Reliability and Validity of Parent- and Child-Rated Anxiety Measures in Autism Spectrum Disorder
Abstract
Autism spectrum disorder (ASD) and anxiety frequently co-occur. Research on the phenomenology and treatment of anxiety in ASD is expanding, but is hampered by the lack of instruments validated for this population. This study evaluated the self- and parent-reported Revised Child Anxiety and Depression Scale and the Multidimensional Anxiety Scale in Children-2 among 46 youth with ASD. Internal consistency and test-retest reliability were acceptable, but inter-rater reliability was poor. Parent-child agreement was better for youth with higher IQs, less severe ASD symptoms, or more social cognitive skills. Convergent and divergent validity were acceptable. Demographic characteristics were considered as predictors of anxiety: they were unrelated to parent-report, but younger age and more severe ASD were related to increased self-reported anxiety.
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The RCADS-P/C has been validated for use with autistic youth.
“The RCADS-P/C has been validated for use with autistic youth (Kaat & Lecavalier, 2015; Khalfe et al., 2023).”
From Community-guided, autism-adapted group cognitive behavioral therapy for depression in autistic youth (CBT-DAY): Preliminary feasibility, acceptability, and efficacy (2024) · cites this paper as Kaat & Lecavalier, 2015
The RCADS-P/C has been validated for use with autistic adolescents.
“The RCADS-P/C has been validated for use with autistic adolescents (Kaat & Lecavalier, 2015; Sterling et al., 2015).”
From The relationship between distress tolerance and behavioral activation on anxiety and depression symptomatology in autistic youth: Leveraging self and caregiver perspectives (2024) · cites this paper as Kaat & Lecavalier, 2015
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“These results are perplexing, as others have argued that anxiety should be more common among those who are older or have less severe ASD symptoms (White et al. 2009), and other studies that correlated ASD severity with anxiety found nonsignificant low-to-negligible correlations (e.”
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“Kaat and Lecavalier (2015) evaluated the self- and parent-reported revised child anxiety and depression scale (RCADS) and a more recent version of the MASC among youth with ASD and raised some concerns regarding the construct validity of anxiety in ASD as measured by these scales.”
Brief Report: Bullying and Anxiety in High-Functioning Adolescents with ASD
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Discrepancies Between Parent and Child Ratings of Anxiety in Children With Autism Spectrum Disorder
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“Higher scores indicate greater severity of ASD-related symptoms and have been associated with higher scores on child anxiety ratings, including the MASC-2 [Kaat & Lecavalier 2015].”
BackgroundMethodResultInfluentialSelf-Esteem, Internalizing Symptoms, and Theory of Mind in Youth With Autism Spectrum Disorder
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“Indeed, researchers have cautioned the use of self-report anxiety scales due to inconsistencies in how items may be interpreted by different raters (Kaat & Lecavalier, 2015; Storch et al., 2012).”
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“…have been found to have adequate validity in ASD (Pandolfi et al., 2009, 2012), others, such as the Spence Anxiety Scale for Children (SCAS; Spence, 1998), have been shown to have significant limitations in their appropriateness and validity in ASD (Glod et al., 2017; Kaat & Lecavalier, 2015).”
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“This inconsistency may thus in part arise from report bias between multiple informants [47,48], especially in intellectually able people with ASD [49].”
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“Several studies have reviewed the strengths and weaknesses of brief measures of anxiety in ASD (8, 16, 17).”
BackgroundMethodNetwork Analysis of Anxiety in the Autism Realm
Montazeri, F., de Bildt, A. A., Dekker, V., & Anderson, G. M. (2018) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-018-3474-4 · Cited by 35 · see citing works
“Although the internal consistency appears acceptable and similar to that in other samples, definitive evidence is lacking for the convergent and divergent validity of the RCADS in individuals with ASDs (Hallett et al. 2013; Sterling et al. 2015; Kaat and Lecavalier 2015), and there has been a recent attempt to optimiz…”
ResultThe Interactive Trauma Scale: A Web-Based Measure for Children with Autism
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“We predicted that parent- and self- reports in the ASD cohort will reflect higher levels of trait anxiety than in the TD group (Kaat and Lecavalier 2015).”
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Real-world executive functioning for autistic children in school and home settings
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“…ratings from home and school settings is also needed as prior research shows poor inter-rater reliability between home and school ratings of child behavior (Achenbach et al., 2005; Azad & Mandell, 2016; Kaat & Lecavalier, 2015; Mitsis et al., 2000; Power et al., 1998; Stratis & Lecavalier, 2015).”
Santore, L. A., Gerber, A. S., Gioia, A. N., Bianchi, R., Talledo, F., Peris, T. S., & Lerner, M. D. (2020) · Autism · doi:10.1177/1362361320909177 · Cited by 32 · see citing works
“Past studies indicate that it exhibits adequate psychometric properties for use in ASD populations (Kaat & Lecavalier, 2015; White et al., 2012, 2015).”
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“However, many youth with ASD possess the insight necessary to report on their social anxiety symptoms (Kaat and Lecavalier 2015; Schiltz et al. 2017; Simon and Corbett 2013).”
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“…limitation of the present study is the long-standing issue of the validity of self-report of affective states in ASD (Berthoz & Hill, 2005; Kaat & Lecavalier, 2015), and future research that addresses the correspondence between self-and caregiver-report indices of positive affect in ASD…”
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“…way given that there is often low reliability in the self-report for youth with autism (Mazefsky et al., 2011) and that there is commonly low concordance among informants when reporting on the emotions and emotion regulation of youth with autism (Kaat & Lecavalier, 2015; Mazefsky et al., 2011).”
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Self-citationCognitive-behavioral approaches for children with autism spectrum disorder: A trend analysis
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“The RCADS-P/C has been validated for use with autistic youth (Kaat & Lecavalier, 2015; Khalfe et al., 2023).”
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InfluentialBarnes, G. L., Ozsivadjian, A., Baird, G., Absoud, M., & Hollocks, M. J. (2025) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-024-06246-0 · Cited by 12 · see citing works
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“…between self-and other-rated measures in autistic populations, and whether existing measures of internalizing symptoms are suitable for autistic children and adolescents, including those with intellectual and/or communicative disabilities (e.g., Kaat & Lecavalier, 2015; Wigham & McConachie, 2014).”
Anxiety in Wiedemann–Steiner syndrome
Ng, R., Bjornsson, H., Fahrner, J., & Harris, J. (2022) · American Journal of Medical Genetics. Part A · doi:10.1002/ajmg.a.63040 · Cited by 11 · see citing works
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“Our findings replicate and expand previous work by Kaat and Lecavalier (2015) as discrepancies were observed between 100 autistic youth and 100 caregivers on ratings of youth internalizing symptoms, with more severe ratings by caregivers than youth.”
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“However, past research has shown that high levels of communication difficulties and disability severity can adversely impact parent-child agreement on measures (Kaat & Lecavalier, 2015).”
BackgroundEmpathy and Anxiety in Young Girls with Fragile X Syndrome
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“The RCADS concurrent validity has been demonstrated (Kaat & Lecavalier, 2015); it has good internal consistency (generalised anxiety (GA) a = .88; and depression, a = .83) and has Table 2.”
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“Although there is some evidence for validity in comparisons across the constructs of anxiety and ADHD in ASD (Gadow et al., 2005; Kaat & Lecavalier, 2015; Lecavalier et al., 2011; Renno & Wood, 2013; Stern et al., 2014; Storch, Wood, et al., 2012; Yerys et al., 2017), less of this work has been…”
BackgroundAnxiety Disorders in Autistic People
Schiltz, H. K., McVey, A. J., & Lord, C. (2024) · Psychiatric Clinics of North America · doi:10.1016/j.psc.2024.04.016 · Cited by 5 · see citing works
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“Some programs adopt didactic approaches with structured lessons, while others utilize play-based interventions to elicit social skills (Kaat & Lecavalier, 2015).”
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“This can be due to internal factors (such as sensory sensitivities or difficulty in processing emotions) or external factors (such as changes in routine or challenging social interactions) [21].”
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“The differences between parents’ and people with ASD’ ratings are that the latter’s anxiety has also been associated with the type of assessment tool used and the age group (Bitsika & Sharpley, 2014; Kaat & Lecavalier, 2015; Swain et al., 2015).”
MethodWilliams, M. E., Duker, L. I. S., Vigen, C., Wylde, C., & Cermak, S. (2021) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-021-05210-6 · Cited by 3 · see citing works
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“The RCADS-P/C has been validated for use with autistic adolescents (Kaat & Lecavalier, 2015; Sterling et al., 2015).”
Hunsche, M. C., Zaidman‐Zait, A., Olana, M., Szatmári, P., Bennett, T., Duku, E., Georgiades, S., Smith, I. M., Zwaigenbaum, L., Elsabbagh, M., et al. (2026) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2026.1741956 · Cited by 1 · see citing works
Fear of Negative Evaluation and Social Anxiety in Autism: A Case for Multi-method Assessment.
Kalinyak, A., Simmons, G. L., Corbett, B., Lerner, M., & White, S. (2025) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-025-07119-w · Cited by 1 · see citing works
Stability and Validity of Self-Reported Depression and Anxiety in Autistic Youth
Kim, S. Y., & Lecavalier, L. (2024) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-024-06456-6 · Cited by 2 · see citing works
“This is in line with previous findings from the initial study by Chorpita and colleagues (2000) and studies in ASD (Kaat & Lecavalier, 2015).”
InfluentialSelf-citationInvestigating language skills as a mediator between IQ and anxiety in autistic youth
Rinaldo, E., Anagnostou, E., Giorgiades, S., Ayub, M., Nicolson, R., & Kelley, E. (2021) · Research in Autism Spectrum Disorders · doi:10.1016/j.rasd.2021.101846 · Cited by 1 · see citing works
The Stability of Self-Reported Anxiety in Youth with Autism Versus ADHD or Typical Development
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Halsall, J., Robinson, E., Cook, A., Halsall, A., & Crane, L. (2026) · Autism · doi:10.1177/13623613251414302
“…et al., 2018; Sandercock et al., 2020), autistic traits (Pagán et al., 2024), social skills (Cederlund et al., 2010; Lerner et al., 2012), executive functioning (Kenworthy et al., 2022) and symptoms of anxiety (Kaat & Lecavalier, 2015; Kalvin et al., 2020; Storch et al., 2012; White et al., 2012).”
Cola, M., Muscatello, R. A., Zhang, X., Vandekar, S., McGonigle, T., & Corbett, B. A. (2026) · Research in Autism · doi:10.1016/j.reia.2026.202830
Norozi, M., Sarmukadam, K., Paterra, V., Parks, E. L., & Hogan, A. L. (2025) · Journal of Speech Language and Hearing Research · doi:10.1044/2025_jslhr-25-00219 · Cited by 1 · see citing works
Measurement invariance of the Child Behavior Checklist in autistic toddlers
Benninger, T. L., Norris, M., & Witwer, A. N. (2024) · Research in Autism · doi:10.1016/j.rasd.2024.102500 · Cited by 1 · see citing works
Cleinmark, P. D., Freeman, A., McKenney, E. L. W., Kehl, L. M., Hupp, S., & Jewell, J. D. (2020) · Journal of Psychoeducational Assessment · doi:10.1177/0734282920930539
“…is unknown how anxiety symptoms interact with and influence ASD symptoms, and as yet, all investigations of that interaction have emphasized how the presence of ASD may affect anxiety measurement (e.g., Kaat & Lecavalier, 2015; Rodgers et al., 2016; Scahill et al., 2019), rather than the converse.”
BackgroundMeasuring Psychiatric Symptoms in Individuals With Intellectual and Developmental Disabilities
Ahlers, K. P., Kurtz‐Nelson, E. C., Grebe, S. C., Samaco, R. C., & Storch, E. A. (2021) · Elsevier eBooks · doi:10.1016/b978-0-12-819641-0.00127-4
LA EVALUACIÓN MULTI-INFORMANTE EN EL TRASTORNO DEL ESPECTRO AUTISTA: UN ESTUDIO DE REVISIÓN
Tárraga-Mínguez, R., & Sanz-Cervera, P. (2020) · Papeles del Psicólogo · doi:10.23923/pap.psicol2020.2933
Zachary, A. (2018) · doi:10.18297/etd/3093
“Kaat and Lecavalier in 2015 studied the reliability and validity between parent and child rated anxiety measures in children with ASD (47).”
BackgroundResult
- Authors
- Kaat, A. J., & Lecavalier, L.
- Affiliations
- Northwestern University (US)
- The Ohio State University (US)
- Corresponding author
- Kaat, Aaron J.
- Venue
- Journal of Autism and Developmental Disorders
- Published
- 2015-06-03
- Volume
- 45
- Issue
- 10
- Pages
- 3219-3231
- ISSN
- 0162-3257 (ISSN-L)
- 1573-3432
- OpenAlex
- W1898848487
- Cited by
- 83
- References
- 0
- Citations by year
- 2026: 7 · 2025: 7 · 2024: 9 · 2023: 5 · 2022: 5 · 2021: 13 · 2020: 10 · 2019: 4 · 2018: 9 · 2017: 12 · 2016: 2
- FWCI
- 4.61
- Type
- journal article
- Language
- en
- Open access
- closed
- Licence
- www.springer.com/tdm (tdm)
- Locations
- Journal of Autism and Developmental Disorders (publishedVersion)
- PubMed (publishedVersion)
- Funders
- Ohio Department of Mental Health (Small Grants Program)
- Nisonger Center Research Fund
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Psychology › Experimental and Cognitive Psychology › Anxiety, Depression, Psychometrics, Treatment, Cognitive Processes
- Social Sciences › Psychology › Clinical Psychology › Child and Adolescent Psychosocial and Emotional Development
- Keywords
- autism spectrum disorder, anxiety, Revised Child Anxiety and Depression Scale, parent report, self-report, inter-rater reliability, parent-child agreement, convergent validity, discriminant validity, internal consistency, test-retest reliability, socio-cognitive skills, IQ, ASD severity, predictors of anxiety
- MeSH terms
- Autism Spectrum Disorder, Adolescent, Adult, Anxiety, Child, Female, Humans, Male, Parents, Psychiatric Status Rating Scales, Psychometrics, Self Report
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