The Eurolight project: the impact of primary headache disorders in Europe. Description of methods
Open accessAbstract
The Eurolight project is the first at European Union level to assess the impact of headache disorders, and also the first of its scale performed by collaboration between professional and lay organizations and individuals. Here are reported the methods developed for it. The project took the form of surveys, by structured questionnaire, conducted in ten countries of Europe which together represented 60% of the adult population of the European Union. In Lithuania, the survey was population-based. Elsewhere, truly population-based studies were impractical for reasons of cost, and various compromises were developed. Closest to being population-based were the surveys in Germany, Luxembourg, the Netherlands, Italy and Spain. In Austria, France and UK, samples were taken from health-care settings. In addition in the Netherlands, Spain and Ireland, samples were drawn from members of national headache patient organizations and their relatives. Independent double data-entry was performed prior to analysis. Returned questionnaires from 9,269 respondents showed a moderate female bias (58%); of respondents from patients' organizations (n = 992), 61% were female. Mean age of all respondents was 44 years; samples from patients' organizations were slightly older (mean 47 years). The different sampling methods worked with differing degrees of effectiveness, as evidenced by the responder-rates, which varied from 10.8 to 90.7%. In the more population-based surveys, responder-rates varied from 11.3 to 58.8%. We conclude that the methodology, although with differences born of necessity in the ten countries, was sound overall, and will provide robust data on the public ill-health that results from headache in Europe.
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Current understanding of migraine burden among individuals with the highest unmet needs, specifically those experiencing ≥4 monthly migraine days and prior prophylaxis failure, is limited.
“However, the current understanding of migraine burden among individuals with the highest unmet needs, specifically those experiencing ≥4 monthly migraine days (MMDs) and prior prophylaxis failure, is limited.”
From My Migraine Voice survey: a global study of disease burden among individuals with migraine for whom preventive treatments have failed (2018) · cites this paper as [9]
No detailed assessment of the current treatment pathway, impact on work productivity, or burden associated with premonitory and postdromal phases of migraine is available in individuals experiencing ≥4 monthly migraine days who have had previous prophylactic treatments that failed and continue to experience frequent migraines.
“Specifically, no detailed assessment of the current treatment pathway, impact on work productivity, or burden associated with premonitory and postdromal phases of migraine is available in individuals experiencing ≥4 MMDs who have had previous prophylactic treatments that failed and continue to experience frequent migraines.”
From My Migraine Voice survey: a global study of disease burden among individuals with migraine for whom preventive treatments have failed (2018) · cites this paper as [9]
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- Authors
- Andrée, C., Stovner, L. J., Steiner, T. J., Barré, J., Katsarava, Z., Lainez, J. M., Lanteri-Minet, M., Mick, G., Rastenyte, D., de la Torre, E. R., Tassorelli, C., Vriezen, P., & Lampl, C.
- Affiliations
- Centre de Recherche Public de la Santé (LU)
- Norwegian University of Science and Technology (NO)
- Essen University Hospital (DE)
- University of Pavia (IT)
- Nederlandse Hoofdpijn Vereniging (NL)
- Convent Hospital of the Brothers of Saint John of God (AT)
- Corresponding author
- Andrée, C.
- Venue
- The Journal of Headache and Pain
- Published
- 2011-06-10
- Volume
- 12
- Issue
- 5
- Pages
- 541-549
- ISSN
- 1129-2369 (ISSN-L)
- 1129-2377
- PMC
- PMC3173626
- OpenAlex
- W2022640612
- Cited by
- 60
- References
- 14
- Citations by year
- 2026: 1 · 2025: 4 · 2024: 7 · 2023: 6 · 2022: 2 · 2021: 8 · 2020: 4 · 2019: 6 · 2018: 6 · 2017: 3 · 2016: 4 · 2015: 2 · 2014: 4 · 2013: 1
- FWCI
- 1.53
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Locations
- The Journal of Headache and Pain (publishedVersion, cc-by)
- Europe PMC (PubMed Central) (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- Lithuanian University of Health Sciences (submittedVersion)
- NORA - Norwegian Open Research Archives (submittedVersion, cc-by)
- Funders
- Norges Teknisk-Naturvitenskapelige Universitet
- Imperial College London
- Università degli Studi di Pavia
- Regione Lombardia
- Lietuvos Sveikatos Mokslų Universitetas
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Migraine and Headache Studies
- Social Sciences › Sociology and Political Science › Survey Methodology and Nonresponse
- Health Sciences › Medicine › Pharmacology › Musculoskeletal pain and rehabilitation
- Keywords
- primary headache, population survey, sampling methods, responder rate, European Union, questionnaire design
- MeSH terms
- Adult, Europe, Female, Headache, Humans, Male, Middle Aged, Surveys and Questionnaires, Research Design, Cost of Illness
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
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