Development and validation of the EUROLIGHT questionnaire to evaluate the burden of primary headache disorders in Europe
Abstract
We developed a 103-item self-reporting questionnaire to assess the burden of primary headache disorders on those affected by them, including headache characteristics, associated disability, co-morbidities, disease-management and quality of life. We validated the questionnaire in five languages with 426 participants (131 in UK, 60 in Italy, 107 in Spain, 83 in Germany/Austria, and 45 in France). After a linguistic and a face-content validation, we tested the questionnaire for comprehensibility, internal consistency and test–retest reliability at an interval of one month. In the different countries, response rates were between 73% and 100%. Test–retest reliability varied between –0.27 to 1.0 depending of the nature of the expected agreement. The internal consistency was between 0.69 and 0.91. The EUROLIGHT questionnaire is suitable for evaluating the burden of primary headache disorders, and can be used in English, German, French, Italian and Spanish.
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The Eurolight questionnaire is validated for diagnosing migraine, probable migraine, tension-type headache, probable tension-type headache, and probable medication overuse headache according to ICHD-2.
“The Eurolight questionnaire differentiates EH (headache on < 15 days/month) from CH (headache on ≥ 15 days/month) and is validated for diagnosing migraine, probable migraine, TTH, probable TTH, and pMOH according to the International Classification of Headache Disorders, 2nd edition (ICHD-2) [17] and for assessing the impact of headache disorders [16].”
From Prevalence, management and burden of episodic and chronic headaches—a cross-sectional multicentre study in eight Austrian headache centres (2015) · cites this paper as [16]
The structured questionnaire's development, content and validation have been previously described.
“The development, content and validation of the structured questionnaire have been previously described [21].”
From The impact of headache in Europe: principal results of the Eurolight project (2014) · cites this paper as [21]
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Self-citation
- Authors
- Andrée, C., Vaillant, M., Barre, J., Katsarava, Z., Lainez, J. M., Lair, M.-L., Lanteri-Minet, M., Lampl, C., J Steiner, T., Jacob Stovner, L., Tassorelli, C., & Sándor, P. S.
- Affiliations
- University of Basel (CH)
- Centre de Recherche Public de la Santé (LU)
- Centre d’Etudes en Santé, Centre de Recherche Public–Santé, Luxembourg, Luxembourg.
- Essen University Hospital (DE)
- Department of Neurology, Hospital Clínico Universitario. University of Valencia, Valencia, Spain.
- Centre Hospitalo-Universitaire de Nice, Nice, France.
- Convent Hospital of the Brothers of Saint John of God (AT)
- Division of Neuroscience and Mental Health, Imperial College London, London, UK.
- Norwegian National Headache Centre, St Olavs University Hospital and Department of Neuroscience, Norwegian University of Science and Technology, Trondheim, Norway.
- Fondazione Istituto Neurologico Nazionale Casimiro Mondino (IT)
- University Hospital Zurich (CH)
- Corresponding author
- Andrée, Colette
- ORCID
- Venue
- Cephalalgia
- Publisher
- SAGE Publications
- Published
- 2010-04-07
- Volume
- 30
- Issue
- 9
- Pages
- 1082-1100
- ISSN
- 0333-1024 (ISSN-L)
- 1468-2982
- OpenAlex
- W2024016000
- Cited by
- 43
- References
- 29
- Citations by year
- 2025: 1 · 2024: 4 · 2023: 3 · 2021: 3 · 2020: 5 · 2019: 2 · 2018: 4 · 2017: 2 · 2016: 3 · 2015: 4 · 2014: 3 · 2013: 1 · 2012: 1
- FWCI
- 1.96
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Cephalalgia (publishedVersion)
- PubMed (publishedVersion)
- Funders
- Executive Agency for Health and Consumers
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Migraine and Headache Studies
- Health Sciences › Medicine › Pharmacology › Musculoskeletal pain and rehabilitation
- Health Sciences › Health Professions › Complementary and Manual Therapy › Temporomandibular Joint Disorders
- Keywords
- primary headache, headache burden, questionnaire development, questionnaire validation, test-retest reliability, internal consistency, quality of life, disability, comorbidities, disease management, multilingual questionnaires, patient-reported outcomes
- MeSH terms
- Adult, Europe, Female, Humans, Language, Male, Middle Aged, Surveys and Questionnaires, Reproducibility of Results, Comorbidity, Cost of Illness, Headache Disorders
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