Design and development for individuals with ASD: fostering multidisciplinary approaches through personas
Abstract
Developing technologies to support individuals with ASD is a growing field of research facing numerous challenges. First, while the individual with ASD is central, the motivations of others, such as parents, are often taken as the motivations of the individual. Second, the desirable cross-disciplinary pollination for improved intervention can often face difficulties due to a lack of a common language among disciplines. Thirdly, the literature often lacks enough information to allow a clear understanding of the targeted contexts and goals not enabling an assessment of outcomes and building on past advances. To tackle these challenges, we propose that families of Personas and scenarios are used throughout the design and development process, and as dissemination resources, and provide illustrative examples.
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Personas are typical patient-profiles or user-profiles illustrating the target group of a treatment or product and can be useful in the development of digital interventions to communicate user needs to the development team.
“Personas are typical patient-profiles or user-profiles illustrating the target group of a treatment or product and can be useful in the development of digital interventions to communicate user needs to the development team.29 30”
From Development, evaluation and implementation of a digital behavioural health treatment for chronic pain: study protocol of the multiphase DAHLIA project (2022) · cites this paper as [30]
Cites
Determination and Quantification Of Content Validity
LYNN, M. R. (1986) · Nursing Research · doi:10.1097/00006199-198611000-00017 · Cited by 6,775 · see citing works
Wong, C., Odom, S. L., Hume, K. A., Cox, A. W., Fettig, A., Kucharczyk, S., Brock, M. E., Plavnick, J. B., Fleury, V. P., & Schultz, T. R. (2015) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-014-2351-z · Cited by 1,584 · see citing works
What should autism research focus upon? Community views and priorities from the United Kingdom
Pellicano, E., Dinsmore, A., & Charman, T. (2014) · Autism · doi:10.1177/1362361314529627 · Cited by 800 · see citing works
Personas and user-centered design: how can personas benefit product design processes?
Miaskiewicz, T., & Kozar, K. A. (2011) · Design Studies · doi:10.1016/j.destud.2011.03.003 · Cited by 559 · see citing works
McNaughton, D., & Light, J. (2013) · Augmentative and Alternative Communication · doi:10.3109/07434618.2013.784930 · Cited by 431 · see citing works
Dingfelder, H. E., & Mandell, D. S. (2010) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-010-1081-0 · Cited by 425 · see citing works
Mazurek, M. O., & Wenstrup, C. (2012) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-012-1659-9 · Cited by 285 · see citing works
Frauenberger, C., Good, J., & Keay‐Bright, W. (2011) · CoDesign · doi:10.1080/15710882.2011.587013 · Cited by 268 · see citing works
In pursuit of rigour and accountability in participatory design
Frauenberger, C., Good, J., Fitzpatrick, G., & Iversen, O. S. (2014) · International Journal of Human-Computer Studies · doi:10.1016/j.ijhcs.2014.09.004 · Cited by 267 · see citing works
Technology-Aided Interventions and Instruction for Adolescents with Autism Spectrum Disorder
Odom, S. L., Thompson, J., Hedges, S. H., Boyd, B. A., Dykstra, J. R., Duda, M. A., Szidon, K. L., DaWalt, L. S., & Bord, A. (2014) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-014-2320-6 · Cited by 259 · see citing works
How do designers and user experience professionals actually perceive and use personas?
Matthews, T., Judge, T., & Whittaker, S. (2012) · Proceedings of the SIGCHI Conference on Human Factors in Computing Systems · doi:10.1145/2207676.2208573 · Cited by 245 · see citing works
Gotham, K., Marvin, A. R., Taylor, J. L., Warren, Z., Anderson, C. M., Law, P. A., Law, J. K., & Lipkin, P. H. (2015) · Autism · doi:10.1177/1362361315583818 · Cited by 217 · see citing works
Improving research about us, with us: a draft framework for inclusive autism research
Chown, N., Robinson, J., Beardon, L., Downing, J., Hughes, L., Leatherland, J., Fox, K., Hickman, L., & MacGregor, D. (2017) · Disability & Society · doi:10.1080/09687599.2017.1320273 · Cited by 216 · see citing works
Lorah, E. R., Parnell, A., Whitby, P. J. S., & Hantula, D. A. (2014) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-014-2314-4 · Cited by 213 · see citing works
An inclusive design approach for developing video games for children with Autism Spectrum Disorder
Malinverni, L., Mora-Guiard, J., Padillo, V., Valero, L., Amaia Hervas, G., & Parés, N. (2016) · Computers in Human Behavior · doi:10.1016/j.chb.2016.01.018 · Cited by 201 · see citing works
Hendriks, N., Slegers, K., & Duysburgh, P. (2015) · CoDesign · doi:10.1080/15710882.2015.1020316 · Cited by 166 · see citing works
Developing technology for autism: an interdisciplinary approach
Porayska‐Pomsta, K., Frauenberger, C., Pain, H., Rajendran, G., Smith, T. J., Menzies, R., Foster, M. E., Alcorn, A. M., Wass, S. V., Bernadini, S., et al. (2011) · Personal and Ubiquitous Computing · doi:10.1007/s00779-011-0384-2 · Cited by 157 · see citing works
Light, J., & McNaughton, D. (2013) · Augmentative and Alternative Communication · doi:10.3109/07434618.2013.848935 · Cited by 154 · see citing works
Benton, L., & Johnson, H. (2015) · International Journal of Child-Computer Interaction · doi:10.1016/j.ijcci.2015.07.001 · Cited by 148 · see citing works
Huijnen, C. A. G. J., Lexis, M. A. S., Jansens, R., & de Witte, L. (2017) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-017-3235-9 · Cited by 119 · see citing works
Fletcher‐Watson, S. (2013) · Review Journal of Autism and Developmental Disorders · doi:10.1007/s40489-013-0003-4 · Cited by 116 · see citing works
Designing technology for and with developmentally diverse children
Börjesson, P., Barendregt, W., Eriksson, E. W., et al. (2015) · ACM International Conference on Interaction Design and Children (IDC) · doi:10.1145/2771839.2771848 · Cited by 104 · see citing works
van Schalkwyk, G. I., Marin, C. E., Ortiz, M. Z., Rolison, M. J., Qayyum, Z., McPartland, J. C., Lebowitz, E. R., Volkmar, F. R., & Silverman, W. K. (2017) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-017-3201-6 · Cited by 100 · see citing works
Griffiths, S., Jarrold, C., Penton‐Voak, I. S., Woods, A. T., Skinner, A., & Munafo, M. R. (2017) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-017-3091-7 · Cited by 94 · see citing works
Designing for young children with autism spectrum disorder: A case study of an iPad app
Fletcher‐Watson, S., Pain, H., Hammond, S., Humphry, A., & McCONACHIE, H. R. (2016) · International Journal of Child-Computer Interaction · doi:10.1016/j.ijcci.2016.03.002 · Cited by 87 · see citing works
iPads and the Use of “Apps” by Children with Autism Spectrum Disorder: Do They Promote Learning?
Allen, M. L., Hartley, C., & Cain, K. (2016) · Frontiers in Psychology · doi:10.3389/fpsyg.2016.01305 · Cited by 85 · see citing works
Child-based personas: need, ability and experience
Antle, A. N. (2007) · Cognition Technology & Work · doi:10.1007/s10111-007-0071-2 · Cited by 83 · see citing works
Cox, D. J. (2012) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-012-1530-z · Cited by 77 · see citing works
Gaudion, K., Hall, A., Myerson, J., & Pellicano, E. (2015) · CoDesign · doi:10.1080/15710882.2014.997829 · Cited by 69 · see citing works
Using iPads to Teach Communication Skills of Students with Autism
Xin, J. F., & Leonard, D. A. (2014) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-014-2266-8 · Cited by 68 · see citing works
Interpreting input from children
Frauenberger, C., Good, J., Keay‐Bright, W., & Pain, H. (2012) · CHI Conference on Human Factors in Computing Systems · doi:10.1145/2207676.2208399 · Cited by 63 · see citing works
Matthews, T. L., Whittaker, S., Moran, T., & Yuen, S. (2011) · CHI Conference on Human Factors in Computing Systems · doi:10.1145/1978942.1979272 · Cited by 62 · see citing works
Does a Persona Improve Creativity?
So, C., & Joo, J. (2017) · The Design Journal · doi:10.1080/14606925.2017.1319672 · Cited by 60 · see citing works
Towards methods for evaluating and communicating participatory design: A multimodal approach
Malinverni, L., Mora-Guiard, J., & Parés, N. (2016) · International Journal of Human-Computer Studies · doi:10.1016/j.ijhcs.2016.03.004 · Cited by 59 · see citing works
Benton, L., & Johnson, H. (2013) · Instructional Science · doi:10.1007/s11251-013-9297-y · Cited by 53 · see citing works
Parsons, S., Guldberg, K., Porayska‐Pomsta, K., & Lee, R. Z. Y. (2015) · International Journal of Research & Method in Education · doi:10.1080/1743727x.2015.1019852 · Cited by 51 · see citing works
Fabri, M., Andrews, P. C. S., & Pukki, H. (2016) · Journal of Assistive Technologies · doi:10.1108/jat-02-2016-0008 · Cited by 51 · see citing works
A method for involving children with autism in design
Millen, L., Cobb, S. V. G., & Patel, H. (2011) · ACM International Conference on Interaction Design and Children (IDC) · doi:10.1145/1999030.1999057 · Cited by 48 · see citing works
Co-constructing child personas for health-promoting services with vulnerable children
Wärnestål, P., Svedberg, P., & Nygren, J. (2014) · CHI Conference on Human Factors in Computing Systems · doi:10.1145/2556288.2557115 · Cited by 47 · see citing works
Grandparents’ Experience of Autism Spectrum Disorder: Identifying Primary Themes and Needs
Hillman, J., Wentzel, M. C., & Anderson, C. M. (2017) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-017-3211-4 · Cited by 46 · see citing works
Diener, E., Wright, C., Dunn, L., Wright, S. D., Anderson, L. L., & Smith, K. (2015) · International Journal of Disability Development and Education · doi:10.1080/1034912x.2015.1053436 · Cited by 43 · see citing works
Lubas, M. M., Mitchell, J. R., & Leo, G. D. (2014) · SAGE Open · doi:10.1177/2158244014537501 · Cited by 40 · see citing works
A Web-based Application to Address Individual Interests of Children with Autism Spectrum Disorders
da Silva, M. L., Gonçalves, D. J. V., Guerreiro, T., & Silva, H. (2012) · Procedia Computer Science · doi:10.1016/j.procs.2012.10.003 · Cited by 37 · see citing works
Fletcher‐Watson, S. (2014) · TechTrends · doi:10.1007/s11528-014-0825-7 · Cited by 36 · see citing works
Brosnan, M., Parsons, S., Good, J., & Yuill, N. (2016) · Journal of Assistive Technologies · doi:10.1108/jat-12-2015-0033 · Cited by 36 · see citing works
Introduction to technologies in the daily lives of individuals with autism
Shic, F., & Goodwin, M. (2015) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-015-2640-1 · Cited by 35 · see citing works
Judge, T. K., Matthews, T. L., & Whittaker, S. (2012) · ACM SIGCHI Conference on Human Factors in Computing Systems (CHI) · doi:10.1145/2207676.2208344 · Cited by 34 · see citing works
Rethinking autism and technology
Frauenberger, C. (2015) · interactions · doi:10.1145/2728604 · Cited by 27 · see citing works
THE ROLE OF SCENARIOS AND DEMONSTRATORS IN PROMOTING SHARED UNDERSTANDING IN INNOVATION PROJECTS
Steen, M., Buijs, J. A., & Williams, D. (2013) · International Journal of Innovation and Technology Management · doi:10.1142/s021987701440001x · Cited by 27 · see citing works
The Use of Technology in the Treatment of Autism
Lofland, K. B. (2015) · Autism and child psychopathology series · doi:10.1007/978-3-319-20872-5_3 · Cited by 27 · see citing works
Bonnardel, N., Forens, M., & Lefevre, M. (2016) · The Design Journal · doi:10.1080/14606925.2016.1129145 · Cited by 23 · see citing works
Diener, M. L., Wright, C., Wright, S. D., & Anderson, L. L. (2015) · Autism and child psychopathology series · doi:10.1007/978-3-319-20872-5_9 · Cited by 20 · see citing works
Persona logical thinking: improving requirements elicitation for multidisciplinary teams
Barré, J., Stéphanie Buisine, A., & Aoussat, A. (2017) · CoDesign · doi:10.1080/15710882.2017.1301959 · Cited by 20 · see citing works
GRANDPARENTS’ EXPERIENCE OF AUTISM SPECTRUM DISORDER: IDENTIFYING PRIMARY THEMES AND NEEDS
(2016) · The Gerontologist · doi:10.1093/geront/gnw162.649 · Cited by 16 · see citing works
Comment on Technology-Based Intervention Research for Individuals on the Autism Spectrum
McCleery, J. P. (2015) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-015-2627-y · Cited by 16 · see citing works
Mora-Guiard, J., Malinverni, L., & Parés, N. (2014) · CHI Conference Extended Abstracts on Human Factors in Computing Systems (CHI EA) · doi:10.1145/2559206.2581292 · Cited by 13 · see citing works
Collaborative design for young children with autism: Design tools and a user study
McCrickard, D. S., Abel, T. D., Scarpa, A., Wang, Y., & Niu, S. (2015) · International Conference on Collaboration Technologies and Systems (CTS) · doi:10.1109/cts.2015.7210418 · Cited by 10 · see citing works
Exploring the Role of Adults in Participatory Design for Children on the Autism Spectrum
Boyle, B., & Arnedillo‐Sánchez, I. (2016) · Lecture notes in computer science · doi:10.1007/978-3-319-40409-7_21 · Cited by 8 · see citing works
“Tell Your Day”: Developing Multimodal Interaction Applications for Children with ASD
Vieira, D., Leal, A., Almeida, N., et al. (2017) · Lecture notes in computer science · doi:10.1007/978-3-319-58706-6_43 · Cited by 7 · see citing works
Personas and Scenarios Based on Functioning and Health Conditions
Queirós, A., Cerqueira, M., Martins, A. I., Silva, A. G., Alvarelhão, J., & Rocha, N. P. (2014) · Advances in systems analysis, software engineering, and high performance computing book series · doi:10.4018/978-1-4666-6485-2.ch014 · Cited by 6 · see citing works
Participatory Design with Children in the Autism Spectrum
Hourcade, J. P. (2017) · Routledge eBooks · doi:10.4324/9781315630830-12 · Cited by 6 · see citing works
Emotionally-Aware Multimodal Interfaces
Henriques, T. M., Silva, S., Brás, S., Soares, S. C., Almeida, N., & Teixeira, A. J. S. (2018) · International Conference on Software Development and Technologies for Enhancing Accessibility and Fighting Info-exclusion (DSAI) · doi:10.1145/3218585.3218589 · Cited by 6 · see citing works
Self-citationAllen, P. P., & Sewell, N. (2014) · SAGE Open · doi:10.1177/2158244014537500 · Cited by 5 · see citing works
Child-Persona: What I Think to What They Are
da Costa, A. C., Rebelo, F., & Teles, J. M. V. (2016) · Advances in intelligent systems and computing · doi:10.1007/978-3-319-41983-1_5 · Cited by 5 · see citing works
Designing with Vulnerable Children
Culén, A. L., & Karpova, A. (2014) · Advances in human and social aspects of technology book series · doi:10.4018/978-1-4666-6228-5.ch007 · Cited by 4 · see citing works
Autism: Historic View and a Current Biomedical Engineering Approach [Retrospectroscope]
Pérez, E., Ponce, S., Piccinini, D., et al. (2015) · IEEE Pulse · doi:10.1109/mpul.2015.2456252 · Cited by 3 · see citing works
Autism: Historic View and a Current Biomedical Engineering Approach.
Pérez, E., Ponce, S., Piccinini, D., et al. (2016) · PubMed · Cited by 3 · see citing works
The IRIS Project: A Liaison between Industry and Academia towards Natural Multimodal Communication
Freitas, J., Candeias, S., Dias, M. S., Lleida, E., Orte-Ga, A., Teixeira, A., Silva, S., Acartürk, C., & Orvalho, V. (2014) · OpenMETU (Middle East Technical University) · doi:10.13140/2.1.4248.6085 · Cited by 2 · see citing works
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Bartels, S. L., Taygar, A. S., Johnsson, S. I., Petersson, S., Flink, I., Boersma, K., McCracken, L. M., & Wicksell, R. K. (2023) · Internet Interventions · doi:10.1016/j.invent.2023.100619 · Cited by 46 · see citing works
Bartels, S. L., Johnsson, S. I., Boersma, K., Flink, I., McCracken, L. M., Petersson, S., Christie, H. L., Feldman, I., Simons, L. E., Onghena, P., et al. (2022) · BMJ Open · doi:10.1136/bmjopen-2021-059152 · Cited by 23 · see citing works
- Authors
- Silva, S., & Teixeira, A.
- Affiliations
- University of Aveiro (PT)
- Corresponding author
- Silva, Samuel
- Venue
- Journal of Autism and Developmental Disorders
- Published
- 2019-01-30
- Volume
- 49
- Issue
- 5
- Pages
- 2156-2172
- ISSN
- 0162-3257 (ISSN-L)
- 1573-3432
- OpenAlex
- W2912198283
- Cited by
- 16
- References
- 69
- Citations by year
- 2026: 1 · 2025: 5 · 2024: 1 · 2023: 1 · 2022: 4 · 2021: 2 · 2020: 1 · 2019: 1
- FWCI
- 1.89
- Type
- journal article
- Language
- en
- Open access
- closed
- Licence
- www.springer.com/tdm (tdm)
- Locations
- Journal of Autism and Developmental Disorders (publishedVersion)
- PubMed (publishedVersion)
- Funders
- Funda??o para a Ci?ncia e a Tecnologia (CENTRO-01-0145-FEDER-000010)
- Topics
- Physical Sciences › Computer Science › Human-Computer Interaction › Persona Design and Applications
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Physical Sciences › Computer Science › Human-Computer Interaction › Usability and User Interface Design
- Keywords
- autism spectrum disorder, personas, scenarios, user-centered design, multidisciplinary collaboration, parents, design process
- MeSH terms
- Autism Spectrum Disorder, Humans, Personality, Psychotherapy, User-Computer Interface
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