People Living with Inflammatory Bowel Disease Want Multidisciplinary Healthcare: A Qualitative Content Analysis
Open accessAbstract
This study reports on the preferences of people with inflammatory bowel disease (IBD) for their healthcare. Overall, 477 people with IBD responded to an open-ended survey question within a larger study. We qualitatively content-analysed these responses with open coding using NVivo. Respondents expressed a desire for (1) better communication, (2) multidisciplinary care, (3) better treatment, services and specialist care, (4) whole person care, (5) health promotion, (6) proactive healthcare, (7) fewer administrative issues and (8) improved hospital experience. Patients with IBD want patient-centred, multidisciplinary care. Healthcare professionals should facilitate patients' access to proactive care.
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Perspectives shared by participants that an IBD-specific psychological intervention would be particularly valuable close to time of diagnosis was congruent with past research and may be useful in informing best practice models of care.
“Perspectives shared by participants in the current study that an IBD-specific psychological intervention would be particularly valuable close to time of diagnosis was congruent with past research and may be useful in informing best practice models of care (Dober et al., 2021; Fawson et al., 2022; Feeney et al., 2022).”
From Moving Towards Acceptance and Values: A Qualitative Study of ACTforIBD Compared to IBD Psychoeducation (2024) · cites this paper as Feeney et al., 2022
Cites
Content Analysis: An Introduction to its Methodology.
Shelley, M., & Krippendorff, K. (1984) · Journal of the American Statistical Association · doi:10.2307/2288384 · Cited by 24,305 · see citing works
The qualitative content analysis process
Elo, S., & Kyngäs, H. (2008) · Journal of Advanced Nursing · doi:10.1111/j.1365-2648.2007.04569.x · Cited by 22,617 · cited 1× · see citing works
“Deductive content analysis creates categories from the data based on a pre-existing theory-based categorization matrix (Elo & Kyngäs, 2007).”
MethodContent Analysis: An Introduction to Its Methodology
Krippendorff, K. (2019) · doi:10.4135/9781071878781 · Cited by 15,448 · cited 3× · see citing works
“In qualitative content analysis, reliability is not calculated, but rather, trustworthiness must be demonstrated (Krippendorff, 2018).”
BackgroundMethodQualitative Content Analysis in Practice
Schreier, M. (2012) · doi:10.4135/9781529682571 · Cited by 5,801 · see citing works
The role of patient care teams in chronic disease management
Wagner, E. H. (2000) · BMJ · doi:10.1136/bmj.320.7234.569 · Cited by 1,048 · cited 1× · see citing works
“Multidisciplinary care has long been recognised as important in the management of chronic illnesses (Wagner, 2000), including heart transplant (Roussel et al., 2013), cancer (Kesson et al., 2012) and diabetes (Buggy & Moore, 2017).”
BackgroundKesson, E., Allardice, G. M., George, W. D., BURNS, H. J. G., & Morrison, D. S. (2012) · BMJ · doi:10.1136/bmj.e2718 · Cited by 580 · see citing works
Mikocka-Walus, A., Knowles, S. R., Keefer, L., & Graff, L. (2016) · Inflammatory Bowel Diseases · doi:10.1097/mib.0000000000000620 · Cited by 567 · see citing works
Self-citationIntegrated care: a position paper of the WHO European Office for Integrated Health Care Services.
Groene, O., & García-Barbero, M. (2001) · PubMed · Cited by 443 · see citing works
Bi-directionality of brain–gut interactions in patients with inflammatory bowel disease
Gracie, D. J., Guthrie, E. A., Hamlin, P. J., & Ford, A. C. (2018) · Gastroenterology · doi:10.1053/j.gastro.2018.01.027 · Cited by 408 · see citing works
Mikocka-Walus, A., Pittet, V., Rossel, J.-B., von Känel, R., Anderegg, C., Bauerfeind, P., Beglinger, C., Begré, S., Belli, D., Bengoa, J. M., et al. (2016) · Clinical Gastroenterology and Hepatology · doi:10.1016/j.cgh.2015.12.045 · Cited by 348 · see citing works
Self-citationGröne (2001) · doi:10.5334/ijic.28 · Cited by 291 · see citing works
Sewell, J. L., & Velayos, F. S. (2012) · Inflammatory Bowel Diseases · doi:10.1002/ibd.22986 · Cited by 132 · see citing works
Sack, C., Phan, V. A., Grafton, R., Holtmann, G., van Langenberg, D. R., Brett, K., Clark, M., & Andrews, J. M. (2012) · Journal of Crohn's and Colitis · doi:10.1016/j.crohns.2011.08.019 · Cited by 121 · see citing works
Buggy, A., & Moore, Z. E. H. (2017) · Journal of Wound Care · doi:10.12968/jowc.2017.26.6.324 · Cited by 119 · see citing works
Living with Inflammatory Bowel Disease: A review of qualitative research studies
Fourie, S., Jackson, D. W., & Aveyard, H. (2018) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2018.07.017 · Cited by 112 · see citing works
Regueiro, M. D., Click, B. H., Anderson, A. J. M., Shrank, W. H., Kogan, J. N., McAnallen, S., & Szigethy, E. (2018) · Clinical Gastroenterology and Hepatology · doi:10.1016/j.cgh.2018.04.007 · Cited by 94 · see citing works
Lores, T., Goess, C., Mikocka-Walus, A., Collins, K. L., Burke, A. L. J., Chur-Hansen, A., Delfabbro, P., & Andrews, J. M. (2021) · Clinical Gastroenterology and Hepatology · doi:10.1016/j.cgh.2020.01.030 · Cited by 88 · see citing works
Self-citationSeeking Control Through the Determination of Diet
JAMIESON, A. E., Fletcher, P. C., & Schneider, M. A. (2007) · Clinical Nurse Specialist · doi:10.1097/01.nur.0000270015.97457.9c · Cited by 78 · see citing works
The Inflammatory Bowel Disease Specialty Medical Home
Regueiro, M. D., McAnallen, S., Greer, J. B., Perkins, S., Ramalingam, S., & Szigethy, E. (2016) · Inflammatory Bowel Diseases · doi:10.1097/mib.0000000000000819 · Cited by 72 · see citing works
Whelan, K., Murrells, T., Morgan, M., Cummings, F. J. R., Stansfield, C. J., Todd, A., Sebastian, S., Lobo, A., Lomer, M. C. E., Lindsay, J. O., et al. (2020) · American Journal of Clinical Nutrition · doi:10.1093/ajcn/nqaa395 · Cited by 69 · see citing works
Integrated Models of Care in Managing Inflammatory Bowel Disease: A Discussion
Mikocka‐Walus, A. A., Andrews, J. M., Bernstein, C. N., Graff, L. A., Walker, J. R., Spinelli, A., Danese, S., van der Woude, C. J., Goodhand, J., Rampton, D. S., et al. (2012) · Inflammatory Bowel Diseases · doi:10.1002/ibd.22877 · Cited by 68 · see citing works
Self-citationA Call for Standardization in Content Analysis Reliability
Lombard, M. (2004) · Human Communication Research · doi:10.1111/j.1468-2958.2004.tb00739.x · Cited by 67 · see citing works
Guadagnoli, L. A., Mutlu, E., Doerfler, B., Ibrahim, A., Brenner, D. M., & Taft, T. (2019) · Quality of Life Research · doi:10.1007/s11136-019-02170-4 · Cited by 66 · see citing works
Mikocka‐Walus, A. A., Andrews, J. M., Rampton, D. S., Goodhand, J., van der Woude, C. J., & Bernstein, C. N. (2014) · Journal of Crohn s and Colitis · doi:10.1016/j.crohns.2014.07.009 · Cited by 64 · see citing works
Self-citationMikocka‐Walus, A., Massuger, W., Knowles, S. R., Moore, G. T., Buckton, S., Connell, W., Pavli, P., Raven, L., & Andrews, J. M. (2020) · JGH Open · doi:10.1002/jgh3.12236 · Cited by 55 · see citing works
Self-citationPrasad, S. S., Potter, M. D. E., Keely, S., Talley, N. J., Walker, M. M., & Kairuz, T. E. (2019) · JGH Open · doi:10.1002/jgh3.12235 · Cited by 48 · see citing works
Cramm, J. M., & Nieboer, A. P. (2014) · Quality of Life Research · doi:10.1007/s11136-014-0813-6 · Cited by 47 · see citing works
Kemp, K., Dibley, L. B., Chauhan, U., Greveson, K., Jäghult, S., Ashton, K., Buckton, S., Duncan, J., Hartmann, P., Ipenburg, N., et al. (2018) · Greenwich Academic Literature Archive (University of Greenwich) · doi:10.1093/ecco-jcc/jjy020 · Cited by 36 · see citing works
Mikocka‐Walus, A., Massuger, W., Knowles, S. R., Moore, G. T., Buckton, S., Connell, W., Pavli, P., Raven, L., & Andrews, J. M. (2020) · Internal Medicine Journal · doi:10.1111/imj.14683 · Cited by 36 · see citing works
Self-citationInflammatory Bowel Disease Patient Experiences with Psychotherapy in the Community
Craven, M. R. A., Quinton, S., & Taft, T. (2018) · Journal of Clinical Psychology in Medical Settings · doi:10.1007/s10880-018-9576-5 · Cited by 35 · see citing works
Mangi, A. A., Gorham, N., Roussel, M. G., & Wilson, L. (2013) · Journal of Multidisciplinary Healthcare · doi:10.2147/jmdh.s31457 · Cited by 32 · see citing works
Park, J., Yoon, H., Shin, C. M., Park, Y. S., Kim, N., & Lee, D. H. (2020) · PLoS ONE · doi:10.1371/journal.pone.0233654 · Cited by 24 · see citing works
The Pain Experience of Patients Hospitalized With Inflammatory Bowel Disease
Bernhofer, E. I., Masina, V. M., Sorrell, J. M., & Modic, M. B. (2015) · Gastroenterology Nursing · doi:10.1097/sga.0000000000000137 · Cited by 23 · see citing works
Mikocka-Walus, A., Hanlon, I., Dober, M., Emerson, C., Beswick, L., Selinger, C., Taylor, J., Olive, L., Evans, S., & Hewitt, C. (2021) · Journal of Health Psychology · doi:10.1177/1359105320911427 · Cited by 23 · see citing works
Self-citationPhan, V.-A. H., van Langenberg, D. R., Grafton, R., & Andrews, J. M. (2012) · Frontline Gastroenterology · doi:10.1136/flgastro-2011-100086 · Cited by 21 · see citing works
Lee, C. K., MELMED, G. Y., Mann, A., Danovitch, I., Hedrick, R., McGovern, D. P. B., Targan, S., Shih, D. Q., Vasiliauskas, E. A., IsHak, W. W., et al. (2018) · Inflammatory Bowel Diseases · doi:10.1093/ibd/izy215 · Cited by 10 · see citing works
Personalized Inflammatory Bowel Disease Care Reduced Hospitalizations
Liu, J. J., Rosson, T. B., Xie, J. J., Harris, Z. P., McBride, R., Siegel, E. R., & Hagedorn, C. H. (2019) · Digestive Diseases and Sciences · doi:10.1007/s10620-019-05485-x · Cited by 10 · see citing works
Mikocka‐Walus, A. A., Power, M., Rook, L., & Robins, G. G. (2016) · Gastroenterology Nursing · doi:10.1097/sga.0000000000000261 · Cited by 8 · see citing works
Self-citationHanlon, I., Hewitt, C., Evans, S., Taylor, J., Selinger, C., & Mikocka-Walus, A. (2022) · Journal of Health Psychology · doi:10.1177/1359105320945001 · Cited by 4 · see citing works
Self-citationSwart, N., Wellsted, D. M., Lithgo, K., Price, T., & Johnson, M. W. (2013) · Gut · doi:10.1136/gutjnl-2013-304907.398 · Cited by 3 · see citing works
Flagged first, then by citations
1 of the 41 references couldn’t be matched to a known paper.
Cited by
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Treat to target in Crohn’s disease: A practical guide for clinicians
Srinivasan, A. R. (2024) · World Journal of Gastroenterology · doi:10.3748/wjg.v30.i1.50 · Cited by 47 · see citing works
“Patients also perceive a multidisciplinary approach to improve their quality of life and contribute towards a positive patient-physician relationship, with recent data also indicating that IBD patients value access to multidisciplinary care[101,102].”
Alten, R., An, Y., Kim, D., Yoon, S.-W., & Peyrin‐Biroulet, L. (2022) · Clinical Drug Investigation · doi:10.1007/s40261-022-01162-6 · Cited by 25 · see citing works
“Patients with RA and IBD value communication with HCPs, including explanation of medications and treatment options, as part of their multidisciplinary care [22, 23].”
BackgroundVernon‐Roberts, A., Chan, P., Christensen, B., Day, A. S., Havrlant, R., Giles, E. M., & Williams, A. (2024) · JGH Open · doi:10.1002/jgh3.13032 · Cited by 6 · see citing works
Wilkin, K., Evans, S., Van Niekerk, L., Romano, D., Fuller-Tyszkiewicz, M., Knowles, S., Chesterman, S., Raven, L., & Mikocka-Walus, A. (2024) · Journal of Clinical Psychology in Medical Settings · doi:10.1007/s10880-023-09999-5 · Cited by 5 · see citing works
“…by participants in the current study that an IBD-specific psychological intervention would be particularly valuable close to time of diagnosis was congruent with past research and may be useful in informing best practice models of care (Dober et al., 2021; Fawson et al., 2022; Feeney et al., 2022).”
ResultSelf-citationKnowledge Levels About Inflammatory Bowel Disease Vary Between Healthcare Professional Groups
Vernon‐Roberts, A., Blay, L., & Day, A. S. (2023) · Digestive Diseases and Sciences · doi:10.1007/s10620-023-08191-x · Cited by 4 · see citing works
“While patients still regard their gastroenterologist to be the preferred source of information [16–19], with increasing demands and pressures on the health system, many patients are finding access to such professionals increasingly difficult to obtain [20].”
DuBois, K., Blake, C. E., Rudisill, C., Harrison, S. E., & Hébert, J. R. (2024) · American Journal of Lifestyle Medicine · doi:10.1177/15598276241243300 · Cited by 4 · see citing works
Miles, M., Peña-Sánchez, J. N., Heisler, C., Cui, Y., Mathias, H., Stewart, M. J., & Jones, J. (2022) · Crohn s & Colitis 360 · doi:10.1093/crocol/otac046 · Cited by 4 · see citing works
Emerson, C., Skvarc, D., Fuller‐Tyszkiewicz, M., OLIVE, L. S., Gibson, P. R., & Mikocka‐Walus, A. A. (2022) · Digestive Diseases and Sciences · doi:10.1007/s10620-022-07476-x · Cited by 3 · see citing works
“In contrast to this, patients do seem to want integrated care as outlined by a recent qualitative study [31].”
BackgroundSelf-citationBredero, Q. M., Avest, M. M. T., Dijkstra, G. D. H., Fleer, J., & Schroevers, M. J. (2025) · Journal of Advanced Nursing · doi:10.1111/jan.16837 · Cited by 2 · see citing works
Simeone, S., Spagnuolo, R., Cosco, C., Tino, E., Pagnotta, R., & Doldo, P. (2025) · Gastroenterology Nursing · doi:10.1097/sga.0000000000000853 · Cited by 1 · see citing works
McAuliffe, T. L., Salwen‐Deremer, J. K., & Siegel, C. A. (2025) · Inflammatory Bowel Diseases · doi:10.1093/ibd/izaf090 · Cited by 1 · see citing works
Goren, I., Barkan, R., Dotan, I., Chauhan, U., Stretton, J., & Watson, M. (2025) · Springer eBooks · doi:10.1007/978-3-031-87503-8_56 · Cited by 1 · see citing works
A nurse case management tool for older patients with inflammatory bowel disease
Jennings, A. (2022) · World Journal of Advanced Research and Reviews · doi:10.30574/wjarr.2022.16.1.0909
Klonizakis, M., Gumber, A., Morley, A., Horspool, M. J., McIntosh, E., Levesley, M., McKeown, J., & Logan, P. (2023) · Healthcare · doi:10.3390/healthcare11202728
Specific Depressive Symptoms are Associated with Subtypes of Fatigue in Inflammatory Bowel Disease
Duarte, B. A., Said, H., & Salwen‐Deremer, J. K. (2026) · Journal of Clinical Psychology in Medical Settings · doi:10.1007/s10880-026-10152-1
Machado, M. B., Vieira, A., Orlandi, S. P., Xavier, M. O., de Souza, L. B. C., de Vasconcelos, M. I. L., & Guedes, L. S. (2026) · BMC Gastroenterology · doi:10.1186/s12876-026-04903-5
“These findings are aligned with those of Feeney et al., [17] who conducted a qualitative analysis of patient perspectives and found that individuals living with IBD often seek more integrated, patient-centered care models.”
Lester, J., Clark, M., Chur‐Hansen, A., & Mikocka‐Walus, A. A. (2026) · Journal of Health Psychology · doi:10.1177/13591053261480015
Self-citation
- Authors
- Feeney, M., Chur-Hansen, A., & Mikocka-Walus, A.
- Affiliations
- The University of Adelaide (AU)
- Venue
- Journal of Clinical Psychology in Medical Settings
- Published
- 2021-06-29
- Volume
- 29
- Issue
- 3
- Pages
- 570-577
- ISSN
- 1068-9583 (ISSN-L)
- 1573-3572
- OpenAlex
- W3176208134
- Cited by
- 17
- References
- 41
- Citations by year
- 2026: 3 · 2025: 4 · 2024: 4 · 2023: 2 · 2022: 4
- FWCI
- 1.41
- Type
- journal article
- Language
- en
- Open access
- green
- figshare.com
- Locations
- Journal of Clinical Psychology in Medical Settings (publishedVersion)
- PubMed (publishedVersion)
- Figshare (submittedVersion, cc-by)
- Topics
- Life Sciences › Biochemistry, Genetics and Molecular Biology › Genetics › Inflammatory Bowel Disease
- Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
- Health Sciences › Health Professions › General Health Professions › Patient Satisfaction in Healthcare
- Keywords
- inflammatory bowel disease, patient preferences, multidisciplinary care, patient-centered care, healthcare communication, holistic care, health promotion, proactive healthcare, hospital experience, administrative problems, specialist care
- MeSH terms
- Chronic Disease, Delivery of Health Care, Humans, Surveys and Questionnaires, Inflammatory Bowel Diseases, Patient-Centered Care
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