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A Qualitative Exploration of the Female Experience of Autism Spectrum Disorder (ASD)

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Milner, Victoria, McIntosh, Hollie, Colvert, Emma, Happé, Francesca·2019·Journal of Autism and Developmental Disorders

DOI 10.1007/s10803-019-03906-4PMC PMC6546643

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Abstract

Autism spectrum disorder is thought to be a predominantly male diagnosis, however recent research suggests a smaller gender disparity in prevalence than previously assumed. Accounts of the female experience of autism are important to help reduce likely male-bias in current understanding and recognition of autism. Eighteen autistic females and four mothers of autistic females took part in discussions with a topic guide around diagnosis, impact and coping. A thematic analysis was conducted. Five themes were identified: fitting in the with the norm, potential obstacles for autistic women and girls, negative aspects of autism, the perspective of others, and positive aspects of having autism. We hope that greater understanding of the experiences of autistic females may lead to improved awareness, diagnosis and support for women and girls.

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Authors: Milner, V., McIntosh, H., Colvert, E., & Happé, F.
Affiliations: King's College London (GB)
Corresponding author: Milner, Victoria
ORCID: Milner, Victoria
Colvert, Emma
Venue: Journal of Autism and Developmental Disorders
Publisher: Springer Science and Business Media LLC
Published: 2019-02-21
Volume: 49
Issue: 6
Pages: 2389-2402
ISSN: 0162-3257 (ISSN-L)
1573-3432
DOI: 10.1007/s10803-019-03906-4
PMC: PMC6546643
OpenAlex: W2917614824
Cited by: 262
References: 31
Citations by year: 2026: 25 · 2025: 33 · 2024: 58 · 2023: 42 · 2022: 38 · 2021: 36 · 2020: 23 · 2019: 7
FWCI: 15.12
Type: journal article
Language: en
Open access: hybrid
doi.org
Licence: cc-by
creativecommons.org/licenses/by/4.0 (tdm)
Locations: Journal of Autism and Developmental Disorders (publishedVersion, cc-by)
PubMed Central (publishedVersion, cc-by)
PubMed (publishedVersion)
Research Portal (King's College London) (publishedVersion, cc-by)
Funders: Economic and Social Research Council (ES/M011488/1)
Topics: Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
Keywords: autism spectrum disorder, autistic women, autistic girls, lived experience, diagnosis, coping, gender bias, mothers of autistic children, autism awareness
MeSH terms: Autism Spectrum Disorder, Adaptation, Psychological, Adolescent, Adult, Child, Female, Humans, Longitudinal Studies, Mothers, Sex Characteristics, Thinking, Prevalence, Qualitative Research, Young Adult

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A Qualitative Exploration of the Female Experience of Autism Spectrum Disorder (ASD)

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