Parent and child perspectives on the nature of anxiety in children and young people with autism spectrum disorders: a focus group study
Abstract
Anxiety disorders are common among children and young people with autism spectrum disorders (ASD). Despite growing knowledge about the prevalence, phenomenology and treatment of anxiety disorders, relatively little is understood about the nature and impact of anxiety in this group and little is known about autism-specific factors that may have a role in the increased prevalence of anxiety disorders. In this exploratory study, we report on a series of five focus groups with 17 parents of children and adolescents with ASD and anxiety. Across groups, parents gave strikingly similar descriptions of the triggers and behavioural signs associated with anxiety. Another consistent finding was that many parents reported that their children had great difficulty expressing their worries verbally and most showed their anxiety through changes in their behaviour. The impact of anxiety was reported to often be more substantial than the impact of ASD itself. The implications of the focus group findings are discussed in relation to existing literature.
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Many studies implicate excessive worry in autism regarding change, and excessive rigidity about things such as foods, rituals, and clothing.
“Many studies implicate excessive worry in autism regarding change, and excessive rigidity about things such as foods, rituals, and clothing [18, 19, 21-23].”
From Autistic Cognition: Charting Routes to Anxiety (2021) · cites this paper as [21]
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- Authors
- Ozsivadjian, A., Knott, F., & Magiati, I.
- Affiliations
- Guy's Hospital (GB)
- University of Reading (GB)
- National University of Singapore (SG)
- Venue
- Autism
- Publisher
- SAGE Publications
- Published
- 2012-02-01
- Volume
- 16
- Issue
- 2
- Pages
- 107-121
- ISSN
- 1362-3613 (ISSN-L)
- 1461-7005
- OpenAlex
- W1973148008
- Cited by
- 161
- References
- 33
- Citations by year
- 2026: 10 · 2025: 8 · 2024: 10 · 2023: 11 · 2022: 15 · 2021: 8 · 2020: 15 · 2019: 13 · 2018: 10 · 2017: 14 · 2016: 16 · 2015: 7 · 2014: 10 · 2013: 10 · 2012: 3
- FWCI
- 4.91
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Autism (publishedVersion)
- PubMed (publishedVersion)
- CentAUR (University of Reading) (acceptedVersion)
- National University of Singapore (submittedVersion)
- Research Portal (King's College London) (submittedVersion)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Psychology › Clinical Psychology › Child and Adolescent Psychosocial and Emotional Development
- Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
- Keywords
- autism spectrum disorder, anxiety disorders, children and adolescents, parental attitudes, anxiety triggers
- MeSH terms
- Activities of Daily Living, Adolescent, Anxiety, Child, Child Behavior, Child Development Disorders, Pervasive, Cognition, Female, Humans, Male, Parents, Stress, Psychological, Focus Groups
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