On participatory design of home-based healthcare
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Older adults can live in complex environments that require the design process to take into account the entire ecosystems to reach solutions that are acceptable and usable to all stakeholders.
“Older adults can live in complex environments that include customization of the physical space ( e.g. , ramps, railings, lifts), rigid day-to-day routines and behavioral needs, other individuals who share the space ( e.g. , family, caregivers), requiring the design process to take into account the entire ecosystems to reach solutions that are acceptable and usable to all stakeholders [17];”
From Situated Participatory Design: A Method for In Situ Design of Robotic Interaction with Older Adults (2023) · cites this paper as [17]
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In pursuit of rigour and accountability in participatory design
Frauenberger, C., Good, J., Fitzpatrick, G., & Iversen, O. S. (2014) · International Journal of Human-Computer Studies · doi:10.1016/j.ijhcs.2014.09.004 · Cited by 267 · see citing works
“Grönvall and Kyng (2012) provide a typical example when describing a participatory approach to designing home-based healthcare.”
BackgroundCo-Designing Technology for Aging in Place: A Systematic Review
Sumner, J., Chong, L. S., Bundele, A., & Lim, Y. W. (2020) · The Gerontologist · doi:10.1093/geront/gnaa064 · Cited by 200 · see citing works
“Gronvall, 2011 (55), 2013 (56); Aarhus, 2010 (57), Denmark To design technology to support vestibular rehabilitation at home Vestibular dysfunction (dizziness)/Individual-based”
BackgroundUse or Non-Use of Gerontechnology—A Qualitative Study
Chen, K., & Chan, A. H. S. (2013) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph10104645 · Cited by 170 · see citing works
“For instance, decline of physical and cognitive functions due to aging and sickness can be partially compensated for by assistive and health technologies; and consequently old people can stay longer in their own homes [6].”
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Beyond self-monitoring: understanding non-functional aspects of home-based healthcare technology
Grönvall, E., & Verdezoto, N. (2013) · Proceedings of the 2013 ACM international joint conference on Pervasive and ubiquitous computing · doi:10.1145/2493432.2493495 · Cited by 108 · see citing works
“Previous work shows the importance of some of these themes in the home setting (see Related Work [4, 5, 8, 11-13, 23, 31]).”
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“Participatory design has been used as a method for involving patients or end-users in the design of health technologies and services in order to develop tools that are more likely to be engaging, relevant, and effective [15,16].”
Challenges in doing participatory design with people with dementia
Hendriks, N., Huybrechts, L., Wilkinson, A. J., & Slegers, K. (2014) · Participatory Design Conference · doi:10.1145/2662155.2662196 · Cited by 92 · see citing works
“PD may be too stressful for the person with dementia In their work on PD Grönvall & Kyng (2013) indicated the difficulty in working with ill and weak users who have fewer resources left to participate in design and research settings.”
BackgroundCowdell, F., Dyson, J., Sykes, M. J., Dam, R., & Pendleton, R. (2020) · Health & Social Care in the Community · doi:10.1111/hsc.13199 · Cited by 60 · see citing works
“First, retention can be problematic with older people becoming tired (Clarke et al., 2009; Grönvall & Kyng, 2013), finding it hard to focus for long (Duh et al., 2016) or fully engage particularly for people with cognitive impairment (Span et al., 2018).”
Privacy, boundaries and smart homes for health: An ethnographic study
Burrows, A., Coyle, D., & Gooberman‐Hill, R. (2018) · Health & Place · doi:10.1016/j.healthplace.2018.01.006 · Cited by 59 · see citing works
“Studies of how technology can support individuals to monitor and manage their health conditions at home have identified a number of specific challenges, which include the acceptance of the technology (Grönvall and Kyng, 2013), the installation and effective use of the technology (Grönvall and Kyng, 2013), the integrat…”
BackgroundDas, A., & Svanæs, D. (2013) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2013.06.008 · Cited by 58 · see citing works
“[62] E.”
BackgroundSituated Participatory Design: A Method for In Situ Design of Robotic Interaction with Older Adults
Stegner, L., Senft, E., & Mutlu, B. (2023) · Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems · doi:10.1145/3544548.3580893 · Cited by 56 · see citing works
“, family, caregivers), requiring the design process to take into account the entire ecosystems to reach solutions that are acceptable and usable to all stakeholders [17]; (4) Other stakeholders: Older adults may no longer be independent in performing activities of daily living (ADL) and rely on people (e.”
BackgroundJakobsen, P. R., Hermann, A. P., Søndergaard, J., Wiil, U. K., & Clemensen, J. (2018) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph15020330 · Cited by 50 · see citing works
“The use of participatory design in health research is an iterative process usually performed in phases, which involves identification of users’ needs, design and development of prototypes, testing, retesting, and evaluation [21,27,30].”
MethodDesigning for Prolonged Mastery. On involving old people in Participatory Design
Joshi, S. G., & Bratteteig, T. (2016) · NORA - Norwegian Open Research Archives · Cited by 49 · see citing works
Designing for Sustainability: Key Issues of ICT Projects for Ageing at Home
Meurer, J., Müller, C., Simone, C., Wagner, I., & Wulf, V. (2018) · Computer Supported Cooperative Work (CSCW) · doi:10.1007/s10606-018-9317-1 · Cited by 39 · see citing works
“Involving the elderly participants as co-designers Some outstanding PD projects have demonstrated how to involve elderly people as co-designers as a step towards a sustainable solution (e.g. Aarhus and Ballegaard 2010; Grönvall and Kyng 2013; Joshi and Bratteteig 2016).”
BackgroundEjupi, A., Gschwind, Y. J., Valenzuela, T., Lord, S. R., & Delbaere, K. (2015) · Human-Computer Interaction · doi:10.1080/07370024.2015.1085309 · Cited by 40 · see citing works
“However, sociological and technological challenges emerge when using health technology in private homes, affecting the acceptance of technology (Clemensen et al., 2013; Grönvall & Kyng, 2013; Ziefle, Rocker, & Holzinger, 2011), especially with users in older age.”
BackgroundMediFrame: A Tablet Application to Plan, Inform, Remind and Sustain Older Adults' Medication Intake
Dalgaard, L. G., Grönvall, E., & Verdezoto, N. X. (2013) · IEEE International Conference on Healthcare Informatics (ICHI) · doi:10.1109/ichi.2013.12 · Cited by 37 · see citing works
“People tend not to put too much emphasis on their illnesses while at home, and assistive technologies that prevent stigmatization are preferred by many users [17].”
BackgroundSelf-citationD’Haeseleer, I., Gerling, K., Schreurs, D., Vanrumste, B., & Abeele, V. V. (2019) · International ACM SIGACCESS Conference on Computers and Accessibility (ASSETS) · doi:10.1145/3308561.3353794 · Cited by 32 · see citing works
Digital health as an enabler for hospital@home: A rising trend or just a vision?
Denecke, K., May, R., Borycki, E. M., & Kushniruk, A. W. (2023) · Frontiers in Public Health · doi:10.3389/fpubh.2023.1137798 · Cited by 31 · see citing works
“For example, in Switzerland, the concept of a family doctor is well-established and even supported by health insurance models that offer reduced fees when assigned the insurance model in favor of a family doctor as the first point of contact.”
BackgroundDesign for Agency, Adaptivity and Reciprocity: Reimagining AAL and Telecare Agendas
Fitzpatrick, G., Huldtgren, A., Malmborg, L., Harley, D., & IJsselsteijn, W. A. (2015) · Computer supported cooperative work · doi:10.1007/978-1-4471-6720-4_13 · Cited by 29 · see citing works
“…interaction (HCI) and computer-supported cooperative work (CSCW), have started to draw attention to the design challenges associated with older people and the design of care technologies for the home (e.g. see Axelrod et al. 2009; Blythe et al. 2005; Fitzpatrick 2012; Grönvall and Kyng 2012).”
BackgroundMorrissey, K., Garbett, A., Wright, P., Olivier, P. L., Jenkins, E., & Brittain, K. (2017) · CHI Conference on Human Factors in Computing Systems · doi:10.1145/3025453.3025732 · Cited by 27 · see citing works
Teaching participatory design using live projects
Christiansson, J., Grönvall, E., & Yndigegn, S. L. (2018) · Participatory Design Conference · doi:10.1145/3210586.3210597 · Cited by 27 · see citing works
“Also, as PD and Co-design are no longer restricted to the workplace, we read and discuss literature concerning topics such as why those who are not paid for, or professionally invested in, a design outcome should participate in Co-design work [17].”
BackgroundSelf-citationOn preventive blood pressure self-monitoring at home
Verdezoto, N. X., & Grönvall, E. (2015) · Cognition Technology & Work · doi:10.1007/s10111-015-0358-7 · Cited by 26 · see citing works
“This integration may facilitate both older adults’ participation in self-care activities and also that of younger adults who engage in tracking practices, and should be considered from the outset of the design process (Grönvall and Kyng 2012).”
BackgroundSelf-citationUnderstanding challenges and opportunities of preventive blood pressure self-monitoring at home
Grönvall, E., & Verdezoto, N. X. (2013) · European Conference on Cognitive Ergonomics · doi:10.1145/2501907.2501962 · Cited by 26 · see citing works
Self-citationA trajectory for technology-supported elderly care work
Woll, A., & Bratteteig, T. (2018) · Computer Supported Cooperative Work (CSCW) · doi:10.1007/s10606-018-9340-2 · Cited by 25 · see citing works
“…on assistive technology pays attention to technology-supported follow-up services after hospitalization, especially concerned the patient transition from hospital and back home (Grönvoll and Kyng, 2012; Korhonen et al., 2003; Milligan et al. 2011; Aarhus et al., 2009; Grönvall and Verdezoto 2013).”
BackgroundPrivacy-centered design for social robots
Heuer, T., Schiering, I., & Gerndt, R. (2019) · Interaction Studies Social Behaviour and Communication in Biological and Artificial Systems · doi:10.1075/is.18063.heu · Cited by 25 · see citing works
Krüger, M., Weibert, A., de Castro Leal, D., Randall, D., & Wulf, V. (2021) · Proceedings of the ACM on Human-Computer Interaction · doi:10.1145/3476050 · Cited by 23 · see citing works
Accounting for Medication Particularities: Designing for Everyday Medication Management
Dalgaard, L. G., Grönvall, E., & Verdezoto, N. X. (2013) · Proceedings of the ICTs for improving Patients Rehabilitation Research Techniques · doi:10.4108/icst.pervasivehealth.2013.252058 · Cited by 21 · see citing works
Self-citationHealthcare knowledge sharing among a community of specialized physicians
Sabeeh, Z. A., Mustapha, S. M. F. D. S., & Mohamad, R. (2017) · Cognition Technology & Work · doi:10.1007/s10111-017-0453-z · Cited by 20 · see citing works
“Studies in the field of HKM has shown several existing policies and practices, but they have not been effective in actualizing adequate methods in delivering quality healthcare service and meeting the medical organizations objectives (Grönvall and Kyng 2013; Rexhepi 2015; Matshwane 2015).”
MethodOn Challenges Designing the Home as a Place for Care
Grönvall, E., & Lundberg, S. (2014) · Human-computer interaction series · doi:10.1007/978-1-4471-6413-5_2 · Cited by 20 · see citing works
“nology in peoples’ homes [37], to find a physical place for the technology within the”
BackgroundSelf-citationSmits, M., Ludden, G., Verbeek, P., & van Goor, H. (2022) · Interactive Journal of Medical Research · doi:10.2196/39323 · Cited by 17 · see citing works
“The health condition of patients could prohibit them from spending time and effort on this interaction, which complicates research [31,32].”
BackgroundFrennert, S. (2020) · Disability and Rehabilitation Assistive Technology · doi:10.1080/17483107.2020.1839579 · Cited by 20 · see citing works
Mobilizing Senior Citizens in Co-Design of Mobile Technology
Malmborg, L., Grönvall, E., Messeter, J., Raben, T., & Werner, K. (2016) · International Journal of Mobile Human Computer Interaction · doi:10.4018/ijmhci.2016100103 · Cited by 17 · see citing works
Self-citationConcordance: A Critical Participatory Alternative in Healthcare IT
Grönvall, E., Verdezoto, N. X., Bagalkot, N., & Sokoler, T. (2015) · Aarhus Series on Human Centered Computing · doi:10.7146/aahcc.v1i1.21315 · Cited by 16 · see citing works
“, [7, 22]), they have in general not considered the role of patients’ active participation in shaping their own care regimen after the initial design process has ended, nor designed for such participation.”
BackgroundInfluentialSelf-citationGeuens, J., Geurts, L., Swinnen, T. W., Westhovens, R., Mechelen, M. V., & Abeele, V. V. (2018) · Participatory Design Conference · doi:10.1145/3210604.3210649 · Cited by 15 · see citing works
“For example, PCIs involving tele-monitoring and self-care assume a direct, active role of the patient, often in a non-clinical context [13].”
BackgroundHealthy ageing in a deprived northern UK city: A co‐creation study
Glover, L., Dyson, J., Cowdell, F., & Kinsey, D. (2020) · Health & Social Care in the Community · doi:10.1111/hsc.13036 · Cited by 14 · see citing works
Prototyping and Prototype use in Participatory Design with older adults
Maartmann-Moe, H., & Joshi, S. G. (2022) · Participatory Design Conference · doi:10.1145/3536169.3537791 · Cited by 14 · see citing works
Assembling Fragments into Continuous Design: On Participatory Design with Old People
Joshi, S. G., & Bratteteig, T. (2015) · Lecture notes in business information processing · doi:10.1007/978-3-319-21783-3_2 · Cited by 12 · see citing works
“This is also seen in the case of [18] where half-day participation tired the participant totally and affected her for days.”
BackgroundInfluentialChristensen, C., Ehrenberg, N., Christiansson, J., Grönvall, E., Saad-Sulonen, J., & Keinonen, T. (2022) · Nordic Conference on Human-Computer Interaction · doi:10.1145/3546155.3546660 · Cited by 11 · see citing works
“Others have discussed the different roles of participants in PD processes and how these roles can shape both the process and its outcomes [1,23].”
BackgroundSelf-citationLost in the diffusion chasm: Lessons learned from a failed robot project in the public sector
Aaen, J., & Nielsen, J. A. (2021) · Information Polity · doi:10.3233/ip-200286 · Cited by 11 · see citing works
Purchase and use of home healthcare devices for the elderly: a pilot study in Shanghai, China
Wang, D., Liu, S., Wu, J., & Lin, Q. (2020) · BMC Public Health · doi:10.1186/s12889-020-08757-8 · Cited by 9 · see citing works
A Review of Service Quality in Integrated Networking System at the Hospital Scenarios
Algaet, M. A., Noh, Z. A. B. M., Shibghatullah, A. S., & Milad, A. A. (2015) · Journal of Telecommunication Electronic and Computer Engineering (JTEC) · doi:10.13140/rg.2.1.1861.9606 · Cited by 6 · see citing works
Strauven, H., Spiel, K., D’Haeseleer, I., Hallez, H., Vanrumste, B., & Abeele, V. V. (2020) · Nordic Conference on Human-Computer Interaction · doi:10.1145/3419249.3420104 · Cited by 6 · see citing works
“not only emphasized empathic care, but also called for a broader, socio-technical perspective [5, 21], recognizing technological innovation as a politically textured process of organizational change [6].”
BackgroundGoodarzi, F., Barati, M., Bashirian, S., Ayubi, E., Rahbar, S., & Cheraghi, P. (2024) · Disability and Rehabilitation Assistive Technology · doi:10.1080/17483107.2024.2313081 · Cited by 5 · see citing works
“Recently, research has shown that the acceptance and use of various types of assistive technologies by the elderly can help them live healthier, be more independent, and have a more social life [6,11,55].”
Aflatoony, L., DuBose, J. R., Song, F., Machry, H., & Burke, M. (2023) · Assistive Technology · doi:10.1080/10400435.2023.2219303 · Cited by 5 · see citing works
“Co-design can play a fundamental role in developing appropriate and effective ATs by engaging people with impairments to share their deep knowledge and expertise developed from their lived experience to find solutions that fit their unique situations (Grönvall & Kyng, 2013).”
BackgroundDesigning self-care for everyday life
Verdezoto, N. X., Nunes, F., Grönvall, E., Fitzpatrick, G., Storni, C., & Kyng, M. (2014) · Nordic Conference on Human-Computer Interaction · doi:10.1145/2639189.2654837 · Cited by 4 · see citing works
Self-citationD’Haeseleer, I., Schoofs, J., Schutters, K., Schreurs, D., & Abeele, V. V. (2021) · EAI Endorsed Transactions on Pervasive Health and Technology · doi:10.4108/eai.24-11-2021.172219 · Cited by 3 · see citing works
Nielsen, C., Rasmussen, L. L., Lerche, H., Dalgaard, H. M., & Trettin, B. (2025) · Scandinavian Journal of Caring Sciences · doi:10.1111/scs.70160 · Cited by 3 · see citing works
“Over time, PD has been utilised in health science to enhance patient pathways and ways to deliver health services [1, 2, 42–44].”
Abbasi, F., Khajouei, R., Ahmadinejad, M., Razban, F., & Jahani, Y. (2023) · Health and Technology · doi:10.1007/s12553-022-00720-4 · Cited by 3 · see citing works
“Methods Participatory design[28, 29] was used to develop the Drug Dosage Calculator application.”
MethodConsiderations for End-User Development in the Caregiving Domain
Stegner, L., Porfirio, D. J., Roberts, M., & Hiatt, L. M. (2024) · Proceedings of the AAAI Symposium Series · doi:10.1609/aaaiss.v2i1.27725 · Cited by 3 · see citing works
“Human-Computer Interaction (HCI) researchers have a rich history of working with stakeholders through participatory design methods to understand how to design technology for specific users ( e.g. , Gr¨onvall and Kyng (2013); Scandurra and Sj¨olinder (2013)).”
BackgroundTowards a Quantified-Self web application for seniors' self-tracking
Billis, A. S., Mpatziakas, A., & Bamidis, P. D. (2015) · International Conference on Interactive Mobile Communication, Technologies and Learning · doi:10.1109/imctl.2015.7359610 · Cited by 3 · see citing works
Augmenting Object with IoT to Enhance Elders’ Social Life
Lucena, T. F. R., Oberleitner, V., Barbosa, M. D., & Martins, H. V. P. (2016) · Lecture notes of the Institute for Computer Sciences, Social Informatics and Telecommunications Engineering · doi:10.1007/978-3-319-49655-9_6 · Cited by 3 · see citing works
Examining Furniture Preferences of the Elderly in Greece
Bothos, I., & Skarvelis, M. (2021) · Lecture notes of the Institute for Computer Sciences, Social Informatics and Telecommunications Engineering · doi:10.1007/978-3-030-91421-9_23 · Cited by 3 · see citing works
Embedding caring into remote patient management systems
Offerman, C., Bourgeois, J., & Bozzon, A. (2024) · Nordic Conference on Human-Computer Interaction · doi:10.1145/3679318.3685399 · Cited by 2 · see citing works
“Grönvall and Kyng [20] and Christensen and Grönvall [10] describe participatory design considerations for home-based health care.”
AgeTech, Cognitive Health, and Dementia
Sixsmith, A. J., Sixsmith, J., Fang, M. L., & Horst, B. (2020) · Synthesis lectures on assistive, rehabilitative, and health-preserving technologies · doi:10.2200/s01025ed1v01y202006arh014 · Cited by 2 · see citing works
Peyton, L., Bindra, J., Baarah, A. H., Chamney, A., & Kuziemsky, C. E. (2015) · International Journal of Cloud Applications and Computing · doi:10.4018/ijcac.2015010103 · Cited by 2 · see citing works
Accounting for Medication Particularities: Designing for Everyday Medication Management
Dalgaard, L. G., Grönvall, E., & Verdezoto, N. X. (2013) · Proceedings of the ICTs for improving Patients Rehabilitation Research Techniques · doi:10.4108/pervasivehealth.2013.252058 · Cited by 2 · see citing works
Self-citationHome truths: Insights for designing inclusive smart home technologies for healthcare
Burrows, A., Gooberman‐Hill, R., & Coyle, D. (2015) · Bristol Research (University of Bristol) · Cited by 2 · see citing works
Dittmar, A., & Forbrig, P. (2012) · Cognition Technology & Work · doi:10.1007/s10111-012-0239-2 · Cited by 2 · see citing works
Mobilizing Senior Citizens in Co-Design Work
Malmborg, L., Werner, K., Grönvall, E., Messeter, J., & Raben, T. (2015) · International Conference on Human-Computer Interaction with Mobile Devices and Services Adjunct (MobileHCI Adjunct) · doi:10.1145/2786567.2794304 · Cited by 1 · see citing works
“In contrast, participatory design projects in every-day settings engage with people that may have a weak or ad hoc connection to the setting [3] through living in a certain area or being ad hoc participants of communities loosely coupled to the setting.”
BackgroundSelf-citationEducable learning-oriented multilevel shared autonomy for inclusive mobility and healthcare
Vanderhaegen, F., & Ascone, C. (2024) · ITM Web of Conferences · doi:10.1051/itmconf/20246903004 · Cited by 1 · see citing works
Using Critical Incidents in Workshops to Inform eHealth Design
Grünloh, C., Haslwanter, J. D. H., Kane, B. T., Lee, E., Lind, T., Moll, J., Rexhepi, H., & Scandurra, I. (2017) · Lecture notes in computer science · doi:10.1007/978-3-319-67744-6_24
“this can be particularly challenging [7], and in some cases may not be possible.”
BackgroundPeyton, L., Bindra, J., Baarah, A. H., Chamney, A., & Kuziemsky, C. E. (2016) · IGI Global eBooks · doi:10.4018/978-1-5225-0549-5.ch005
Health Data Semantics: Exploring Requirements for Sustainable Health Systems
Beštek, M., & Grönvall, E. (2023) · Lecture notes of the Institute for Computer Sciences, Social Informatics and Telecommunications Engineering · doi:10.1007/978-3-031-34586-9_24
Self-citationLorenzini, G. C., & Persson, J. (2023) · Routledge eBooks · doi:10.4324/9781003254829-18
Wang, D., Liu, S., Wu, J., & Lin, Q. (2020) · Figshare · doi:10.6084/m9.figshare.12246653
Sette, B. M. D., & Saitis, C. (2026) · ACM Transactions on Computing for Healthcare · doi:10.1145/3807781
“It could be hard or uncomfortable for participants to commit to long sessions, or to predict when a “good day” might occur [32].”
Arthanat, S., Wang, J., LaRoche, D. P., Fritz, H., DiZazzo-Miller, R., Hussein, M., Ghattas, O., Akash, M., & Begum, M. (2026) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph23081019
“As experts have noted, brief exposures to lab-based prototypes and cursory user input are insufficient for addressing older stakeholders’ limited familiarity, unrealistic expectations, or misinformed skepticism [20,44,45].”
- Authors
- Grönvall, E., & Kyng, M.
- Affiliations
- Aarhus University (DK)
- Corresponding author
- Grönvall, Erik
- Venue
- Cognition, Technology & Work
- Published
- 2012-04-24
- Volume
- 15
- Issue
- 4
- Pages
- 389-401
- ISSN
- 1435-5558 (ISSN-L)
- 1435-5566
- OpenAlex
- W2025017361
- Cited by
- 67
- References
- 35
- Citations by year
- 2026: 2 · 2025: 1 · 2024: 4 · 2023: 6 · 2022: 3 · 2021: 4 · 2020: 7 · 2019: 2 · 2018: 6 · 2017: 4 · 2016: 4 · 2015: 10 · 2014: 6 · 2013: 7 · 2012: 1
- FWCI
- 14.18
- Type
- journal article
- Language
- en
- Open access
- closed
- Licence
- www.springer.com/tdm (tdm)
- Locations
- Cognition Technology & Work (publishedVersion)
- Topics
- Physical Sciences › Computer Science › Human-Computer Interaction › Usability and User Interface Design
- Physical Sciences › Computer Science › Human-Computer Interaction › Innovative Human-Technology Interaction
- Social Sciences › Demography › Technology Use by Older Adults
- Keywords
- participatory design, home-based healthcare, chronic dizziness, older adults, user participation, stakeholder interests, UTOPIA project
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