Lived experience in people with inflammatory bowel disease and comorbid anxiety and depression in the United Kingdom and Australia
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This study explored the lived experience of people with inflammatory bowel disease and anxiety/depression. It utilised a deductive biopsychosocial framework. Overall, 24 patients and 20 healthcare professionals from two countries participated. In the United Kingdom, the main themes included (1) bidirectional relationship between inflammatory bowel disease and mental health, (2) the need for healthcare integration and (3) lack of awareness about the disease. In Australia, (1) the ‘vicious cycle’ of inflammatory bowel disease and psychosocial health, (2) the need for biopsychosocial healthcare integration and (3) the stigma of a hidden disease. Better communication around mental illness is essential in improving inflammatory bowel disease healthcare.
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Previous qualitative research demonstrates individuals living with IBD find the acceptance aspect of ACT helpful in reducing their mental load, allowing them to get the most out of their life despite the chronic nature of the condition.
“In particular, previous qualitative research demonstrates individuals living with IBD find the acceptance aspect of ACT helpful in reducing their mental load, allowing them to get the most out of their life despite the chronic nature of the condition (Mikocka-Walus et al., 2021).”
From Moving Towards Acceptance and Values: A Qualitative Study of ACTforIBD Compared to IBD Psychoeducation (2024) · cites this paper as Mikocka-Walus et al., 2021
Feelings of shame reported by participants around their IBD are consistent with previous qualitative research demonstrating that individuals with IBD often experience a 'feeling of otherness,' resulting in them feeling they must suffer in silence.
“Feelings of shame reported by participants around their IBD are consistent with previous qualitative research which demonstrates that individuals with IBD often experience a “feeling of otherness,” resulting in them feeling they must suffer in silence (Mikocka-Walus et al., 2021; Muse et al., 2021).”
From Moving Towards Acceptance and Values: A Qualitative Study of ACTforIBD Compared to IBD Psychoeducation (2024) · cites this paper as Mikocka-Walus et al., 2021
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- Authors
- Mikocka-Walus, A., Hanlon, I., Dober, M., Emerson, C., Beswick, L., Selinger, C., Taylor, J., Olive, L., Evans, S., & Hewitt, C.
- Affiliations
- Deakin University, Australia
- University of York (GB)
- Deakin University (AU)
- Barwon Health (AU)
- Leeds Teaching Hospitals NHS Trust (GB)
- ORCID
- Venue
- Journal of Health Psychology
- Publisher
- SAGE Publications
- Published
- 2020-03-16
- Volume
- 26
- Issue
- 12
- Pages
- 2290-2303
- ISSN
- 1359-1053 (ISSN-L)
- 1461-7277
- OpenAlex
- W3011536296
- Cited by
- 23
- References
- 44
- Citations by year
- 2026: 4 · 2025: 3 · 2024: 5 · 2023: 3 · 2022: 3 · 2021: 3 · 2020: 2
- FWCI
- 1.61
- Type
- journal article
- Language
- en
- Open access
- green
- figshare.com
- Locations
- Journal of Health Psychology (publishedVersion)
- PubMed (publishedVersion)
- White Rose Research Online (University of Leeds, The University of Sheffield, University of York) (acceptedVersion)
- Figshare (submittedVersion, cc-by)
- Topics
- Life Sciences › Biochemistry, Genetics and Molecular Biology › Genetics › Inflammatory Bowel Disease
- Health Sciences › Medicine › Psychiatry and Mental health › Psychosomatic Disorders and Their Treatments
- Social Sciences › Psychology › Social Psychology › Mental Health Treatment and Access
- Keywords
- inflammatory bowel disease, anxiety, depression, lived experience, biopsychosocial model, psychiatric comorbidity, healthcare integration, disease awareness, stigma, patient-physician communication, United Kingdom, Australia
- MeSH terms
- Anxiety, Anxiety Disorders, Depression, United Kingdom, Humans, Inflammatory Bowel Diseases
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