Journal of Palliative Medicine · doi:10.1089/jpm.2018.0056 · Cited by 22 · see citing works
Helton, G., Wolfe, J., & Snaman, J. M. (2020) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2020.08.035 · Cited by 22 · see citing works
Self-citationFathers’ Experience After the Death of Their Child (Aged 1–17 Years)
Proulx, M.-C., Martinez, A.-M., Carnevale, F. A., & Legault, A. (2016) · OMEGA - Journal of Death and Dying · doi:10.1177/0030222815590715 · Cited by 22 · see citing works
The needs of professionals in the palliative care of children and adolescents
Bergsträßer, E., Inglin, S., Abbruzzese, R., Marfurt-Russenberger, K., Hošek, M., & Hornung, R. (2012) · European Journal of Pediatrics · doi:10.1007/s00431-012-1880-8 · Cited by 22 · see citing works
If only I could turn back time—Regret in bereaved parents
Sim, C., Heuse, S., Weigel, D., & Kendel, F. (2020) · Pediatric Blood & Cancer · doi:10.1002/pbc.28265 · Cited by 21 · see citing works
Acute and long-term grief reactions and experiences in parentally cancer-bereaved teenagers
Bylund‐Grenklo, T., Birgisdóttir, D., Beernaert, K., Nyberg, T., Skokic, V., Kristensson, J., Steineck, G., Fürst, C. J., & Kreicbergs, U. C. (2021) · BMC Palliative Care · doi:10.1186/s12904-021-00758-7 · Cited by 24 · see citing works
Self-citationMixed‐methods analysis of decisional regret in parents following a child's death from cancer
Feifer, D., Broden, E. G., Xiong, N., Mazzola, E., Baker, J. N., Wolfe, J., & Snaman, J. M. (2023) · Pediatric Blood & Cancer · doi:10.1002/pbc.30541 · Cited by 21 · see citing works
Self-citationImpact of specialized pediatric palliative care programs on communication and decision-making
Streuli, J. C., Widger, K. A., Medeiros, C., Zúñiga-Villanueva, G., & Trenholm, M. (2019) · Patient Education and Counseling · doi:10.1016/j.pec.2019.02.011 · Cited by 21 · see citing works
Parents’ views on what facilitated or complicated their grief after losing a child to cancer
Pohlkamp, L., Sveen, J., Kreicbergs, U. C., & Lövgren, M. (2020) · Palliative & Supportive Care · doi:10.1017/s1478951520001212 · Cited by 21 · see citing works
Self-citationSpirituality and religious coping are related to cancer-bereaved siblings’ long-term grief
Lövgren, M., Sveen, J., Steineck, G., Wallin, A., Eilertsen, M., & Kreicbergs, U. (2017) · Palliative & Supportive Care · doi:10.1017/s1478951517001146 · Cited by 23 · see citing works
Self-citationBronsema, A. E. C., Theißen, T., Oechsle, K., Wikert, J., Escherich, G., Rutkowski, S., Bokemeyer, C., & Ullrich, A. (2022) · BMC Palliative Care · doi:10.1186/s12904-022-00971-y · Cited by 20 · see citing works
Rasouli, O., Moksnes, U. K., Reinfjell, T., Hjemdal, O., & Eilertsen, M. B. (2022) · BMC Palliative Care · doi:10.1186/s12904-022-00978-5 · Cited by 20 · see citing works
Supporting the Family After the Death of a Child or Adolescent
Weaver, M. S., Nasir, A. K., Lord, B. T., Starin, A. C., Linebarger, J., Nasir, A. A., Berger‐Jenkins, E., Davis, B. E., Dworkin, P. H., Johnson, T. J., et al. (2023) · PEDIATRICS · doi:10.1542/peds.2023-064426 · Cited by 20 · see citing works
Speaking Ill of the Dead: Anonymity and Communication About Suicide on MyDeathSpace.com
Leonard, L. G., & Toller, P. W. (2012) · Communication Studies · doi:10.1080/10510974.2011.629274 · Cited by 20 · see citing works
McNeil, M. J., Kiefer, A., Woods, C., Barnett, B., Berry‐Carter, K., Clark, L., Mandrell, B. N., Snaman, J., Kaye, E. C., & Baker, J. N. (2022) · Cancer Medicine · doi:10.1002/cam4.4696 · Cited by 20 · see citing works
Namisango, E., Bhakta, N. H., Wolfe, J., McNeil, M. J., Powell, R. A., Kibudde, S., Luyirika, E. B. K., Mulema, V., Feudtner, C., & Baker, J. N. (2021) · JCO Global Oncology · doi:10.1200/go.21.00102 · Cited by 19 · see citing works
Self-citationUnderstanding parental behavior in pediatric palliative care: Attachment theory as a paradigm
Kearney, J. A., & Byrne, M. W. (2014) · Palliative & Supportive Care · doi:10.1017/s147895151300134x · Cited by 18 · see citing works
Rasouli, O., Bø, M. A., Reinfjell, T., Moksnes, U. K., & Eilertsen, M. B. (2021) · European Journal of Oncology Nursing · doi:10.1016/j.ejon.2021.101929 · Cited by 19 · see citing works
Grief and bereavement support for parents in low- or middle-income countries: a systematic review
Pedraza, E. C., Vokinger, A. K., Cleves, D., Michel, G., Wrigley, J., Baker, J. N., Garcia-Quintero, X., & McNeil, M. J. (2024) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2024.01.023 · Cited by 19 · see citing works
- Authors
- Kreicbergs, U. C., Lannen, P., Onelov, E., & Wolfe, J.
- Affiliations
- University of Bern (CH)
- From the Phyllis F. Cantor Center; Department of Pediatric Oncology; the Center for Outcomes and Policy Research, Dana Farber Cancer Institute; Department of Medicine, Children's Hospital, Boston, MA; Department of Women and Child's Health; Division of Clinical Cancer Epidemiology, Karolinska Institutet, Stockholm, Sweden; and the Department of Psychology, Universität Bern, Berne, Switzerland
- Venue
- Journal of Clinical Oncology
- Published
- 2007-08-01
- Volume
- 25
- Issue
- 22
- Pages
- 3307-3312
- ISSN
- 0732-183X (ISSN-L)
- 1527-7755
- OpenAlex
- W2110136777
- Cited by
- 237
- References
- 30
- Citations by year
- 2026: 6 · 2025: 10 · 2024: 10 · 2023: 11 · 2022: 13 · 2021: 20 · 2020: 24 · 2019: 15 · 2018: 14 · 2017: 11 · 2016: 10 · 2015: 23 · 2014: 12 · 2013: 11 · 2012: 9
- FWCI
- 8.36
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Journal of Clinical Oncology (publishedVersion)
- PubMed (publishedVersion)
- Funders
- Charles H. Hood Foundation
- Svenska Sällskapet för Medicinsk Forskning
- National Cancer Institute (K07CA096746)
- Topics
- Social Sciences › Psychology › Clinical Psychology › Grief, Bereavement, and Mental Health
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Social Sciences › Sociology and Political Science › Family Support in Illness
- Keywords
- parental grief, child cancer, bereavement, grief processing, social support, professional support, psychological support, parents, long-term outcomes
- MeSH terms
- Adolescent, Adult, Attitude to Death, Child, Female, Grief, Humans, Male, Neoplasms, Parent-Child Relations, Parents, Professional-Family Relations, Surveys and Questionnaires, Registries, Regression Analysis, Social Support, Sweden, Chi-Square Distribution
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